January Mastectomy
Comments
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Taraleec -- this is the hardest time, as those of us who have been through our surgeries already this month can attest. It is just the d**n waiting that can drive you nuts and not knowing how you will feel. Unlike the rest of the crew, I'm actually sleeping well. Took pain meds for the first 2 days but haven't since then. Hardest part is sleeping slight upright and waking up with a sore back. I'm starting to itch where the tubes are sewn in and phantom "fingers" where the breast used to be. Just have my emotional ups and downs, which is normal after any surgery. I love the idea of counting off the days -- maybe an advent calendar type of thing with a small gift to remind your baby of you?
To all of you with surgery next week -- blessings and support heading your way. Really, truly the wait is the worst of all of this!
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I've slept well, also....Pain meds, ibuprofen, and benedryl! Slept all night, awakening just a few seconds, then back to sleep....have been sleeping something like 8 hours every night, and I'm sleeping in my bed. In the middle of it (my husband has been sleeping in another room, but I can't WAIT for him to be able to sleep with me again!!).....if someone else is in the bed, it shifts my posiiton, and causes stress on the stitches, and it hurts. I surround myself with pillows and prop my arms in various places, and I sleep comfortably. And this is a gal who normally never sleep on her back and prefers side sleeping!!
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Hi Taraleec welcome to the January gang and wanted to wish you luck tomorrow. I am not sure what delay surgery is? maybe others have heard of this. I just had bilateral mastectomy on Jan 12 and I can tell you that the waiting for surgery is the worst part of all of this. Being on the other side does give you a sense of relief. Also I think to be as honest as possible and age appropriate seemed to work with my kids. They are 17 yr old son and 9 yr old daughter. The worst thing for them, was for me to be away, so they are much better now that I am home. I had to travel 1000 miles for my surgery. I tried to have fun things lined up for them to do while I was gone, wrapped little gifts and of course called and email as much as possible so I didn't seem so far away. In fact my daughter seems to be handling all of this much better than I. My daughter keeps asking if she can see and I have to explain that I am not ready, and it makes me too sad. She said to me, we will look at it together when you are ready. Out of the mouths of babes.
I had some very good news today, when the homecare nurse came, she said we could remove the drains. For what they were worth. The left drain hadn't been working properly and when my boyfriend went to drain them last night, we found there was a hole in the tubing and this is why it wasn't holding the suction. So for the night he taped the hole up and it seemed to help. What are the odds of that happening? It felt sooooooo good to have it taken out. The nurse was very gentle and just explained that there will be a strange sensation when we take it out. She had me lay on the bed, take a deep breath and when I blew out, she would remove it. It really wasn't as bad as I expected it to be. (for the benefit of those who will be having this done). I am not in any pain, just a strange tightness like so many others describe.
Good luck to those ladies who will be having surgery this week. Also, I agree with faithandfifty, it was wonderful to have popsicles after surgery. Very refreshing, especially since you can't eat right away.
Cathy
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A couple of other oddities not mentioned yet -- get a gentle laxative. You will need it when you come off the pain meds. I thought I would be fine, but it took a laxative. And shaving my armpits. That may sound strange, but it is hard. On the side where I had my surgery, I'm still numb and I can't lift my arm all the way. So one side is hairy. I'm afraid to skim the razor over it since I can't feel it. Weird. Gotta find some humor. The other side of is definitely better.
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I am off to the PS to get my drains out today! I am soooo excited! I am soooo tired of these stupid drains. The left one is starting to come out so it constantly pulls a little and the other one is just annoying. I am glad to see the posts about it not being so bad, I just figure even if it's uncomfortable, at least it'll just be for a minute and then they'll be gone!
Frosty1: it's funny that you should mention that about the shaving. I am feeling really gross but have been afraid to shave. I started to shave my left side once and then stopped half way down and haven't attempted the right at all (I had my SNB on the right), but I figure after I get my drains out I'll try it, we'll see. I have heard that some woman go to an electric shaver for this so they don't cut themselves, but not sure how good they work, but I guess anything is better than the way that they look right now. I'm kind of embarrassed to go to the PS with them like this. I might ask him what the best way to handle it is. I'll post back after my appt.!
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Thanks for asking -- I'm afraid to raise my arm!
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I DID shave my pits, but I couldn't feel a thing...I couldn't extend my arms fully, so it was truly a guessing game. I HOPED I wasn't cutting myself, but I trusted my razor, since I had never cut myself with it before - hoping this wouldn't be the first time. I had nodes taken out in both arms, four in one arm, and only one in the other. Funny how the arm with just the one node is MUCH more numb than the other one....
My doctor hasn't given my exercises yet. Have your doctors? Some websites have said surgeons have patients start immediately. I am now 12 days post surgery, but I go back to see my BS in three more days (to get drains #3 and 4 out...yippee!!!). I will ask about exercises then. NOT that I'm anxious to do them, but I was just curious....
Thinking of and praying for everyone on here....
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Well, I got my drainage tubes out, and as everyone said, not a big thing! NO pain at all, as a matter of fact I kept waiting for it and didn't even know that he had done it. I did ask about the shaving and he basically said, do whatever works for you. He said some of his patients use Nair or something like that but I haven't had that great of luck with those products and I'm not sure I want to put something like that near my incisions this soon, so I guess that I'll just try my normal way and see how it goes. My BS and PS both told me to start right after surgery gently raising my arms out to my sides and just see how high I can go, and do the same in front and behind. And then they talk about walking your hand up a wall and seeing how high you can go. My PS told me today (it has been 10 days post surgery) that I can resume all normal activities now as I see fit. I told my husband that there are a lot of activities that I don't see I'm fit to do yet, so he can keep on doing the laundry and dishes and cleaning and everything! ahha! Anyway, don't think I'll be running back to the bowling alley any time soon. I am soooo happy to have those drainage tubes out! I feel so free! Good luck to all!
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21st--bilateral mastectomy
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pbebow: I am SOOOOOOOOOO envious of you! My PS is not it today, so I don't get my drains removed until tomorrow. My best friend from high school is flying in tomorrow to stay with the kids and me while my husband is on a business trip. I can't wait! Congratulations on your freedom.
I've worked so hard to be healthy since diagnosis, and I've lost 15 lbs., not that you can tell since my stomach looks like it sticks out past my chest with the drains in the pouch. UGH!!!!
Texas Peaches: Best wishes for a successful surgery and uneventful recovery!
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Aloha all.
Glad to be back reading and to hear that everyone who has had surgery since last checking is is doing well with managed pain. I'm on the countdown--Thursday is M-day. Both are coming off, along with a SNB on the right. My oncologist said the left side had 'suspicious' lymph glands, but that is not the cancer side... The news just keeps coming. Now the anxiety is just creepy. Had a goodbye party last night for "Poncho and Lefty". Brought one of the layers from my sister's wedding cake from the night before--we drove home to Ft Worth from Austin the day of the party. I iced the top of the cake to cover where the cake support poles were and wrote "Thanks and good Luck Poncho and Lefty". It was nice to have lots of friends and family around. But today it is really sinking in. Reading y'alls comments is making it much better. I pray for you daily. God knows you all as the "January Mastectomy Ladies." When I can't sleep, I pray--y'all are covered in prayers.
After all the reading and questions and research, it's like I have no idea what to expect. My brain can't hold anything or find anything that is in there. Some things make it sound like I will be able to use my arms a bit, others not for a couple weeks. As for the armpits....waxing! I am hopeful it will last for a bit. At least enough to get me back to shaving without a jungle sprouting enough for George to swing from one side to the other with ease.
Thanks for the popsicle idea--it will go on the list today! See you all later!
Susan
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Thanks, Binga for the kind words and especially the prayers. I am doing much better than my last post because I am literally a SLUG! Tomorrow I will see the PS again and hopefully begin work on the next stage of the process.
Wanted to let every know that if you are sleeping in a recliner or even just propped up in bed, the pillow described below is a must have!
HoMedics Ortho Therapy Neck Support Pillow with Velour Cover
Price: $14.99 Amazon.com
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I have my follow up appt with My PS tomorrow...one week from my surgery...I am hoping he will remove the two drains.....#1 output is less than 20cc and so #2 is about 30 cc so not sure ..we will see after tomorrow mornings #s......Hard to believe its been a week almost...I finally slept in our bed...my HB has been so great sleeping on the other couch in our family room...our sectional is so comfy...but my butt is so sore from resting so much......my family has been so persistent that I rest....My girlfriends have made dinner every night for the past 6 nights, and tonight also.....I will meet with BS and Oncologist Friday, then will start the next step , Taxol with Heceptin /3 weeks for year....I wish I could just say NO , Im done ! But that is not a choice....Yesterday HB noticed my eyelashes are falling out some...I am bummed...but Happy , on Friday My friend Deb, stopped in and she cut 7 inches off hair, gave me the pieces and along with Mine I had cut, Im going to get a HIP hat Hair done.....then I find out her Daughter who is 22 , cut her hair and my other friends daughter who is 14 cut 6 inches of her blonde hair for highlights !!! the three of us are brunettes...
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sunsnow -- I'm jealous of the 15 pounds. I thought I would try, but it was hard to get the motivation to move, with the weather being crappy. Nice weekend, so have been out and about. I LOVE the idea of not letting the family in on being okay to move ... maybe it will become a habit!
For all of you January ladies next week -- a peaceful start to your week and an uneventful end!
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Just popping thru with encouragement for the whole crew.
Is everyone doing their stretching exercises? Range-of-motion stretches? Walking-the-wall? Deep breathing?? I am rewarding myself for "little progresses" from day to day.
Big hugs to all.
xx00xx00xx00xx
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Keep the tips coming ladies!!! And just a heads-up, if you are doing TE's, look for the "Exchange City" thread - it's really active and full of lots of wisdom from ladies who have gone through or are going through the TE, fills and exchange process. Lots of experience to tap in to.
Man - I was sick as a dog for three days. Three days where I didn't/couldn't even think about cancer (you'd think it was a relief). But all of a sudden reality comes blowing back in and panic attacks begin. Gasp. Keep breathing. In some ways the 27th can't get here fast enough - in others I am so not ready. Not so much emotionally, but more logistically. The panic feels well-deserved and healthy, but I'm not that concerned about losing my lefty. I was always very attached to the girls, but after childbirth three years ago they don't feel the same and they certainly don't look the same. I'm trying to think of it more as "new boobers" that I don't have a choice about. Meanwhile, life is changing in wonderful ways - to begin anew, with a new perspective, new thoughts, new expectations. But the fear still washes over me in quiet moments when no one is looking.
Keep the posts coming! It is very helpful to hear your stories, thoughts, and triumphs
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Frosty1: The 15 lbs. were the only good thing over the past 2 months. Being diagnosed w/BC and having my Dad suddenly die a week later was the jump start for my diet. I had no appetite, but I didn't want to get sick so I made sure that every bite of food that went into my mouth counted. Now I'm trying to get all the fat off of me so I produce next to no estrogen.
I called an oncologist to talk about how to stay cancer free going forward. I'm not sure what they'll recommend, but I'm back to being terrified. I had my ovaries removed (46yrs. old), so I'm hoping that's enough. Maybe I'm naive, but we'll see.
I hate this!
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Thanks Cindi for the link to exchange city...I'm headed there now
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I wanted to mention to all you ladies about a very nice bra. Warner Style# 2003, Elements of Bliss. There no underwire so it's very comfortable but, it still gives good support.
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I had my bilateral mastectomies(?) on Thursday, January 7, 2010. That makes me a member of the January 2010 group. Woo! I have been checking out this board since my November 2009 diagnosis. Thank you to everyone for posting your stories. They helped me as I waited and then prepared for my surgery. Now I have been relying on your experience to help me with post op information. Ladies, you are so informative and supportive. Thank you!!
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Sunsnow: I agree with frosty1, I am jealous of the 15 lbs! I am also feeling wonderful being drain free! Tomorrow will be your day! And it's worth it!!! So wonderful, I feel so free! Still not able to do anything like my PS seems to think, but that's okay, luckily, my DH knows that I still have to take it easy, although, he is starting to leave me for longer periods of time now. But it's all good. Tomorrow I'm going to check out a Breast Cancer exercise video that I ordered and haven't gotten around to look at yet. I'll let you all know how it is after I check it out. Anyway, hope all is well with everyone and prayers to all!
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Happy Tuesday.
May you find encouragement here...... those who progress with recovery & those who walk closer to the reality of surgery.
We gather together to offer encouragement, which ever side of the hurdle you are on.
xx00xx00xx00xx
Strength and courage.
Strength and courage.
Strength and courage.
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Hi Leah58 and welcome to yet another club. Sounds like you are recovering well from surgery. I am so glad you found this thread, it is a wealth of information for ladies both before and after surgery. Did you have immediate reconstruction as well?
TexasPeaches and Susie123 you are in my thoughts these days as you prepare for your surgery. Try to remember this is the worst part the waiting, it will be better once you are done.
Thoughts and prayers to all who have completed this step in this journey and to those who have their surgeries yet to come.
Take Care, Cathy
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Sunsnow, I am so sorry for the loss of your dad. And just a week after your diagnosis. A double whammy. That is an awfully lot to cope with.....
I'll be praying extra hard for you....It's been six years since my dad died, and I miss him as much now as I ever did. My daughter's heart understands your loss....
To everyone else....I don't know how some of you are doing it, by not needing pain meds anymore, but I found out I still need mine. I ran out, and the tightness of my chest was about to do me in. I finally called my BS office yesterday...after talking with two nurses, they both said with a bilateral mastectomy, it is WAY ok to still be taking pain meds, as long as I'm not dependent upon them (which I am not). I was also told that weather/barometer changes affect the skin and the tightness around the chest - especially when you're not "fluffy", like me. Anyway, I was able to get another script for percocet, and it takes the edge off of the uncomfortableness. For me, this was a total relief - to know it was OKAY to keep taking pain meds. I can tolerate a lot of pain, but this was just making me miserable.
Praying all the time - without ceasing - for all my January friends....
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Robinlbe: Thank you for your kind words and prayers. I appreciate them very much. I can't believe that it was a coincidence that my dad died on the day I was going to tell him about my diagnosis. I had been waiting until after Thanksgiving weekend was over to tell him. I feel him with me all the time now, but some days are harder than others.
On a much happier note, my drains were taken out this morning. What a relief! PS wants to start fills next week. I am so excited to get this process moving forward.
Best to all for a great week!
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I am still taking some meds too, mostly just OTC Motrine and then my Darvicet at night before bed and when I really feel I need it which isn't too often. But I notice the tightening most when I'm cold. We live in a hundred + year old farm house and the kitchen is an add on (and not very warm) and whenever I go in there my whole chest tightens up and is very miserable. I usually end up back in the living room under a blanket to get it to go away. I hope this is temporary! I live in Michigan and most of my life I am cold! May have to talk DH into moving to Arizona or somewhere toasty! Anyway, I am assuming that it's not always going to be this bad, in the meantime, I guess I need to bundle up my chest area!
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I have GREAT, Big, GLORIOUS news!!!
And it has taken me all day to figure out how to share it.
I've just gotten off the phone with Saint and she's helped me "process" the good news and she has given me 'permission' to be happy.
I must say that while I am happy down to my toe-nails, I also have enough 'survivor guilt' and mixed-up emotions, that I want to tread carefully, because I realize that there are so many here who do not get to have a 'happy dance.'
So with all of that as a pre-amble. I woke before dawn again and somewhere before 5:00 a.m. I listened to my cell phone messages from yesterday. Apparently I turned off the phone to take a nap and never turned it back on......
There was a message from my surgeon that my path report was already back!!!! He let me know that the pathology indicated everything removed was DCIS, as per his expectations. The nodes surveyed indicated that there was nothing invasive. He concluded the message by saying that there were absolutely NO surprises.
I listened to the message at least two dozen times.
!!!!!!!!!!
I've told my parents & my children & now that I've tracked down Saint, I can share the news here.
I am keenly aware of how fortunate I am.
I am keenly aware that others will not receive this sort of news.
I am keenly aware of what your support has meant to me.
xx00xx00xx00xx00xx
Thank you and thank you and thank you some more!!
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I am about to add TMI (too much information, LOL) and this will help put things into where my perspective is.
So........ after I listened to the message a gazillion times, I sat here happily crying (you know how much crying I do these days) and saying my prayers of thanksgiving..... and then a little after six a.m. I just couldn't keep it to myself anymore.
So, for the first time since surgery, I crept very carefully back into our wonderfully warm bed, where my dear, dear, dear husband was soundly sleeping. (I have been sleeping in the recliner in our bedroom these several nights.)
Anyhow. I woke him up to report the good news.
Here comes the TMI...... so feel free to click out to some other thread.
We then had our very own "happy dance" together. Me with my drains looped around my stapled shut and totally bruised boy-body, drain bulbs filled up with overnight bodily fluids no less.
Let me tell you. "Good-pathology-sex" while quite sedate due to circumstances beyond our control, is about the sweetest reward possible.
You must promise not to report my enthusiasm to my children, as they would probably have me committed someplace if they were aware.
BUT you must know what an enormously incredible hurdle this morning's news-dance made as 'normal' as having salad together. LOL.
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Hi, everyone. Learned from the ps today that my setback was caused by a "bleeder" which he said was kind of unusual. My anemia is temporary and I'm back on track for reconstruction. Just starting my shoulder exercises(Jan. 5 BMX and Jan. 12 emergency hematoma) and they are sore and tight. I will be patient and proceed eagerly. Honestly, if it weren't for the 2nd surgery, this has been very doable...take your meds, follow the instructions of your surgeons and pray. Thanks for being out there!
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Faithandfifty ~ I'm so happy you had a little happy dance today and some good-pathology-sex thrown in for good measure. That's great news!!
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Faith, wonderful news! It has been a long day of tests and such and your news (of path and joint happy dance) has brightened my day and made me smile
It sounds as if you have an absolutely fabulous husband.
Prayers for all my January Jumpstart sisters.
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