Starting Chemo February 2009?

Options
1…139140142144145…179

Comments

  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    Feeling less sore today, so that's good.  Except for my scalp hurts like heck...do you guys get a sore scalp, especially if you skip a day washing your hair?  I wonder if my hair is having a growth spurt or something....

    Kerry:  what an awful thought, yikes!  Our basement stairs go straight down, no carpet...my son went down them in his walker when he was a baby, it was the worst day of my life (up till that point, lol)...I just missed saving him from going down, it was like watching in slow motion...half way down he left the walker, flew over all the steps, and landed flat on his back.  Probably the best scenario, since he didn't hit until he hit the bottom, not a  scratch on him!  We called him Brendini after that, lol.  One of the kids I was babysitting had moved the gate blocking the steps.Gives me the chills just remembering that. 

    I'm sure your appt will go great tomorrow, just know we'll be thinking of you so you don't feel so scared : )

    Jaimie: don't you love finding lost items you thought were gone forever?  I always think that if we ever move, all sorts of things will turn up while packing, lol.  I too am curious what kind of flap you're getting....since you are thin, I also assumed the lat-flap.  That's what my PS recommended for me, but with the weight I've gained, I'd prefer they take it from my big ole thighs, lol.

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    I am getting either S-gap from the middle of my buttock or lower lumbar flap which would be from my lower back aka love handles. I have decided that I am going to keep an open mind as far as donor site preference :). I decided against lat flap immediately when I started researching the procedures. I have scoliosis and I need all of the muscles that I have in my back :). I also wanted donor scars that I could hide from most people. I just can't believe in almost 2 weeks I will be starting reconstruction again hopefully for one of the last times ;). I have to say times because it is a stage surgery and I will have at least 3 stages.

    · Share on FacebookShare on Twitter
  • MicheleS
    MicheleS Member Posts: 937
    edited January 2010

    Kerry~ Is the appt today?  Thinking about you!

    Jaimie~ Girl, you need to PM me!  I'm psyched for your surgetry! for selfish reasons: I want to know how it goes!!! And, I get to meet you!

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Kerry~ I wish I lived closer I would go to your appt. with you. 

    Michele~ I will PM you.  If you want I can show you the before and after to give you some perspective of what they can do.  (IF anyone else wants to see I would be happy to share me in my nekiness...lolll)  I think meeting you and Webbie are the highlight of my trip :)  I get in late Sunday but I would love to meet up with you on Monday (if you can).  If not we can figure out a day after my surgery but I can guarantee how I will feel. 

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Jaimie - thank you! I would love to have you along.

    Michele - no, it is tomorrow, I just believe in stressing days ahead. Wink Why just ruin one day, eh! 

    Anyhow, been taking photos of Jacks cars all morning - he has a "100 day of school" collection to put together, and is doing cars. I remember doing it with Emily last year, and my hair kept falling out all over the paper! LOL! 

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Kerry at least you hair is staying in this year :) and looking cute might I add.



    I would love to figure out how to get us to stress less about our follow up. Especially since we have years of follow up to go.

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    I know, I don't think it gets easier either. I wonder if they have any idea how stressed out all this makes us?  Really, if I had a happy pill I would pop one about now.

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    See if we lived closer I could halp you out ....lol....  I hope everything goes well and you get to go on your way after your appt.  I am getting nervous just for pre-op stuff.....sad :( 

    · Share on FacebookShare on Twitter
  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    How nice that you guys will all meet, I'm jealous ; )

    Jaimie:  I didn't like the idea of a lat-flap, either.  I've never heard of the lower lumbar flap.  Why is it a 3 stage surgery?  Is this trip for stage 1 only?  You have to return 2 more times?  Sorry, just curious how they work it for people who live out of town....

    Kerry:  Good luck tomorrow....I'm sure it will go great!  Xanax is considered a happy pill, right?  lol, rather more of a relaxation pill, but close enough!

    · Share on FacebookShare on Twitter
  • Bethie1
    Bethie1 Member Posts: 393
    edited January 2010

    Hey girls!!!  It's been ages!!!!  Glad everyone seems OK!!! Have I got a hairstyle for you!!! Just need to take a picture of myself!!!  I'm anxiously awaiting BRCA 1 and 2 results--should get them in a few weeks!!

    · Share on FacebookShare on Twitter
  • Bethie1
    Bethie1 Member Posts: 393
    edited January 2010

    changed my pic--what do ya think?????

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Bethie it looks adorable :)

    Judy~ I have to go down there at least for 3 stages.  Stage 1 is to move the donor site tissue and make my new breast, stage 2 they clean things up and make them look prettier and hopefully stage 3 is for tatoo's.  Oh and xanax is considered a happy pill :)

    · Share on FacebookShare on Twitter
  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited January 2010

    Hi! Please accomodate my whine tonight! My knees and hips are killing me! While on tamox I was having a lot of joint pain. After I stopped the pain eventually went away. So, I thought I would try aerobic exercise. I haven't done any since early chemo. I have tried 3 times, less length and intensity each time. For days afterward I need to take narcs for the hip/knee pain! Yesterday I walked on the treadmill for 30 minutes, hardly breaking a sweat. Today I am miserable! First my knees hurt, now its my hips too! AAGHH!

    Ok, enough about me. Kerry, I know about the anxiety with follow-up appt. It will be over soon and you can relax. Jaime, I would not recommend planning on visitors right after surgery. The nurses will have you pretty drugged up. I am jealous you get to meet Web and Michele! Judy, take it easy and no more stairs!

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Cheryl I hope your knees feel better soon.

    Kerry thinking nice boring appt for you.



    Sitting waiting for my pre-op appt is driving me crazy...

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    I'm home, thanks everyone for your good wishes. "No Concerns" - best two words I have heard!

    · Share on FacebookShare on Twitter
  • Beverly11
    Beverly11 Member Posts: 443
    edited January 2010

    That is so awesome that a number of you get to meet in person.  I am jealous too.

    Cheryl - sorry you are sore.

    Kerry - Thinking of you & your preappointment anxiety.  I seem to get after appointment anxiety.  Analyze the appt.  What did they actually mean when they said......  Drive myself crazy!!!

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Kerry LOVE those words :)  When do you have to go back again ?? 

    Done finally with my pre-op appt's.  I started this morning at 9am and I just got home.  They had a problem getting blood from my veins.  There was a whole lot of resticking and then moving the needle....   How in the hell am I going to get thru 2 IV's ???  I leave for NOLA in 12 days....  Oh the nerves... 

    I got a ton to look forward to besides boobies :)  We decided today that we are going to my favorite state for Easter.  So we are planning to do a lot of things in the next couple of months :) 

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    So, whats your favourite State??? I have bad veins now after Chemo, they always have to hunt around for them. But they always seem to manage it. Ask them to use a Butterfly, I find that makes it easier.

    Yep, I am pretty relieved after today. I can relax and look forward to our weekend. I see her (BS) again in July, I see my Onc next in April - on the 1st of all days. I have Zometa in March, so nothing for me until then. (hopefully!!)

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    My favorite state is Florida on the West coast.  My MIL lives in Sarasota and it is just lovely.  Kerry the worst part is it was a butterfly but my vein was infiltrating so only a little bit of blood was coming out.  The great part was the pleb.is normally nasty but she was sweet as can be. 

    · Share on FacebookShare on Twitter
  • gcpommom
    gcpommom Member Posts: 883
    edited January 2010

    Jaimie:  ah, the tattoo, I couldn't figure out the 3rd stage, lol.  I've only been to FL twice, but I much preferred the Gulf side, too...so pretty there.  We were in Clearwater.  I KNEW xanax was a happy pill, lol

    Kerry: glad to hear everything went well today : )

    Cheryl:  Hi!  Weird about the knee/hip pain....you're not back on tamox are you?  Some people say the coumadin gives you joint pain.  I hope it goes away soon. 

    Bethie:  good to see you again...I like your pic : )

    I have had a boring week, no subbing jobs to be found...I guess the teachers don't take time off after being off for 2 weeks at Christmas.  Maybe it will pick up next week. 

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    I've never been to Florida - been down to New Orleans and also Georgia, but not Florida. Still hoping to make it down to Disney at some point before the kids are too old. How nice you can stay with your MIL, we don't have any relatives living anywhere nice to visit! Well, except New Zealand, but you can't drive there.....

    Judy - enjoy your time off! I am sure work will start to pick up now we are in the "depths" of winter!  Mind you, they are calling for 8 degrees or something silly next week.

    OK, hope everyone has a great day. 

    · Share on FacebookShare on Twitter
  • apple
    apple Member Posts: 7,799
    edited January 2010

    just catching up (i think I read 20 posts) and offering prayers and such.  Hang in there everyone.

    (you can catch me on the stage III forum and facebook, also the Catholic thread).

    · Share on FacebookShare on Twitter
  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited January 2010

    hi! My joints feel better today. I didn't work, and that makes a difference. I can rest and pace myself. At work it's go-go-go whether my joints ache or not! Judy, I am still on coumadin, but currently not tamox. I have never heard of aching joints with coumadin.

    Jaimie, I love Florida, too. My DH and I say someday we will buy a condo in the building where his parents and sister have theirs. It is on Marco Island, and it is beautiful! I'm so sorry you had a difficult time getting the IV in. I hate when I start IVs or draw blood and I have to root around for the vein! I feel so bad, I know it hurts!

    Bethie, lookin' good girl! Great hearing from you!

    Less than a week now until I leave for the Philippines! I will try to keep in touch while I'm there because I will have my blackberry and my computer.

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Cheryl - oh, it would be cool getting updates from you when you are over there! How long are you staying for? Just a question - do you wear a sleeve when you fly? Just wondered what people do...?

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Cheryl~ I want updates and picture...yes I am demanding :)

    I got the all clear for surgery... :)  I am supposed to be cleaning (do you notice a trend) and packing for skiing but instead I am sitting on my butt. 

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Whoohoo, full steam ahead!! When are you going skiing??

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited January 2010

    Monday thru Wed. Then I have Dr appt on Fri so busy,busy until then. My MIL comes in on Friday and I leave on Sunday.

    · Share on FacebookShare on Twitter
  • Nancyb7912
    Nancyb7912 Member Posts: 84
    edited January 2010

    Kerry, So glad to hear from you! They stopped me after 7 Taxols the neuropathy was so bad. Deferred me for 2 weeks and then switched me to Taxotere for the last 3 weeks. Not great, but better than the Taxol. I still tingle a lot and am numb, but that feeling that my feet are bound with straps is gone. I'm hoping that means progress.

    First mammogram in a year was Monday. While I still need to see the surgeon with the films, no ultrasound and "free to go" I took as good news. 

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Jaimie - have fun skiing!! All our snow is melting here......

    Nancy - yep, that sounds like good news indeed.  Glad the neuropathy seems to be improving.

    Have a great weekend everyone! 

    · Share on FacebookShare on Twitter
  • Bethie1
    Bethie1 Member Posts: 393
    edited January 2010

    Glad to see everyone-been ages I know!! I took a mental health day today, and boy did I need it. I need to remind myself work just pay the bills!!  Some people can be a holes there!

    Cheryl-Sorry you're sore!!! :(

    Jamieh--Fill me in on recon surgery--I'm lookin to get this done--I'm gonna get lipo, and move some muscle from stomach.  How soon should I get this done--been out of rads since August 2009.  Good to pop in -see ya soon

    · Share on FacebookShare on Twitter

Categories