Any one ever hear of something like this?
Hi all. I do not fit in the concerned about a reoccurrence as of yet but I did not know where else to post this so I was hoping this forum would do the trick. Here is my question/situation. Backstory-I work for a state agency and when I returned to work after medical leave with my scarves and hats I was approached by several cancer survivors to swap stories. One lady in particular I have formed a bond with and since she has no family I call and check in on her, see if she needs groceries, whatever. She had BC originally about 30 years ago. About seven years ago she was diagnosed with mets. She has been on various chemos and herceptin since then. For the most part she has been doing great, working, gardening, she is doing way more than most "healthy" 70 year olds. Right before Christmas a scan showed a tumor, I am not exactly sure of placement, and she had to undergo surgery immediately. They sent the tumor off to a new pathology lab, for them, in California and the results came back metastatic OVARIAN cancer, not BC. HUH? I asked her if that meant both had metasticized and she said they told her no that it was not a recurrence of BC at all but was the ovarian cancer. She never knew she had ovarian cancer. So she then told me that they say they are going to keep treatment about the same but drop the Herceptin. Am I missing something and there are other questions she should be asking? How could doctors tell her for seven years she had BC mets and it was ovarian mets? I really feel for this lady. She told me that she was happy to be in the hospital for Christmas so that she did not have to be home alone. Has anyone ever heard of the two getting confused before or is this malpractice in some form? It seems bizarre to me.
Comments
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I have read stories about similar happening online.....seems to be very rare, but I still ask for a biopsy when they are in a place that is accessible. I have also heard of bc changing it's pathology - may start out as er\pr- and become er\pr+, etc. I agree with Madalyn, she should definitely request a second opinion.
It just breaks my heart to read that anyone would have to be alone at Christmas and would prefer being in a hospital to being alone at home. Thanks for being there for her :>
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Im sorry about your friend. I am glad though that you are there for her and asking some important questions on her behalf.
I wouldnt think she had any BRCA testing done. I wonder what her family history is...<sigh>
I too have read stories about metastaic BC showing up, but no tumor, just cells. I dont think its really common though.
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I agree with Madalyn that another opnion is in order.
Also, some of the chemo drugs used for ovarian ca are the same as the ones used for bc - taxol, adriamycin, 5-FU are a few - so that's probably why they're not changing her treatment plan with the new findings.
Best of luck to you and your friend.
leah
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Thank you all that posted! She is a great lady, "full of piss and vinegar", as my mom would say. She is a real spitfire. What concerns me is that she seems to be ok with all of this. She did not focus on the fact that they changed her diagnosis completely but kept telling me that her oncologist said she was an inspiration. Anyway I will gently push her in the direction of a second opinion. I asked her if she had the BRCA testing (maybe that is a moot point now) but she said her oncologist "did not do that". She also told me that she had been on Tamoxifen in the past for 15 years so I guess we should all be glad that treatment has come farther than that. I have a lot of respect for the ladies (and gentlemen) that came before us, they had to endure some crazy stuff as treatment. Back when she was originally diagnosed there was no Herceptin.
Thanks again.
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I'd agree with the other poster's on another opinion but would also add as another her2+ survivor my concern they are dropping the herceptin.
Is this because the new cancer is neg??
If she still has breastcancer mets from the original cancer she needs maintenance herceptin or tykerb for that.
Did she have a biopsy on the ovarian so you know?? It's important to know if hormone/her2 status has changed and the only way is a biopsy.
My best to her and thankfully she has an Angel in you as a friend.
Tricia x
P.S....My onc told me breast and ovarian cancer are closely linked which is one of the reasons I had my ovaries removed.
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