Anyone Starting Chemo Jan. 2010?

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  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited January 2010

    Thank you very much, Grace!!

    Wow Frisco mom, that looks great! Man Ihope mine looks as good as yours does! It looks FATASTIC!

    Cammy2, good luck in finding a wig today!

    Thankyou  very much, bbd!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010
    youngmom-my heart goes out to you and your struggles.  I'm not a religious person but I believe we were all given this challenge at this point in our life for some reason. I also believe we are not given more than we can handle.  I'm confident in the end of the sh*tstorm you and your family will reap many positive benefits from this experience. You sound like an awesome mother and cancer will not change that.  I'm sending white light your way!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Its snowing hair and for some weird reason I'm excited about being bald. I've always looked for a socially acceptable reason to shave my head. Now I got it!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Hey Leta, OH YEH! The neulasta hit me hard.I felt like someone was trying to yank my spine out of my back and both spine and hips throbbed with pain. Everytime I changed positions from sitting to lying on the couch, the "throbbing pain" in my back and hips was terrible. Then the pain hit in the bones of my arms and legs. It has gradually subsided but it took a good week or more. The SE from neulasta just so wierd as I have not felt pain in that way before. Chin up and I know it is hard. ((((Hugs))))) SV

  • Just-Sher
    Just-Sher Member Posts: 68
    edited January 2010

    I can't remember where I read it but did someone on this site mention taking a certain claritin dosage with or before their neulasta shot?  I wanted to be able to bring something with me to my onco appt next Tuesday.  They were hoping that my neutrophils would bounce back on there own by now, but no luck.  I'm only at 0.9 up from 0.8 last week (should be at 2.2 at the low end I think).  I am guessing that I will be getting the shot, but really don't want to have to deal with the additional SE, so if you know the the dosage for claritin that would be awesome.

    You ladies are the best - so glad that I found you!

    Just-Sher

  • leta17
    leta17 Member Posts: 120
    edited January 2010
    youngmomof3 - I hope things are going  better for you. I have 2 young ones 8 and 10 and I absolutely believe that all of what I am going through will make them better persons, stronger and more empathetic of others that are going through a rough time!  I think your students too will learn so much from you and may even think it is 'cool' for you to be bald!  You could dress up as a pirate on the days you feel the worst, so that it adds laughter for you and the children, or even buy cheap costume wigs, like if you are teaching about the presidents, wear a white wig like George Washington!!  Your children and the children in your class don't love you for your hair, they love you for who you are, you are their role model!!  Yes, they are perceptive but also resilient!   They have so much to learn from you this year more than before, you will be amazing!
  • VegasDiva
    VegasDiva Member Posts: 109
    edited January 2010

    I just wanted to throw my 2 cents in about the Neulasta.  After my first shot I did have terrible bone pain the 2 days following the shot.  I took some Advil and felt much better.  The second time I had the Neulasta shot I did not get any bone pain at all.

    I think it is definitely better to get the shot and keep your counts up rather than to try and "bounce back" when you are already running on empty. 

  • Just-Sher
    Just-Sher Member Posts: 68
    edited January 2010

    VegasDiva-thanks for the info about the shot.  I am pretty sure that I am going to have it.  I truly can't take staying in the house and away from people anymore!  I am starting to go stir crazy!

    Young Mom of 3 - I too have young kiddos.  My son is 8 and my daughter is 5.  Their school has been totally awesome in making sure that I know how the kids are doing in school and I let them know what is going on with my treatments, how I'm feeling etc.  its so nice to have those extra eyes and ears watching out for the kids, so we are able to address any issues that my cancer is causing for them.  My son's 3rd grade teacher is truly going above and beyond.  He called me last week to see if the class could put together a Breast Cancer Awareness basket for the school's raffle.  He wanted to make sure that I was OKAY with it.  Now, he wants to  make this an educational moment and wants to teach the class about breast cancer.  I talked with my son to make sure he was okay with it and then I talked to the onco-social worker at the cancer care center and she is going to go and talk to the class (age appropriately about breast cancer!! ) About a month ago, the class had a doctor come in and talk about one of the student's diabetes! Can you say AMAZING TEACHER?!!!

    So question for the group is anyone having CHEMO-FINGERS when typing?  I think its like chemo brain or brain fog- although I know what I want to say/type my fingers seem to have this dislexia thing going on!  LOL

  • michelle_nj
    michelle_nj Member Posts: 50
    edited January 2010
    Just-She and mslrgr - thanks for the port information.

    Cammy2 - Yes we also have about the same diagnostic, just that I had multiple tumors, the biggest 3cm.

    mom2Bnegativex3 - They didn't tell me anything about radiation. I had dmx with 0.7mm clear margin from the chest muscle, but the surgeon is confident she cleaned it very well. So I don't know yet. The plastic surgeon explained me that the sequence is: chemo, 4-6 weeks rest, implants, 4 weeks rest, radiation, 1-2 month rest, nipple reconstruction.
    The bone pain is manageable with Tylenol, but I can't stand for long or walk more than 30 min, sometimes even less(in the days following Neulasta or expansion).

    Walking is my only exercise, does anybody with expanders do any other exercises, except the reconstruction hands movements?

    VegasDiva - I totally agree, better some pain than getting into more complicated issues.

    Is second A/C worst than the first, with more SE?

  • mslrg
    mslrg Member Posts: 293
    edited January 2010

    The hair fallout was getting beyond ridiculous, even on Monday when I had surgery. So yesterday I called the wig shop and made an appointment to go in today and get my hair shaved. I cried and cried! Even though what I had left was about 1/3 of what I had on my head a week ago, and even though what was left only needed to be touched and it fell right out without having to be pulled, I cried. And even though what was left looked like a straggly bird's nest that had been chewed by angry rats, I cried! First, the lady chopped my hair off as short as she could, then came at me with the electric shaver, and cut my hair within a 1/4 inch of my head. She explained that they don't shave the patient completely bald because my sore head that feels like my hair was combed  in the wrong directionand then tied up in a tight ponytail is apparently typical for chemo patients, and shaving to complete baldness makes it hurt even more. The rest of my hair will drop out more easily, and won't grow in stubbly.

    I couldn't watch, so I closed my eyes the entire time, while Bob Marley's song, "Crazy Baldheads" kept playing over and over in my mind. We played around with my wig some more and it actually works a little better now that I have no hair, but it's not comfortable yet, definitely not something I would want to wear all day, every day. So I picked out a couple of chemo head scarves, which are pretty, but they make me look like a slave, so I will have to be very careful about how I tie them! I also got a "halo", which is a ring of hair that goes around the head and gives the appearance of a full head of hair sticking out from under a hat or scarf--again, it will take me some time to get used to having a band around my head, but it's another option. I decided to wear one scarf out of the shop. I paid for my new things, and Mum said she would bring the wig.

    From the wig shop, we went to the Cancer Center to check out some books from their library. They also give away free knitted hats that former cancer patients make. I picked out two hats and a scarf, and checked out 4 books. Mum and I walked across to the hospital cafteria for lunch, and saw the hospital's Breast Cancer Navigator, Mary Pare--a lovely lady, who's job it is to work exclusively with breast cancer patients, from the "touchy-feely end of things" as my surgeon says. Whenever I have surgeries, including this past Monday, she shows up at my bedside to hold my hand, and talk me through the procedure and what I should expect. Nice to know someone like this is is there for me, as I have 3 more operations to go with this journey. When I was first diagnosed, she gave me a binder with all the information I would need as a breast cancer patient, everything from explanations of the different types of breast cancers, all the treatment options, support group information, appearance issues, on and on. When I had my mastectomies, she gave me an entire tote bag of things to help the process go more smoothly: mastectomy camisole, a pocket belt to hold post-surgical drains, lip balm, tissues, pillows to rest arms that are rendered useless for days after surgery, books, notecards, writing utensils, notepads, toiletry kit, clean dressings, gentle lotions for sensitive skin, all sorts of goodies. On Monday, she gave me a little heart-shaped pillow to take home with me to cushion the seat belt from rubbing my incision areas. Mum and I invited Mary to join our table and have lunch with us and we talked about a lot of things, including Haiti. She is a Red Cross volunteer nurse and may get called to go out there and help out for a while. Then Heidi, my onco nurse came in. Sitting in the cafeteria, I recognized several faces of hospital workers who've had a part in my care since I was diagnosed. Must mean I'm there a little too much! But it also helps to remind me how lucky I am to have mostly dedicated people taking care of me in such a great hospital.

    We made it home in time for Mum to go back out and pick the boys up from school. It was only then that I realized she had left Marie at the wig shop! I called the shop and they told me that not only did she have it, but she had the bangs in curlers for me so I won't have to clip them back like I did in the picture that's posted on this site. So far, my oldest son and DH have seen my hairless head and looked surprised. My 9 year old is still at rehearsal, so he'll get to see it later. I'm tired and my incisions hurt, so I'm going to take some pain meds and try to take a nap. It's been a long day!

    Send a message

  • mslrg
    mslrg Member Posts: 293
    edited January 2010

    Youngmom--I posted earlier, but don't see my post--have you considered taking a leave of absense from work? I also work at an elementary school--it's too hard to be the educator you want to be, the mom you want to be, and the cancer survivor you need to  be. If you can afford to take some time off to focus on yourself and your family, I think you would feel less stressed. Trust me, I know how hard it is--I am a principal, was only at my job 2 months, then had to walk because of cancer! I worked in the field for 25years to finally come to this place and then, BAM! I got hit with cancer! My kids are both on the autism spectrum, and I also try to do it all like you, but if I don't give myself the time and space to heal, what good will I be to my job or family?

    Camy--sorry about your bad experience. I hope you feel better.

     All of you brave, wonderful ladies: I hope you are well and hanging in there!

  • friscosmom
    friscosmom Member Posts: 146
    edited January 2010

    Just Sher - on the Claritin I took one tablet once per day starting the day after my chemo and one day prior to the Neulasta shot (chemo Thursday. Neulasta Saturday). I took one Claritin daily for about three days and had no pain. I did ask my Oncologist the day of my first treatment if he had a problem with me taking the Claritin before I did it.

    mslrg - I'm so sorry the shaving was so hard. :( I had mine shaved today and I don't know why but I didn't cry and I really expected I would. I think I was sort of glad to not have all that hair wadded up under my wig which I had worn yesterday and today, it was uncomfortable and the wig didn't fit right with my hair still there. Plus today was the day it started coming out in handfuls (exactly 14 days post treatment) and I didn't want to experience that any more. Your wig is precious so wear it with pride! :) Did I read that correctly, did you call your wig Marie? I was thinking of naming mine Fido or Fi Fi. :)

  • wren22
    wren22 Member Posts: 40
    edited January 2010

    For all those dealing with the Neulasta, please try the Claritin.  I waited to see if I truly needed the shot, and I did.  I took a Claritin (not the one with the decongestant) the day I got the shot and the next three days.  I had no pain at all!  My oncologist also had no problem with me trying this.  It is such an easy solution for a horrible side effect.

  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited January 2010

    Well I am on day 3 of my 2nd tx and I haven't had dry mouth, a little fatigue but then it works out. No nausea or anything. BUT my hair is starting to fall out. I am really trying to conserve it for tomorrow night. I am going to try to curl it and watch it all fall out. Oh well. I can do this. I get all my strength from you, my family and my friends.

    Just Sher I havn't had any bone main I get achey in the morning and fell feverish but no fever. I do't know if that is the same though. Sorry it is so tough for you. It stinks that we have to worry about these side effects along with having this damn cancer.

     Your so right MsLrg! We have to take care of ourselves during this to fight this then we can be the moms we want to b e and go for our jobs when we are better. I am so sorry about your hair. do you think ladies looseing their hair vs. their breast is worse? I haven't had my surgery yet but my hair is shedding so it will be no time. I am kinda numb to all of this.

     Good night to all you fine ladies.I wish you all the best andhope tomorrow is  better then today!

  • gramoflexus
    gramoflexus Member Posts: 52
    edited January 2010

    Pagowens , sounds like we go to the same doc . the advice about vitmines is the same my doc recommended I too only take my HB pill . As for the steroids I get it IV before the Chemo . I was taking it pill form for 3 days after but really was not doing me any favors , Very jittery and face very flush. I love your quote about wonder women I wear a wonder women tank top on Chemo days , nurse get a kick out of it .

    Not sure who mentioned something about water but same thing here I drink so much grape flavored water I get sick just writing grape hhaha how about trying cranberry juice and gingerale . ginger is very good for nausea . Fondly Linda

  • Issymom
    Issymom Member Posts: 264
    edited January 2010

    mom2bnegativex3 - You ask what was harder, losing your breasts or your hair.  Surprisingly for me, losing my hair was harder than my breasts (I had a bi-lat).  I guess it was because I felt that they were ticking time bombs (BRCA1+) and at 47 and having 2 kids, they were big and droopy.  I didn't really like them and when I get around to reconstruction they will look better before.  I know they won't feel the same but I didn't have a choice.  As for my hair, I liked it and the sad part for me is that I don't know what I am going to get when it comes back.  Maybe it will be better but maybe not. Uncertainty is so difficult.

    Today is day 2 after my 2nd AC treatment and I am feeling really good.  No nausea either day (knock on wood).  I was really busy today and am very tired right now.  I did get a little steroid with my treatment yesterday and I woke up at 3am and really never went back to sleep.  I hope to sleep well tonight.  I hope all you sleep well too.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited January 2010

    nkrun,

    I took some time off the boards to deal with the hair trauma, and I must say...after "transitioning" I'm free of the angst.  I worried and stressed for so long, and it was shocking at first.  Many phone calls to friends and crying jags.  Then came the widening part, hair coming out in my hands, you name it.  I cut it down to 1/4 inch all over, and now I am having fun with makeup and earrings.  I have a wig and pretty scarves, and am comfortable looking at myself in the mirror.  I didn't know if I was going to pass out or need an ambulance when I imagined myself bald prior to actually going bald. 

    and you sound like you are way ahead of where I was.  Mine started on day 15, and in five days I felt a kinship with Charlie Brown's Christmas Tree. 

    take care,

    Traci

  • mslrg
    mslrg Member Posts: 293
    edited January 2010

    mom2bnegqtivex3--both losing breasts and hair are very upsetting. I now have neither and feel like I look like a boy! When I was talking to the Breast Cancer Navigator today at lunch, she said that getting the mastectomies and having to shave your hair are the two most difficult days in the journey. I would agree. Also my first chemo session was really diffficult-having to surrender to being poisoned was very difficult and felt contradictory to making my body healthy. To be truthful, none of this is easy.

    Friscomom--yes my wig is called Marie--that's the name the manufacturer gave her, so I kept it.

    Sitting here looking like I've been Chernobyled! Cry

  • youngmomof3
    youngmomof3 Member Posts: 156
    edited January 2010

    You women are AWESOME!!! I couldn't wait to get on here tonight and am so glad that I did. Just what I needed before another round of Herceptin and Taxotere(2nd try) tomorrow. Having some anxiety about trying it again and hoping for no reaction this time. Thanks so much for all of the feedback re: my mommy issues and I know I am not alone with all of this. It truly is the hardest part but my DH & I are determined to not let cancer take anything from our family.

    GraceOkinawa: Thx for your support and kind words. I hope that watching your mom's strength dealing through cancer gives you strength on your journey.

    Georgiabirdgirl: Loved the idea about the sign on your bedroom door. Today was the first day I felt like myself which was great but unfortunately I have to do another round tomorrow so it will be short-lived. So glad to hear your wig shopping went well and I'm sure it looks great. I ordered some scarves online last night and am thinking this will be my way of making fashion statements.

    nkrun: thx for the white light. I just read an article about people who have found the silver lining to their having cancer and am hoping that I will have one at the end of this journey. A teacher I work with is 6 yrs cancer-free and told me that one day I will look back on all of this as a blessing. I then looked at her like she was crazy but gave it lots of thought and know that there is a reason and I am determined to find some positive, some light, something good in all of this. Not sure what that will be but it is all a process so I'm going with it.

    Leta17: I love all of your ideas for scarves & wigs at school and will have to look into it. I am all about using humor to help deal with all of this. Thx for your inspiring words and I'm sure your children are going to feel your strength and courage as well. It is certainly a lesson that I didn't plan on teaching them this way but it is our experience and we all need to grow from it.  Also, I saw that you are from NJ, wanted to see where you are at and also where you are going for treatment. You can send me a private message if you want.

    Just-Sher: yes you do have an awesome teacher! I love that he took this opportunity as a teaching moment which will certainly be more meaningful for the students that anything a book can tell them. I did contact both of my boys teachers and they have been great so far but you reminded me that I should check in again just to make sure all is okay with them. Also, thought I was the only one with "chemo fingers". I have to retype every other word. Very frustrating and my handwriting isn't any better. thought it was my eyes but maybe it is my fingers.

    mslrg: Sounds like you have an amazing hospital full of resources. Sorry to hear about your hair cutting experience but seriously love your wig! Thx for the tip about not shaving it completely bald as I will be shaving in the next week I'm sure. As for work, it all just sucks. I am a guidance counselor working in 2 buildings(so already overwhelmed) and this is only my 3rd yr in the district and last year I was on bedrest in the hospital for 5 weeks and then had a baby in the NICU for 7 weeks so didn't return till end of March. My district is amazing though and so supportive. I have had teachers donate 75 sick days to me and we also have a sick back that I can get another 25 days from so I really could take the rest of the year off paid but I like my job and am hoping that once this whole chemo thing gets rolling i will have a better idea of what I am really able and wanting to do. My principals keep telling me to do whatever I want, whenever(rest in the nurses office, leave early, go to appts, hide in my office, etc) but I have guilt about being in work and not working. You are right my 1st priority neeeds to be getting and staying healthy, my family and then work. Just taking it day by day and not committing myself to too much re:work. Sorry to hear about you...that must have been very difficult to have to tell your district esp after how hard I'm sure you worked to get that position. Are you able to go back once you are done with treatment?

    mom2Bnegative: I also live in a small town and the people are already talking. I have an event at my son's school tomorrow night and am dreading the looks(pity, curiosity, who knows what will be going through their minds). Just have to hold my head high b/c BC is nothing to be ashamed of. I am also doing surgery 2nd, probably 4 or so weeks after chemo. Bi-lat with immed. reconstruction. I have heard that you should do recon before rads but my onc doesn't think i will need rads after bi-lat so we'll see.

    my friend bought me the Anti-cancer book which I just started reading. Normally I am not the most healthy person so tonight of all nights I decide to finally drink the green tea that has been in my cabinet for probably a year and then I come on here and everyone posts No Green Tea. That is what I get for trying to be healthy:)

    okay well now that I wrote a book I'm going to try to get some sleep before tomorrow comes way too quickly. Good night and Happy Thursday:)

  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited January 2010

    Thanks, Youngmomof3. I wish you the best for tomorrow night. If I may ask why a bilateral? I know that will be my next decision. My hair is really shedding right now. I go to another wig place today to get fitted. I am afraid to touch my hair right now. I have a MRI today of my head. Oh joy. Like having breast cancer is not enough crap to worry about.

    Your so right, MsLrg. this is sometimes so mind numbing of all that we have to do to our bodies to get rid of this. Sometimes more mentally exhausting then physically. then to throw in being a mom, wife and family member that everyone worries about you. Sometimes it is just to much.

    I hope you all are enjoying your day and take time to celebrate yoursleves.

  • Tamatar
    Tamatar Member Posts: 38
    edited January 2010

    Hi Everyone.  I am not really "new" to this site, I have been reading for months...but decided to join because it is a great resource.  I was DX with cancer 10/7/09 and had a bilateral mastectomy 12/8.  I chose to have the bilateral because I wourk for a large group of physicians and I spoke with several surgesons, plastic surgeons, radiologists and Internists.  They said to make sure that I knew my options for lumpectomy...but if t was them or their wife they would like them to get bilat.  I have tissue expanders because I had immediate reconstruction.  I was onlyin the hospital 2 days post surgery and may have been home sooner if the anesthesia from the 6 hour surgery didn't make me so "loopy".

     I started AC chemo today and was freaked out...it was actually not bad at all (I have a port) and then went home and was starving!  I just ate a sandwich and chips.  I am also terrible about drinking...so I am really concentrating on getting my fluids.  I go for Neulasta tomorrow.

    I want everyone to kow that this is no picnic, but it has not been as traumatic as I thought it would be.

    I colored my normally brown hair jet black with a bright pink stripe...just for fun.  I mean, ny hari will be gone in about 2 weeks so why not have fun with it.

    Hang in there everyone!  We can all do this!!!!

  • friscosmom
    friscosmom Member Posts: 146
    edited January 2010

    mslrg - thank you for the much needed laught this afternoon; "Sitting here looking like I've been Chernobyled". Ok, I know that's not funny but it was to me; it perfectly describes how I have felt since the shave yesterday. I still haven't cried yet at the loss of my hair, I'm guessing it's just going to hit me one day. I cannot look at myself in the mirror and I cannot let my husband look at me. I put my sleep cap on last night when I took FiFi off (I think we're going with FiFi, mine didn't come with a name) and then took it off after I was already in the shower and it went back on before I stepped out. When I put FiFi back on I tipped my head forward, yanked off the cap and threw on the wig; wa la; perfect denial! :)

    Ok, on a separate note, I'm very cranky this afternoon. I spend almost 3 hours at the onco today for just my follow up and lab work. Why? Why is it that Dr's don't respect our time; or maybe most do and I've had the worst luck in the world. I really love my onco but he and I will have to talk next visit if this continues. I think last visit it was 2 hours. Is it too much to expect to spend less then an hour for a standard follow up visit?

    Ok, sorry for the ranting but dang, I have to miss enough work as it is with the surgeries, recoveries, scans, tests, chemo and all the follow up appointments. I'm trying to keep my "standard" appts to an hour and use that time as my lunch and work at my desk and eat but they aren't making it easy.

  • Just-Sher
    Just-Sher Member Posts: 68
    edited January 2010

    Well, I did it today and sooooo glad that I did!!  I got my head shaved!  I can't believe how much better I feel!  My head was tingling and itching like crazy and now that its gone - no problem!  My stylist - a friend of mine came to the house to do it.  So not too traumatic - had a beer and shaved my head!  Then she trimmed and styled my wig and my halo wig which I LOVE.  This is the one that I will be wearing under my hats and scarves!  My kiddos were excited when they got off the bus to see mom with her new changeable hair - kindof like some type of superhero or polly pocket I guess.

    I think part of the reason that I am feeling good is that I made the decision!  Just like when I made the decision to have a bilateral mastectomy once the decision was made - that was half the battle.  Now I think its the same way with my hair.

    I said to myself this morning...Okay Cancer you got my breasts, and now you are taking my hair... but damnit you are not taking me!  

    I am really surprised how freeing it was to lose the really crappy looking chemo hair.  My stylist even said that she thinks that I look much healthier now with the wig than I did with my own hair!

    So if you haven't done it yet - its really not as bad as you think!  Good luck! Kiss

    Just-Sher

  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited January 2010

    Wow, Just-sher, your such and insperation! I try to think like that but then I have second thoughts. I am shedding like a dog right now. Trying not to touch my head so I will be ready for my daughters program tonight then I will be ready for it to fall out.

  • friscosmom
    friscosmom Member Posts: 146
    edited January 2010

    I think most everyone on our list has already gotten their wig or decided to go wigless but I'll share this anyway.

    I bought this wig on-line, don't like it (too short for me) and would like to give it to someone that needs one. I tried it on (clean head) when I got it, wore it for 5 minutes and it's been back in the box ever since.

    If you want it or know someone else that needs it send me a PM and address and I'll mail it out. It belongs to the first person that contacts me. :)

    The link below is the the exact wig, color and all.

     http://www.headcovers.com/11326/serenity-by-henry-margu-wigs/

  • Just-Sher
    Just-Sher Member Posts: 68
    edited January 2010

    I got mine through the American Cancer Society.  The wigs are FREE.  If you contact your local chapter they will let you know where the wig location is.  The wigs are synthetic but look really nice.  My stylist agreed!  The cool thing was that they do have an adjustable thingy on the inside, b/c you typically have hair when you try them on, but once the hair is gone, you need them to be a bit smaller.  They also have an online catalog - which is where I ordered my Halo-wig, so its the exact color of my regular wig. 

    In addition to the free wig, I also rec'd numerous hats, a knit one (its cold in MN); a sleep cap and a head scarf.  I asked where the hats came from, she told me that they have tons of volunteers that make and donate them.  Its true that volunteering makes a difference - it made a difference in my life!

    Just- Sher

    I will try and post a pic here tonight.  I will also be posting on my caringbridge site... 

    www.caringbridge.org/visit/shernoot
  • Issymom
    Issymom Member Posts: 264
    edited January 2010

    Hi all-

    I am having a really down day today.  I woke up not feeling great today (day 3) but it was manageable.  I was also down emotionally and then my mortgage company called to say I didn't pay my January mortgage.  I remember going online to do it early in the month but must have not completed it or maybe I really didn't do it.  I don't know but the lady was very short with me and asked me if I planned to stay in my house (WTF), I told her I made a mistake, I have cancer and really couldn't handle those questions.  I think she started to get choked up, I felt bad.  I paid it but it really made me more emotionally raw. 

    I have tried to take a nap today but everytime I fall asleep the phone rings or someone texts me to see how I am doing.  Oh well, I did some rest which is better than yesterday.

    To top off a not so stellar day, my sister called and she got her BRCA test back today and she is BRCA1+ like me.  I really thought that she would be the other 50% (I'm positive so she would be negative).  Of course, I know it doesn't work that way.  She is turning 40 in 2 months.  Happy Birthday.  It doesn't mean she will end up where we are but I just feel so bad.

    This sucks!!  Thanks for letting me vent.

  • friscosmom
    friscosmom Member Posts: 146
    edited January 2010

    (((((Hugs))))) lssymom, I know those first days were so hard. Do try to get some more rest and I hope tomorrow is a better day. :)

  • Emme
    Emme Member Posts: 205
    edited January 2010

    Hi Ladies,

    Someting happened to me yesterday afternoon that I wanted to share with all of you.

    Let me start with what happend eariler in the day.  I met with my breast surgeon to have a plan for my surgery and what I needed to do before then. i.e. genetic testing, so I can have my ovaries removed at the same time as my breasts if it is positive.

    My Sister went with me to that appointment and afterwards we had such a nice lunch and she wanted to take me to Trader Joes.  As I was strolling down the isles, I was approached by this woman who whispered to me, "It will grow back."  She continued, " I know.  Mine did."  She opened the door to a conversation the touched me so deeply.  I gave her a big hug when we parted and thanked her for speaking with me.  The conversation gave me so much hope.  She is 5 years out of treatment and cancer free.  I don't cry much about having cancer.  But i find myself tearing up when people extend kindness to me.  HOPE is an amazing feeling.  Next time I am feeling bad, not having a good day..I am going to try to remember how blessed I am thru the kindness of others... I am going to try.

     I had a treatment today and I am curious to see how the weekend is going to go since the gall bladder surgery.  I am wondering what the impact of the gall bladder was having on my body.  I am hopeful for a little better feeling weekend.   Tomorrrow, I am having  lymphnode removed from the back  of my neck, praying that all is well.

    I hope all of your treatments are going well.  Are any of you taking nupogen shots?

    Em

  • Just-Sher
    Just-Sher Member Posts: 68
    edited January 2010

    Emme-

    Thanks for sharing your angel on earth moment!  I truly believe that we have angels among us and we just need to be open to feel them near.  I wish you well with all of your upcoming medical appointments.  Sending you positive thoughts!  

    I am guessing that I will be taking the Neulasta shot - the day after my next Tuesday chemo.  Hopefully, my numbers will be up enough that I can actually have chemo.  Keeping fingers crossed!

    ~Sher

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