Help!
I had my first Chemo treatment on Thursday. I am to do four of them every three weeks. BUT, I can also opt out if reaction to this first one is just too much. I am a tough cookie, but this is just too much. It is two days out and I have never been so sick, lethargic, walk like the Tin Man, have lost all motor skills and memory and am chemically burned right down to the tip of my tongue. I absolutely stink of toxic drugs tho drinking gallons of water. I am only getting chemo because they cannot get me off of Prempro yet and won't try to wein me off again for another 6 months.So I have ER+ and PR+ being dosed with estrogen. Has anyone else gotten this ill? i feel like such a baby but was told I'd be driving and doing my usual stuff after chemo. Really in a funk!
Comments
-
Still Verticle...my sister in Nova Scotia got extremely ill (like you) on chemo and they had to review how much they were giving her and in fact, they had her weight wrong and were giving her too much for her body size. It almost killed her. Once they altred the dose, she managed....just a thought..?
-
Dear Linda, thank you so much for the info. I simply do not know what to ask my docs to do and info from anyone would be a great help right now.
-
Also, typically even if you are sick, it isn't for the whole time. Often for a few days after chemo and then you get better between cycles. But, as Linda wrote above, let your doctor know how sick you are. Good luck. I hope you feel better soon.
-
StillVerticle - well, the reality is that chemo sucks. And for every woman who is able to continue on with all her regular work/family/social obligations there is one like me who just couldn't. I found days 4 and 5 after chemo to be totally incapacitating -- getting out of bed and to the restroom was hard. And then I'd read about someone who was running 3 miles every day! But we are all different.
You had your treatment on Thursday, right? So count on feeling bad for a few more days. But by next Thursday you should start feeling better and better (until your next treatment). I went back recently and read the TC thread for the months I was on it, and you know, a lot of us just didn't feel very good during the week after treatment. Do be proactive about taking meds to combat side effects -- even if you never took any meds before this. Take the laxatives, pain meds, sleeping meds, whatever. Really. It is only for a brief time in your life. Most of the symptoms will pass and all of them will lessen.
I wasn't ever going back after the first one either. But then my hair started falling out about day 15 and I figured if I was going to be bald anyway I might as well do this.
Be kind to yourself. Talk to your doctor. Drink more water than you ever thought possible. Breathe.
PS. You may feel like you have lost all motor and mental functioning (my husband says my eyes were glazed over) but you typed a very articulate message. You are still there, you are just sick with chemo.
-
Still verticle...how are you feeling today?
Those are the worst days after chemo. hopefully you start feeling good and you will. believe me you will. Let your DR know how poorly you are feeling. Let them know everything.
Since you have sores in your mouth always use an straw to drink .
Hugs
Sheila
-
Hey Sheila, good grief, this is not lifting. I have slept all day despite several attempts to do something useful, like eat some toast-BARF! Thanks for the care and support as it is GREATLY appreciated. Lord knows my family doesn't get it. My 84 year old Dad just here wanting to know how much Oxy I have taken because I "seem so out of it." I haven't taken any-just Norco. He is deaf as a stone so our conversations are "me-blah, blah, blah" and him "what (at the top of his lungs)..what did you say? Like his yelling will help us all out. Definately talking to ONC tomorrow about this.I don't think anyone should feel this ill post chemo. Barf (((Big Hugs)))
-
StillVerticle, are you really throwing up? You keep saying "barf". You should not be nauseous, much less throwing up, especially on Taxotere & Cytoxan. If you are vomiting, you do need to talk to your onco about a good anti-nausea drug.
revkat and I went through Taxotere & Cytoxan at the same time. As I'm sure she would tell you, there were a bunch of us who all stuck together and leaned on each other via the Taxotere & Cytoxan thread.
Quit saying you are "old". I was 56 when I had chemo (2008). My oncologists (both of 'em) said one reason why they thought I should get chemo (besides my Oncotype score of 26) was the fact that I was "young". I don't think it's any tougher on women in their mid-50's than on younger women.
But, chemo is different for every one of us. The most important thing is to try to stay flexible. Although you can sometimes predict what will happen during round #2 based on what you experienced in round #1, that's not always how things happen. Being "out of it", sleeping all day, feeling like cr*p, aching all over, not having an appetite for anything... those are all pretty typical when someone is on chemo. You are being infused with two highly toxic drugs, because you have cancer (or at least your docs are worried there's a chance you already have cancer cells in other organs of your body).
This is not easy for anyone. The people who boast that they "worked throughout chemo" are bragging. Read between the lines -- they took off work the day of their infusion, and half of the next day, and then they worked at home for 2 days while they fought the worst of the bone and muscle pain, and yes the diarrhea and mouth sores made it hard to work so they "took it easy" on the job... I think there were very few people who didn't change their lives at all during chemo. Our docs sometimes give us the best side of things because they don't want us anticipating problems that we aren't going to have.
I really do think it would help you to lurk awhile on the Taxotere and Cytoxan thread, where you will find women going through exactly the same thing at the same time. But, I won't suggest that, because you are perfectly welcome to read or post wherever you want on these boards.
otter
-
StillVeritcle, CALL YOUR ONC! I got sick same as you the day after the 1st TC. I went back 2 days after to get Neulasta shot. My onc fussed at me for not calling at the first sign of nausea. He gave me one pill and it turned off all nausea within 10 minutes. He had an IV drug waiting if that did not work right away. He gave me new prescriptions to take at the time of subsequent chemos. I was never sick or even nauseous again. I was 65 then. I had very slow infusions of TC, about 5 hours. I spent the rest of the chemo day sleeping, and just resting. All other days, I spent playing with my 7 year old grandson. We played miniature golf, walked on trails through parks, raced slot cars, etc. I also worked outside mowing an acre yard, feeding cows, gardening, etc.You do not need to be sick! One drug I had with last 3 chemos was Benadryl. I don't know but that may have made a difference too. As soon as the benadryl drip started, I went to sleep. It was only the equivilant of 3 capsules, but enough to make me sleepy the rest of the day. I think with the 1st chemo I got cortisone also. I remember I was ravenously hungry all the rest of the chemo day. Then the next 2days were like the worst hangover/stomach virus I ever had. I threw up all over my son's car on the way to the onc's office.
-
Aw, yuk! Beergirl, you never mentioned the throwing-up-in-your-son's-car part before, did you???
I had an anti-nausea drug (Zofran) and an antihistamine (Zyrtec or Zantac, they traded off), along with Decadron (dexamethasone), as pre-med infusions before every TC treatment. The Zyrtec (H1 blocker) and Zantac (H2 blocker) didn't make me sleepy like Benadryl would. Some days, I'd have enjoyed the nap. My day-after-chemo pattern included a very slight yucky feeling -- not really nausea, more like queasiness. My onco distinguished between "queasy", which she didn't worry about, from "nauseous", which she treated.
The thing that made me the most uncomfortable during the week after each TC infusion was indigestion/gastric reflux. It was horrible. Until we got that under control (with OTC Prilosec), I was miserable. The severe indigestion contributed to almost-nausea, lack of appetite, diarrhea, ... a whole host of things.
Call your onco, if you haven't done so already.
otter
-
Oops! I posted something incorrectly. During the first chemo, I think I was given some kind of steroid...not necessarily cortizone. All the other chemos, I had potassium, magnesium, benadryl, taxotere and cytoxan. That's it. My onc prescribed generic prilosec and I was taking it twice a day and still am.
Otter, I guess since I was never even mildly nauseous again, I kinda put it in the back of my mind. But yes, after throwing up until there was nothing left, I got in his car , prepared with plastic bags, for the drive to the onc's office and in less than 1/2 mile...oops. I think I still owe him the money I promised for getting his car detailed.
-
Hey gals', yup, the "barfs" are for real (dry heaves mostly). And they are breaking through the zofran, etc. Left message with onc on Friday but no word. I have been sick as I don't know what and think I am having a reaction to something. I am covered in weeping sores that came on overnight after the first chemo.Spent the day (today in the ER getting fluids (about 3 liters) and IV anti nausea-plus I am running a fever of 100.7. Felt Ok (somewhat better) then we had to make the drive up the beach.Dad had to pull the car over several times so I could barf. For some reason,with removal of lymph nodes or something, I am now getting horribly car sick and sea sick (never before). I mean this is like, give me morphine and wake me when it is over! Very tired tonight Hugs, Melissa
-
Stillverticle- IM wondering if you took or was precribed decrodon and emend, the decrondon is taking a couple days prior and a couple after cemo it is a steriod that helps to tolerate the chemo and the emend is for the neusea, the first couple days i was UP from the decrondon and then started the down hill spiral of feeling bad up till almost time for my next chemo, so what you are expericing is normal, Some get better some get worse, every one is different~But if you have the meds for all of this i encourage you take them if you are not~
Also i was curuous if you have a joined a feburary chemo thread, i was on a may marvels thread and when you go thru chemo wiht other woman at the same time they kind of help each other, it helped me get thru so much, not that those that are already finished cant help but when you are going thru it togerher is really a life saver especially when every one is crying,screaming, angry or just want to vent at the same time just helps to get thru it easier, hope this helps and i will keep you in my thoguhts and prayers, it will get better (((((((((((hugs))))))))))))
debbie
-
Stillverticle: You may be having some kind of allergic reaction to the chemo. I was allergic to Cytoxan, and had a horrible hives reaction after my third treatment. Hugely swollen all over, covered with raised welts and hives, and unbearable itching. I was prescribed prednisone. For my last treatment they only gave me the Taxotere, and that was administered very slowly. If it is not an allergy, then they may be able to try some other anti-emetics to control the nausea and vomiting. I did not have either of those throughout my treatments, but I was exhausted! Many days could not even get out of my chair to get a glass of water. I would just sit there waiting for someone to come home and do it for me. It was bad. I got the benadryl, decadron, and emend. Also got the neulasta shot the day after chemo (which resulted in some bone pain).
I've also heard of women who worked throughout their chemo, and I don't know how they did it. I was out on disability for 7 months following my surgery due to some complications (infection) and the chemo. The fatigue was debilitating. But everyone reacts differently. I did have some good days, too. Every day was different for me.
I'm sure your onc has some alternatives for you. Please don't give up on the chemo yet. Hugs to you.
-
Hey Deb and Sus, thanks so much for the support. Great idea to join a thread with women going thru chemo at the same time. I truly believe I did have an allergic reaction-noone gets that ill and I am covered in rashes that itch like heck. But, a huge candida infection has also broken out all over my skin and they cannot give me difluycan and steroids. Yeah, I definately need another way to go with this but still cannot think my way out of a paper bag right now. Need to get proactive! Love to all, SV
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team