needing some encouragement here

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jude14
jude14 Member Posts: 293
edited June 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

hi all...I have not posted in a while but I lurk and read everyday.  I was diagnosied in July of 2007, had lumpectomy and rads and then on the good ole femara.  Have had all kinds of problems with that and tried the arimidex and aromasin and it was as bad or worse.  Anyway.  Had mammo done in July 2009 and it showed an area of concern they said would repeat in 6 months.  I went the next month and had an MRI and it did not show anything of concern.  Had the MRI done at a different place and took them copies of all my mammograms for the past several years including the one from the 3 weeks before showing a concern.  Now I had the 6 month repeat on the mammo and they are saying lets do a biopsy as calcifications are clustering.  This time it is at the top of the breast where the cancer was in the bottom along the chest wall 2 and 1/2 years ago.  The problem is could not get me scheduled for the biopsy until the 26th of this month, and I hated the sterotactic biopsy.  I am going completely insane here worrying about the biopsy plus the results.  Anyone have any idea on this or has anyone else been here and have it be just damage from rads or anything after 2 1/2 years?  HELP PLEASE......I think I need to call them up and tell them to call me in some valium.....

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  • HairSprayMom
    HairSprayMom Member Posts: 251
    edited January 2010

    Hi Jude14,

    I have not been where you are, but I second the Valium call. My tumors were in the chest wall too and that is some scary stuff. Sorry you have to wait so long, medical professionals have no clue what the waiting does to us. I had a PET scan last April and had to wait almost 2 weeks for my results, xanax was my best friend those weeks. No one really gets it either, the worry I mean. My whole family just thinks it's over, but it is never just over, we just learn to put it on the back burner on low and push on forward. Just wanted you to know we are here for you and we understand, like no one else ever will!

    Sending love and calming vibes~~~

    Regina

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  • juliempw
    juliempw Member Posts: 383
    edited January 2010

    Jude14, I haven't been there either, and we all hope not to ever be there but we all know how easily it could be any of us.  I agree, call and ask for something for anxiety.  You need it and deserve to have it!  Please keep us posted.  Hang in there and talk it out here as much as you need to. 

    Julie 

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  • mmm5
    mmm5 Member Posts: 1,470
    edited January 2010

    Jude

    I would bug them to death and ask them to move up the biopsy, there is no reason you should have to wait that long being a bc survivor. If not go elsewhere. I go to a breast center than can always get you in within 3 days, that all they do is bc. When I go get my ultrasounds now, the radiologist comes in and does them herself and then I know right then.  It is awesome. Keep pushing and Ativan (lorazapam) works wonder similar to vaium but does not make me sleepy just calm. I have used it while waiting for scans.

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  • jude14
    jude14 Member Posts: 293
    edited January 2010

    Well I talked to the doctors office and they say unless there is a cancellation the 26th is the quickest they can do.  I live in a small town and I do not have lots of options with doctors.  To go somewhere else right now would be even longer waiting because I would start as a new patient.  In the meantime they said they would call me in some valium and I could take that.  I asked them how many I could take the morning of the biopsy along with pain meds......lol   I keep telling myself no way can this be cancer in another part of the breast.  If it is after all I have gone thru with these aromatase inhibitors and I have remained on them faithfully missing one night by accident in the last 2 years and one month and 8 days...since I started them, I will probably throw them as far as a person can throw.  Thanks for all the help and if anyone has done this please reply and let me know how it turned out....everyone on here is so nice and thoughful and I guess it is becuase we have all been there at one time or another.....Thanks all Jude

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  • juliempw
    juliempw Member Posts: 383
    edited January 2010

    Well I'm glad you at least have the valium.  Hang in there and keep us posted.

    Julie 

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  • TriciaK
    TriciaK Member Posts: 362
    edited January 2010

    Hi Jude,

    I had a hard area biopsied two years after diagnosis and it was scar tissue from rads and surgery:)

    I did'nt have the sterotactic but my friend did, her first expericence was bad like your own, but she one done two months ago and said it was fine.  She went to a different facility and they were wonderful.

    Thankfully the area was benign also so  good luck!

    Tricia x

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  • jude14
    jude14 Member Posts: 293
    edited January 2010

    I picked up a copy of my mammogram report yesterday, hhhmmmm, and from the report it looks like the radiologist  thinks there are several areas of new DCIS which have not been on any of my mammograms from the beginning and he has this rated with a Birad 4......Now once more I can sit back and wait till next Tuesday for the biopsy that I do not want and keep taking my valium.  Has anybody had a mammo like this and still have it not be anything?  I think if it is this time I will do the double masectomy and that way there will be no more sterotatic biopsys to worry about.  I hate BC.....life was so different before all this started........(sigh)  Hope everyone is doing okay and thanks for all the replies......Jude 14

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited January 2010

    Jude--it is possible for findings like yours to turn out to be B9. I had a biopsy for an area the radiologist said suggested DCIS and it turned out to be a papilloma--a B9 condition.  But that was in the other breast from the one with the lump, at the time of diagnosis, so my situation was different in that regard. 

    One tactic you can try is calling the office every day and asking if there have been any cancellations. I've managed to get appointments moved up several weeks that way--the office finally gets tired of hearing from me or figures out I'm really anxious and reports it to the doc, then the doc "works me in." Squeaky wheel gets the grease as the saying goes.  

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  • juliempw
    juliempw Member Posts: 383
    edited January 2010

    Jude, after my diagnosis, I had several tests that came back with new areas of suspicion (one showed in MRI and one in a mammo and then my original tumor didn't show in the second mammo).  In the end there was only the original tumor.  I opted for double, in part because I figured even if I didn't get BC on the other side the future would like hold many tests with questionable areas which would lead to stress I didn't want or need.  I like the idea of calling and asking for cancelled appt slots, that can be quite successful.

    Best of Luck!  Julie 

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