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  • elliem1207
    elliem1207 Member Posts: 1,583
    edited January 2010

    it was great meeting everyone--thanks deb for putting it all together. hope we can do this again soon.

    ellie

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  • deborye
    deborye Member Posts: 7,002
    edited January 2010

    I have 7 pictures all together, to the ones that gave me their e-mail, did you get 7 pictures?  I am a little wet behind the ears with sending out stuff.

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  • Morgan513
    Morgan513 Member Posts: 664
    edited January 2010

    I'd be game for a spa trip too!  Let start thinking about where and when!

    Lorrie 

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  • glostagirl
    glostagirl Member Posts: 388
    edited January 2010

    Did someone say spa?????  How nice, don't wait for me, but I'll be back in MA by May 1st.  Keep me posted. Glad ya'll had such a great day.  Me, I spent the day preparing for an onslaught on 11 & 12 years olds for my son's 12th b'day!  No complaints though, I'm just glad I'm here and feelin good!!!!  

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  • Sue-61
    Sue-61 Member Posts: 599
    edited January 2010

    Fabulous time! Too bad I had to go to the bathroom and didn't get a chance to say a proper good bye to everyone. It was wonderful to meet all you lovely gals. DEB, thanks for the planning. All of you, take care and stay out of the rain and sleet today. Sue

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  • chrisgelling
    chrisgelling Member Posts: 20
    edited January 2010

    Deborye -- thanks for doing such a good job of organizing. It was great meeting everybody. It would be nice if occasionally we could each post to the Boston site letting each other know how we are doing. In that vein, I was wondering if you might be willing to do another task and that is make a list of the women who were there with their website name and their real first name and post it. Without out that I am afraid I will lose track of who I met and what they look like. Again, I really benefited from meeting everyone and hearing a little about who we are and where we are on the journey.

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  • Jan244
    Jan244 Member Posts: 96
    edited January 2010

    Deb - thanks for taking the reins and doing the legwork that ended with such a nice afternoon.  It was terrific to have the chance to meet and chat with the wonderful women who were there.  I've PM'd you with my e-mail so I can have the photos to remember the day.  

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  • momand2kids
    momand2kids Member Posts: 1,508
    edited January 2010

    Chris,

    is this the Boston site?  should we keep posting here or is there somewhere else where we can keep track of each other?????

    thanks again deb! 

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  • deborye
    deborye Member Posts: 7,002
    edited January 2010

    I am getting soccermom2 and momand2kids mixed up, can someone help me.  Sue61 who was sitting on your left?  I thought it was soccormom2.

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  • deborye
    deborye Member Posts: 7,002
    edited January 2010

    I had fun, it's nothing as long as everyone is on the same page which we all were.

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  • Sukiann
    Sukiann Member Posts: 310
    edited January 2010

    Deb, I believe Soccermom2 was sitting to Sue61's left.  correct me someone if I'm wrong.  Momand2kids was at the end of the table on the same side as Sue61.

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  • deborye
    deborye Member Posts: 7,002
    edited January 2010

    Did everyone get the pictures?

    chrisgellin, I pm'd you my e-mail.

    I hope you all didn't mind me sending the pics in one e-mail with all your addys.

    Now I think I got this straight:

    starting with the pic that has all of us:

    me, Debbie (deborye)

    Ellie (elliem1207)

    Sue (sue61)

    Joan (soccermom2)

    Chris (chrisgellin)

    Carole (momand2kids

    on left:

    Dawn (dawnmrn1)

    Jan (jan244)

    Lorrie (Morgan513)

    Susan (sukiann)

    Judy

    Jen (jmar19)

    PHEW!

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  • chrisgelling
    chrisgelling Member Posts: 20
    edited January 2010

    Hi everyone, answer is yes. i meant that we could use this site to post updates on how we are all doing. Thanks Deb for sending the list--every group needs someone like you. If anyone has scans coming up or having a problem coping or gets good news, we could share it. Everything is calm with me with a tiny exception. I have these lumps on my eyelid. Eye doctor said that he thinks they are cholesterol deposits, but because of my history I should have an mri. I went for the mri but I could not stand being in the tube. I think I am going to look into going to an open mri machine, which I understand is in Brighton. I am sure many of you have had mri experiences. i was surprised as to how close the tube was to your face. Anyhow, not a real serious problem, just something that has to be worked through. Looking forward to seeing how the election goes tomorrow. Best to all.

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  • deborye
    deborye Member Posts: 7,002
    edited January 2010

    chris, did I send you the pics, i don't remember?

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  • Sue-61
    Sue-61 Member Posts: 599
    edited January 2010

    Chris, I will bet you that the lumps are cholesterol deposits. I used to work in the out patient dept with an eye surgeon every now and again. Saw lots of them. You should have shown them to be so I could diagnose you, ha. Let us know.

    Isn't it sad that every odd little thing gets really blown up once you have this dx? sheesh.

    I had a ball. Too bad about my bathroom break as I missed saying good bye to most of you. It was such a nice time. I am sure the poor waiter was glad when we left! Such a rowdy group??

    DEB, again thanks for all your hard work. You sure have a lot of energy.

    Sue 

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  • elliem1207
    elliem1207 Member Posts: 1,583
    edited January 2010

    chris,

    whenever i have an mri i always take an ativan about an hour before--i have a real problem with claustrophobia, but the ativan takes the anxiety away. i couldn't do the mri without it. good luck and let us know how everything goes.

    ellie

    xx

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  • deborye
    deborye Member Posts: 7,002
    edited January 2010
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  • deborye
    deborye Member Posts: 7,002
    edited January 2010

    My avatar reads, "May the fleas of a thousand camels infest the crotch of anyone who screws up your day,

    and may their arms be too short to scratch."

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  • elliem1207
    elliem1207 Member Posts: 1,583
    edited February 2010

    good morning boston girls!

    it's been almost a month since our get together, and i am hoping everyone is doing fine. i think it would be nice if we could give an update on how we all are doing.

    i'll start--i have scanxiety this weekend as i have a ct scan on mon--onc appt on wed. i'm on xeloda and my fingertips are a mess. i've been using bag balm and gloves at nite, but they are not any better, and this is my off week. anyone have any suggestions?

    is anyone planning on going to the ta-ta reunion in vegas?

    ellie

    xx

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  • deborye
    deborye Member Posts: 7,002
    edited February 2010

    Hi Ellie, I will be thinking of you and hoping everything is OK.  I had onc F/U last week, all went well.  I will see her again in May also a MRI on Pancreas cause of a cyst they found in 2007 when I was dx, it disappeared and she wants to make sure it has not come back.  Then my mam in June with a F/U with BS.

    No ta-ta reunion here, no $$$$.  We lost 2 sisters, watson and kbugmom, there is a support meet in chat Sunday around 7:00 pm til ?

    Hugs,

    Debbie

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  • elliem1207
    elliem1207 Member Posts: 1,583
    edited February 2010

    debbie,

    sounds like everything is going well --that's always good news.

    the loss of watson and kbug is almost too much to absorb. my condolences to you for the loss of a dear friend.

    i've only been in chat once--can anyone join in?

    ellie

    xx

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  • deborye
    deborye Member Posts: 7,002
    edited February 2010

    Yes, definatly♥

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  • deborye
    deborye Member Posts: 7,002
    edited February 2010

    Meeting will be in the Staying Connected room.

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  • Dawnmrn1
    Dawnmrn1 Member Posts: 446
    edited February 2010

    Hey Ladies!  Ellie best of luck this week!  Deb happy to hear you are doing well!  Sorry about the loss of your 2 friends, this Dx has too many deaths!!!! I am well blood work Mon and Onc appt on WEd, hope those tumor markers stay low!!!! The thoughts of more Tx makes me sick I just finished in Sept!!!!

    It was so much fun to meet you all and I loved the pics!!! Let's stay in touch!! Dawn

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  • Sukiann
    Sukiann Member Posts: 310
    edited February 2010

    Hi Ladies,

    Ellie, I'll be crossing my fingers for you.  Dawn, hoping your markers stay low. PLEASE, PLEASE, PLEASE!  Deb, what's an F/U - glad it went well even though I don't know what it is! Hopefully the pancreas cyst is still MIA. Going to church tomorrow.  I'll pray for all of us.

    Not going to Vegas.  Didn't know about it but can't spend the $ either.  Going to Disney with the family in April.  Can't wait!!!  Have been feeling ok.  I have an infusion of zometa on wednesday and I'm also getting iron as my iron level has been very low.  I also have terrible wrist pain with a bump on the inner part of my wrist.  Not sure what it is.  I have rheumatoid arthritis in my blood (I have the rheumatoid factor but not really diagnosed with RA because there has never been swelling of my joints.  They've just always hurt.  Now with the arimidex YIKES!) so I don't know if this has to do with RA or not.  Also have these small bumps on both of my shoulders - in the same spot and they hurt  to touch them??  Not only that but I just got my cpap for pretty bad sleep apnea!  It does the trick though.  Been sleeping really well.  Going for a mammo on the 24th.  Hopefully it will be ok.

    Wow!  Sorry to ramble.  Got lots on my mind.  Stay well every one.

    xoxo Susan

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  • deborye
    deborye Member Posts: 7,002
    edited February 2010

     Roll My fingers are crossed for you too dawn.

    Big hugs susan, I hope they can manage your arthritis pain.  Yes that was alot of fun.  I am going to drag Makraz to our next meet and greet. LOL





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  • deborye
    deborye Member Posts: 7,002
    edited February 2010

    I will probably go to the chat room around 9:00 ish.

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  • elliem1207
    elliem1207 Member Posts: 1,583
    edited February 2010

    good mornin'

    are we all staying warm in this very cold new eng winter?

    dawn--i'll be sending good vibes for low tm's.

    susan--glad you got the cpap--we all need good sleep. i love disney--it's such a magical place. can i stowaway? i could probably fit in your luggage LOL. sorry about your pain. are you taking meds for it? 

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  • deborye
    deborye Member Posts: 7,002
    edited February 2010

    F/U = Follow Up♥

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  • Dawnmrn1
    Dawnmrn1 Member Posts: 446
    edited February 2010

    Hey Ladies!!!! Happy SuperBowl!!!! Thanks for all of the fingers being crossed!! I am soooo nervous!!! Get my BW done tomorrow via my port then to the onc on Wed!!! Susan get rid of the pain and enjoy Disney !  We are going to Miami on the 22nd can't wait!!!  Dawn

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