January Mastectomy

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  • binga
    binga Member Posts: 140
    edited January 2010

    grdsnive,

    Thanks for the encouragement. As of right now, I won't be doing chemo unless the path from the mammogram comes back different then expected.  I guess I am just anxious because we had watched this little nodule for almost a year.  It was negative after needle biopsy and the surgeon said it wasn't going to be anything but then at my least appt with him he decided to excise it in the office since it was so close to the skin and seemed a tiny bit bigger.  After taking it out he said it would be benign and no problem but of course they had to send it to the lab.  This is all he specializes in and he is very recommended but in his own words I surprised him.  Then after the lumpectomy the path was more than he expected so I guess I am tired of being the surprise.

    But I am going to stay positive and try not to worry but if the path from the mammogram has any surprises I am getting pushy!

    Thanks for listening and helping the calm my nerves.  

    Becky 

  • binga
    binga Member Posts: 140
    edited January 2010

    TNgolfer,

    Sounds like a plan!  I will be praying for you too and it does help to know others are having the same feelings. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Neversurrender, KatRNagain92 and ariesrottie sending good thoughts and prayers your way tonight and tomorrow.  Sleep well and know that we are all here for you.

    Cathy

  • daler
    daler Member Posts: 1
    edited January 2010

    jan 12th right mastectomy and immediate reconstruction. Had lumpectomy and axillary nodes removed in 6/09. First bx showed small residual cancer. 6 rounds of TC. Latest bx No residual cancer!! But still must have 33 days of radiation. Back to work tuesday. Nothing has been nearly as bad as I though it would be, even the chemotherapy. Hair growing back and everything.

  • frosty1
    frosty1 Member Posts: 420
    edited January 2010

    TNGolfer -- why is it men are so oblivious?  They really do care, but their way of showing it is so odd.  My husband spent a month in 'Mar-ville' working for a newspaper before kids (BK).  I spent new years with him and we drove around the Smoky Mountains -- it was beautiful.  We are all with you next week ...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Welcome daler!  I share the same date as you as well as quite a few other wonderful ladies. We can all recover together.

    Sounds like you have had quite a past year.  How are you feeling since your mastectomy? 

    Take Care

    Cathy

  • neversurrender
    neversurrender Member Posts: 508
    edited January 2010

    Kat and Ariesrottie - this is it, we made it to our day.  I wish you both the best today and will send up a little prayer for all of us this morning.

    Kell414240, aces, binga, grdnslve, sejnboys, lexislove, and TNgolfer - best of luck to all of you this week. 

    It is 4:45am right now.  I am ready.  We leave for the hospital in less than 30 minutes.  I am much calmer than expected (for now).  Surgery should start just over 2 1/2 hours from now, I am almost there.  I can not wait to join all the rest of the January Jumpstarters who are on the other side of surgery. 

    This thread has been a wonderful thing for me.  Your prayers and positive thoughts and support mean the world to me.  I thank all of you that went before for updating on your experiences.  Kat - it is nice to have a surgery day buddy - I'll be thinking of you.

    I am having my recon done immediately (diep), so it may be a while before I am on to update, but I will get here as soon as I can.

    Thanks ladies!

    Strength and Courage

    Strength and Courage

    Strength and Courage

    I love that in your posts Faith, so thought I would steal it :)

  • ariesrottie
    ariesrottie Member Posts: 260
    edited January 2010

    Neversurrender    I'm with you sister. I too am on my way to the hospital. We will be heading out of house in 20 minuets. All set, need to get on I guess this is the first day of a new beginning for us. A new life. Good luck to you and Kat. My thoughts and prayers are with you too as I say my own.. I'm ready. Strenght and Courage. I'll post when I get home and are ready and able.

    Keep smiling!

    Donna

  • aces
    aces Member Posts: 38
    edited January 2010

    Ladies-praying for you this morning!!!!!

  • KatRNagain92
    KatRNagain92 Member Posts: 522
    edited January 2010

    Slept in until 6:30!  WoW.  We don't have to leave for the hospital for another 2 hours. 

    I'm calm this morning and being NPO isn't as bad as I thought....everything just seems to be working into place. 

    Thanks everyone for the prayers...They help so much! 

    Good luck today Neversurrender.   I woke praying for you and ariesrotties and me today.

    I hope that I will be back soon so that I can be helpful with another on this wonderful board as I have been helped..

    Strength and Courage

    Strength and Courage

    Strength and Courage

    xoxo

    Kat

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited January 2010

    WOWOWOW

    I'm so glad to see that our 'Strength and Courage' muscles are being flexed today......

    It's so terrific to literally be 'connected' to the three of you as you head to the hospital.

    Prayers and more prayers and more prayers.

    We welcome you to this side of the hurdle with our hearts wide open.

    We will continue to celebrate our daily, hourly progress.

    We will cry together.

    We will laugh together.

    We will be brave for each other.

    And we'll all meet up in Chattanooga, because they have such an amazing aquarium.

    We will make plans for the future.

    That's the main thing.

    This is just for today, but the future awaits us in it's unfurling invitation toward amazing opportunities, celebrations, milestones, and joy.

    At the risk of repeating myself (LOL)

    Strength and courage.

    Strength and courage.

    Strength and courage.

    TNgolfer..... isn't it a hoot, that now I can only think of TN as triple neg and you're just learning the abreviations?? Our perspectives are changed by this experience. You might actually consider changing it to TennGolfer, as I know it will be a confusion to others, if you end up hangin' around here for the long haul. Just thinkin' to myself.

    I know what you mean about husbands and perspective. Love mine dearly, dearly..... and he is living with the illusion that putting our house on the market a couple days ago, would be a snap, should we have an offer -- that moving mid-recovery will take care of itself. In this market it's probably safe to assume it will take a while to sell..... he has enough optomism for ALL of us. LOL

    Prayers, prayers, prayers.

  • boromom
    boromom Member Posts: 59
    edited January 2010

    it's over it's over YEah!!!!!  NOT as bad as I thought!  My surgery lasted 4 1/2 hours and everything went well. They took 5 nodes that came back neg. Now I have to hope that the drains do their job and expanders are ok.  i was home by 5 on sat and glad to be back in my bed. i go to the doctor at 1 to have the pain balls removed. The camis with the pockets are a lfesaver, Thank you for all of your prayers.    i'm sending many your way. pain is manageable if you keep up with your meds. glad to answer any questions,

    Melissa

  • sunsnow
    sunsnow Member Posts: 92
    edited January 2010

    Well, I was doing great today...then the phone rang. A little background: My surgical oncologist called 2 weeks ago with my pathology and it was exactly what we expected and she congratulated me on the good news. That was it, and she hung up--no referral to a medical oncologist. Well, I decided last Monday that I needed to check that box, so I got the name of an oncologist. I called his office on Monday afternoon and they requested my records from the surgeon, then they would call me back after onc. had reviewed them. I heard nothing by Friday, so I called them. The scheduler had been sick and my surgeon's office hadn't even faxed them yet. I called this morning, a week after the first call, and they finally got them. A few minutes ago, the oncologist's scheduler called and said he would like to see me on Wed. afternoon. Now I'm terrified because he's squeezing me in so quickly. She said he's not taking new patients, so that was where he told her to put me. So much for my great day...back on the BC rollercoaster.

  • pbebow
    pbebow Member Posts: 575
    edited January 2010

    Sunsnow:  Positive attitude, could be he's just squeezing you in to tell you good news!  They probably like to be able to do that occassionally!  ya never know, it could happen.  I know that my BS was very excited to tell me my path results and to tell me that she doesn't need to see me again.  I can't remember what you path report was, but I wouldn't let it worry you too much, you can deal with it when you find out what you have to worry about.  It might not be as bad as you're anticipating.  I know that it's all easier said than done, but try, I know that having a postive attitude is the only thing that's really kept me going through this whole thinng.

    I've been checking into the breast cancer walks, the Avon one and the Susan G Komen one, and I would love to do them, but holy cow, the fundraising minimum for both of them is a little daunting.  the min. for the susan G Komen one is $2300 per walker and for the Avon one it is something like $1800...  wow!  I guess it wouldn't scare me quite as much but I have been heavily involved with the relay for Life in our area for the last 7 years and we do a lot of fundraising for that and I don't know if I can keep up with the Relay fundraising and add the BC walk fundraising.  i think I'd run out of people and options, and I am not willing to sacrifice my work with the Relay.  Just wondering if anyone else has ever participated in either of these or is planning on trying it this year...

  • robinlbe
    robinlbe Member Posts: 585
    edited January 2010

    Sunsnow...I won't pretend to know what's going on, but my first visit with an onc. was squeezed in, also...turns out the office was just "doing me a favor", although I still don't understand why...

    On another note.....has anyone read "Why I Wore Lipstick to My Mastectomy"....if you haven't, you ought to get it.  I got it last week off of Amazon for one cent (YES, you read that right) plus $3.99 for s/h (total - four bucks!)....it's fast, enjoyable reading, and I promise you will be able to relate to so many of her feelings....

    I got my last two drains out on Thursday, but fluids are still building up in my chest....I've got JIGGLES again :)    If it builds up too much, it has to be removed, though (via needle)....I look forward to driving again...

    And now, I'm exercising....trying to get full motion back to both arms (and YES, I can play both the piano and flute without a problem...I'm so excited!!!!)

  • TNgolfer
    TNgolfer Member Posts: 253
    edited January 2010

    faithandfifty,

    We just took ours off the market because of the breast cancer.  Had to convince the hubby that it was just one more thing on my plater (platter) that was going to have to be put on hold.  Yesterday, he got a job offer, back home in Syracuse.  It is amazing how they just think it will all work out.  Today I am a little calmer and it is because my pre-op visit at the hospital was awesome!  I know you may find that hard to believe, but the nurse who took my history was great--her Mom just went through a Mx.  Then I met with a woman who is the manager of the breast center here at UT.  She is actually one of my neighbors' sister.  She was terrific - met with my husband and I for over an hour and gave me lots of literature.  Also gave me some names of medical oncologist (who specialize in breast cancer only -- what a great idea!) and also recommended 2 anesthesiologists.  She said I could call the hospital and request them (who knew?)  She asked us if we had any questions and I decided to let her play "marriage counselor".  I explained that hubby had a job offer and I was concerned about handling chemo alone.  She assured me that things would find a way to work out.  Actually showed me their chemo suite and said it probably wouldn't be as bad as I thought.  Suggested hubby and I meet with 2 different onc's and make the decision before he leaves.  The job is what he has been waiting for and I guess I can't let this breast cancer take over our lives.  I am strong and I can get through this.  Have plenty of friends and support here in the meantime, so we will re-assess after surgery and I will decide when to put the house back on the market -- you know for that quick cash sale! 

    Was a little surprised that in the middle of this meeting with the nurse, the floodgates opened and some tears fell, but actually am feeling a little better about Thursday....we'll see how I feel Thursday morning.  Surgery is scheduled for 1:00 p.m.....it's going to be a long long morning.

    Hooray for those of you who have it behind you.  Prayers to Becky and the others who will go slightly before me.

    Strength and Courage!!!

    and always HOPE!

    Will probably change the handle from TNgolfer to something more meaningful, hopefully without any confusing acronyms!

    Marianne

  • TNgolfer
    TNgolfer Member Posts: 253
    edited January 2010

    Boromom,

    You are my new hero!!! Hooray for you.  You will be my role model for Thursday.  Keep that great positive attitude.  It's just what those of us left needed.  Thank you and may your recovery just breeze along!

    Marianne

  • binga
    binga Member Posts: 140
    edited January 2010

    TNgolfer, 

    I just had my pretest today too.  All they did was take urine sample for preg. test, take my weight, temp and bp and give me some soap to wash with the night before and day of surgery.  That was it.  Wow I feel really prepared- NOT.  Oh well.  I am still going to be positive.  

    By the way when I saw TN I knew immediately it was Tennnessee.   Maybe because I am new to all this bc stuff too and because I live close to the TN state line so I am used to seeing it.  Did you notice we were diagnosed the very same day?  Small world huh? 

    Prayers to all you others too! 

  • grdnslve
    grdnslve Member Posts: 310
    edited November 2010

    binga

    wow--read your post & realized you, tngolfer, boromom & i were all diagnosed the same day...what, were they having a sale or something?  here we are finally getting ready to end this wait--at least this part.

    isn't it so odd the difference in facilities?  one place i had an mri they let me keep my jeans on, another made me take them off--the metal zipper.. however, the techs in there had their rings on, lanyards with clippy id cards, etc.   all my pre-op stuff has been over the phone, just told me to shower really well, no make-up, deoderant, hair products, etc.  --  they may change that policy when they see me..........

    geez, i must be starting to freak--told my huz i wanted to go to the casino one last time, but he said no--too many med bills to pay.  what a poop...

    thank you lovely ladies for being out there with your cyberhugs, & wisdom. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    KELL414240 & aces thinking of you as prepare for tomorrow.

    Take Care

    Cathy

  • TexasPeaches
    TexasPeaches Member Posts: 19
    edited January 2010

    Aloha all,

    Kell414240 & aces--you are both going to be fine, just breathe and know you will be okay.  God will rock you in his gentle embrace ad bring you through.

    I've been off the site since surgery Thursday--all went well for my bilateral with reconstruction and SNB on the right.  Two lymph nodes were found to have tumors, so they took a string of lymph nodes.  The surgery was great.  I was out by Friday morning at 10.  It took most of the night to get the pain under control--I thank God for Roy, the night nurse, and my friend Linda who were with me and did all they could to make me comfortable.  The pain management is still tough, but the only thing that really hurts is under the right arm--and it is still okay.  The scars are minimal and do not look bad.  The night nurse that came in said they were the best he had seen--he may have been just trying to make me feel better, but I keep getting that.  With family and friends and THIS SITE, it has all worked.  

    The best tips:

    Camisole: Gentle Touch Post Mastectomy Camisole (velcro up the front, four pockets--easy!)

    Pillow nest to surround me in bed afterward/wedge

    Boa (hot pink) to wear on the way to surgery and afterward in the room-doubles as decoration

    Lots of water up to cut off time--be well hydrated

    I'm on day 4, no poop.... just ordered prunes.....

    Got all meds in advance--learned which pain meds were strongest 

    Several sets of button up jammies

    Be prepared to see lots of green/blue urine emptied from your catheter bag--WEIRD emerald colored stuff from the dyes to trace for cancer in the snb.  All I can say is thank goodness I didn't leave my humor at home, prayer followed, 'difficult' family was assigned to other family for 'handling' cause they love me and needed to be there but.... we all have them.  

    This cancer thing is not for sissies.  I am grateful for you all.  If you have not been to or heard about the "Look Good Fee Better" seminar put on by the American Cancer Society, DO IT.  It is an awesome program they put on.  All volunteers.

    I didn't expect to get this tired this much this fast, and the pain is different than I expected, but it is not big and bad.  It is all manageable and really okay.  For me the worst was the injections for the snb they did the day before.  

    Hang in there January ladies--you can do it.  Let others do things for you and know you will make it!!!!

    Aloha and Smiles,

    Susan 

  • Lynbob
    Lynbob Member Posts: 140
    edited January 2010

    My heart is filled with love for my BC sisters this morning so I wanted to pop in for moment. I am encouraged by the good reports from those of us on the recovery side of surgery.  Thinking of Aces and KELL414240 for their surgeries today.  To those still waiting, the hardest part for me was the waiting. I woke up in recovery and have not looked back. {{hugs}}

  • aces
    aces Member Posts: 38
    edited January 2010

    Thanks for all of the well wishes.  I am reading Psalm 139 this morning.  My entire family is in town for surgery.  The waiting room is going to be taken over by my family!  I am thankful today for God's word and the wonderful friends and family he has given me.   Ready for 1:00 to come!

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited January 2010

    My ten day out report:

    I drove across town by myself yesterday, first driving since surgery.

    I felt capable and safe -- though by the time I got myself back home was exhausted.

    This was a necessary trip to onc office.

    We discussed my path report & he has given me the all-clear to head to FL tomorrow for a couple of months of sunshine and smiling.

    I have returned to taking one Percocet at night time, in an effort to aid my sleeping.

    For me: emotions and pain management and even ROM depends on some good sleep at night.

    Today is packing day.

    Wishing Aces & Kell strength for today's crossing of the hurdle.

    Peaches I'm sending extra prayers for you & your boa as you learn about what's in store ahead.

    I'd love for you to navigate to the "Inspiring Stories" section of these boards. I have a thread up about my 'blessing scarf' that started out as a sort of pink boa-esque scarf. I think you'd appreciate seeing it's evolution.

    xx00xx00xx00xx00xx

    Strength and courage.

    Strength and courage.

    Strength and courage.

  • binga
    binga Member Posts: 140
    edited January 2010

    You guys are great.  I love coming here to hear all of the good stories about the other side of surgery.  I am on the countdown as my surgery is tomorrow.  It doesn't start until 3:30 which is a bit of a bummer but it will be here before I know it.  I am really getting nervous and anxious though.  Unfortunately my 57 year old dad died during surgery in Dec 2008 from a heart attack and that makes it all too real for me that it doesn't always turn out the way you think.  (He was having his prostate removed.)  I am really trying to keep calm thoughts.  I had a lumpectomy in Dec and did fine but in the back of my mind I am reminded of him and I am scared.  I hate being put to sleep although I think it is great that when you wake up it seems like just minutes.  I also worry about my family especially my poor mom who has been through so much with losing my dad.  I know if something happens to me I have trusted my salvation to Jesus and I will wake up in a better place but I worry so much about them.  Please pray for us that everything will go well. 

    I am praying for all of you and your families and that God will give you all peace about everything too!

    Becky 

  • TNgolfer
    TNgolfer Member Posts: 253
    edited January 2010

    grandslv, binga, boromon

    I also noticed that we were diagnosed on the same day....must have been a sale on bc dx!  Went for my pre-admit yesterday.  Was dreading it (you know it was making all of the surreal become real), but it was totally awesome.  I have never met so many genuinely caring people in my life.  The nurse that took my blood told me to be sure to be well hydrated; can't drink too much water.  Makes it easier when they take your blood.  Had a few little issues in the past.  (Who knew water was the answer!)  The nurse who did my Ekg and took my history was great.  Her Mom just had surgery for BC, so she was especially understanding and supportive.  She was so thorough.  I told her about anesthesia problems.  She told me it is called "delayed emergence" and told me to be sure to remind them (over and over again) before the surgery.  Also met with the manager of the breast cancer center here at the hospital.  She was terrific.  She also told us we could request a specific anesthesiologist.  (You know the guy you never meet until minutes before he puts you to sleep and you never see again).  Wow!  What a concept.  So, I called the hospital this morning, made the request and they scheduled the one recommended. 

    My surgery is not until 1:00 so when they said "nothing to eat or drink after midnight" I said NO!  How can I be hydrated and not have anything to drink for 12 hours!!!  The nurse promptly got up and went to seek permission for nothing to drink for 6 hours before.  Permission granted!  When I am done with all of this, I swear I am going to right the breast cancer (be your own advocate) handbook complete with all those little things that no one tells you until after you've gone through it and giving everyone permission and encouragement to keep asking questions. 

    The emotions are starting to creep back in, but I am so inspired by all that have gone before me so bravely.  Thank you for that encouragement.  You all will be with me Thursday morning !

  • binga
    binga Member Posts: 140
    edited January 2010

    TNgolfer,

    I was wondering about the midnight cut-off too.  My surgery is not until 3:30.  I think I would be dehydrated and since it took them 4 sticks to get my IV started in Dec.  I really don't think that would be a good idea.  Since you got permission I think I will call the surgeon and see what he says.  The nurse I had was basically a robot of info.  Same answer for everyone.  

    Thanks for the helpful info.

    Becky 

  • grdnslve
    grdnslve Member Posts: 310
    edited November 2010

    6 - 8 hours is fine on the drinking---they just mindlessly say npo after midnight, because surgeries are scheduled first thing in the morning and they would have to THINK to tell you the time frame when you aren't scheduled until later.  most of the people doing the scheduling aren't medical people, but front office, administrative robotic types.  so ... ask questions.   remember, it not only is your dime, it's your life.  my surgery isn't until 12:30, so i think i will set my alarm for a little snack..........

    speaking of dimes, i got a bill from the 1st pathology dept---called to ask about a payment plan & she said they would work something out with me, but if i was willing to pay in full today she could give me a 40% discount----whhoooooOOooo...didnt know they had sales.

    re:  hydrating & blood draws---keep that in mind you ladies getting chemo...the more hydrated you are, the easier it is to get that dratted needle in there...less pokes.  water water water  can't believe you had just been told that, but then when i had my blood drawn at the onc the other day they weren't set up to draw from the right arm (?) and i insisted (while i can) - totally threw them into a frenzy.  didn't have anywhere to put their tubes etc--jeez  didn't ever occur to them to ask me to hold the tubes for them.  when i offered you would have thought i had uttered some forbidden piece of wisdom to the lower orders or something.  i suggested they get a mayo stand to use---they didn't even know what i was talking about......where do they get some of these people. 

    by the way--you ladies have been told no blood draws or blood pressure, or tight sleeves, elastic cuffs on shirts etc on the arm on the side of mastectomy----right????  the fewer lymph nodes involved the less critical, but who wants to take a chance on lymphedema.  if you have a double, ask your surgeon/onc the best way to handle that.  most of you would have a port for tx, but you need to know what to do down the road too, like at your pcp.

    binga--so sorry about your dad---i know how hard this is, but it gets complicated when stuff like that happens...my dad was just dx with an inoperable mass on his liver/gallbladder.  i just can't deal with it....my dear brother is out here taking care of my folks so i can focus on this crap.  and i haven't even told my folks...complicated.

    faithandfifty--i'm so jealous--florida.  hoping things go well so i/we can salvage some 'down south' time afterall.

    silly question for those on the 'other side'  i just got a puppy a couple of months ago,  he is quite the cuddler & i'm worried about how long it is going to be before i will be able to handle picking him up....he'g going to turn into a daddys dog!!!!!!!   waaaaaaaaaaaaaaah  i'm going to cuddle the crap out of him today!!!!

    prayers & hugs binga, cindys, tngolfer,sefnboys, & lexislove

  • TNgolfer
    TNgolfer Member Posts: 253
    edited January 2010

    grdnslv,

    That's why we need a little book -- because we all don't have nurses doing the pre-admit; because there are a lot of "robot" answers out there; because you are so right - it is our nickel, it is our body, it is our life!

    Re the payment issues.  I actually retired from a very large insurance company.  The truth is that a provider charges one fee for a procedure; the insurance company ALLOWS a different amount; and the patient may pick up a portion of that amount in a co-pay.  Example:  Dr. charges $500; ins co ALLOWS 280; patient's co-pay is 50; so ins co pays 170 (500 - 280 - 50).  So, if you don't have ins, there isn't a sale.  They are just letting you pay what the insurance company would ultimately pay them.  The sad truth is in some cases where there is no insurance, the provider bills the full amount (which is more than they would receive from a patient with insurance).

    The real tragedy here is that we shouldn't have to worry about the financial ramifications of cancer, or any other illness or injury!

  • TNgolfer
    TNgolfer Member Posts: 253
    edited January 2010

    grdnslv,

    That's why we need a little book -- because we all don't have nurses doing the pre-admit; because there are a lot of "robot" answers out there; because you are so right - it is our nickel, it is our body, it is our life!

    Re the payment issues.  I actually retired from a very large insurance company.  The truth is that a provider charges one fee for a procedure; the insurance company ALLOWS a different amount; and the patient may pick up a portion of that amount in a co-pay.  Example:  Dr. charges $500; ins co ALLOWS 280; patient's co-pay is 50; so ins co pays 170 (500 - 280 - 50).  So, if you don't have ins, there isn't a sale.  They are just letting you pay what the insurance company would ultimately pay them.  The sad truth is in some cases where there is no insurance, the provider bills the full amount (which is more than they would receive from a patient with insurance).

    The real tragedy here is that we shouldn't have to worry about the financial ramifications of cancer, or any other illness or injury!

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