First chemo session, can someone answer some questions?

Options

Hi, I just started my first treatment on Wednesday and I didn't feel very bad yesterday, but last night I started to feel really tired and I was having chills when I went to bed and today I just feel like I want to sleep and I am a little dizzy.  I am taking Adriamycin and Cytoxan.  And my back is hurting i guess from the neulasta shot I had yesterday.  Can someone tell me when this is going to get better?  I have a 4 year old here and no help until at least 3:30.  Thanks for any help.  Jenny

Comments

  • coonie
    coonie Member Posts: 7,618
    edited January 2010

    Hi Jenny...so sorry to hear you're not feeling well.

    When I took chemo it seemed that days 3-5 after chemo were my hardest. I remember the chills, pain, etc. I didn't have a 4 year old to look after though. Do you have a friend or relative who can help you? Chemo tends to just zap every ounce of energy!!! I'll be thinking of you!!

    (((((Gentle Hugs))))) Hang in there!

  • chrisct
    chrisct Member Posts: 2,662
    edited January 2010

    Ditto what Coonie said about days 3-5.  I felt flu-ish after having the Neulasta shot - I was lucky that a regular dose of ibuprofen helped with my aches.  Many women have luck with Claritin for the Neulasta pain.  Maybe set your little one up with some cute tv shows or movies so that you can rest.  Hope you are feeling better soon.  ((((((Jenny)))))))

  • gillyone
    gillyone Member Posts: 1,727
    edited January 2010

    Jenny - I agree, you need to get some help as you will get more tired as you go through tx. If you haven't already done so, find the thread starting chemo in January 2010 where you will meet others going through the same thing at the same time and will be a wonderful support group for you. Hugs.

  • spar2
    spar2 Member Posts: 6,827
    edited January 2010

    Jenny, I always felt ok the first day and then each day for about 5 days I would be really sick and then start feeling better.  I agree you do need some kind of help, your body needs more sleep during this time, you also need more of the right kinds of food.  I hope you have a friend or relative who can help some.  God bless you and hope you keep coming here and let us all know how you are doing.

  • Laurie09
    Laurie09 Member Posts: 313
    edited January 2010

    I agree with everyone else, it's common to feel OK the first couple of days, then fatigue/flu like for 2-3 days, then gradually you start feeling better. 

    Maybe if you can get some help for those days when you feel tired so you can get some rest.  Your body needs it. 

    Take care of yourself.   

  • Jenny4210
    Jenny4210 Member Posts: 18
    edited January 2010

    Thanks, but I really don't have any help, my husband works alot and my parents passed away, one recently, and all my friends live off somewhere.  If I didn't have my 12 year old to help me, I would really be in trouble.  I just hope it gets better soon.  But thanks for the kind words.  I hope all of you are doing really well too.

  • sln1967
    sln1967 Member Posts: 6
    edited January 2010

    Jenny,

     Soo sorry to hear bout yu having to go down this road.  I did ac as well.  The neulatsa shot was the worst part for me.  I also had little kids.  The last part of the day after I got the neulasta,  I felt really crappy.  I was able to have my husband watch the kids that part. By the nexy moringi i was beginning to feel better. I hope this helps.  If you have to do Taxol, do it weekly, then you won't necessarily hae to have the neulasta.  Good luck ((((((((((((((((((((hugs))))))))))))))))))))).

  • dancer51
    dancer51 Member Posts: 47
    edited January 2010

    Jenny, 

    I do understand what you are going through. It is a tough journey but you will get through it.  Try calling your local cancer society chapter.  I believe you can receive some direction for volunteer services that will assist you in your time of need.  Also, speak to your Dr. or treatment center and explain your situation they may have a helping hands service.  Seek out assistance through local breast cancer support groups through your local hospitals for at home help.  I hope I have helped in some small way.  My prayers are with you and your family

  • ruthbru
    ruthbru Member Posts: 57,235
    edited January 2010

    I did AC four cycles, two weeks apart, with the Neulasta shots. The first three days were the worst for me (had chemo on Friday, was able to prop myself up at work by Monday), and gradually got better all that week. By the second week felt "OK", at least OK enough to function somewhat normally. Are there days when your husband could be more available and you could build your chemo schedule around those days? Could you hire a sitter for a few hours during the bad days? Would there be a play group, or preschool group that your 4 year old could attend a couple days a week? The high school in my town has a free preschool class as part of their child care course through the vocational center, also YMCAs often have child care/preschool classes that are pretty inexpensive; churches often have preschools, play groups etc. Just some thoughts. Good Luck!

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited January 2010

    I know this has been discussed elsewhere, but Jenny, in case you haven't seen it:  many people have good luck taking generic Claritin (not Claritin-D) for the neulasta pains.  It doesn't work for everyone but it works for a lot of people.  I took it every night during chemo and I went from serious, severe bone and muscle pains after Neulasta to almost no pain at all.  It doesn't hurt to try it and it may help you a lot, but as always, check any new meds with your dr. first.

    I wish I had been better warned about the progression of A/C:  for me, each treatment of the A/C was harder on me and took longer to recover from than the previous.  Like others have said, the first 5 or so days are the worst, but the fatigue is what really worn me down to a nub.  Finding help is going to be pretty critical for you.  Others have made a lot of good suggestions.  We have a local CCN (community cancer network) and they're absolutely amazing.   They may have some resources/help for you. Find out if you have one in your area.  Also your local YWCA might help.  They're great with women's needs, especially helpful with their breast cancer program in our area.  Even if you don't belong to a church you may find one that has good support for women with your kinds of needs.  Get people to bring frozen meals, have someone do your grocery shopping, anything at all so you can save your energy for what's most important to you. I know your focus is going to be on your children but remember to take care of you! It can be difficult to say no to someone and I know it sometimes felt selfish when I put myself first but I had to do that to get well.  Most of all, remember you can and will get through this!  I know I had weeks where I thought it would never ever end but it does.   Best of luck and a warm hug...

  • rinna40
    rinna40 Member Posts: 357
    edited January 2010

    Hi Jenny. I too felt pretty rough until about day five. I had my treatments on a Monday, so by the weekend I felt OK. I have two children, four and seven,  and my treatment was during the summer. I scheduled for them to be at a day camp for the week of treatment. It gave me a break, so if I needed a nap in the afternoon, I could get one. I know it is school season, so no camps right now, but maybe there is a daycare/early childhood center where your daughter could go during the school day? There might even be financial help for this. My hugs to you. Remember, this will end. I'm four months out of treatment, kids are now 5 and 8 and we are going on a family vacation to Cuba next week. This sucky treatment ends and we can look forward to fun on the other side.

Categories