Panic Attacks
Hi everyone,
I just joined this forum today and i'm glad i did, I only have two more sesions of chemo to go, but for the last month or so, I have been having really bad pnic and anxiety attacks. I call support and we talk, but once that's over, I'm back to panic and nothing helps. has anyone been through this? How did you manage?
Thanks
Tarry1
Comments
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I was eventually diagnosed with something similar to PTSD after my LCIS diagnosis (in 2005). I had multiple earlier traumas. I knew I needed psychological help.
For me, intensive talk therapy (I go to a family therapist), biofeedback, and an antidepressant have helped. It has not been instantaneous. It took about 1-2 years before I was not dependably physically cringing during every doctor appointment.
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Terri1... Thanks for sharing your experience. I have had times when I have had anxiety attacks because this diagnosis was such a blow to me and my family. Once I got on this web site, I realized there is such a huge support group of women who know just what it is like. When people share, as you have done, it gives others hope and guidance as to how to handle what they may be going through. Sounds like you are doing the right thing in keeping in touch with a therapist. I have medication to take if it gets too difficult for me, but the Dr. said only to take it on the difficult days. I am also on Effexor XR and have been for some time due to an hereditary chemical imbalance. Perhaps that helps me as well. Congrats on your upcoming completion of chemo. Give yourself a pat on the back! Sometimes we need to do that! May God Bless you today and throughout this difficult time. Karen
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Tarry, a cancer diagnosis is a HUGE emotional blow! It rocks you to the bottom of your core. Many of us are prescriptions for anxiety, stress or depression. Do not be afraid to ask for chemical help, you need all the other strength you have to fight the cancer.
God Bless!
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Leaf-
That is interesting..what is similar to PTSD?
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jessicav wrote:
what is similar to PTSD?
I was told I have a condition similar to PTSD. Here are the DSM IV (written about 2000?) criteria.http://ncptsd.kattare.com/ncmain/ncdocs/fact_shts/fs_dsm_iv_tr.htmlp A new DSM is due out in the next couple of years, which may or may not re-define PTSD and panic attacks.
They have found in veterans (I am not a veteran) that people who have experienced multiple traumas are more at risk for PTSD.
This (2009)from the Netherlands, the first citation I could find. I'm not sure if they follow the DSM criteria, since the DSM criteria were developed in the USA.:
The lifetime prevalence of any potential trauma was 80.7%, and the lifetime prevalence of PTSD was 7.4%. Women and younger persons showed higher risk of PTSD. It was concluded that PTSD is a fairly common disorder and exposure to trauma is high throughout the population. Unexpectedly, prevalence rates resemble those found in the United States and are higher than in several other European countries. http://www.ncbi.nlm.nih.gov/pubmed/19645050
Panic attacks are not the same thing as PTSD, according to the DSM IV. I do not mean to hijack this thread.
Here are DSM IV criteria for Panic Attack, and more information about it.
The increased frequency and consistency of epidemiology studies in panic disorder research has rendered consistent prevalence estimations in different locations, cultures, and racial groups (Wittchen, 1993). Community-based studies estimate that in any given month, 0.5% of the population will be diagnosed with panic disorder [Katon, 1989], and worldwide studies consistently indicate a lifetime prevalence between 1.5% and 3.5% [Diagnostic, 1994]. According to the Epidemiologic Catchment Area study, a study of panic disorder prevalence in several large United States cities, approximately 9% of the population will have a panic attack at least once in their lives and more than 3% will have recurrent panic attacks, a criteria for panic disorder. This data supports the DSM-IV finding [Klerman, 1992]. http://tc.engr.wisc.edu/UER/uer97/author3/content.html (all emphasis is mine).
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Thank you all for your encouraging words, and My doctor actually prescribed Cipralex for me yesterday, I took one , but was still a little panicky this morining, Right now I feel really good for all the postive feedback, and I will try my hardest to take that with me for the rest of the day. I went to the pet store to look at the pets to lift my spirits and that helped a little. I'm trying everything I can. But the hardest thing for me is that I need to have people around me all the time which isn't always possible, right now I'm fine. Thanks again for your support.
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Tarry, it may take as long as 3 weeks for the medication to balance in your system. It has to build-up so give it a chance. Can you get a pet? Cats are amazing company and little maintenance...
Keep posting here so we know how you're doing.
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I had my first panic attack when the technician nearly hit me in the face with the radaition machine--twice! Has my second one during a nore needle biopsy with inadequate pain medication. I have one every time a needle comes near me now. I have xanax that helps, especially when I can predict a panic situation (going for blood work, doctor's appointments, mammograms, what have you). You're certainly not alone in this.
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Hi Tarry1-
I certainly could have written your post. I had extreme anxiety, depression, and panic attacks soon after diagnosis. My gp seemed stumped, and tried a range of medications to no avail. My oncologist said that I was having a reaction to the diagnosis, and wouldn't have a psychiatric condition for the rest of my life. Bless him, I hung on to that statement, because everyone else seemed to treat me like I was crazy, or at least unreasonable. My breast surgeon mentioned a psychiatrist she would recommend, and I somehow found the energy to call and get myself seen. I finally found some medication that helped (Remeron). It didn't work after awhile, and I was fortunate that Celexa, the next drug I tried, worked very well for me. But is was SO hard when I was having panic and depression. The day seemed to last forever. I called the network of strength hotline constantly. I did EMDR and counseling with a cancer survivor. I got back to exercising, which helped with the stress. I structured my day and made a list of things I wanted to accomplish, even if that was doing one load of laundry or cleaning out a drawer.
I also kept a journal, and wrote down every positive thing my oncologist said to me. I would read that list over and over again. I tried to get out of the house at least on a day, and to spend time in nature.
It gradually got better, especially when the spring came around (I live in Maine.) I started laughing again, and doing social things-a small amount at first. When my hair grew back into a cute short style, I felt even better. Then I got a parttime job, and started feeling almost normal. Now, about a year and a half after diagnosis I feel really good-like Spongebob sometimes...It's the best day ever!
Best best wishes to you and let us know how it's going,
Catherine
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Thanks for your replies, Barbie1958, I will give the medicine a chance to work, I was actually a little relaxed today (mind over matter I hope so) I actually have two cats , my Calico has taken to coming close enough to sit near me for a while then she leaves if I fall asleep sometimes. My other guy has diabetes so he's not low maintenance anymore and he eats all the time and everything, he's a cutie though.
NativeMainern I will be sure to watch out for the radiation machine,geez I can only imagine.Today I went to the pet store to look at the dogs, cats, etc and made friends with a beautiful talking parrot. Well at least I think he was talking to me.. That made me feel good and when I came home I fell asleep on the couch.
Right now I feel okay especially after reading your replies.Thank you so much, I really need and appreciate this support
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Thanks Leaf. That is terrific info. on DMV!
Best,
Jessica
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Hi ladies-
Wondering where and how to find treatment specifically for PTSD?
Best wishes,
Jessica
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Treatment is very individual. What works for one person may not work at all for the next person. Do what appeals to you.
Here is a link to places that may be helpful. Many of the studies are done on veterans, which may or may not apply to you. (I assume you are in the USA.) http://www.ptsd.va.gov/public/where-to-get-help.asp
Since I went into therapy before I knew my diagnosis, I didn't use this source. They way I found my current therapist, I looked on the web to find a psychological institute that I trusted. They had a referral psychologist, who referred me to a list of local therapists.
If you choose talk therapy, follow your gut. If you do not 'click' with a person, then look for another. I was in therapy before, and made a big mistake of seeing a person who did not want to address one of my main issues. It was not a complete waste; I did do some necessary work, but it would have been much more helpful to see someone else. I see a family therapist due to cost. (Psychiatrists and psychologists are often more expensive than family therapists.)
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Hi leaf thanks for your reply, actually today I received a phone call from the support group that I found here in town and they got me an appointment with a psychologist for this Wednesday (Yay) I really need to talk to someone in person one on one. For the past two days I haven't had any panic attacks but right now I am feeling kinda weird, I hope I'm just tired. I think I will go rest and thanks everyone for your support
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My life is one huge panic attack, not trying to be funny, but I really need some help here.
Where is the best place to start looking for treatment related to the severe panic and depression I am feeling? I have yet to have surgery, have had a few setbacks prior to starting bc treatment, and really don't know even who to ask or where to start.
Also, feeling like a major failure in life, is this par for the course, or am I overreacting?
I feel like there is such stigma attached to antidepressants, and don't really know how to ask my doctor without looking like I'm "weak."
What meds really help calm you down and get you thru the day? I feel like I spend most of mine in a "panic."
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It depends on what you want.
If you want a therapist, another option is many cancer centers have social workers who may be able to refer you to an appropriate person. Usually the referral or help by the social worker is free. Again, if for any reason, you don't like the therapist to which you are referred, don't stick with them. Find another. We all are different.
I just heard a podcast from NPR that claimed that antidepressants are now the most prescribed class of drugs. That does not stop perceived social stigma with mental health problems. It should not be that way, but many people think negatively about people with mental health issues. Maybe they would be more understanding were they in our shoes.
However, there are practicing judges out there who have schizophrenia, controlled by medications. (Schizophrenia is considered a psychosis.) His staff helps him out apparently when he starts having problems. Most people with anxiety/panic attacks/PTSD are considered 'neurotic', from what I understand.(I don't have much mental health expertise.)
People with serious conditions have every reason to have an emotional reaction to their situation, or to the uncertainty of their situation. It doesn't mean they are 'nuts' or 'weak'. Its a normal reaction to a serious situation.
I'm a pharmacist, so it was very embarrasing to go into PTSD attacks at doctor visits. (They were completely out of my conscious control. I am totally, completely aware they are totally irrational.) I had many episodes of PTSD attacks every day. I had no idea what was triggering them. It felt like it was a lightening bolt out of the blue.
Usually antidepressants or anti-anxiety meds (benzodiazepines) are used for anxiety disorders.
If you don't want to take antidepressants (such as SSRIs - there are different classes of antidepressants) or anti-anxiety drugs (such as alprazolam-Xanax or lorazepam-Ativan) there are different classes of drugs that can help some people. There are things like beta blockers (such as propranolol)- often used for blood pressure problems, but can help mask the external body signals of panic. There is clonidine, which is also used for blood pressure.
Some antidepressants help with pain control, which is independent of their antidepressant activity. Amitriptyline (Elavil) is one such medication.
I also found (for me) biofeedback helped me to detect when my body was in a state of panic, so I could try to calm myself.
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1vamom, the good thing that you did is recognize and ask for help, that's what I did and I am so thankful that I found this group, becacuse they are so supportive here. leaf your advice and suggestions are really good.
I found support groups that I can call in to and talk to Peer Support people, that seems to help me a bit , but I also went to my family doctor and he prescribed Cipralex to help me calm down. I am also going to see a psycholgist tommorow, who they say is really good. So, I hope this little bit of information helps. Good luck and let us know how you are getting on.
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Tarry1, you are so right about the kindness found here.
All info is much appreciated, sometimes it's hard to come out of a fog and really buckle down and do something to help yourself. I am determined to talk to some sort of counselor this week, 3 feet of snow or not. And am going to hold myself to this most important step, rather than just sit around feeling rotten. That first step, where you convince yourself you are worth someone's time and energy to help you, seems to be the worst, and the biggest to conquer.
Thanks to all who have put in a kind or firm word to remind me of this. It's helping.
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Tarry, I never had a panic attack in my life before I was diagnosed with Stage IV. After that, it was an every day occurence. I'm managing the fear and depression by meeting with a Stage IV support group at Memorial Sloan Kettering, taking an anti-depressant (Wellbutrin) and Clonazepam (0.5 gr) 2x per day. This regimen manages to keep me under control, but I have to be honest, there are days where nothing helps and I allow myself to just sit down and cry. Good luck to you, I know exactly how you feel.
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Hi, I am new at this. I was just diagnosed with breast cancer last week. tuesday I go to see the breast surgeon and they are talking lumpectomy (sp). I am a teacher and teach 1st grade. I love teaching and the kids are so precious. Lost my hubby in 2002 and went thru a bit of depression but not enough to really stop me from going on and teaching. These little guys keep me going, but I am scared i won't be able to work during chemo and I have to work because of being alone. I have been fighting being panicky and depressed ever since I have been diagnosed. I heard also I have a job next year again. I am so scared. I need positive thoughts and positive people but I do not want anyone to keep telling me it is going to be o.k. How do they know if they are not in my spot.
Dee
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Dee I too have panic attacks but I had them before the diagnosis...I take Xanax.
I had 4 A/C chemo then 12 Taxol...It shrunk my tumor and they did lumpectomy 1/28/10
Got Clear margins/clear lymph nodes...but I still get scared... you are right no one knows what
you are going thru...we all react differently have different types of cancer....I pray alot and lean
on family for support...this blog has helped me so much..I am doing radiation now have had
3 so far and 30 to go. All I can say is we are here for you! I have worked through all my treatment
only missing 1/2 day during chemo treatments and a few other days with minor issues...and had no sickness but like i said before everyone is different. I'm praying you will be one that can work during treatment!
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Hi everyone. I'm new to this thread. I too am suffering from depession, anxiety, irritability, etc. I know part of it is they took me off estrogen immediately after diagnosis in July. I am a total wreck. I know I also have some PTSD. Haven't joined any support groups or had any counseling. Years ago, I tried a couple of anti depressant. They made me feel terrible. Don't know really what to do.
When I have to go to the Dr. (which is alot, of course) I am so anxious now. My heart pounds, my blood pressure goes sky high.
What's the best thing to do? Would appreciate your input from your experience.
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I think the best thing to do is the thing(s) that appeal to you. Everyone's journey is different. Many times cancer centers have social workers that can help give you options.
For me, talk therapy has been very helpful, but some people find it unhelpful.
There are several different options you have if you want to go on the medication route. If antidepressants aren't for you, then there are anti-anxiety meds, or, if you don't want to go that route, there are medications that help curb the physical symptoms of anxiety such as beta-blockers such as propranolol (help prevent increased heart rate), or clonidine (also used for blood pressure.)
Some people find things ranging from meditation, exercise (assuming you are physically able), yoga, massage, aromatherapy, accupuncture, cognitive therapy, religion, in-person support groups, and many others I don't know about.
I think part of the trauma from having a potentially life threatening illness is the lack of control/uncertainty. I think that having choice in how to handle your situation gives you some small sense of control. We are all very different and have different needs.
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I am diagnosed with PTSD and a panic disorder from childhood abuse. i was very stable on meds for about a decade until after I had my first chemo. I had a terrible reaction to the Taxotere, but I donot think that is all that was involved. After chemo, I was put on prednisone which sends me into orbit and into panic attacks. But even off of the steroid, I found I was having unusual panic for me at my stage of recovery in mental health. I have been sober over 21 years (not a brag) and after the first chemo, I felt as though I was 'brain damaged." I only know the feeling because I had a lot of panic (like thru the roof) in early sobriety. My brain simply couldnot function, nor could it after the chemo. I had very little impulse control and too much fatigue to deal with anything. I found all of my emotions to be extremely raw and the anxiety was awful. For me, the chemo and its effects, triggered old feelings and emotions and I could notmuster the emotional, physical or spiritual resources to contend with the post chemo brain trauma. I had to switch anti-anxiety meds from klonopin to lorazepam. Therapy was of no use to me if I could not function well enough to get to my therapist. i had to wait until I was a little more stable on the new medications tobegin to work on the PTSD again (PTSD for me flairs up under stress and cancer is the most stressful event I can think of). I thought I would be able tojumpright backintomy daily activities after the chemo becasue that is what the doctor toldme would happen. Boy was he ever wrong. And six weeks after the first chemo, he continues to be wrong. I have to keep my day very simple; I have to set time aside for rest; I have to have proper nutrition (caffiene and sugar is a no-no for me) and; I am having to use all of the tools I used in early sobriety to try and 'stabilize' myself at a bio/psycho/social level. In short, no intense events going on for me (in a perfect world). And I truly have to vent a lot either here on the Board or with trusted friends who have been thru cancer and are further down the road than I am. Lastly, I had to learn how to breathe again and push myself to do daily exercise (like a walk to the mail box on some days-best I can do). I also curb my activities and try not to set myself up for failure. I do not know how women go back to work right after chemo. Grocery shopping may be allI can do one day with laundry the next. My house still looks like a dumpster with windows on it. Today is the first day I manage to clean the house a bit but I am paying for it in very sore muscles tonight. The one thing I am not doing well is getting enough sleep-because I am posting on the Board at 2 AM or something like that-errrgh. Good luck my dear, SV
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Hi Ladies - I think I am overdue to post on this board. I believe that I have been in denial for a long time and trying to believe that I am one of those 'strong' people like everyone tells me that I am. No pressure there right... Not exactly sure where I am at. Cancer got me off the hamster treadmill of life and now I am trying to get back on it but don't know where to start. Not sleeping well & still suffering from an unreasonable amount of fatigue considering my last chemo was on June 9th & rads finished the end of August. My mom passed away a few days after I was dx and I think it was all just too much to deal with. Saw a psychologist and a psychiatrist but neither helped much. Exercise & faith are the only things that work for me. I was misdiagnosed which left me with a lot of anger to deal with. I suffered from mild depression prior to my dx but was off medication and doing well. Fighting not to go on any meds as I am on cancer meds.
Still Verticle - Your post touched home to me. Also suffered from some child abuse as well as a divorce. My great 2nd husband has mentioned that maybe I have PTSD. I too have to keep my days simple. But, I try to challenge myself because I have now been out of treatment for a while. Sometimes, I fall on my face. I get overwhelmed at the simplist things. If I get tired, I physically and emotionally fall apart without any warning. (similar to a toddler) I had an extreme reaction to taxotere which I have read can lead to a longer recovery from the fatigue.
We really have to take care of ourselves. We are the only ones that know how we are doing. I find it difficult when people tell me I am doing great. Really? This is what great feels like? Sorry to ramble. I know that I have many blessings in my life but this is all so frustrating some times.
Massage does help. Has anyone tried accupuncture? What success have you found?
Take Care,
Bev
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Hi, Bev--I'm 3 years out and still not sleeping well. On the rare night I do sleep through I have nightmares, reliving all the treatment and waiting horrors. I like the comparison to a toddler's emotional state--a perfect description of what I still feel like much of the time! Massage certainly does help with the aches and pains. I am severely needle phobic now so I don't even think about accupuncture, but I have heard reports that it's very helpful to many. I have found that journaling and relaxation cds are helpful, but I still depend on xanax a couple times a week.
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Hi NativeMiner, I qas having awul panic attacka, I went to see my family doctor and he put me on Cipralex which seems to have calmed the anxiety a bit, I also go to Relaxation and visualization groups and also Reiki sessions and call and talk through how I'm feeling qith members at support places. I have also seen a psycholist who has given me some very helpful tips and information which have also helped me. So with all that support, I have managed to kep them at bay. Occasionally I still get them, but Itry to rely on the resources.
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ladies:
i think I have a nice dose of PTSD, early menopause stuff, bad sleeping too. I have wicked insomnia but one thing that works when I remember to do it: Books on tape. I put on one about 30 minutes before I want to go to sleep...and it really helps. It took me months to finish Memoirs of a Geisha on my MP3!!!
I take an ativan now and then when I get really worked up. It is the low dose (.5mg), so if I am really charged up it does not really hit the spot. I am trying brisk walking as fast as I can muster for as long as I can muster...maybe exercise can get my ya-ya's out. Just wish when someone goes near me with a BP cuff my pressure did not shoot up to the ceiling. Any Dr visit has me sweating, racing heart, cold hands, the works.....
Moogie
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moogie--I hear you about the BP cuff and doctor's offices. While the BP part isn't too bad for me, if I even suspect a needle might be involved I turn into a basket case a week before! My PCPs office has my chart flagged, they won't come near me with a needle unless I'm laying down because they got tired of catching me before I hit the floor! They've even learned to ask if I drove myself or have a driver--if I can't find someone to take me I can't take a xanax and apparently I shake alot when I haven't taken my xanax. I'll have to try the books on tape idea--I've noticed I sleep a bit better when I leave the radio on at night.
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NATIVEMAINER:
I have even taken my MP3 to the doctor's office. If I am left waiting in the exam room without a strong distraction, My heart starts to speed up and my body reacts like the devil himself is giving me a run for my money. I really recommend a tape with a pleasing reader: a great voice is the key to an engaging experience. I never was much interested in the novel LOLITA, but when Jeremy Irons read , it was great. He could read a cereal box and I'd be there for a listen...
I shake too, or start dropping stuff, losing things, misplacing keys...
Moogie
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