Crazy Sexy Cancer in Seattle

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  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    Happy Groundhog Day to the Seattle crew!  It sure doesn't look like 6 more weeks of winter out here.  I'm heading out for a walk to enjoy the beautiful, dry morning.

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    Hi ladies,

    It is good to see a Seattle thread.  I was diagnosed on 01/07, had bi-lat on 01/14, start chemo on 02/15, then radiation shortly after that. Like all of you, I wasn't planning on taking this journey, but here I am.  Nice to see people nearby. 

    You are all in my thoughts and prayers and we blaze through this bumpy path!

  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    Vmarie -- I start chemo on 3/3.  Had my surgery on 1/11, so right behind you!

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    frosty1-I see that you are triple +++ too.  What is your chemo cocktail going to be?

    Mine is taxotere, carboplatin, herceptin and then hormonal therapy-plus i'm doing the Beth project.  Don't know if i will be getting the drug (avastin) or will be in the control group. 

  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    I get the same as you ... minus radiation and the Beth project.  I'm on the biphosphonate study that I will start after chemo.  I started out DCIS and after MX they found 2 small tumors that bumped me into the invasive group with all the positives.  Are you doing 6x over 3 months?

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    I am doing 6X-once every 3 weeks. 

    I went and bought a wig today.  At first, it was sad.  But, once I started trying on wigs, I found that they looked tons better than my own hair!!  I know a wig will be a pain, but I have to admit, I looked really good with it. 

  • cheers247
    cheers247 Member Posts: 270
    edited February 2010

    Hello Vmarie, I'm glad you found the Seattle thread!  It sounds like you're recovering ok from surgery.  I hope you are doing well otherwise too.

    I got the news last week that I'm NED!!  I know that my recurrance rate is high, but I'm going to enjoy it while I can!! XOXO

    www.caringbridge.org/visit/jessicam

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    Enjoy, enjoy enjoy!  So glad to hear that you are NED.  

  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    Just for fun my daughter and I hit the Party City store in Issaquah -- they have a fun selection of silly wigs.  Debating on the purple bob or the pink and black spike.  After finally growing my hair out for the last 4 years, I'm going in this week to get it short.  Thought I might as well get started.  And celebrated International Eat Ice Cream for Breakfast yesterday at Molly Moons in Capital Hill.  Vanilla honey lavender ice cream on warm oatmeal was heavenly!

  • Issymom
    Issymom Member Posts: 264
    edited February 2010

    Cheers - Congrats on the NED.  I have read some of your Caringbridge and know how amazing that milestone is.  Here's to wishing you years with NED!!

    Frosty -  I live in Issaquah.  I should go to the party store and try on some wigs.  It would be fun to get a silly one or just one that is "not me" to surprise people with.  Wonder what my husband would think if he came home to a blond or purple haired wife!!

    I went to the Elton John and Billy Joel concert last night.  It was fabulous concert and fun to do something so far away from cancer.

    If we aren't going to have snow and cold weather, bring on the spring!!!

    Lorrie

  • tkone
    tkone Member Posts: 511
    edited February 2010

    Hi ladies,

    I hope everyone is doing well.  I see a few pages back there was a request for the next get together.  We generally get together about once a quarter so it is time!!

    I am surprisingly free in March so I will toss out a  few dates and if everyone will let me know what works for them, we will put a date on the calendar.

    For those newbies, we generally get together at Red Robin at Pier 55 in Seattle since we have several that come from across the water.

    Here are some dates, let me know what works.

    March 3, 4, 9, 10, 11, 15, 16, 17, 18

    Hope everyone has a great week!

    Tracy 

  • tkone
    tkone Member Posts: 511
    edited February 2010

    Hi ladies,

    I hope everyone is doing well.  I see a few pages back there was a request for the next get together.  We generally get together about once a quarter so it is time!!

    I am surprisingly free in March so I will toss out a  few dates and if everyone will let me know what works for them, we will put a date on the calendar.

    For those newbies, we generally get together at Red Robin at Pier 55 in Seattle since we have several that come from across the water.

    Here are some dates, let me know what works.

    March 3, 4, 9, 10, 11, 15, 16, 17, 18

    Hope everyone has a great week!

    Tracy 

  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    It would be great to meet people that have been through/going through the same thing!  I start my chemo on 3/3, so the week after (March 10,11,15,16,17,18) would probably be best.

  • tkone
    tkone Member Posts: 511
    edited February 2010

    Frosty-thanks for the dates.  I can't remember where you are being treated, but best of luck with chemo.  It is definitely a scary thing to have to deal with but the good thing is that you can get through it and we (those of us who have gone through it) can help you.

    Tracy

  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    It is scary and not what I had originally planned.  But obviously someone else had other ideas.  Now I'm 'embracing' my soon to be bald head.  I found a pattern for a chemo beanie and some fleece and cotton remnants at JoAnn's yesterday, so thought I'd make a few -- I can always give away what I don't need.  I'm at VM downtown ... Dr Malpass is my onc and he is great.  I'm in to see Dr Wechter for my 4 week check-up this week.  I can't believe it has been a month.  I appreciate all the advice and comments from all you ladies that have been through this.  It definitely makes it easier knowing what's coming.

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    I too would like to meet others who are going through or have gone through this.  I start my chemo at overlake on 02/15.  My next chemo would be 3/8, so maybe the 16th, 17th or 18th. 

    I am pretty nervous about starting chemo.  I just keep putting one foot in front of the other and try to keep my anxiety at bay.  I think once I have my 1st round, i will at least know what to expect. 

  • Issymom
    Issymom Member Posts: 264
    edited February 2010

    The 16th or 18th would work for me.  It would be nice to meet some other local women going (or who have gone through) this.  I will be a little more than 1/2 way through my chemo then.

  • tkone
    tkone Member Posts: 511
    edited February 2010

    VMarie, hopefully you have found a chemo thread for those starting at the same time as you.  People are generally very helpful and it helps a lot to have others going through the same thing so you have an idea of what is "normal".  My only suggestion at this point is to drink lots of water the day before, the day of and the day after.  Flush it out of your system as quickly as possible.  Also, just say YES to anti Nausea and pain medication if you need it.  Don't be a hero, it won't help you.  Other than that, let people help you, get lots of rest and know that chemo goes through a cycle.  A couple of good days, a couple of bad days, and then back to the better days. 

    Issymom-We would love to meet you too.  The group is great and we have all become friends.  Did I read somewhere that you are doing the 3 day?  I am doing it this year as well (2nd year) and Carol (Can't think of what her handle is but it is Golfer something....) has done it several years also.  Are you on a team?

    I'll wait for more dates and finalize a date for us.

    Take care all!

    Tracy

  • Issymom
    Issymom Member Posts: 264
    edited February 2010

    Tkone - My sister and I are going to do it but haven't signed up yet.  We are both BRCA1+, so this is an important cause to keep up.  It looks like a great event.  I need to get walking more (especially now that the weather is getting better).

  • tkone
    tkone Member Posts: 511
    edited February 2010

    Issymom-IF you are interested, I am on a team called Valley Girls and Guys based out of Maple Valley that is a really awesome team (we were the second highest fundraising team last year) and Carol is on a team called Kindred Spirits that is based out of Shoreline/Everett area that is also really great (they are the 1st highest fundraising team last year)

    I know our team would love to have you and I'm sure Carol would echo the same thing for her team.  Let me know if you want any details.  This is my 3 day page with info for our team.  I don't know if Carol is signed up or not yet-I'll let her chime in when she can.

    http://www.the3day.org/site/TR/2010/SeattleEvent2010?px=2282716&pg=personal&fr_id=1471

    Tracy

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2010

    Tracy and Issy .... chiming in ..... I'm sign up (Carol Salo)  for the 3 Day hook, line and sinker.   Issy, your sister and you will not regret a moment of this inspiring event.    The beni's of signing up with a team is to take the experiences of the veteran walkers and sponge up all the info you can.   Can't wait to meet you !!!!!

    Tracy .... I'm good for probably any date in March .... I'll let the others start piping in !!!!!

  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    vmarie -- I start on 3/3, so I will let you know how it goes.

    Issymom -- I've been out walking and enjoying the weather in the Factoria area.  If you just want a buddy to walk with during the week (I was laid off in November), let me know.

    Looking forward to meeting all of you.

  • kw212
    kw212 Member Posts: 10
    edited February 2010

    Hi all,

    Just found this thread, I am in Seattle and had a bilat MX 1/21, at UWMC. I am on my second go-round, after DCIS and a lumpectomy in 2003. Found an enlarged node on my screening mammo last June, which was then biopsied and found to have IDC. So I did my chemo first, at SCCA. Good to find you other NW folks, even though none of us wants to be meeting for this particular reason. 

  • Flmgkat
    Flmgkat Member Posts: 25
    edited February 2010

    AW, oh so kwel...I'm in Normandy Park (for a little while, at least) and glad to find the thread of the Northwest.  I'm preparing for chemo #2 next week, as I experienced the first one rather interestingly..metallic mouth, dizziness, slight hair loss, bone pain and wondering how I managed to feed the cat.

    As always,

    FlamingKat

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    Tkone-thanks for the tips regarding Chemo.  I will check out the Feb Thread.

    Verene 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Hi all!  I would love to get together - March is great - except for the last week.  Looks like we have some new posters - happy you have found this thread.

    Jessica - congrats on the NED!  That is wonderful news.  

    vmarie, frosty - Tracy gave you good advice - once you start chemo, it is tolerable.  Not great, but you will get thru it.

    Carol - girl!  You sound GREAT and look great too (saw your photo on facebook)!  I can tell you are thrilled with your results.  

    I saw my plastic surgeon today for the 6 month check up - everything looks god.  See my oncl. next week.

    KW - I had surgery at UW and chemo at SCCA also.

    As I was on the ferry heading towards Seattle, the sun was shining and it was just beautiful.  My sister in Pasadena called and she was stuck in a hail storm.  El Nino!

  • frosty1
    frosty1 Member Posts: 420
    edited February 2010

    I love this weather.  It makes it nice to get outside and be active.  Had my 4-week check-up with my BS yesterday and she mentioned Anton's Hair Company in Bellevue that makes wigs from your own hair.  Anybody try that?  I plan on mostly hats and scarves, but want a wig for job interviews and special occasions. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Frosty - I did CMF, so have minimal hair loss.  However, I know three women that have bought wigs thru Anton and they are truly amazing.  Pricey, but seriously - no one would guess it was a wig.

    Same day service!  First you have a consultation and discuss the process and discuss your hair and style.  On the actual wig appt.  they cut your hair early in the day (9am).  You return at 3pm with a wig made from your hair!  WOW!  That is how it worked for a friend of mine.

    I was really amazed at the process and the quality.  I think insurance will reimburse you for some of it, but it is pricey.

  • Issymom
    Issymom Member Posts: 264
    edited February 2010

    Frosty - I have a wig made by Anton.  When I found out that I had to have Chemo, I was so sad and worried about how I would look.  I went to Anton's to find out about the process.  I was reassuring that I could get this wig if I wanted it.  As part of the consulation, Anton's son measured my head (I told him I had a big head and he said everyone thinks that).  Well, after measuring he said "oh my, you do have a big head".  I would have a VERY hard time to find a wig that would fit so the decision was made.  It cost $1500 (including tax).  My insurance paid $300.  I have a lot of gray and so I got it cut and colored every 5 weeks.  My hairdresser didn't charge me for my last 2 appointments (there's another $260+).  It will be quite some time before I have to go back for the cut and color (maybe I will be one of those whose hair comes back with no gray, fingers crossed), so in the end the cost is a wash.

    My avatar is me at the Anton's just before getting shaved.  I looked a lot happier than I was.  I think it was shock.  Below is my wig the next day (after a little more styling).  I have done a little more work to it and like it more now.  People say things like "it looks like your old hair" (it is), "did you get your haircut", etc.. I still wish it was attached to my head but I feel good when I go out. I wear it when I going out to something social, a meeting, showing clients homes, etc... but most of the time I wear my knit caps or scarves as they are more comfortable.

  • kw212
    kw212 Member Posts: 10
    edited February 2010

    Thanks for the welcome, aprilgirl1. I see from a post you made on another thread that you have a child with Asperger's... me too, my son is 12. Very interesting on that thread on stress how many Autism/Asperger's moms there were. Hope things are going well for your child (and you too!) 

    Kathy 

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