I know we are NOT a statistic.....

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angelsabove
angelsabove Member Posts: 363
edited June 2014 in Triple-Negative Breast Cancer

With the topic I have started....I know we are INDIVIDUALS and not a number....So why do we including MYSELF want to know NUMBERS....I am just gonna ask....

I am stage IIB.....U can see my signature below....

Well why is some women stage III but have smaller tumors? Is it because of the Triple Negative diagnosis??????

Am curious what is the survival rates for Triple Negative.....

Stage I rate?

Stage IIA rate?

Stage IIB rate?

Stage IIIA rate?

Stage IIIB rate?

Stage IIIC rate?

Stage IV rate? 

My Oncologist has not talked numbers. The first visit prior to chemo was......

Without Chemo there is a 60 to 80% chance of this returning......

With Chemo it lowers it 30%

Well I took that as 80% coming back less 30%.....

DID THE MATH AND GAVE MYSELF 50% survival.....

Well what does rads give me....I know I am Just RANTING ON.....I am coming to the end of my treatment and MY MIND IS GOING CRAZY....... 

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  • justpayton1
    justpayton1 Member Posts: 786
    edited January 2010

    Angel- Please know my heart is truly w/you.

    My oncologist has NEVER talked numbers w/ me nor my primary, chemo nurses, rad onc etc...

    Sometimes i find myself searching for hours looking for a number because I personally just want to know..but truth be told I think nobody really knows..

    Treatment is long and is very draining both physically and mentally..hang in there..I finished in June w/ chemo and am finally feeling almost normal..it takes awile..please know you are not alone..i share your questiions and fears..and somedays just want to shake someone to get an answer.

    I am a planner and like to know things in advance thats my struggle with this..

    I will check back in later..i have to pick up my kids from school..my answer is rushed but i had to post something and i am sorry if it comes out wrong but i just wanted you to know you arent alone..i have had that same rant..

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  • angelsabove
    angelsabove Member Posts: 363
    edited January 2010

    justpayton......Thank you for the post. I too have to go get kids in a while. It does feel good to know YOU ARE NOT ALONE......I just know that I get so overwhelmed at times....There was a lady who was bringing her friend to radiation this morning and we were sitting there visiting...YA know sharing our stories.....I shared mine and she said.....AND I KNOW SHE MEANT WELL.....she said.....HUH....I HAD NO IDEA THAT YOU HAD TO DO RADIATION AFTER A DOUBLE MASTECTOMY......She stated she thought is was just for breast conservation after a lumpectomy. The not so nice side of me...ya know that part of being HAPPY and POSITIVE we ALL struggle with wanted to SCREAM.....WELL GUESS U DONT KNOW TRIPLE NEGATIVE.....Then I thought to myself.....well I did not even understand CANCER until this. Cancer was just something that happened to OTHER people.....I would sit back and say OOOOHHHH I am so sorry if I heard a story about cancer....THEN BOOM.....

    LOVE U LADIES!!!!!! 

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  • justpayton1
    justpayton1 Member Posts: 786
    edited January 2010

    Okay I am back..

    Here is my story.

    i was dxed at 38, my tx was dose dence ACx4 than Taxolx4 each followed w/ a shot of neulasta.

    I had a masectomy my onc..would have liked to do a double but my BRCA test was lost until after sx.

    i had 33 rads and than 5 booster.

    I found the whole rads.. deal to be torture..i was at my worst crying and angry not all the time but alot. that is not my normal but rads is exhausting.

    Being a single Mom, I tend to take on the role of Super Woman.

    My family and friends have no clue what triple negative is other than what I have told them. I guess it's better that way. So i get alot of its almost over and all that too..Like its that easy just to pick up were we left off.

    I lost my Mom to BC in 76 and Grandma in 93. This cancer runs crazy on that side of the family.

    when I explain that I get cancer treatment has come a long way but NEVER has my onc said that. He just says given your family history this would be best.

    If you ever need someone to vent to...just Hollar :)

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  • carolinachick
    carolinachick Member Posts: 387
    edited January 2010

    Hello ladies,

    Here's a great brochure about triple negative bc.  I sent the link to my family so that they could understand what I was facing.

    http://lbbc.org/content/media/living-beyond-breast-cancer-s-guide-to-understanding-triple-negative-breast-cancer.asp

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  • angelsabove
    angelsabove Member Posts: 363
    edited January 2010

    just--------I want to thank you for the response. You are an amazing woman doing this as a single mom....GOD LOVE U GIRL!!!!!!! I ask my Oncologist and what I get is.....(We just dont know)....Wow I so want someone .....ANYONE to know something.... I am sure there will be days that I HOLLAR. Same for you too....

    Carol---------Thank you so much for that link..... 

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  • PauldingMom
    PauldingMom Member Posts: 927
    edited January 2010

    . The whole triple neg thing is so confusing. I really hate the fact that after surgery, chemo., and rads. it's just a waiting game. For myself it's trying to eat right, exercise, and vitamins.Thanks for the brochure info.carolina. 

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  • justpayton1
    justpayton1 Member Posts: 786
    edited February 2010

    Paulding- I agree w/ you the waiting is the worst...I go in for a ct/pet scan on the 17th. Part of me thinks I should wait for a few more months to make sure if there is something its big enough to see and the other part of me is relieved that someone is gonna take a look..On the 9th it will be a year since my dx..and its so fresh in my mind how my life changed..even though I found my lump even though I "knew" what it was..I was still shocked to hear the Dr. say it.

    I am scared to be hit with this again and at the same time I am scared to be "well" like if I let my guard down it will be back. I am stuck somewhere in the middle.

    My Mom had 2 summers...My Grandma about the same..

    I eat healthy..I walk..I got a dog everything I need to do..BUT I also got a bad gene..

    Thats my RANT for the day...thanks for listening

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