IS THIS TOOOO MUCH????

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Ok ladies here it goes. You can see my signature below. I did double mastectomy in May. I took three week break and began Chemo. I did chemo for six months. The regimen was 12 weekly Taxol and I did 4 FAC tri-weekly at the end. Got another three week break and am now doing radiation. I am doing 32 treatments. I did #26 this morning. They are doing 25 regular rads and 7 Boost....OUCH I started BOOST today and now I am pretty TORCHED....

Here is the thing I am NOW shopping at whole foods and trying to do ALL I can. I am gonna tell you my daily (REGIMEN) Please tell me if it is TOOO much........

MORNING----------Vemma dietary supplement, a liquid whole food vit. and mineral. 5000 IU D3, 200 IU Vitamin E, 500 MG Vitamin C, 1000 MG Garlic, 300K MG Milk THistle, Curamin, 50 MG Ubiquinol, 200 MG Alpha Lipoic Acid

Afternoon----------1000 MG Garlic, Curamin

Evening------------ 1000 MG Garlic, Curamin, 500 MG Ester C, One tablespoon Cod Liver Oil.

Also Juice daily......I add one Tablespoon Each of the following.......Barley Grass, Spirulina, Super Algae, Wheat Grass Alfalfa, Chlorella

The Juice I usually do is Carrots, Broccoli, Kale, and an Apple.

I also eat 2 servings of Organic Yogurt and on each serving I add 2 tablespoons of Lecithin, The other serving I add 2 Tablespoons of Brewers Yeast.....

Or I just put the above on my organic oatmeal and blueberries....... 

UUMMMM....ok I do drink about 16-32 ounces of green hot tea a day.....

Although while shopping this morning I did buy some green tea supplements...........

Also put GIJO berries on yogurt.......

AM I DOING TOOOOOOOO MUCH?????????

Sincerely,

36 year old MOM, WIFE, SISTER, DAUGHTER, and FRIEND TOO MANY who had NO FAMILY HISTORY, HAD CHILDREN YOUNG, NURSED AND WAS WAITING ON 40 TO GET THE FIRST MAMMO..........

I am CHANGING my life and I just need HELP......

May God Bless Us All 

Comments

  • Twinmom77
    Twinmom77 Member Posts: 303
    edited January 2010

    I'm sure some of the other well-read ladies on here have an answer for you, but I don't have a clue, lol!  I just wanted to say good for you!

    A good holisitic doc or naturopath would be able to tell you too. Although I do read up on a lot of alternative/complementary treatments I would never know where to begin or what things would be right to take with my physiology, so I see a naturopath.  Now that I'm through with most of the treatment he's going to do hair analysis and hormone and gut testing and come up with a supplement and dietary program specifically for me and what I'm deficient in. Might be something you want to look into if you have one around you.  Good luck!

  • angelsabove
    angelsabove Member Posts: 363
    edited January 2010

    Twin------------I will look into that....THANK YOU......

  • cd1234
    cd1234 Member Posts: 169
    edited January 2010

    Hi Agelsabove,

    I am on pretty much the same schedule. I do take a few other supplements. I have also completely eliminated all animal protein (meat, butter, dairy, eggs etc) alcohol and sugar. I have 1 piece of fruit a a day is all the sugar I eat. I know people think I am insane, but I am doing what I feel I need to do right now. My oncologist thinks I have lost my mind. She says that none of this matters, I will either get a recurring cancer or not.  It makes me feel like I am doing something though!

    Take Care! 

  • angelsabove
    angelsabove Member Posts: 363
    edited January 2010

    OH Crystal....ME TOO.....That is how I feel....Give me some ideas of your daily food schedule. I am doing yogurt so wouldnt that be considered ANIMAL PRODUCT????? awwww I so need food ideas too.....I am trying lots of beans....and lentils.....I do the Yogurt. I do STEVIA in my whole grain organic oatmeal. We Father in Law has fresh blueberries he freezes and I put those in my oatmeal....I have changed my bread to Ezekial 4:9...I do salads with organic dressing....I no longer do WHITE potatoes...I DO bake me organic sweet potatoes and eat those....I just want to make sure I am getting ENOUGH calories.....AGAIN I am trying to learn a WHOLE new way of LIFE....UGGHHHH it is a FULL TIME JOB.....

    When I spoke to my Oncologist about WHAT I was doing....She made the statement (I believe TOO much of ANYTHING is NOT good)

    I thought well I MENTALLY HAVE to do this. As you can see I am what is known as TRIPLE NEGATIVE and I dont have a pill to take......so I do this.....

    I am not excersising like I should.....I AM JUST SO DURN TIRED.....I just want to get through this RADIATION and then will really get busy on that........

    I do feel guilty not being MORE physical....although I feel guilty about getting this stupid disease in the first place. The family EXPENSE I have caused, the worrying that my hubby and kiddos and my mom does......UUUUGGGHHHH I am RANTING AGAIN....

    And yes I know.....It is not my fault....I am going to therapy right now. Just trying to deal....I am so scared about next Friday...That is my last Rad. Treatment. Will I be SOOOOO scared to be done.....Atleast  with treatment I feel like I am DOING something...... 

  • cd1234
    cd1234 Member Posts: 169
    edited January 2010

    For breakfast I start out with a wheat grass, alfalfa grass, algae, spirulina comb drink. That has replaced my morning coffee. Then I have oats or Ezekial bread with hummus and sliced tomatoes and avocados. Sounds weird for breakfast, but it is good. Sometimes I have cooked millet for breakfast. It is different, but with some cinnamon, and almond milk it is okay. For lunch I almost always have a huge salad with lots of cabbage, spinach and other veggies. My dressing is always flax seed oil and Bragg's unfiltered organic apple cider vinegar (good stuff). Dinner is tricky because I try to keep it interesting for my husband (I always cook something else for my son). Anyhow, lots of beans and lentils. Lots of brown rice with sauteed vegetables. Have you tried the Ezekial sprouted tortilla wraps? They are great. I make them for lunch sometimes with hummus and veggies or for dinner with brown rice, black beans, veggies and salsa. I usually make some crazy juice concoction at least once during the day (sometimes twice) that consists of kale, spinach, beets, tomato, parsley, carrot and celery. I also eat lots of raw almonds and raw pumpkin seeds on my salads.

    I also have eliminated all body care products that have any junk in them. Burt's Bees products are very clean. Their lotion, shampoo, conditioner is all great. I won't even paint my nails anymore. I have also cleaned out all chemical cleaning products. I only use white vinegar, baking soda and lemons to clean.  

    Don't beat yourself up about the lack of exercising. I am 5 months out from my last chemo and just getting pretty regular again. 

    A great book to read is the PH Miracle by Robert Young.

    Keep doing what you are doing! 

    Take Care!

  • Yazmin
    Yazmin Member Posts: 840
    edited January 2010

    cdean1971: Everything I have ever read about alfalfa from Dr. Weil's web site to Drugs.com, points to the fact that this is TOXIC.....

  • cd1234
    cd1234 Member Posts: 169
    edited January 2010

    Alfalfa grass??? Really?? I will read right now.

    Thanks 

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited January 2010

    I don't think eating only healthy, organic, natural things can be considered "too much"... as opposed to what, making sure you eat some cheeseburgers or something? It does sound like quite a regimen of supplements... I'm trying to eat garlic, turmeric, etc. in my meals rather than taking them as capsules... but otherwise I don't see anything you're doing that's over-the-top. The one thing I might add is iodine (e.g. Iodoral)... that's a pretty potent breast-cancer-fighter that's hard to get enough of in food.

    Basically, I think it's only "too much" if it's wearing you out and sucking joy out of your life. I started this journey with probably 30 different supplements. Now I take 5-6 super-critical ones (like vitamin D3 and iodine and a few others that are very important) and the others "as needed" (e.g., on a day when I don't eat food with turmeric/onions/whatever, I'll pop a supplement for curcumin/quercetin/whatever).Eating good organic whole foods is never a burden to me... I've never thought, "Wow, I'm doing too much by eating this delicious green smoothie; maybe I should have a fried egg and bacon instead"... you know?

    My oncologist thinks I have lost my mind. She says that none of this matters, I will either get a recurring cancer or not.  

    Things like that make me so mad. Most oncologists have NO idea the role of nutrition and lifestyle in preventing and treating disease. It's totally irresponsible to say things that are 100% WRONG to their patients. Would a good nutritionist ever dream of saying "Chemo doesn't make any difference to cancer"? It's just ludicrous.

    Re: alfalfa, I've read that but I've also read other sources that say that the amounts of canavanine (the toxic substance in alfalfa seeds) are neglible once sprouted, and even that this natural "toxin" may even help fight certain types of cancer. That made me think maybe it's one of things like B17... since it's toxic to certain cell types, it's mistakenly written off as poisonous... but, I haven't done enough research on it so I just stay away from alfalfa and use broccoli and other canavanine-free seeds for sprouting. 

  • cd1234
    cd1234 Member Posts: 169
    edited January 2010

    Hi Julia,

    Thanks for the info. on alfalfa sprouts. I know what you mean about oncologists. I was thinking this morning about mine, and how she tells me I am crazy for eating the way I do and taking supplements, and I was chuckling because while I was going through chemo she did not want me to take any antioxidants because her words "they are so powerful and work so well, they may interfere with chemo". But, now when I am trying to be as healthy as I possibly can through nutrition, it is a waste of my time. I always wonder what she would be doing if she had cancer.

    Take Care,

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited January 2010

    I was chuckling because while I was going through chemo she did not want me to take any antioxidants because her words "they are so powerful and work so well, they may interfere with chemo".

    Heh heh, it's funny how many doctors talk out of both sides of their mouth. My infertility doctor told me flat-out that supplements/herbs do absolutely nothing... then, when I told him I was taking a supplement that acts the way Metformin does in the body (keeps blood sugar on an even keel), he went BALLISTIC and yelled that I should never taken anything that hasn't been approved by the FDA.

    I thought, "Well, which is it? do they do 'absolutely nothing' or can they have an effect on the body?" 

    That "supplement" I had started taking, btw, was cinnamon. Yeah, I guess because cinnamon hasn't been approved by the FDA to regulate blood sugar, I shouldn't mix a teaspoon into my millet every morning, since it could be DANGEROUS..... Tongue out

  • Yazmin
    Yazmin Member Posts: 840
    edited January 2010

    Julia: you eat millet! Me too! all kinds of millet-products (millet couscous, millet poridge, you name them....). Millet is now becoming known for its cancer-fighting properties, isn't that remarkable? (considering that this cereal had been relagated to bird-food in most developed countries, and was only used in Asia and Africa)

    I Guess when they find out that we are eating millet, some of them will go ballistic over the detrimental aspects of our millet-eating habits.............................

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited January 2010

    Yes, and I LOOOOOVE it!!! It has such a yummy flavor and texture... I like it much better than amaranth and quinoa (two other grains I eat occasionally)... mainly, I eat it for the B17 it has... definitely cancer-fighting!

    What's your favorite way to eat it? I love it for breakfast as a hot cereal, with a bit of extra-virgin coconut oil mixed in (mmmmm!). It's also great in dinner meals as a substitute for brown rice!

  • valeriekd
    valeriekd Member Posts: 287
    edited January 2010

    Not to be a drag but I don't think flax seed is good for er+ gals! (phytoestrogen). A good homeopath is worth his/hers weight in gold! Be well, Valerie

  • Yazmin
    Yazmin Member Posts: 840
    edited January 2010

    Julia: I love millet couscous with a spices-laden stew, and I also like millet-flour poridge (with lemon juice and maybe some stevia). I do like quinoa, as well.

    Amaranth, I eat it occasionally. Millet cousous and millet flour are sold in latin/asian/african stores here in the Greater DC area (such as "The Red Apple" in Langley Park, MD. I am not so sure about other parts of the country).

  • Hope_M
    Hope_M Member Posts: 261
    edited January 2010

    Dear Angelsabove,

    Hon, I wish I could give you a big hug!  What I hear (and I may be wrong!) is that you are desperate to do what you can do to give yourself the best chance to remain cancer free.  You may be grasping at straws, or you may be doing exactly the right thing.  Or what you are doing may be irrelevant or ineffective and you may recur.  We just don't have the science to say for sure.  Experience tells us that wonderful exercisers and eaters have gotten BC anyway, while people like me (overweight meat and sugar eaters) are still cancer-free after almost 7 years. For any given individual there just is no way to guarantee that they will recur or that they will stay NED.

    Eating healthily is a good thing.  (I wish that I could do it consistently!)  I think that if you are asking "is this too much", then your gut instinct is telling you "yeah, you're probably going overboard a bit".  So maybe you will adjust your diet a bit down the road.  But, you know, I think you should feel free to go overboard or wig out in some way.  It's okay in these circumstances.  I'm a big fan of doing whatever you need to do to feel more in control as a cancer patient.  For some, it's more Xanax or silly movies.  For others, it's prayer or exercise or fanatically sticking to a healthy diet.  Your coping mechanisms are your friends as long as they aren't hurting others or keeping you from following your doctor's treatment plan.

    As you approach the end of your active treatment, you may feel anxious about leaving it.  This is very common here on the discussion boards and you are not the only one to feel that way.  Just like when you first take the training wheels off your bike, it is scary to ride alone.  But you will learn to feel confident as you get more time under your belt, and more experience with moving out of treatment.  You are almost at the end of a very long dark tunnel and I congratulate you! 

    Hang in there.  This disease marks us forever.  How it leaves its mark mentally and emotionally is partially our own choice.  

    Good luck!

    Hope M. 

  • angelsabove
    angelsabove Member Posts: 363
    edited February 2010

    Hope and all the other wonderful ladies and all their comments....THANK YOU.... I really appreciate all the responses. I think the Alfalfa thing is VERY interesting...

    LOTS OF LOVE

    MAY GOD BLESS US ALL 

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