Starting Chemo February 2009?

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  • kmn0701
    kmn0701 Member Posts: 117
    edited January 2010

    Hi girls!!! It's been forever since I've been here though I see most of you on facebook so I don't feel like I'm entirely out of the loop. lol

    I had Herceptin today and only have ONE more to go!!! I have my implant exchange surgery scheduled for Feb. 16th and am SOOOO excited to get these dang tissue expanders OUT!

    Hey, small world Jaimie, my Dad lives in Tampa & one of my super close friends lives in Sarasota. My Dad might be flying me & the girls out there in March when Emma's on her spring break. Assuming he does Webbie & I are going to meet up. :)

    Kerry, I don't see you on facebook enough! I'm there way too much. lol If you didn't see it there let me say it again....LOVE your hair girl! It looks so thick & full.

    Have a lovely weekend ladies!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Kristine when are you going to be in Florida ??  We will be there the last week in March.

  • kmn0701
    kmn0701 Member Posts: 117
    edited January 2010

    I'm not 100% sure Jaimie. I love my Dad but he's a little uh...flaky?? lol Emma has spring/track break from March 15th - April 5th (three weeks), so if we go it'll be one of those weeks. If I can manage it I'll try to do it the last week cause it'd be great to meet up with you too!

  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    cheryl:  you must be getting so excited...I'm not a good flier, how long of a trip is it?  I think I asked this before, lol.  Glad to hear your joints aren't bothering you anymore.

    Jaimie:  do your kids ski too?  I'm not a skiier, I never could get the stopping part down! 

    Nancy:  so glad to hear that your mammogram went well!  Yay! 

    Kristine:  only one more, that's great!  I too am on FB way too much, but I love reading about everyone and it's just so darned addicting, lol

    Well, I am actually working this week, I have 2 sub jobs lined up!  there have been so few available this year.  I am still waiting to hear from my onc on getting a scan before I go off the coumadin.  They don't wanna do a PET, say it's too sensitive and shows things that aren't always there.  Not sure what their plan is, maybe a CT?

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Kristine - hey, great to see you posting here! I am actually on Facebook every day, I just never know what to post. I play word games with Webbie! (anyone up for some Lexolous??) Last Herceptin coming up - bet you will be happy to see the back of that.

    CXheryl - if you are checking in here before you go, hope all goes well! Looking forward to hearing all about it. 

    Nancy - happy Mammo is out of the way. I'm not having mine until April - I had an MRI in Sept., my Dr thinks it is better to stagger than every 6 months. 

    Judy - good to hear work is picking up! Hope the jobs go well this week.  What area do they need to scan on you? Your whole body??

    Anyhow, another balmy week ahead of us. Hope everyone has a good one!!

  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    Honestly, I don't know what to scan...the idea was to be (1) sure that I am NED before going off coumadin, and (2) make sure I have no other clots....but it sounds like they're not gonna scan me... this is the email I got today, saying that they're "not too keen on doing a PET scan for all the reasons we discussed, may find something meaningless, but will have to follow and it will not help us in the future. he will order if very important to you... let me know what you think

    I have no clue what to do, they hate ordering scans, and I hate not knowing what's going on inside my body. 

    On a different note, when I logged on here the other day, I noticed the new topic "starting chemo Feb 2010", and just went, wow....it has been almost a year since we all met, but it was sad to think of so many women just beginning this journey.  I hope they make wonderful, supportive friends here, like we have : )

  • Artemis
    Artemis Member Posts: 759
    edited January 2010

    Hello, Furies ~
    Stopping in to catch up on everyone.  Seems like we're (mostly) doing well.

    The dizziness still comes and goes, but I'm hanging in there.  Just seven more months of Herceptin, so I think I can manage, heh...

    Jamie and Judy ~ you two are much on my mind; extra prayers going up for you!

    Kerry ~ so glad you had a clean checkup!

    Love and hugs to all!!!
    Artemis

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Thanks Artemis :).



    Judy- My kids ski also, they are cute as can be all bundled up.



    We are here and skiied tonight. I didn't realize how out of shape I am until today. Now there is no doubt. I had the I have fallen and can't get up moment.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Jaimie - glad you are having a great time! Don't break anything! We would love to take the kids skiing for a week - no money this year to do it. And, if this weather continues, no snow!!

    So lovely to hear from you Artemis! How is the Tamox treating you?? Hang in there with the H, it must seem neverending. 

    Judy - wish I could give you some advice.  Doesn't even seem that your Dr knows what to do.....

    So, Saturday was the anniversary of my first Chemo date last year. I too was reflecting back on the last year -  I was saying to my husband I don't know what I would have done without you guys.

    Anyhow, hope everyone has a good day! 

  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    Artemis:  good to hear from you, glad to hear you're doing well! 

    Jaimie:  I bet they're adorable....are they good at skiing?  I can't even imagine how sore I'd be if I attempted skiing, lol...sounds like you're having fun! 

    Kerry:  Hey, no complaints here about the melting snow, lol...it's been a weird January weather-wise.  I agree, my doctor is no help on this issue...all she says is "we can't keep people on coumadin forever". (unless you have recurring clot issues, then you are on it for life).  Ugh.

    Today is my only day off, I actually have jobs scheduled the rest of the week.  2 of them are only half days, but it's work!  I'm nervous about tomorrow because it is with a new district, and I'm not sure if they do things differently there.

    Ok, I'm off to take a little nap

  • apple
    apple Member Posts: 7,799
    edited January 2010

    howdy girls.

    i spent yesterday sitting at the computer.. inactivity really makes me sore.. hoping I get some exercise today.  I still have a couple more hours to finish this document, but then it is on too power cleaning.  I can't wait.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Kerry the reflevtions are very hard for me. - hope this year and every year to come they get better.



    Cheryl-i hope your flight went well and that you have a great time.



    Judy- you are going to do great.



    Skiing went a little better today so far. I am heading to the hot tub in a little bit. I am sore but I was able to get up after falling today...lol...then the rest of the week I will be running around like crazy.

  • living4today
    living4today Member Posts: 215
    edited January 2010

    Hey everyone,

    I read all your posts and so delight in how wonderful everyone is doing!  I have been so busy living, that there hasn't really been anything to post...until now, and truely I am hoping that tomorrow I will be able to post clean scans, but right now as hard as I try not to be, I am scared.  I started to have increasing low back pain the last 4-6 weeks, the kind that wakes you up at night...but doesn't bother you during the day.  So, today had a bone scan and tumor markers (my onc never does markers--doesn't believe in them...)  I am supposed to get the results tomorrow afternoon.  Thanks for letting me share.

  • Artemis
    Artemis Member Posts: 759
    edited January 2010

    living4today ~ Oh, sweetie, of course you're scared.  I'm sitting beside you while you wait for your results. I'm hoping and praying that your back pain is nothing more than, y'know, a "bad back".

    Love, Artemis

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Living4today- we are all with you. Another one hoping for just a strained back from a repetative motion.



    This time next week my surgery should be done. I am ready except for my "things" to get done for MIL.

  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    Kim:  hang in there, we are definitely here for you....lots of times back pain turns out to be just that--back pain.  Big hugs to you, I know it sucks having to wait for your results. 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Kim - thinking of you too. I know how scared you are right now. Let us know as soon as you know anything. Chemo does leave a lot of achiness, fingers crossed you just have a regular "bad back"......

  • living4today
    living4today Member Posts: 215
    edited January 2010

    Still waiting for results....maybe tomorrow morning...

  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    Oh Kim, that stinks, why can't they just call patients and not leave them hanging and worried...crossing my fingers for you, too : ) 

  • living4today
    living4today Member Posts: 215
    edited January 2010

    Onco called me after hours....bone scan on back area negative for mets...a spot lit up on rt rib cage, but she thinks this is a fracture from the expanders and radiation--so I will go do xrays tomorrow, and a spot lit up on jaw area--I guess I have TMJ.  With the bone scan being negative, the gynecologists wanted to do a scope for endometriosis (which I never knew I had??)...the fun never ends does it!  But very thank ful that there in NED and very thank ful for all of you and your kind words of encouragement!

  • apple
    apple Member Posts: 7,799
    edited January 2010

    NED

    !!!!!!!!!!!!!!!!!

    If I could have a kid I'd name him Ned

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010
  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    YAY KIM!!!  Woo hoo!!  So glad they called you, what a relief!  Maybe you just need a new mattress??? lol.  Hey, are you on facebook yet?  If so, friend me, Judy Spitz Batchelor : )

    Apple:  LOL that would be an awesome name

    Once again, I have been physically drained by 21 six year olds, lol...I am sooo tired.  the day went pretty good though, and I didn't screw up anything, yay! 

  • Artemis
    Artemis Member Posts: 759
    edited January 2010

    Yay for NED!!  What a guy!
    Smile 

    Judy ~ just reading the phrase "21 six year olds" makes me tired, lol!  Good for you for having a good day with them!

    Hugs to all,
    Artemis

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    NED NED NED!!!! Happiest three letters in the alphabet. Good for you Kim!!

  • kmn0701
    kmn0701 Member Posts: 117
    edited January 2010

    One of my super good friends said she wanted to nominate NED for "man of the year". I must admit I got a huge laugh out of that. HURRAY FOR NED!!!!!

    Dang Judy, I only have ONE six year old & she wears me out. 21?! You are amazing!

  • living4today
    living4today Member Posts: 215
    edited January 2010

    Kristine...I agree with your friend--NED for "man of the year".

    So, I rcd a call at about 5 tonight that the obgyn I saw on Monday wants to do a laproscope tomorrow for possible endometriosis (never knew I might even have this...my GP thought maybe chemo triggered???)  Anyways, I guess I get a "sick" day from work. 

    Wow, Judy 21-6 year olds...just the thought makes me tired. :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

        Unfortunately I am never going to meet dear Ned, but sure do hope you others have the pleasure.  Judy,  I am on coumadin for life.....not just because I have had several blot clots, but because I have an atrial myxoma which broke off many years ago and ended up lodged in my pulmonary artery and the coumadin keeps the blood flowing around it.  Because of my clot history and where my cancer is located no one wants to risk going in and getting it out.  How nice that you have been able to go back to work( not that you aren't doing plenty at home). For me work is good therapy. I agree with Kristine that you are amazing and have always admired the way you think of others and never complain about things.

    Congrats on the good report Kim.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Kim - when they removed my Ovaries, they found a lot of endometrosis. I never knew I had it either - although since having the kids I had had very heavy, clotty periods. She said removing my Ovaries would cure me, so that was good for me. Not sure what they will do for you, but good luck on Monday.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Judy~ I am another one with just 1 six year old and I am exhausted after dealing with her.  My wonderful baby girl is sometime a drama queen so I can't imagine 20 more .....  We know you are not going to screw anything up :) 

    Going for my second to last herceptin today......I am tired already and I bruised my knee really bad skiing so I guess I had better go limp into the infusion room and then to see the oncologist...oh the fun I get to have...

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