Triple Negative Vaccine

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chinablue
chinablue Member Posts: 545
edited June 2014 in Triple-Negative Breast Cancer

Has anyone heard of triple negative vaccine trial?

http://www.physorg.com/news148315876.html 

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  • HairSprayMom
    HairSprayMom Member Posts: 251
    edited January 2010

    Wow. That would be great!

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  • angelsabove
    angelsabove Member Posts: 363
    edited January 2010

    I have heard about this. I have actually been trying to get in a trial here in my city. I have left them a message but have not yet heard from them. PLEASE SOMEONE COME ALONG AND GIVE US MORE DATA. We need all we can get.

    MAY GOD BLESS US ALL 

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  • Macc
    Macc Member Posts: 23
    edited January 2010

    Here's the link to the Gov clinical trials page.

    http://clinicaltrials.gov/ct2/show/NCT00986609

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  • angelsabove
    angelsabove Member Posts: 363
    edited January 2010

    Has anyone heard how the trials are going? I recall seeing some trial about this is 2008.  Now we are here 2010.....NEED SOME UPDATES. I sure do want that shot.

    MAY GOD BLESS U ALL 

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  • Titan
    Titan Member Posts: 2,956
    edited January 2010

    I live one hour from Cleveland..I'm asking my onc about it when I see him in Feb....I WANT THAT SHOT TOO!   I will do whatever I have to to get that shot!

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  • Laurel07
    Laurel07 Member Posts: 2
    edited January 2010

    I am on the triple negative breast cancer vaccine trial..YEAH!  I just received my first shot last week, January 21st in Cleveland, Ohio.  I live in Minnesota and found out about this trial last year during my chemo treatment.  I made MANY phone calls and finally made an appointment with the Doctor in October.  550 people inquired about the trial and they took 17 so far.  It is all very interesting...I was feeling very sick from the vaccine..flu-like with a very hight fever, 103 for three days.  The Doctor was thrilled with my reaction...saying that my immune system was waking up with the vaccine.  This is exactly what they want to have happened.  Our immune systems did not see the first cancer cell as an invader.  To prevent cancer in the future, our immune systems need to read cancer as a bad thing.  This is what the vaccine does to our immune systems...it wakes it up!  I was diagnosed last December, 2008 with stage 1 IDC. I am 44 years old with NO family history of cancer.  I had a double mastectomy on New Year's Eve last year followed by 4 rounds of AC then 4 rounds of Taxol.  I had implant surgery in June of 2009.  I will receive 3 more shots then in May the cancer center in Ohio will check my immune system, via blood, to see if my system increased.  If it did, then I will receive more shots...12 total.  If it didn't, then the trial will stop for me.

    I will keep you all posted with the success of the trial.  Hopefully, it will be a great vaccine for all to use after they are done with chemo!

    Here is to research for TN!!!

    Take care,

    Laurel 

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  • 2z54
    2z54 Member Posts: 261
    edited January 2010

    Wow!  Best news I've heard in a long long time!!!!  When can we sign up????? 

    Here's hoping you get to keep going on the trial and it's a great success!!!

    sue

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  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    I have looked into this trial.  You have to be completely finished with treatment, including radiation.  They are only taking 37 people...that's what the printout says.  I sure hope this is a success.  For all of us TN ladies.  Hopefully they will open this trial up to include a lot more women.  I would love to participate in this trial but I am just starting rads.  I am in the SWOG0307 trial, so at least I am doing that.

    Anita

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  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    Thanks Laurel.  Please continue to update us on your progress and the trial's progress.

    Anita

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    I wonder... What about the Stage IV?

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  • sftfemme65
    sftfemme65 Member Posts: 790
    edited January 2010

    Im done with treatment.  I have been for a little over a year and first thing Monday morning I will be on the phone about this trial. 

    Teresa

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  • sftfemme65
    sftfemme65 Member Posts: 790
    edited January 2010

    Ok, I just talked to the trial nurse at my doctors office, she is going to get more info for me.  I did read the trial and it appears to be in the very beginning phases.  I will let you all know what I find out.

     Teresa

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  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    leprechaun - No unfortunately it is just for Stages I-III. 

    Teresa - thanks looking forward to hearing what you find out.

    Anita

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  • janinvan
    janinvan Member Posts: 83
    edited January 2010

    laurel,...All the best to you with this vaccine!

    I wish that I could speak to you about it, etc.!!

    Please tell me the phone number, etc./website maybe.....and ...??

    I have recurrence on my masectomy site after 13 years (infraclavicular)

    I take oral capecitabine (xeloda) to manage it.

    Janice

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited January 2010

    Hopefully this trial will be a success and will be expanded to include more people.  If anyone hears more, please post on this thread.  Fingers crossed the trial becomes available for ladies in Canada.

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  • thenewme
    thenewme Member Posts: 1,611
    edited January 2010

    Laurel - That's awesome that you got to be on this trial!!!  Thanks so much for posting - I wish you the absolute best with it!  And thanks so much for volunteering for it!  Keep us posted - hopefully they're right about kick-starting your immune system!

    There's a discussion about this over at tnbcfoundation.org too.  I must have been one of the 550 that inquired about it, and just a few weeks ago I got an email back from Dr. Baar saying that they are hoping to add another 20 people to the second stage in 12-18 months.  

    It would be so great if they get good results with it and could open it up for a larger study!

    Here's the study link:  http://www.clinicaltrials.gov/ct2/show/NCT00986609?term=NCT00986609&rank=1

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  • Laurel07
    Laurel07 Member Posts: 2
    edited January 2010

    It is so exciting being able to chat with you all regarding triple negative!  I am in a support group but only a few of us have this exact diagnosis.  More details about the vaccine, I am #3 in line to receive the vaccine.  #4 happened the say day I was there.  If the first 17 are successful, then he will open up the trial for the next 20 in line, and so on.  Keep calling/emailing Dr. Baar if interested.  I feel like I have nothing to lose, only to gain.   It is expensive, I pay for my flight/ hotel, etc.  The trial pays for everything done at the hospital.  I still feel like I am fighting this cancer!!  Dr. Baar is VERY hopeful with the vaccine.  It is interesting dealing with the research side of things.

    If you all have any personal questions, you can email me at my home email...mlkiesow@gmail.com

    God luck to you all...stay healthy!  It is below zero in Minnesota today but I still went on a run!  STay strong and HEALTHY!!

    Laurel 

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  • Maryiz
    Maryiz Member Posts: 975
    edited January 2010

    Best wishes to all those able and willing to participate.  I am not Triple Negative,  but this sounds so great for you ladies who have been waiting a long time for better treatments.  Lets hope this is the real deal.  Maryiz

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  • PGulatee
    PGulatee Member Posts: 2
    edited October 2011

    Hey Ladies, I see a lot of replies but no one recently has posted any details on the E57 vaccine, request an update on this vaccine.

    Thanks a lot!

    Parul Gulatee

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  • miffyjones
    miffyjones Member Posts: 33
    edited January 2012

    Hows anyone going on this trial - any updates?

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  • miffyjones
    miffyjones Member Posts: 33
    edited January 2012

    Just read this article about new vaccine that may be beneficial to TNBC - thought it sounded very positive. Will try and contact researcher to try and find out more re trials etc.

    http://www.medicaldaily.com/news/20111214/8249/breast-cancer-attacking-breast-cancer-reducing-breast-cancer-in-mice-vaccine-attacking-breast-can.htm

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  • flower1
    flower1 Member Posts: 1
    edited July 2012

    Is there fresh news on people who had vaccination longer time ago?? what is the result now?? is it working??

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