Do you have palpable lump that is DCIS and not invasive?

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zoegr
zoegr Member Posts: 113

I haven't had my surgery yet and i don't know from my biopsy results if i have DCIS or Invasive. I hope to have DCIS. I was looking the symptoms of DCIS in the internet and it was said only in very little cases there is a palpable lump, usually it is found from the microcalcifications in the mammogram. I have a lump around 1.5 - 2 cm. Should i start worrying that my possibilities is more to have the invasive type? Anyone there with a palpable lump that is just DCIS? And what size?

Comments

  • mlrbelle
    mlrbelle Member Posts: 108
    edited January 2010

    So sorry you are going through this!  I had a very palpable lump - turned out to be just over 6 cm.  The lump itself was all DCIS.  I did have a barely detectable microinvasion, but not in the lump.  I was/am still considered stage 0, grade 3 though due to the size and necrosis.  I also had some microcalcifications in that breast as well sort of orbiting the lump.

    I've seen a lot of people on the BC forums with DCIS lumps, so it doesn't seem as uncommon as reports seem to indicate.

  • VinRobMom
    VinRobMom Member Posts: 101
    edited January 2010

    I was so worried about this too.  This whole process started by me finding a lump in my left breast.  Had the diagnostic mammo which found microcalcifications.  They didn't see the lump on ultrasound so it was not biopsied.  I thought that was very odd that they didn't bother to biopsy a palpable lump.  Anyway, the lumpectomy was performed and the lump turned out to be fibroadipose tissue measuring 9.5x 7.5 x 1.2 cm.  It had nothing to do with cancer but, had it not been there, who knows how long I would have delayed having a mammo?  I remember feeling conerned too, that so many websites say that DCIS rarely presents as a palpable lump.  In my case, the lump had no DCIS but I guess it was just fortunately in the right area.

  • lifegoeson
    lifegoeson Member Posts: 189
    edited January 2010

    I had a large palpable lump, as well as redness in the breast, and bloody discharge from the nipple.  It was all DCIS. 

  • Jelson
    Jelson Member Posts: 1,535
    edited January 2010

    I had a palpable lump and no calcifications and it was all DCIS. The area of concern was 1.6 cm, the actual DCIS area,  after lumpectomy, was determined to be .8cm. I found this website helpful in understanding DCIS http://www.dcis.info/biopsy-examination.html

    goodluck to you.

    Julie E

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited January 2010

    YES!!! Like so many others, I had a palpable, 4.5cm, hard, unmoveable lump, plus bloody discharge. Three breast cancer specialists told me before the biopsy they were sure it was invasive.

    Thankfully, they were WRONG and it was all DCIS.  Here's hoping that's what yours is!!

  • AmyD
    AmyD Member Posts: 75
    edited January 2010

    I had a palpable lump/area.  That's how I found it.  I had just had a mammogram 3 months prior which was a "normal screening mammogram," and had been having regular yearly mammograms for 8 years prior to this.  They told me the lump is often the confined cells within the duct that grow and expand the duct.  I ended up with a 4.5 cm area and it was all DCIS.  

  • MaryDee
    MaryDee Member Posts: 53
    edited January 2010

    I had a palpable lump and have since had a mastectomy...only DCIS was found.  The not-knowing is the hardest part, soon you will have more information.  I hope it's good news for you ((hugs))

  • MaryDee
    MaryDee Member Posts: 53
    edited January 2010

    I had a palpable lump and have since had a mastectomy...only DCIS was found.  The not-knowing is the hardest part, soon you will have more information.  I hope it's good news for you ((hugs))

  • toni67
    toni67 Member Posts: 62
    edited January 2010

    I had a palpable lump and diagnosed with DCIS, the breast surgeon was concern because the lump was so big. I will undergo a mastectomy next month.

  • mom3band1g
    mom3band1g Member Posts: 817
    edited January 2010

    I have a very palpable lump and just got word last night it is 'only' DCIS!  My husband and I were so relieved and happy.  I had a mammo and 4 different people ultrasound the lump and no one could 'find' it.  Everyone could feel it though.  Thankfully my Dr referred my on to a breast specialist who did do a biopsy. 

  • zoegr
    zoegr Member Posts: 113
    edited February 2010

    I got my pathology report yesterday. I had DCIS multifocal, spread all over my breast. Unfortunately there was some microinvation (they couldn't find where) because it affected two of my lymph nodes. 

  • terie
    terie Member Posts: 1
    edited January 2011

    I also had a "rare" lump with DCIS. This is how it was discovered. It did not show up on diagnostic mammography or initial ultrasound. It took 3 ultrasounds and an MRI to confirm I had something there. (As a matter of fact, after the diagnostic mammogram I was told that the mammo was negative. It would have been left at that except that I thought about it and called a couple of weeks later, questioning how a lump could be there and not have anything show!) Even 3 days prior to surgery, a mammogram could not pick it up. Prior to surgery I also had a core biopsy that showed DCIS, however, the docs were concerned that there could be invasive cells that were just missed on the biopsy. My doctor and I decided to have the lymph node biopsy at the same time as my lumpectomy. All 7 nodes came back negative. The official diagnosis was DCIS with 3 foci of microinvasion. One was at the margin so I had to go in for a resection and had a 1 mm clear margin that time. Underwent radiation. Am now on Tamoxifen. Long story to answer your question about whether DCIS can present as a lump.

  • peppopat
    peppopat Member Posts: 90
    edited January 2011

       I have not had surgery and don't plan to  anytime soon.   The only thing my agenda is to get an MRI and mammo.   My palpable mass was 2cm  but it shunk down to nothing (and my doctor couldn't locate it anymore) after being on Tamoxifen and special viatmin supplements for 6 weeks.  With myself doing so well,  why is the world would I want surgery  other than on open biopsy,  in time???

  • mom3band1g
    mom3band1g Member Posts: 817
    edited January 2011

    peppopat - because you don't know for sure that is is truly 100% DCIS.  There is a chance that there is also IDC mixed in.  I am thrilled for you that your lump shrunk..I've never heard of that happening.  I'm sure you didn't mean to sound condescending to those of us who had surgery......  It is a very hard and very personal choice and one each woman has to makefor herself.  Everyone has a different scenario and they aren't always covered in our little 'diagnosis' box.  Best of luck to you.

  • quinnie
    quinnie Member Posts: 221
    edited January 2011

    My DCIS was also a palpable lump. I had regular mamo's, and 3-4 months before I felt the lump, it was all clear. It did eventually show up on the ultrasound, but never on a mamo. I have read that this is definately not the norm. And they say that self breast exams aren't necessarily useful? Breast Cancer detection needs many tools and unfortunately, there is not one method that is fool proof.

  • syrl
    syrl Member Posts: 1
    edited January 2011

    i had draining for 1 1/2yrs. from left breast. color clear with slight yellow color on tissue. No lumps felt. Had regular mammograms and sonagram. nothing seen until last month a sonagram showed something and had a needle biopsy. Dr. believed papilloma and had that duct removed.  The biopsy from that biopsy  showed two areas 2.5 mm and 1.5 mm that was non invasive cancer.I will have more tissue , segment, removed. Then if any more cancer found, look at something else.  Till then have an appt with a radiologist at cancer center and may receive tamoxaflen.    If anyone one has drainage , push to investigate. Thank God I have a Dr. who is on the ball.  I almost cancelled the original Dr. appt. because of complacency that mammogram showed nothing.  I wonder how fast do these types of cancers grow and is a delay of two weeks that i requested for personal reasons dangerous to wait.

  • Tinkerbell14
    Tinkerbell14 Member Posts: 29
    edited September 2018

    hello,

    It seems you have described in your post my situation almost exactly. I’m sorry to reach out so long after you have written it and I truly hope you are well and have moved on from this situation. Can you share anything more about your experience. I’m so worried. Thank you so very much.

    Ann

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