Fear of infection
I was supposed to start chemo last Thursday 1/28/10but wouldn't you know Wednesday morning I woke up with a horrible toothache. Now after a rush root canal, crown prep and a week on antibotic's I am supposed to start tomorrow. I went into today (or should I say yesterday since it is well after midnight) to have blood work done and my temp taken. I was 99.3 but they felt like I should be ready to go. My blood work was good. I have to say I have this terrible fear of some sort of infection now! I am been hyping myself for chemo telling myself everything will be fine and I will come out better than ever, during my entire cancer fight I have beenso possitive. But what happens if you do catch a cold, the flu, some horrible virus and the high temp over 100? I do work with the public and have to return to work in less than two weeks?
Am I just being paranoid? I have tried so hard to stay positive but now this tooth thing has me a little freaked out. And now I feel like my ear hurts, my throat hurts, another tooth hurts? I am sure it is nerves talking?
I do need positive reinforcement, but I also need the truth?
Thanks in advance!
Comments
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Hi Hornsemail
I really understand your fears. During my whole chemo treatment I was also paranoid about catching some virus or whatever and ending up very sick. We took lots of precautions at home and out and about (hand disinfectant, hand washing, asking people not to visit if they had a sore throat or illness) but I ended up in hospital for 3 days with a high temp - all due to a simple head cold. However 2 days after that I was back for my next chemo treatment and it went fine. I think trust your Dr's judgement on this unless you just feel too unwell in yourself. And make sure you adhere to the rule - if yu do get a high temp whilst on chemo go straight to hospital or to your Dr. Mine went from mild temp to dangerously high in about half an hour!
Good luck and I hoep your treatment goes well.
Neece
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Thank you both! My first round of chemo went off but not without a hitch. I had a temp of 99.6 but after checking my mouth, nose, ears and throat they could not find what was causing the temp and decided to proceed. They did pump me with extra fluids though. I am physically and emotionally exhausted but I have my alarm set for my next round of anti-nausea drugs. I don't want to miss one!
I believe I will invest in the masks; they make sense. I work for the county so I might even hit up the heath department and see if I can get some for free? Who knows? And I will invest in a good thermomete, mine showed this morning that I was only 98.4? I assume mine is off
Thank you both you have been such encouragement!
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My case was a little different from yours, but here is what my onc did. Perhaps you should discuss this with yours as well. I was always healthy prior to my diagnose. Had my first AC and developed febrile neutropenia right after it. My lumpectomy incision was very large and a small portion was still crusted. Well, that was enough, with the low blood counts, for me to develop cellulitis of the breast. Was hospitalized for 5 days on iv antibiotics. Chemo was delayed for another week, then I resumed. My counts went low but not neutropenic after the second round (yes, I had Neulasta after every round of chemo from the first one right through all 4 of the Taxoteres as well. Right after second AC - I had my root canaled, capped molar fall out! No pain or infection, but from that point on, my onc had me start 10 days of antibiotics on the second day after each of my chemos to ward off any further risk of infections. It was a pain in the arse, however, no infections or neutropenia throughout the the any of the other rounds of chemo. May be that you won't need them, but my onc did not want to take any chances and I was thankful for that. Best of luck to you. It stinks when you have a set back right out of the gate. Will be thinking of you.
Linda
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I believe your doctor wouldn't start you if he didn't feel you were ready. That said, you do need to be cautious and aware of how you are feeling and take your temp. I ended up with 11 MRSA infections during and after chemo for 8 months. They presented with small boils to start with but ended up huge abscess infections on my neck, belly , arm (<---photo) and buttocks. The arm and buttucks had to be surgically treated. It was awful. I was hospitalized 3 days. Hospitals are crawling with MRSA. I just couldn't fight it off. Wear a mask. Swab your nose with Bactraban every day and wipe every surface with disinfectant. It is nothing to mess around with. I have terrible scars all over my body now. Not to scare you. I just want to say it is preventable if you know to do these things...especially the nasal swabbing. Ask your doc about it. You can prevent MRSA. I wish I had known.
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I taught the whole time and was fine. I just washed my hands like crazy, kept my hands away from my face etc. the things we should always do (but usually forget) to stay well. Good luck!
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Thank you all for your help! I really appricate it!
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I don't think you can prevent all MRSA. People are in the community who carry MRSA.
Community-associated MRSA (CA-MRSA) refers to an MRSA infection with onset in the community in an individual lacking established MRSA risk factors, such as recent hospitalization, surgery, residence in a long-term care facility, receipt of dialysis, or presence of invasive medical devices5....While outbreaks have frequently been reported among members of defined groups, most patients do not have recognized CA-MRSA or HA-MRSA risk factors and are not linked to an outbreak38. http://www.cdc.gov/ncidod/dhqp/pdf/ar/CAMRSA_ExpMtgStrategies.pdf (emphasis mine)
Of course, hand washing and surface washing is a VERY IMPORTANT step. Antibacterial soaps, except in hospitals are usually NOT recommended. Soaps containing triclosan within the range of concentrations commonly used in the community setting (0.1%-0.45% wt/vol) were no more effective than plain soap at preventing infectious illness symptoms and reducing bacterial levels on the hands. Several laboratory studies demonstrated evidence of triclosan-adapted cross-resistance to antibiotics among different species of bacteria. CONCLUSIONS: The lack of an additional health benefit associated with the use of triclosan-containing consumer soaps over regular soap, coupled with laboratory data demonstrating a potential risk of selecting for drug resistance, warrants further evaluation by governmental regulators regarding antibacterial product claims and advertising. Further studies of this issue are encouraged. http://www.ncbi.nlm.nih.gov/pubmed/17683018 (emphasis mine)
MRSA in serum survived 41 days on glass, 45 days on tile, and > or =60 days on countertop. Five of thirty-three stethoscopes (15%) tested were positive for MRSA. CONCLUSIONS: Previous studies showed fomite survival of MRSA for about two weeks using contact plate sampling and MRSA on 7.4% of stethoscopes. We showed longer MRSA survival times by wet swab sampling and a higher stethoscope contamination rate. As expected, higher organism loads survived longer.http://www.ncbi.nlm.nih.gov/pubmed/19354027
This study demonstrates that all epidemic nosocomial- and community-acquired MRSA do not survive when no organic protection is offered but survive well when soil (pus and blood) is present, thus offering protection from drying. This study indicates that contaminated coins may serve as potential vehicles for MRSA.http://www.ncbi.nlm.nih.gov/pubmed/17577483
Most gram-positive bacteria, such as Enterococcus spp. (including VRE), Staphylococcus aureus (including MRSA), or Streptococcus pyogenes, survive for months on dry surfaces. Many gram-negative species, such as Acinetobacter spp., Escherichia coli, Klebsiella spp., Pseudomonas aeruginosa, Serratia marcescens, or Shigella spp., can also survive for months. A few others, such as Bordetella pertussis, Haemophilus influenzae, Proteus vulgaris, or Vibrio cholerae, however, persist only for days. Mycobacteria, including Mycobacterium tuberculosis, and spore-forming bacteria, including Clostridium difficile, can also survive for months on surfaces. Candida albicans as the most important nosocomial fungal pathogen can survive up to 4 months on surfaces. Persistence of other yeasts, such as Torulopsis glabrata, was described to be similar (5 months) or shorter (Candida parapsilosis, 14 days). Most viruses from the respiratory tract, such as corona, coxsackie, influenza, SARS or rhino virus, can persist on surfaces for a few days. Viruses from the gastrointestinal tract, such as astrovirus, HAV, polio- or rota virus, persist for approximately 2 months. Blood-borne viruses, such as HBV or HIV, can persist for more than one week. Herpes viruses, such as CMV or HSV type 1 and 2, have been shown to persist from only a few hours up to 7 days. CONCLUSION: The most common nosocomial pathogens may well survive or persist on surfaces for months and can thereby be a continuous source of transmission if no regular preventive surface disinfection is performed.http://www.ncbi.nlm.nih.gov/pubmed/16914034
MRSA survived for 11 days on a plastic patient chart, more than 12 days on a laminated tabletop, and 9 days on a cloth curtain. Irregular surfaces may help harbor organisms in the environment. In addition to contact precautions, MRSA containment during an outbreak should include concurrent environmental decontamination.http://www.ncbi.nlm.nih.gov/pubmed/17080391
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glad to read some of this information...i am starting chemo in several weeks, and now 5 weeks after my bilat i have a post operative incision infection...it is making me very nervous now about starting chemo because i also have te's and have already started filling them...now i think i'm a little paranoid about it...how will they know all the infection is gone?
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I got a cold right before my 5th chemo. It was really uncomfortable having a cold plus chemo side effects, but the cold wasn't any worse than a regular cold and they didn't delay my chemo for it. I traveled on business including plane flights during the third week of my chemo cycles, but the cold I got was one that my granddaughter had before I left. My husband and daughter-in-law got it too and had it about as bad so I can't blame it on lowered immunity.
My oncologist did give me Neupogen each cycle to help my white cells. We tried without it for the first chemo but my white cells went to almost zero and I got a fever even though there was no infection. That's when she started the Neupogen.
I was careful to wash my hands frequently (and had to use hand lotion because that dried my hands out).
You don't want to go so crazy with infection worry that you wear out your support system. My son's MIL who lives with them is starting chemo and has been asking them to do all sorts of things. At one point she said she thought there shouldn't be any raw fruits or vegetables in the house because when she was in the hospital there was a sign saying visitors shouldn't bring them. When your immunity is very low, you should only eat fruits and vegetables that have either been cooked or peeled but saying that they can't be in the house in their raw state is excessive and hard on your house mates.
She had a talk with her oncologist so now that's straightened out.
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Another thing we can all do to increase our chances of staying well (chemo or no chemo) is to gargle twice a day with warm salt water; kills germs in the throat.
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