JUST A QUESTION.....
Well......I completed radiation today....YIIPPPEEE...... I have been fighting this beast since April 2009. You can see my signature below. I did do double mastectomy, no reconstruction as of now...just good CRISPY SKIN.
Here is the thing....HOW DO I MOVE ON??????? I sat out in the parking lot before leaving my cancer center after my treatment today.....I literally sat in my vehicle and CRIED my eyes an HEART out.
I continue to remind myself (FEAR IS NOT OF THE LORD) I want to do that. I just dont know how to pursue the NEW NORMAL....As bad as the treatments are I feel like at least I am doing SOMETHING!!!!!!!!!!!!!!!!
I am 36 years old mom of three, wife of one GREAT husband, daughter of a loving mother....and friend to many........WHO AM I REALLY????????
I stopped working when I was DX......
Do I get another JOB????? I need to in order to help pay for this NIGHTMARE!!!!!!!!!!
My eight year old asked me this morning if after today if I would be a NORMAL MOMMY agian ? I think that meant......back to the way it was......
I have researched and researched until I am BLUE.......It still amazes me how this cancer thing works. There is NO ryme or reason. For example....someone with a small lump can have many positive nodes.....someone with a large lump could have NO node involvement....or like me a fairly large tumor with three nodes.........Where are the answers???????????????
Oh God Help Us.....Please just help US
Comments
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angel
You will get your life back--it will take some time--I am about 8 months out of treatment and I remember that last day of radiation very well.... it is a little scary---- but slowly, you will find you get your life back- it might be your regular normal or a new normal (I am about 98% back into my regular hectic lovely life).... but for right now- you need to take your time- give yourself some real credit for what you have been through and trust that things will eventually go back to where you want them OR you could change it all up entirely.
I remember when my dad died-people said to my mom-don't do anything significant for a year---- and I used that same advice here--- I haven't done anything earth shattering this year other than to re-gain my life.... after the 1 year mark out of treatment, well, I might be willing to consider some other things.
Be patient with yourself.
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I went through my treatment back in 2008. I find it thrilling to say "back in 2008." Moving on is definitely a process. You will feel scared. You will realize that life will never be the same but I can tell you that it will be better. I feel fantastic. I exercise regularly and have tons of energy. I have rockin curly hair now (as opposed to long straight hair before). For me, I don't ever want to go back to the way I was before.
My advice to you is to seek out a therapist who is familiar with the trials and tribulations of breast cancer patients. I see someone and it has helped me so much.
Don't push yourself too hard. Concentrate on healing and wellness. You will succeed. You know, you mentioned that you will have to go back to work. That might turn out to be a really good thing for you. It may give to a sense of structure to your life and something to do besides thinking about this stuff. I figured that out too.
PM me if you want. I'm here to listen.
Lorrie
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Hi there!
I remember my last day of rads, like yesterday. I finished rads first week of July 2008.
After the session, the rad techs were so nice. They were more happy than I was...lol. Yes....or yipee! Nope.
I thanked them, threw my appointment card in the garbage and walked so fast out of that hospital. I never looked back. Got in my car, turned up the music and drove home in tears. I drove around for a bit, because I didnt want my husband to see me come in crying. He was going to take me out for a "last day of rads lunch".
Everyone around me was happy. Family, friends, neighbors....everyone! I was lost, confused and scared. Very scared. I called my onc up 2 weeks finishing rads and I broke down. I asked him the same question your asking..." HOW...do I move on? HOW?." He told me to focus on the fact that Im probably "cured" of BC , of course there is no test that can tell us 100%. His words were like a mantra to me. I repeated them daily. I can go days or weeks now, and not repeat them to myself.
My daughter was 3 yrs old and I just dove in to her schedule. Parks, pre school ect. I kept busy with erands and made time to get out and see friends. Retail therapy helped to...lol.
Its a one day at a time thing. It wont happen over night....but one week will pass. One month and so on. Now, I can say I have my life back. I do go for my check ups ect....but its not big deal 1x every 3 months. I can do that. One day at a time....
Be well.
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Hi angelsabove.
Congratulations on finishing rads! It's a bittersweet milestone. While I didn't have radiation, I did have chemo and I remember feeling the same way you did. You will get back to a "normal". I know it's hard to conceptualize now, but you definitely will be on your way.
I don't know if this will help, but here's an idea: My family/friends and I put together a Chem-Over party to celebrate a new outlook on life. Whenever I feel down or scared, I think back to that party, about all the people who were there and how much I love everyone of them... I would feel much better and more like myself.
I wish I had an answer to the "What now?" question. I ask myself that all the time. I think you are doing the right thing by checking up on this site so to be aware of the latest and greatest in treatments. It always helps to be a proactive survivor.
Hugs,
Hoa (defeatbc)
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I met a woman at the hair dresser who could not even remember how long ago she had breast cancer. The woman cutting her hair asked "now when were you diagnosed, 8 years ago?" to which the woman replied "no it must have been about 11 years ago..."
Hoping this day comes for each of us. It does become less top of mind especially once you move out from diagnosis. Fill your thoughts with all the good in your life and focus on that. Hope it will help!
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Hi there,
I did the same thing after I completed rads for TNBC. Chemo too- I cried and cried. I was relieved it was over, but terrified about the future. What kind of future would I have? Was life even worth living if it was so uncertain? I researched and researched too. There was no information except bad information. But then I started to find studies that were small, but they made sense. Eating a low fat diet. Adding ground flax seeds to my diet. Exercising. Losing the chemo weight. So, I did it. There was no magic pill for us TNBC-ers so I did whatever I could.
Then I decided to live like I had a future because if I kept sneaking around afraid that cancer would catch me again that wasn't living. It is harder to do than it sounds, but soon, you do start to live in the now.
Well, here I am, TNBC free. Oh, did I mention I was diagnosed in 2001?
(((((Hugs to you and all us TNBC gals))))
Love,
g
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Oh... forgot to mention something...
My mother was dx in 1995, treated as Tri-neg, and doing well. Whenever I ask her about cancer, her response would be, "Oh geez, I don't remember!"
At first I would get frustrated that she wasn't able to tell me much about her experience, but then I felt glad because it shows me that there is life after cancer.
It is as if having cancer was a distant memory to her.... becoming more insignificant each year as other experiences become the forefront of her life (ie. celebrating her 30th anniversary, seeing me get married, having her very first grandchild...)
-- Hoa (defeatbc)
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Oh....Thank yall so much for the response. I picked kids up from school.....went by and visited with my Mom.....me and kids had dinner with her....Hubby is working late....Ya know....paying for this mess....LOL.......I did tell him today HOW much I appreciated him loving me through ALL my imperfections....and I must say the last 9 months there has been A LOT.....ya know BALD and NO BOOBS.....I am so nervous but it is always nice to talk to you sisters.....You ALL just GET it.......
N0Surrender-------------Oh survivor stories are BITTER SWEET to a person hanging on to the LIFE Boat.....Thanks for responding....
Morgan----------I want to get to the day I too say (BACK IN 2010)
Chrissie----------------LOVE THAT STORY.......mmmmm what will it feel like to say HECK dont even REMEMBER.....
Lexi----------I too cried from the bottom of my soul today.....I sat there in the parking lot for at least 30 minutes....CRYING.....Thanks for your response.....
Defeat---------Love see your post.....AWESOME about your MOM....I always enjoy seeing you on here.....THANK YOU SISTER......
Mom--------That is really strange....talked to Mother in law just a bit ago on phone and she told me the same thing......Said JUST TAKE TIME TO HEAL.....Even if it is a YEAR...ya know we do treatment and surgeries nearly a year.....I will NOT jump into anything too soon. I am working on losing the CHEMO weight.....Did drop 5 lbs during rads.....Oh yea and am doing SPIKY hair look.....Hard to give up head coverings too.....
LOVE ALL OF YOU......
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