3.5cm tumour, 14 out of 24 nodes infected - is survival poss?

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  • carol1949
    carol1949 Member Posts: 562
    edited January 2010

    Lemongrove,  Of course you can survive cancer.  People do it all the time!  I had a tumor bigger than yours and am 2 years from dx and 1 year this week out of total tx.   I have now gone totally holistic and encourage you to take your time.... do lots of research and believe in your heart that healing is body, mind and spirit!  You can do it!  Find whatever it takes to bring your mind to peace.  Whatever speaks to your heart.  For everyone, that is different and that is ok!

    Visit the complimentary/ alternative threads as well, so you have some information on what you might possibly do to enhance traditional therapy while negating the s/e's

    Mammogram missed mine 2 years in a row!  I had so many cysts that they masked the actual tumor!  Can't beat yourself up over that.  Be aware that in some aspects it is good, as it indicates the bc was slow growing enough not to be worse than it is.

    Hugs and prayers sent your way.

  • diana50
    diana50 Member Posts: 2,134
    edited January 2010

    hi lemongrove

    'first of all YES....you can survive this.   you will get the best treatment available out there....there are so many of us with lots of positive nodes. so i had 10/12...but my surgeon said he was sure there were a lot more because the ones he took were fully encased with cancer....so..here i am all most 8 years out.

    i believe in surgery...chemo..rads...and hormone treatment if you are estrogen +  take it one step at a time. get your game plan.  try to not second guess all of this...and go into the :"i could die" syndrome.  you are alive now and getting ready to FIGHT. FISTS UP.   this is going to be a long process so please try to understand that part of this.  as kerryMac said; stay focused on the positives...especially when the Crazies attack.*** we are here for you. Private message people when you need more assistance. we are here.

    diana

  • Joviangeldeb
    Joviangeldeb Member Posts: 213
    edited January 2010

    Lemongrass, don't beat yourself up about not feeling your tumor.  I had a 6.5 cm tumor when diagnosed and I only felt it by accident one night while I was lying in bed on my side. And I had my ob/gyn check my breasts 8 months earlier and he felt nothing.  Like others have said here, we have to look forward.  Not backwards.  So far I'm 21 months ned. There are alot of women here who have survived with stage IIIA.

    Sorry you had to join this club, but we're here for you.

    deb

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited January 2010

    In 1987, some 20 years ago, I meet Dorothy, my new next door neighbor. We always had a great time together, her being in fifty some, and me mid thirty's.

    When I was diagnosed with breast cancer, and scared witless, Dorothy came over. She relayed for the first time that she was diagnosed with breast cancer back in the late '60's, with 23 nodes positive. She had surgery, radiation and the new "chemotherapy" which I believe was cyclophosphamide (oral). She didn't even loose her hair as I recall.

    Dorothy and I are still neighbors, she's doing great and runs circles around me. 

    Yes, hope is alive and well for you Lemongrove.

    All my best,

    Tender

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited January 2010

    Dear Lemongrove,

    I might as well add my story to all the others here just to emphasize again that YES it is definitely survivable and so many of us are proof of that!

    Do NOT blame yourself for not finding your tumor.  I had my first BC in 2000 and was being followed up every 3-6 months for the next 5 years by both my surgeon, oncologist and mammograms and they STILL did not find my new 5+ CM Stage IIIC Invasive Lobular Cancer until 2005. I had 23 out of 23 nodes positive including ruptured nodes.  I did the surgery, chemo, rads,  thing all over again in 2005-2006 and am now more than 4 years out still NED!......and NOT Stage IV!

    None of us can predict the future and I fully understand how you are feeling right after getting your path report, but know that you have every reason to hope for a successful treatment and many more years to enjoy life!

    You will find tons of support here and good information to help you in the coming months.  Hang in there!  You can do it!

  • GryffinSong
    GryffinSong Member Posts: 439
    edited January 2010

    As others have already said, YES! I have a very good friend who is stage III, lymph node involvement, and had a tumor that was 6 cm. She had mastectomy, chemo and rads, and is two years out from final treatment. She is absolutely fine. Healthy and active.

    Hugs, good luck, and please try not to worry. I know how hard it is, but there is plenty of hope, and we're all here for you!!!

  • Hattie
    Hattie Member Posts: 414
    edited January 2010

    hope you are reassured by now.

    Yes, you will be fine.  treatment is doable.   surviving the news, and waiting--those are hard.  make the actual treating the cancer almost a piece of cake.  (bad news and waiting for news or action, Ithink is the worst). 

     wow, I am going to have 50 candles on my next birthday cake, and at 44 I was desparate to get someone to name my lump, and when it was recognized months later, I thought my life was over..   (it was a big $%$^^@^^&^, but it's gone now).

     you can do this.  we can help. 

    take care,

    --Hattie 

  • JacquelineG
    JacquelineG Member Posts: 282
    edited January 2010

    Yes!!! As you have seen, so many of us Stage 3 girls are doing well. I had 6 axillary nodes and a positive intramammary node. I am so inspired by these women who post after 5, 8, 10+ years and give us all so much HOPE.

    So many of us have those feelings of guilt w/ regard to not catching it sooner. I wish I had gotten my baseline mammogram when first suggested by my OB at 36. Instead I got it at 39. I really beat myself up for a while but now I'm finally looking forward and not back. It will happen to you too I promise!

    Jackie

  • Hattie
    Hattie Member Posts: 414
    edited January 2010

    Also, my tumor grew and grew but got knocked out thru chemo.  my docs said that it was there years and years before i noticed it.  cancer is not that fast--you didn't hurt yourself by not getting it sooner.  move forward!  

    take care,

    --Hattie 

  • lkc
    lkc Member Posts: 1,203
    edited January 2010

    Hey Lemongrove. Yeah, it's sobering to say the  least, BUT the reality is we are living. I , to this day tease my surgeon who openly admitted to me he was surprised  I survived.

    It sucks, its hard, it's not your fault. You will be OK. Be kind to yourself, and believe  you'll be writing in to newbies in 5 yrs like me.

  • precioustime
    precioustime Member Posts: 233
    edited January 2010

    Kerry Mac-

    Thank-You for the literature!  I just wanted to let you know that I have been following and reading your posts for quite some time and wanted to THANK YOU for who you are!  You have given alot of women HOPE and ENCOURAGEMENT!  MAY GOD BLESS YOU!!!

    Loretta

  • YATCOMW
    YATCOMW Member Posts: 664
    edited January 2010

    I don't think I can add much to what has already been said......

    When I was diagnosed in 2004 I could not find anyone....not one person who was Stage III and doing well....I searched many of the websites out there and felt such hopelessness....

    You are lucky because there are soooooo many woman on this board that can report great success----being 5, 8 and more years out.

    I think I am the token "disaster" with a huge 8 cm tumor with at least 17 nodes positive----negative margins, etc and yet I am thrilled to report that I am chasing to catch up with diana50.

    It will be six years in May for me......and I am sure you too will be chasing behind us.  Get the aggressive treatment done.....and work to move forward as those before you.

    Jacqueline 

  • Diana63
    Diana63 Member Posts: 773
    edited January 2010

    I saw you post this morning but didn't have time to post back but I knew that all of the other ladies would chime in long before I got back here. I will add mine so you know that their is one more stage 3 lady, still alive and kicking. I had a large tumor 5.7cm, 4 nodes, grade 3 etc, etc. I am 2.3 years out and getting on with my life. Just take it one day at a time and visit here as often as you can. This is the worst part, the beginning, it will get better and you will find the floor again. God Bless. :)

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Lemongrove - Thank you for that! You know, this time last year I was exactly where you are now. I don't know what I would have done without the support and the wisdom of these wonderful women here, who helped me out, and gave me reason to hope!

    You will come through treatment, and before you know it you will be the one encouraging those new to the boards. Believe it!

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited January 2010

    Lemongrove -

    I am so glad you posted this topic.  You need to get those fears out on the table.  Ask the questions.  It's all part of the healing process.  Keep talking!

    Isn't wonderful to hear all these positive stories?  I hope it is alleviating your fears because those same fears have been in my head too.  It took a few months for them to quiet down but once I got started on chemo I really felt like I was fighting back.  And that one day I'm going to be one of these women posting about when I was dx'ed 5 years ago.

  • josephine_
    josephine_ Member Posts: 64
    edited January 2010

    Lemongrove, you mention a mammogram done in 2006,  my first mamogram was 6 months before I discovered a 2cm+ grade III IDC in June 2009.  The oncologist got the first mammogram checked over and yes, it was negative!!  Mammograms are screening tools for the masses, but not individually accurate nor sensitive enough for the individual.  I too am in the UK  Best of luck

  • kim40
    kim40 Member Posts: 904
    edited January 2010

    Hi Lemongrove,

    As the other ladies before me said, you can beat this! 

    I was d/x last January, 5cm tumor, 14 positive nodes and like you, I thought it was over and I felt so alone.  Coming to this board was the best thing - I found so much support and met so many wonderful ladies who I call my friends. 

    Chemo is by no means fun - but it is "doable".  Once you have your treatment plan in front of you, you will feel so much better and feel like you are doing something to start fighting this. 

    Come back here often for support or even if you need to vent.  We are all here for you to offer advice or words of support.  Now that you found us, you can't get rid of us that easily!!

  • amlg1
    amlg1 Member Posts: 596
    edited January 2010

    I too,had positive nodes,nothing showed in breast,only nodes.When the surgeon told me 31 out of 34 were positive,I freaked out,and still am freaked out by it but there are such great stories and support on this site. I feel so much better mentally,than I did in the begining,thanks to all these women.

  • karen1956
    karen1956 Member Posts: 6,503
    edited January 2010
    Lemongrove.....as all the other sweet gals have said....YES!!!!!  I am days away from my 4 years of hearing 'you have BC".....We are all survivors and you will be too!!!  And don't beat yourself up....just put one foot in front of the other....this may be a hard journey, but it is a DOABLE journey. Bilat, chemo, rads, ooph, AI's here s well.  (((((((((((((((HUGS))))))))))))))))
  • diana50
    diana50 Member Posts: 2,134
    edited January 2010

    something i wanted to add to this: the most important part of treatment is the surgery. the surgery reduces the tumor burden on your body; basically takes the cancer out. all other treatment; chemo, rads...hormone treatment etc...cleans up the rouge cancer cells. surgery is the primary treatment. interesting, once i had my surgery...and they took out the tumor and the cancer nodes...i really felt better. all the other treatment basically cleans up your body. it is necessary ...even though rough and tough...very necessary. you can do this .

  • enjoylife
    enjoylife Member Posts: 578
    edited January 2010

    duaba50 I also feel better since the surgery and chemo is over better then before I had the cancer I think it was draining on my body and I am 58 feel good. also had alot of nodes out 5 infected but they took 29 out as I wanted to clean out. I just want to hear too if I can plan on grandbabies some day and see my son graduate from college and I think its all possible but I still worry every time I have to have my blood work checked but then it passes and I get back to me bald still but me after 18 months out of chemo the hair doesnt want to come back but I want my life..Do allot of you ladies feel allot of hope I do and hope that in time they can invent somethng else to give us more hope..

    Maura

  • lewisfamily503
    lewisfamily503 Member Posts: 621
    edited January 2010

    Absolutely you can and will survive!!!!  A friend of mine had a pretty much identical diagnosis as yours, and that was well over ten years ago.  She is completely  NED!!!!  You can and will defeat this disease.  Of course it wasn't easy. The Chemo was rough, but she did this and you can too!  Good luck!!!!

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited January 2010

    I am a four year survivor though the first year was rough.  Ok the second year wasnt a picnic either.  But years 3 and 4 are fine.  I have travelled for the first time.  I plan to put together memoires for my family but mainly just to give myself something constructive to do.  I am quilting a 9 square sampler - my first venture into quilting... and it is looking pretty good.  The stitching may not be the smallest or neatest but it is ok.  And I learned something new.  I am hoping to continue to learn new things for many years to come.

  • LMDuncan
    LMDuncan Member Posts: 715
    edited January 2010

    Lemongrove

    I will chime in wth everyone else........YES you can survive.....I also had a 3.5 tumour with 17 of 23 nodes positive.  I will be 2 years since diagnosis in April. I was diagnosed at the age of 41.  And I don't plan on going anywhere for a very very long time. And you should forget about the  what ifs and start with the and now I will !!!!

    Lori

  • azs40
    azs40 Member Posts: 99
    edited February 2010

    Lemongrove...I just want to reiterate what everyone here is saying. I was diagnosed in August 08, at age 38 with Stage III BC also. I'd finished breast feeding just a few months before, so when I started feeling some discomfort at night in my left breast, I figured it was the remnants/repurcussion of a jammed-up milk duct a couple of months prior to that. I kicked myself for a long time for not going to get it checked out sooner and for listening to advice like, "Breast cancer doesn't hurt..." Anyway, you're about to take a really big roller-coaster ride and the thing I wanted to impress upon you is that whatever you're feeling/thinking/being right now is normal - all of it. The amazing thing is that you will look back at this time in particular and it'll be a blip, albeit a BIG blip, on the screen of your life experiences. If someone told me that a year or so ago, I wouldn't have believed it, but it's true. It's all do-able, not a lot of fun, but do-able. Take all the meds they tell you to take, slow down, do what feels right for you and just take it one day and one step at a time...

    AZS 

  • sugarplum
    sugarplum Member Posts: 318
    edited February 2010

    And I'm another one..remembering SO WELL how you must be feeling. My cancer was hidden by scar tissue from a 2002 (benign) biopsy so the mammos didn't catch it - I just had a "gut feeling" & insisted on another biopsy in 2006 - felt so betrayed when it had already gotten into 10 nodes and my skin!

    I must confess I've wasted a lot of my time since then by feeling fearful (however, I have had panic disorder my whole life!), but overall I am very thankful for the 2nd chance I've been given.

    We will all be watching for your future posts & are with you every step of the way...

    Julie

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited February 2010

    I don't know about you, Lemongrove, but after reading all the posts on this thread *I'M* feeling MUCH better! LOL

    I think I needed this thread as much as you did!

    Also, what you posted here is one of the hardest things to deal with:

    Lemongrove said: I am so angry with myself. If only I had noticed the tumour earlier...How could I not notice a 3.5cm tumour?

    Like you, and apparently lots of others, this is something that haunts many of us! HOW?! How could I not have KNOWN? Or FELT it? Or SOMETHING?!

    But I can't dare say it outloud, even now, or I can't dare say it to my husband, because I know that even HE is feeling the same way and can't go back and fix that!

    Cancer is sneaky and stealth. And it's the very last thing that any of us living a full and busy life have on our minds. Until it takes over our world.

    But I have to say, it doesn't do any good to kick yourself in the a** over it. The most important thing now is to pull up our Big Girl Panties and say, "You wanna take me on, Cancer? No effing way! I gotta whole TEAM behind me now!"

    And having women who know what I mean when I say something bizarre like that helps a lot too!

    Sending you warm cyber hugs, and sending warm hugs to all the women on this board. You are each and every one precious and JUST the right medicine for anyone going through this!

    Cyberkisses, too. . . .

  • ruthielaine
    ruthielaine Member Posts: 4
    edited February 2010

    Lemongrove I hope you're feeling better - I know I am.  I am also stage 3 having my last chemo next week and have been fretting wondering if this is beatable but after reading all of these posts by these wonderful strong women I almost feel ashamed of myself for not being stronger - well that is about to change - I can do this too and so can you.   So now I'll think I'll go work out!  Thanks all of you for your wonderful words of encouragement.

  • littletower
    littletower Member Posts: 333
    edited February 2010

    Like Lemongrove, also having the "crazies"...thank God for all you women posting here. Facing my follow up to chemo/pre-surgery MRI/mammogram next week and freaking out. Dr. from Sloan says he thinks there's a 50% chance of finding more DCIS, since it's unresponsive to chemo (who knew?). Haven't been able to exercise because the Avastin trial gave me congestive heart failure that has yet to clear up after 12 weeks (as hoped). And I was a five day a week exerciser until that hit. Aaaah! As soon as I put my head down the thinking starts and it's just a downward spiral from there. Thanks so much for posting the study about nodes and survival, it helps. And heartfelt thanks to all of youl for helping those of us with the crazies make it through the night.

  • Lemongrove
    Lemongrove Member Posts: 24
    edited February 2010

    Thank you to those offering encouragement, but while I appreciate  that some survive, I know that these accounts are just anecdotal. Even the encouraging research referred to was only based on a very small sample. Don't get me wrong, I am not being negative - just realistic. The fact is that for every success story, there are people like Littletower, who do not respond to Chemo, and are very worried and fearful. Like Littletower, I guess I'm just going to have to learn as much as I can about possible treatments, and hope that they work. Meanwhile, I am posting a link below to info about research  that explains why some chemo does not work, in the hope that it might prove useful in dealings with your Oncologist.

    http://www.nhs.uk/news/2010/01January/Pages/Genes-affect-cancer-treatment.aspx

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