How long did you wait between diagnosis and surgery?
It's been almost 3 weeks since I've been diagnosed, and I am still seeing doctors prior to scheduling surgery. I have seen two surgeons and an oncologist, plus the radiation oncologist recommended by one of the surgeons. I have an appointment next week to see a second radiation oncologist, recommended by oncologist and PCP. I'm also supposed to consult her (radiation oncologist) on which surgeon she recommends. So by the time I see her, it will be about a month before I'm even able to start to schedule the surgery. So best case scenario now is about 6 weeks from diagnosis to surgery.
I know it's not an emergency and everyone says I don't have to rush it. But I just want this thing out of my body. Does 6 weeks (maybe more) seem reasonable amount of time?
Comments
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There was about six weeks between my diagnosis and surgery. I waited a month after finding the lump before seeing the doctor because I thought it might be a cyst. So, all together it was 11 weeks.
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I was dx on the wed before thanksgiving. I was scheduled for my wire guided localization on dec 29th when I went to have the wire placed the radiologist refused saying I had to much DCIS for a lumpectomy the surgery was cancelled. I saw my surgeon the next day and that afternoon I went to another radiologist for a second opinion which turned into a 2nd and 3rd since another radiologist was in and also view the mammo they had me retake at there imaging center, It was then decided that this radiologist would do my wire placement. The only problem was there is about a 20 mile distance between the Imaging ctr and the hospital and the rad dr was going to be away the following week well it took 2 weeks to get schedules together and on Jan 15th I had the lumpectomy. I had goods margins and I am healing well. I will start my rads on next monday 2/15
I did feel like you I didnt care I just wanted it out. I even went with the second opinion surgeon that i had to wait for to get an appoint since he was out with knee surgery himself over the Christmas holiday. I am glad I waited I was so scared I went in the office of both surgeons saying I wanted a mastectomy the 1st surgeon didnt try to talk me out of it he just said he would get an ultrasound done and that was it. The second surgeon said he would not recommened a mx and he explained to me that he could not in clear conscious give me a mastectomy from the reports he had, and that he would feel horrible if he did and the pathology report came back that I only had that small area of DCIS. So that gave me a better feeling that he felt pretty confident that I was going to be ok. I am so glad I didnt go for the gusto I feel it would have been overkill and unnecessary surgery for me. Good Luck to you and make the decisions that you feel are right for you remember it is you decision reguardless...Pat
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DSJ -
I, too, felt the same as you. Let's get this over with!!! Unfortunately, you are in for the long haul. I was diagnosed in Oct. 09. After many doc appts., my first surgery was beginning of Dec. I also had the misfortune of needing a re-excision because they didn't get clean margins the first time. That surgery was done a week later. My next step was radiation (you might have different treatment depending on the results of the surgery.) I had to get the OK from my surgeon to make sure I was healed enough to start treatment. My first treatment was mid Jan. and my last treatment is set for Mar. 4th.
So, unfortunately, there is no "hurry up" in all of this. Just lots of doctors' visits.
Good luck to you. There is so much info on this site. It has helped me tremendously.
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I waited a month to see the surgeon I wanted. Then, I had 2 lumpectomies over the next month that failed to achieve clean margins. I was being pushed to have a MX and could not wrap my brain around losing a breast, so I put everything on "auto-ignore" for about 3 months. My husband and kids kept harranging me so I finally gave in and had a MX/immediate DIEP about 4 1/2 months after my initial DCIS diagnosis. I had over 11 cm of high grade DCIS, but despite the delay, had no nodal invovlement, no microinvasion and required no further treatment beyond the MX.
Waiting is the worst, but you will get through it. I wish you a good path report and a quick recovery.
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Unfortunate mammogram: end of June 2009.
Initial diagnosis, biopsy #1: beginning of August 2009.
Second diagnosis, biopsy #2: end of September 2009.
BRCA tests (negative - but the process took 5 weeks), followed by multiple surgical consults, etc...........
Surgery, end of January 2010.
Do I get a "dragging it out" award?
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3 1/2 months from biopsy to fully bi-lateral mastectomy with immediate reconstruction (TE's). I was taking the time to yes do all the consults but also to do as much of my own research as possible.. Good luck!
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I found my lump at the end of Aug 09- didn't have surgery till Nov 4 09.
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I had mammogram two Mondays before Thanksgiving. Had biopsy for one suspicious area of calc. theMonday of Thanksgiving week. Found out the Monday after Thanksgiving that I had DCIS with some high-grade looking areas.
Visited a bunch of breast surgeons; got sick of seeing breast surgeons and chose one with an excellent rep at a pretty good hospital, tho found out from her that radiologist wanted me to have a second biopsy in light of path. results on another area of same breast. The three of us decided that it would be ok to have the biopsy along with the lumnpectomy (will mean two wire insertions) and it's scheduled for March 2.
I wish it could be sooner but that's just how all the schedules worked out, and most everyone was pretty reassuring that a few weeks wasn't goign to make a difference.
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I was diagnoised on November 16, 2009 and started meeting surgeons and the like right after Thanksgiving [first week of December]. The first surgeon didn't answer all my questions and I felt confused after our meetings. I went ahead with the MRIs she ordered but then ended up with a CAT scan and needle biopsies for my thyroid. And then I decided I really did want to talk to more doctors. I spoke with 2 plastic surgeons, an oncologist and a second surgeon. I liked the second surgeon--she was the first person to tell me I needed a radiation oncologist and even made the appointment for me. My first lumpectomy was feb 1, 2010. I got good margins almost everywhere so my second lumpectomy was on Monday. Now I have good margins and will be starting rads towards the end of march.
I'm glad I took the time to talk to lots of doctors and read lots of stuff so I could feel more informed about my decisions and less confused.
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I had my very first mammo on Nov. 4- Radiologist saw calcifications, went in for sterotatic biopsy Nov 24, Pathology positinve Nov. 28. Had lumpectomey Jan 7, began radiation Feb. 9.
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DSJ:
2 doctors told me that with DCIS, it had been in me anywhere from 4 to 7 years! So, I guess there's no huge rush. Although, I know how you feel about "getting it out." But you have a big decision to make about treatment, so do your research, ask questions, make those dreaded dr.visits, armed with questions. You want to make the best, informed decision you can and one that you can live with for the rest of your life. From my time of dx to my mx (MY decision), was 3.5 months. (I had had a lumpectomy inbetween.) As it turned out, all the breast tissue removed, along with the Sentinel node, was perfect. But I don't regret my decision; I'd do the same thing over again.Good luck and God bless you!!!
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Mammogram 24th Sept, Call back from screening centre 7th October, Biopsy 10th October, Results 13th October, Surgeon appt 16th Oct, surgery 21st October. The longest delay was getting a call back from the Breast Screen place as it's run by the government - basically they aren't very efficient over here.
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hi dsj-
If it looks like DCIS, I've heard it's not "life threatening", but if it looks like their might be some invasion or node involvement, time-line might be quicker?
It was 20 days. Some how I met with all specialists and had all tests done in one week. The nurse liaison was able to squeeze me in because I just wanted to get it all done right away. I think being diagnosed the week before x-mas was in my favor, not very busy around the holiday. But also, from all the test my DCIS was 10cm+, so perhaps that could have been another factor?
I couldn't have imagined waiting longer, sorry for a 6 week wait (UGH). However, I looked at it as an opportunity to get myself organized. I did a ton of purging of 'stuff'; made 3 trips to GoodWill. I didn't want to come home to visual clutter. Organized all my closets and cupboards... Also, it gave my friends an opportunity to put the word out for meals, light housekeeping and extra playdates for my kids.
Good luck, and I'll pray for a sooner date!
-cathy
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my tumor was found by accident so there was no preparation. Still, I was in surgery for lumpectomy almost immediately after biopsy and path report. squeaky wheel gets the grease and I had to push for surgery. Good luck, SV
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It was probably about 3.5 weeks after my tumour was found on a PET scan before I had the lumpectomy. After the core biopsy there was some concern that I had IDC and not DCIS (because the mass was so poorly differentiated). I had 10 days from the day I got the core biopsy result to the day I had surgery. But in my case my surgery was a high priority so they could start chemo for lymphoma which was diagnosed several weeks earlier.
BUT then - after the initial lumpectomy, once they knew it was DCIS for sure but didn't get clear margins, they were happy to wait another 7 months so I could have the chemo (+ some recovery time) before doing the mastectomy. There was a tiny risk that it could go invasive during that time but lessened somewhat because of the type of chemo I had. Nonetheless I was relieved when the final pathology report came through showing only further DCIS and no spread.
So, 6 weeks seems reasonable to me, especially if it allows you the time to digest the information and get the very best treatment lined up. There may be some decisions along the way and trust me it is better to have the luxury of time to think about these. Good luck!
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From what my surgeon said DCIS is very slow growing and that I had probably had it for years. I was diagnosed October 3 and had bilateral mastectomy on December 19. I don't think 6 weeks is a long time. I really can't say if I wasn't all that anxious about getting it out of me because I believe I ws in shock right up until surgery. I did elect a bilateral mastectomy because I didn't want to ever worry about it again. As it turned out, despite mammogram, ultra sound and MRI showing any abnormality, there was DCIS on the other side so it was just as well that I had both removed.
Good luck.
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Thank you all so much; it's very reassuring to hear other people took 6 weeks or more. I have seen so many (maybe too many) doctors: 2 breast surgeons, a radiation oncologist, an oncologist and my PCP. I had an appointment today to see the second radiation oncologist, recommended by the oncologist, but of course it is SNOWING here and I can't get to her. So I have to wait til Friday (I am so bummed out). The oncologist wanted me to talk to the radiation oncologist before I scheduled surgery (said to ask her to help me choose between the 2 breast surgeons because she worked closely with the surgeons). I thought today would be the day when I could schedule the surgery, because I would have had a chance to consult with radiation oncologist on surgeon, but now I will have to wait til Friday. So I guess (hope) that means surgery next week or the week after. I want this to be over--or at least to be in process.
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DSJ, You'll make it through all this. We all have...even when we didn't know if we could or what the next step would be. It's a scary, uncertain path. But once you've gone down it and look back, it's such a feeling of relief and becomes a memory. That'll happen to you too! Hang in there and may God's leading, guiding hand be on you.
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dsj
you've seen about the same number of people that I've seen except I also saw two plastic surgeons because i wanted to understand reconstruction issues that arose from my surgical choices. I don't think thats too many at all.
As others have said, with DCIS you've already had it for years. Don't force yourself to make fast decisions about something so significant when you don't really need to.
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After "interviewing" a bunch of specialists), I finally have my lumpectomy scheduled (I'm the person who started this thread): March 9--which will be about 7 weeks after diagnosis. Man, I hate this "hurry up and wait" part.
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I left my lump in August 09 and had a mammogram. The mammogram showed an abnormality, Went for a second opinion and had a mammogram and three biopsies on Nov. 13 and was diagnosed with DCIS on the 17th. Met with a BS and PS in Dec and second opinion BS and PS in late December and had surgery on Feb. 8th.
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I had my stereotactic biopsy on Nov. 30. My surgeon told me on Dec. 7 that is was DCIS, and I had my lumpectomy 2 days later, on Dec. 9. Because of the Christmas holiday and the fact that my surgeon was going on vacation for a week, they were somehow able to squeeze me in for surgery. It was nice to get the surgery overwith quickly, but looking back, I should have taken more time to do some research and ask questions. Not sure it was the smartest thing to move ahead so quickly, but it all turned out fine in the end. I am just finished my second week of radiation.
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