Worried About Lymph Area

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pupfoster1
pupfoster1 Member Posts: 1,484

Hi Ladies,

I had a bilateral mastectomy in November with 13/15 nodes positive.  I'm currently mid cycle round 4 of AC.  I'm not sure if I'm being paranoid or just being hypersensitive to my body but I have a concern in the area where my lymph nodes were removed.  I had been feeling a little sore under the arm pit and started feeling in where the incision is.  I feel some small nodules, as well as what seems to be about a grape sized hard spot near the incision.  Of course I'm immediately thinking it's cancer.  I asked my onco about it last week, she felt it and said she thought it was probably just dense scar tissue but to follow up on it.  Of course now I can't stop poking at it and worrying what it is.   Has anyone else had this issue and what did you do about it?  Should I push for an ultrasound, MRI, or even (gulp) a biopsy, or am I just getting ahead of myself?  My CT and bone scans were clear after surgery.

Thanks for being here,

Love,
Sharon

Comments

  • everyminute
    everyminute Member Posts: 1,805
    edited January 2010

    I have a scar line where I had lymph nodes removed that has a bit of a ledge - I freaked out the first time I felt it when I was still going through rads.  My rad oncologist felt it and said it was scar tissue.

    If you are concerned then do follow up with oncologist again - He/she should recommend next step.  Ultrasound sounds reasonable but I dont know for sure really.

    Remember - you are hyper aware of everything right now.  You need to get through a couple of "it's ok, it's nothing"s so you can have some good history under your belt and then you will start feeling a bit more confident!

    Will be thinking of you!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    My immediate thought was scar tissue as well. If your doctor has felt it, and she isn't worried, then it probably is nothing to worry about. They are pretty good at feeling what is "bad"!

    But, it wouldn't hurt to have it checked further, just for your own peace of mind. Do you still see your BS? Another pair of eyes on it wouldn't be a bad thing, and she could order a follow-up test if she thinks it is warranted. 

    Try not to worry too much about it. I know I still get myself freaked out when I "find" a rib, when I am feeling myself for lumps - it is very easy to overreact.

    Keep us updated. 

  • somanywomen
    somanywomen Member Posts: 872
    edited January 2010

    Sharon, I had lump surgery and sentinal node (underarm where I shave) and have very hard area like a walnut right at scar...Being very concerned like you, I asked my onco about it..He said it was not cancer but a fibrous band caused by surgery...I will be asking my surgeon next visit how common this is....

  • diana50
    diana50 Member Posts: 2,134
    edited January 2010

    hi sharon

    i also have a little ledge around my incision scar. it is lumpy and at times tender. any scans i have had always show that is is beign scar tissue.  i think it is good to keep an idea on it; every time i see my oncolglist or surgeon i bring it to their attention. i have a 6 month check up in march and my oncologist in sept. ordered an ultrasound on my treated breast and underarm area to just check it out. i know it is a little scarey when we have lumps or tissue that doesn't feel like itdid before all of this. just follow up with your docs. take care

    diana

  • apple
    apple Member Posts: 7,799
    edited January 2010

    those oncs i think are good at feeling 'cancer'.  My onc. said 'forgive me, while i memorize your scar tissue.. so she'd know what it felt like.

  • lexi4
    lexi4 Member Posts: 1,074
    edited January 2010

    Hey Sharon,

    I remember when I ws going through A/C tx that my underarm would have zings of pain. It worried me too. I don't know what caused it, but after awhile it didn't happen anymore. I still occasionally have some discomfort under my arms that of course leads me to think the worst. Then it goes away and I don't think about it.

    It's certainly worth bringing up to your onc. They will check it out and keep an eye on it.

    Hugs,

    Lexi

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited January 2010

    Thanks Ladies,

    I'll try to remain calm.  I have a mid chemo check up with the RN on Monday so I'll get her feedback too.  I'll be looking for a new Surgeon as the one I had (at Johns Hopkins no less) was less than compassionate and we had a major falling out right before surgery.  Not what you would want, but at that point I had waited 6 weeks to get him, so I went ahead with it.  Long story which I won't go into now.  So, once I get a new one closer to home I will definitely be having them check it out.

    Best to you all,

    Love,

    Sharon

  • tjschaust
    tjschaust Member Posts: 2
    edited January 2010

    Hi Sharon - Like most of the ladies who have replied, I have that zingey feeling in my armpit from time to time which causes me to feel and push and panic! I also have a walnut size lump next to my scar. My onc felt it and for my piece of mind had me go see my surgeon and have an ultrasound. Happily all is well. You need to do what you need to do to get that piece of mind. Good luck with everything and keep us posted.

  • JacquelineG
    JacquelineG Member Posts: 282
    edited January 2010

    I have lumpy, ledgy tissue where my lymph nodes were too. My doctor wasn't concerned, and I know rads can cause more scar tissue to form in that area. My skin is definitely thinner there now too, so it all comes to the surface and is easily palpable!

    Jackie

  • MoinTexas
    MoinTexas Member Posts: 30
    edited January 2010

    I have all the scar tissue, too, and I also have a clip in the axillary area that I suppose was to hold things together after they removed my 35 lymph nodes, so it always feels like a big lump to me.  So it could be all those things.  That area is sore most of the time for me and still swollen and I am more than a year past radiation and almost two years past surgery.

    Marilyn

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Pupfoster1 ~ I have pain and sensitivity under my armpit in the area where the drain was.It's still red and feel a nodule there.  I get stabbing pain in the area that travels to my shoulder to my fingers. It's been getting worse since I finished radiation in Novermber.  My mastectomy was in March last year. I also had 18 nodes removed, and "free tram flap" surgery.  I still hurt most in my armpit where the nodes were, and sometimes I get stabbing pain in the breast area.  It's frustrating. I always wonder about recurrence every time I feel something.  I see my onc again in March for a zometa infusion and bloodwork, so I will ask him about it.  This really sucks.

  • missrwe
    missrwe Member Posts: 58
    edited February 2010

    Hi, pupfoster1 - I just wanted to weigh in briefly and let you know that I also had a bad experience with my Johns Hopkins breast tsurgeon. don't know if it was the the same one as yours, but I would never go back to him and I would warn anyone I care about to stay away from him. Hopkins gets by on its name - but they certainly don't put any effort into personal niceties. If you don't roll with the way they do things, they don't accommodate. There were some notable exceptions in my time there, but by and large no great shakes. I had better, more caring treatment at my local hospital.

    So glad I didn't have my treatments at Hopkins. I'm lucky in that I had ordinary run-of-the-mill breast cancer, so no need for any of the special skills large teaching hospitals offer.

    Also, more to your point - poking and prodding the area of concern WILL make it swell. I have a node that comes and goes (my "worry node," I call it). And, when I'm TOO worried, and check it constantly, it swells. It's really hard to leave it alone, and I'm sometimes better at it than other times. My onc and I always discuss it at my check ups. As long as it stays within a certain size we don't worry about it - well - HE doesn't - it still nags at me sometimes. Good luck.

  • HollyC
    HollyC Member Posts: 4
    edited February 2010

    HI Ladies,

    I just wanted to let you know that I also had a similar experience.  I didn't get it checked out because I was paralyzed by fear.  Bad idea, I know.  Anyway, when it did get checked by my surgeon, I had an ultrasound and it was a seroma-a collection of serous fluid very common after lymph node dissection.  It's worth having the ultrasound for peace of mind.

    Take care!

    Holly 

  • janincanada
    janincanada Member Posts: 258
    edited February 2010

    I had the same issue and freaked out.  I talked to my onc who I was seeing every three weeks at the time.  She was sure that it was scar tissue.  When I was having my next herceptin she came to the chemo room and checked it and asked if I would feel better getting it checked.  WOULD I! She said she would schedule an ultrasound, but I continued to panic  when I got there to find out I was booked for an ultrasound/needle biopsy.  The techie was great.  I was so anxious from my previous exp with needle biopsys that she called the DR. in right away and he looked and told me that there was nothing there to biopsy. 

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