Single, no kids, - how do you cope?

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  • cancersuks
    cancersuks Member Posts: 258
    edited January 2010

    Magister,  Thank you so much for your kind words!  Yes, exactly I've worked

    here 27 years, it is the Federal Government; I cannot describe the horror

    I went through with my 1st diagnosis and now with the reoccurence.  I'm

    a hard worker and it means absolutely nothing, people see that I look ok on

    the outside and instantly dismiss the disease.  You are so lucky to have such support

    where you work;  I was never really liked to begin with so this is just

    another avenue for them to show it.  (p.s. my folks are from Knoxville :)

  • LaurieRR
    LaurieRR Member Posts: 8
    edited January 2010

    I have become a recluse.  I don't want to leave my apartment.  I go to bed around 10 pm and wake up around 8 am, but I force myself to go back to sleep until around 9:30.  The only time I feel good  is when I'm sleeping and thats all I want to do.  I also worked for a bunch of jerks. They made it clear to me when I was diagnosed last April that I was not going to get any special treatment b/c of my cancer.  I tried to work during chemo and I just couldn't physically do it. So, i took the 3 month leave (FMLA).  I went back to work just 4 weeks after surgery (double mastec w/reconstruction and lymph node removal. They said if I didn't return to work on that day, I would not be guaranteed my position with the company..I thought I had no choice.  I was forced to do physical labor, stuffing king size comforters in duvets..I worked for a hotel as a sales manager. Everyone was helping to get the new bedding in all of the guestrooms.  I was only able to do this for 2 hours.  Imagine lifting and stuffing king size comforters after only 4 weeks of recovery from a double mastectomy, reconstruction and removal of 10 lymph nodes under the right arm.  It was awful..I tried to work and go through required radiation.  The radiation sucked the life out of me. I had to chose between my job and radiation. I was told by HR that my job would not be held for me any longer.  I had to quit and chose radiation.I completed radiation in November 2009. I am now unemployed, stressed and depressed. If it wouldn't be for my kids and parents, I probably would have committed suicide by now.

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    That's dreadful Laurie!  I'm flabbergasted at how you were treated.  I'm wondering if you could get UI due to being forced out of your job due to BC and what they were making you do.  Give your hospital's social worker a call to see if there's anything you can do.  This is just plain wrong.

    I definitely understand the reclusive mode -- I tend to be like that too -- I just want everyone to leave me alone!!  I was supposed to go to dinner with some former colleagues, some of them in their cheerful, hopeful thirties -- I just couldn't do it.  All that happiness and hope when I am at rock bottom. 

    I am relieved that you have your parents and children to hang onto -- to make living worthwhile until you find it worthwhile for yourself too.  If you ever do feel suicidal, please reach out for help.  I wish I could make you a cup of tea, offer a bit of comfort, do anything to help out.  Hang in there Laurie.  You're in my thoughts.  Hugs,

    Elizabeth

    xoxoo

  • LaurieRR
    LaurieRR Member Posts: 8
    edited January 2010

    Thank you so much, Elizabeth.  I just started taking Effexor.  This should help.  I appreciate your kind words. 

    Hugs,

    Laurie

  • Judiiiii
    Judiiiii Member Posts: 418
    edited January 2010

    Laurie, I shall keep you in my thoughts, too.  I don't have a SO, nor kids, except for my 13 yr old "devil in a fur dress" kitty.  I had a great job as a researcher with the Fedl Govt and was treated so incredibly well, so I can't imagine your situation.  I feel so bad for you and I'm sorry for the sort of treatment with which you had to deal.  I'm so glad you have kids and your parents.  They are blessings.

    I've been rather reclusive since I went on disability 2 years ago (dx'd with mets over 8 yrs ago).  I don't answer calls and I don't see anyone except for my best friend and one of my neighbors.  I talk or see my best friend everyday and she does everything for me.  But somehow I lost the desire to socialize or even being in contact with anyone else.  I love the nightime - I know no one will try to call late, so it's just me and the cat and t.v.  I know people don't understand and neither do I.  I don't think it's healthy, but I don't seem to care.

    I will pray that Effexor will work for you.  Being depressed is such a tough thing.  This website is a lifeline for me - especially today - my thoughts are with you, Laurie.  Pls stay in touch.  I promise not to visit!  Heeee.  Take care.   Judi

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    Hi Laurie,

    Effexor is good stuff.  I started taking it way before BC -- for anxiety and depression.  One thing I found with Effexor was that it made me nauseous for the first 2 weeks when I started taking it and then I was fine.  I always like to give a head's up about this so people don't get discouraged.  Just mentioning it in case you've just started.

    Ditto on what Judi said -- I'd be lost without this website.  The women understand what we're going through <like duh, does that obvious statement come under chemobrain?>.  Something that no matter how dear some of our friends are they don't quite get it.  Lots of hugs,

    Elizabeth

    xoxoxoooo

  • LaurieRR
    LaurieRR Member Posts: 8
    edited January 2010

    I am so glad I found this site. You guys made me feel so much better..some of our friends don't get it because they have never experienced this before. It's so hard to continue to complain to them especially when you can tell they are tired of hearing how sick and tired you are...Thanks you guys for being here!! hugs, Laurie

  • GryffinSong
    GryffinSong Member Posts: 439
    edited January 2010

    Laurie, welcome, and I'm so sorry you're having such a rough time. In hindsight, I clearly see that it was my friend Susan who made my treatment process do-able. She had been through it a year or two before me, and was able to help me know how normal all these feelings are. I still sometimes want to be a recluse, and find that if I go out and be social one day, the next day I hole up by myself to recover.

    Hugs to you, and best of luck!

  • LaurieRR
    LaurieRR Member Posts: 8
    edited January 2010

    Hi Gryffin, Thanks for your response.  I do the exact same thing. Once I am able to get out of the house, it feels great. When I return, I get back in my pjs and won't leave again for days..avoiding phone calls from friends,etc...when will this end?? Hugs to you!!

  • GryffinSong
    GryffinSong Member Posts: 439
    edited January 2010

    It takes time Laurie. I've heard it can easily take a year or two before we will feel at all normal. I often don't get out of my jammies all day, and I finished rads in september. I'm trying to be ok with it, and to respect what I need. I suspect that folks who have the worst time in the long run may be the folks who don't give their bodies and minds time to really recover. It's a major trauma. Some liken it to post traumatic stress disorder. Hugs!!!

  • cmharris59
    cmharris59 Member Posts: 496
    edited February 2010

    Hi all,

    Checking back in after my hiatus.  My surgery was cancelled... yet again. So I went home to my parents for Christmas. I found out mom had grade 3 salivary cancer and stayed to help keep an eye on dad while she had surgery and scans. My parents are elderly and mom is blind. Dad has Alzheimer's. It was not an easy 6 weeks at home with themn but better than being at home feeling sorry for myself. Now I am home and back to the dumps. 

    My surgery was cancelled because the ultrasound said my veins were too small?!?!?!  Why thye couldn't figure this out over 2 years ago is beyond me. I am sick of this TE in my chest and want to be done with life. It really makes me mad since I have been waiting for over 2 years for the surgery to be completed.  I am disgusted.

    I have lost my Cobra coverage and am on Medicare now.  As of the first of Feb, I have been trying to find some drug coverage.  NOT happening. All of them are going to cost me more than the $610 Cobra payment. I can't afford the drugs anymore. I can't have surgery to get my new foob. I can't afford to pay my bills anymore.  

    My cats have been totally distressed while I was gone, and I feel so guilty for leaving them for nearly 2 months.  I had a friend look in on them and feed them, etc. But it was not the same.  

    I can't even talk about it anymore. thanks to all of you that tried to reach me while I was gone and wishing me luck.  My internet and phone service were shut off and my parents had no internet service.  I am trying to get back up and going but not happy. I have a pain mgmt appt tomorrow to get more methadone. That I can afford- the drug at least, I don't know about the appt.

    Good luck everyone.

  • konakat
    konakat Member Posts: 6,085
    edited February 2010

    Connie!  I'm so happy you posted - I have been quite worried.  What an awful time you've had - talk about everything happening at once.  I'm very sorry about your Mom.  And your cats.  And you not getting your surgery -- unreal!!!!  And the bills.  What a mess.  I just don't know what to say, how to help.  Crap.  I am so very sorry all this f-ing crap is happening to you.

    Elizabeth

    xoxoxo

  • petjunkie
    petjunkie Member Posts: 317
    edited February 2010

    Hi All,

    Another single gal here. I'm 35 and my friends are getting married and having babies. . . and I have Stage IV cancer. It's been hard, even in my monthly support group I feel like everyone has different problems and I can't relate. They need to talk about issues like their spouse, explaining cancer to their kids, etc. All important topics-- but I'm not so interested and my issues are different.

    And now that I am not working, money is becoming isolating. I have all the time in the world, but friends want to go shopping or go out to lunch, and I can't swing it for much longer. I qualified for SSDI, but that doesn't kick in until June and will be only 1500 a month. After my COBRA payment, that doesn't leave me much for living expenses. 

    I have two cats and two dogs, and they are the center of my life. I don't know what I would do without them! So much company. . . I would be incredibly lonely without them. My parents do live close by and they come to all my chemo appointments with me and are incredibly supportive. I just miss having people my age that are going through the same things as me-- like my group of friends from grad school. We were all in the same boat then and had lots in common. I feel like nothing in my life is in common with anyone I know anymore. The cancer, the treatments, not working, being single, etc.

    I don't know, I guess today I'm feeling a little down about thing. 

  • petjunkie
    petjunkie Member Posts: 317
    edited February 2010
    Oh, I hope it's okay that I posted even though I'm not 40 yet. I'm wise beyond my years, promise! And I'm going through chemical-induced menopause! That all counts as added years, right? Wink
  • konakat
    konakat Member Posts: 6,085
    edited February 2010

    Of course it's OK Petjunkie -- you can be an honourary 40-something!  I can relate to it sucking big ones.  Some of my friends are in their mid-thirties and getting married, thinking of having kids, careers booming.  It's really hard not having a spouse/partner to lean on or just to share the bills.  It really sucks.  A year ago I had a great life (and I was stage IV then too) and my job ended, no money, crappy disability to live on...  Life can change on a dime, and it's really hard without the financial and emotional support a partner. Glad I have my cat.

  • GryffinSong
    GryffinSong Member Posts: 439
    edited February 2010

    Welcome petjunkie. Looks from your picture that you have a cav or two??? Gosh I love that breed!!! We were going to get one when I was a teenager but had trouble finding one way back then and got a springer spaniel instead. Now I'm into sighthounds. ;)

    Hugs to all, and may our finances, health, and support systems improve!!!

  • petjunkie
    petjunkie Member Posts: 317
    edited February 2010

    Yes, my king charles cavalier Penelope is the sweetest dog! Spoiled rotten, like you would not believe. I just love her like crazy!

    For those of you not working, how do you get motivated to go out and do things? I know I could be volunteering, taking walks with friends, etc. But all I seem to want to do is curl up with my pets and watch TV. I am going through chemo, so I'm sure not feeling well is part of the problem. But I just don't want to end up a hermit-- I have a tendency to do that, anyway.  

  • konakat
    konakat Member Posts: 6,085
    edited February 2010

    You ask a very good question Petjunkie.  I have been busy with my move back to Canada in Dec, setting up with a new onc, getting ready with a clinical trial (find out tomorrow if I'm in), applying for disability, etc.. . Next week, finally I can be the hermit I love to be.  I know it will be work to get myself out of the house.

    I'd like to volunteer at the humane society or something animal related.  But I don't know if I can commit to a certain day each week since each day changes according to my mood.  Maybe be an on-call cat petter or do stuff for fund-raisers.  I wish I hadn't sold all my mosaic making tools -- I could be doing that -- maybe I'll buy some more and create stuff.  Take an art class.  Sometimes I hang out with friends but if they push to get me out I push back and want to stay in -- it's a big balancing act with my moods.  Right now I'm trying to think of stuff I'd like to do -- pretend I'm on retirement and not on disability -- it's less depressing.  If I do go out, fine.  If I don't, that's fine too. I'm only gonna do stuff if I want to.  Not much of an answer, but it's what came to mind.

  • cmharris59
    cmharris59 Member Posts: 496
    edited February 2010

    Elizabeth/konakat,

    I just read your crappy news. I am so sorry. I have been thinking about you a lot lately and hoping that all was going well. I don't know what to say. DAMN!!! I know chainsawz has done great with her issues and I am hoping that you will, too.  I hope that your weekend goes great and that you can find some inner strength to fight this head-on!

    C

  • konakat
    konakat Member Posts: 6,085
    edited February 2010

    Thanks Connie -- I'm feeling a lot better.  I can't wait to do the cyberknife thing and keep going with my treatment.  It can always be worse than what it is.  Reminds me of my friend at lunch the other day asking me what Stage V was.  Ummm, well, there isn't one, that's dead.  So as long as I'm Stage IV and not "Stage V" it's OK.

    I hope you're getting some help with all the crap you're going through.  It's been a very hard time for you!! Big hugs,

    Elizabeth

  • sushanna1
    sushanna1 Member Posts: 764
    edited February 2010

    Elizabeth,

    I'm sorry.  I must have missed something. Cyberknife?  Somehow I must have missed something.  Just wanted to send some words of support.  Hang in there.

    Sue 

  • sweatyspice
    sweatyspice Member Posts: 922
    edited February 2010

    Happy Valentine's Day to the single, no kids ladies!

    Only a few more hours and the Horrible Holidays will be over till next Thanksgiving!!!  Yippee!!!!!

    Plus all the chocolate will be on sale tomorrow....

  • Spoonchek
    Spoonchek Member Posts: 158
    edited February 2010

    I am glad to find this thread as I am unmarried, no kids, 53 and alone except for friends that have their own lives.  What keeps me going is my dog Truman who is three and the one thing I can hug on a regular basis.  I have so much fear about the future and what is going to happen if and when I become very sick from cancer.  It's tremendously lonely and although I have great friends and feel very blessed to have them, its not the same as having a man around to hold you when you have a day filled with fear about cancer. I made the choice not to get married or have kids but I agree that these days it would be very nice to have someone around........

  • LL12
    LL12 Member Posts: 21
    edited February 2010

    Hi

    I'm middle age old Asian Lady, single without husband and kids.

    Last two years, I had undergone three opt-fibroadenomas lumps being removed twice and removed once for endometrium polyps.

    My last year report shown that I had 41 breast cysts-more simple cysts including some complex

    cysts and also have two uterus fibroids and two ovaries cysts still under obeservation. This coming March I need to go for follow up six months ultrasound scan for breast cysts. I'm so worry and somtimes feel very depressed that I got nothing, very lonely. I admired those people with a happy family. Many years ago. I had missed a good guy. My younger sister who suffered from depression had ended her life in Year 1998. Sometimes, when I feel very down, I feel like following her footsteps to jump down and end up my miserable life. My life is not complete, I do not have a family. I felt very inferior being single. Two of my colleagues always gang up and  insulted me as old vigrin lady(in Mandarin), old werid lady and spread all scarcastic rumours and pass insulting remarks on me. My another colleague who treat me nicely in the past also believe in their nonsense and keep a distance on me unless is work related issue. I feel isolated in this company and wondering I do not harm people and did not do any bad things why I deserve this type of treatment? They both have their own strong religion but they like to find fault on me without any reason.  

    I feel tired  with my life and am always questioning myself is being single a problem to this soceity? If times can rewind back, I will want to pursue my happiness, having husband and kids. Sometimes, I  wonder why I still survive in this world for what purpose?  My life is not beautiful. I had debts problems, family problems-can't get along with my two brothers-heavy smoker and heavy alcoholism.

    I have strong family history of breast cancer-maternal grandmother and grand aunt died of breast cancer. My mother also had removed fibroadenomas lumps few years ago. I will be dragging my legs to go for ultrasound scan in this March. Will my complex cysts turn cancer? Should I go for the scan? How should I cope if is bad news and without a partner to support you?

    Sorry, hope everybody understand my poor English.

     Worried Old Lady

       

  • GryffinSong
    GryffinSong Member Posts: 439
    edited February 2010

    LL12, welcome. I'm so sorry for all you're going through alone. Come here often, there are so many wonderful people here. Are you in the United States? I found that going to support groups helped me when I felt very isolated. I was living in the middle of twenty acres in an RV, alone with my dogs. It was difficult to get through treatments, but I did find that friends and aquaintances stepped in to help.

    I'm 52 years old and have never wanted children. I do sometimes miss having a man "of my own." But on the other hand, toward the end of my marriage I realized that there's nothing lonelier than being with someone whom you no longer love. I'd rather be alone.

    Hugs to you, and I hope you find the support you need!!!

  • konakat
    konakat Member Posts: 6,085
    edited February 2010

    Hi LL12 -- first -- you are not an old woman -- I saw on some of your other posts that you're only 43!  I always tell myself that I'm younger than Madonna (50) so I'm still young.  Your coworkers are simply cruel and ignorant.  Some people are just bullies -- ignore them, walk away with a smile and let them wonder if you have a secret life that they don't know about.

    I don't know much about cysts but I don't think it means they will turn into cancer.  Get the scan in March and go in with the assumption that all will be well.

    I too wish I had a husband and children but it was not meant to be. To get through BC I find inner strength.  Yes, it can be very hard but somehow I keep on going, that something good is waiting for me around the corner.  You will get through it too if you have bad news in March; you are much stronger than you realize.   Hugs,

    Elizabeth

  • LL12
    LL12 Member Posts: 21
    edited February 2010

    Hi Gryffin Song - I'm not in United States. I'm from the Asia Country. Thanks for your kind advice. Yes, I will come here often as I love to read articles here. I hope to share my problems here and obtain some medical advice.Sorry for what you had gone through-the operation and treatment. Hope you fine.

     Hi Konakat-Wow, your memory is good. I'm 44 now.Sorry to here that your are at Stage IV and undergone through all the treatments. Thanks for your kind words and encouragement.

    Hugs to both of you.

    Worried Old Lady

     

  • konakat
    konakat Member Posts: 6,085
    edited February 2010

    We're here for you LL12.  I read everything in this site to learn.  And now I am on the boards every day -- it helps a lot.  We're not alone, there are always other women who have experienced something similar and can give support.

    And since I will soon be 48 I'll call you worried young lady!  Hugs,

    Elizabeth

  • LL12
    LL12 Member Posts: 21
    edited February 2010

    Hi Konakat

    Thanks for your reply.

    KissTongue outAs your Birthday is coming, I take this opportunity to wish you Happy Birthday!!

    Best Wishes and Hugs.

    LL12

  • LL12
    LL12 Member Posts: 21
    edited February 2010

    Hi All

    I have phobia of breast cancer.

    My follow up six months scan will be due on this early March and follow up doctor appointment will be due on Mid March.  I dare not to go for the scan. As after the scan, I'm worried that the hospital will give me an emergency call before my doctor's appointment is due to review the scan result. 

    I got many breast cysts including some complex cysts. I had fibroadenomas breast lumps being removed twice.  Very scared to know the scan result,,,,,,,,,,,,,.

    Anybody same boat with me? How you guys cope before the result is reviewed by the doctor???

      LL12

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