cancer on my mind ... ALL the time

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I was diagnosed with breast cancer 4 months ago ... Inflammatory breast cancer  -- stage IIIC ...

I have been having chemo therapy.  In two days I will be on my 7th treatment and then just one more to go and then surgery and after that radiation. 

I think my biggest issue is that I feel like I think about having cancer almost all the time ... everyday.  I need to find something else to focus on ... at least part of the time.

does this even make sense?  What is wrong with me ............  :o(

Comments

  • lexislove
    lexislove Member Posts: 2,645
    edited February 2010

    Nothing is wrong with you!

    Going through active treatment...how can you NOT think about BC every minute of the day. I did. Chemo rooms, doctor appointments, surgeon appointment, radiation....blah. Just blah!

    Things got better for me, after radiation. I had my time given back to me. I was lost because I wasnt sure what to do!...lol. Then I was put on the every 3month check thingy and started to live like I did before BC.

    I would suggest on your no chemo/ no doctor days to do something you enjoy. Anything. If you have hobbies, start up again or schedule time with friends catching up.

    It does get better.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Hey there, njdalex10, yes you are making sense!  This is a hard thing to go through and no one can know how they will react.  It is hard to not obsess about what is happening to your body. 

    I agree that it is good to figure out something else to focus on so that you aren't thinking about your diagnosis all of the time.  I have found that I can write out my thoughts, and then close my journal for awhile and it sort of contains my thoughts for a time.  Journalling can be a powerful tool.  You also might try a guided imagery CD, I have a friend who swears by that.  When I find myself really down, I also try to go for a short walk.  I know you are in the middle of treatment, and that going for a walk might not seem realistic, but even a really short walk, just in front of your house even, can do a world of good on changing your outlook.  Finally, I see that you have just started posting.  You might scan the different forums and see if there is a thread that you can join in on, I have found that threads that have folks with a similar diagnosis are really helpful.

    Hugs to you, I will keep a good thought for you.

    Susan

  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2010

    How could you NOT be thinking about it all the time?!!!! I agree with the above people; get a little exercise; on 'bad chemo days' I would just put on my tennis shoes and a timer and walk around and around the house. On good days, I would go outside and walk. Call friends and get together for lunch; then ask them about stuff that is going on in their lives, watch some funny old movies (I bought the 'Best of Johnny Carson' DVD's, which I always wanted to watch but never took time to do before). If there is craft you like to do, or hobbies you love already or ones would want to try; give them a whirl. I think anything that can get you mentally away from it for awhile is good......but how you feel right now is perfectly normal, and you are ahead of most people to realize that you do need to find some other things going on to keep from going nuts. Down the road, once active treatment is over; it will get better, and someday you will be surprised, and maybe even shocked, to find that 'cancer' didn't cross your mind for a whole day!! Best of Luck! Ruth

  • Abbey11
    Abbey11 Member Posts: 335
    edited February 2010

    There's nothing wrong with you!  I think what your feeling is totally normal.  Every breast cancer patient I've ever spoken with feels like they can't get it out of their mind.  I have spent my career working with high school kids.  You know how they say that teenage boys think of sex about 50% of the time?  Well, I feel like that except I'm thinking about breast cancer.  This means that I have to fit 100% of my regular thoughts into 50% of the time...and it's not working too well!  I think that's why I feel so distracted.  I will echo what the women above have said: any distraction is a good one.  Talk on the phone, read trashy novels, go out for a walk, borrow a friend's toddler.  I also find that I feel worse when I'm by myself and better when I'm out of the house and with other people.  I have also seen a counselor at the cancer center.  She's been an ear to listen when I didn't feel like I could inflict my worries on my husband and family. Hang in there! Good luck to you!

  • smerf
    smerf Member Posts: 615
    edited February 2010

    I think you are perfectly normal. I remember being the same way during tx, and only those who have been through it can understand. I agree with everything others above have said, and the exercise worked well for me. Getting out with people worked too, if I wasn't too tired to do it.

    It will get better gradually when tx is over. Four years later weeks go by without a thought of it, sometimes even months. When I do think of it, it is more in passing than anything else. Just a thought goes through my mind, and the next minute it is gone and I'm onto something else. I'm hoping and betting that that will happen for you. Give yourself time.

    Hang in there, and the best to you!

  • weety
    weety Member Posts: 1,163
    edited February 2010

    Yeah, I'm another one who can't stop thinking about the cancer.  It's constant, and it's consuming me.  I felt like I was much calmer during chemo when I knew I was actively doing something, but now that I'm done with chemo, I find myself consumed with the fears and "what ifs."  I don't know if this is telling me that  it's time to go on an antidepressant/anxiety drug, or if it is time to see a therapist to help me get past this. .. . I just don't know how to change the way I'm dealing with it.  I know it's not good, but I can't stop it.  My mind keeps going there. . . all the time. . . constantly.  I obsess over the statistics, I picture my kids without me,  and on and on and on.  How do you know when (and if) you need meds or therapy to get past it? 

  • gmw
    gmw Member Posts: 7
    edited February 2010
    I think anyone who has gone through this can identify with you.  There were some good ideas posted for you to think about.  Here is just one more that helped me.  I turned to the Lord and asked him for help through prayer and I found an interesting thing began to happen.  As I redirected my focus onto him and began to read the bible my 'gaze' was on him and my 'glance' was on my circumstances (ie my cancer).  Here are two scriptures that were a comfort to me. Psalm 34:18 "The Lord is close to the broken hearted; he rescues those who are crused in  spirit." and Psalm 34:8 "Taste and see that the Lord is good; blessed is the man who takes refuge in him."  I have found that God is near to us when we call out to him.  He can help us gain a new perspective and give us strength and courage to face things we once thought were impossible.  He also will help us accept what we don't understand by learning to trust in Him and His word.  Finally, if Jesus lives in our hearts by faith through repentance, then I am never really alone.  That helped me while I was receiving radiation treatments, and while I was so weak and sick with chemo.  God was to me and still is 'a very present help in trouble.'  God bless you as you continue on this unexpected journey.  Gina
  • GoodMommy
    GoodMommy Member Posts: 294
    edited February 2010

    Every emotion that your are feeling is normal.  When you hear those words, "You've got cancer", it changes your life.  You go to sleep thinking about it, you dream about it and you wake up thinking about it.  I always thought that if I ever got diagnosed, I would be in that almost curable group because of my diligence of exams and precautions.  However, when I got diagnosed what seemed to be a pre-cancerous condition turned out to be an advanced cancer with 15 of 20 nodes positive.  Let's fast-forward though...

     It is now almost 5 years later.  I still think about cancer; but not like I did at first.  It gets better.  Fill your life with family, friends and activities and remember Doctors help us but only God has our time in the books.  Eat healthy, love more deeply and remember to pray eveyday. 

    God bless,

     Chris

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