January 2010 Rads Start

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  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    Debbie...he he he

    It's odd, at the breast center everyone makes friends, rads not so much, we are out of the boobie zone.

    First real delay today.

    But, big red actually looks smaller (maybe it's the tan). Or it is possible the stitch was contributing to the swelling and the cellulitis.

    Anyway, no complaining for me today.

    I am in the DD's (double digits)

    10 down 20 to go

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    oh an apparently since my rad onc is headed on a cruise to south america I get some super famous rad onc from England.

    SMK patients are so turned on by thatWink

  • Twinmom77
    Twinmom77 Member Posts: 303
    edited January 2010

    Just checking in.  I finally start tomorrow and my soon-to-be-ex has finally stepped up to the plate and will be watching the twins before work.  I expect he'll probably poop out after a few weeks, but at least I don't have to worry about hiring someone for now.  I was really having a hard time finding an available sitter and was starting to stress.

    As far as deoderants go, I started experimenting a long time ago with natural deoderants and none of them worked for me.  I finally found a "recipe" for making my own and I've been using it nearly two years.  Works great and the doc said it would be ok to use since we're not radiating the axilla.  It's just equal parts baking soda, cornstarch, coconut oil, and shea butter.  I leave the shea butter out because it's a little expensive and just up the coconut oil.  Using 2 TBS of each lasts me nearly six months and it's way cheaper than deoderant.  Just thought I'd mention it for those having trouble.

    Sounds like most of those who have started are doing fairly well...hope it stays that way for all of us!

  • jenn3
    jenn3 Member Posts: 3,316
    edited January 2010

    I haven't experience the rads waiting room, other than today.  I'm a talker and made a lot of friends during chemo in the waiting room and while doing chemo.  Guess I'll see what happens over the next few weeks in rads.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Talking of wine, they legalized pot in NJ this week. Do you think I'll be able to get my onc to prescribe some for me? lol

  • one-L
    one-L Member Posts: 1,110
    edited January 2010

    onty, if its legal, why not.  It will be interesting to read a few of your posts after a couple of puffs.  Good Luck.

  • DaylilyFan
    DaylilyFan Member Posts: 80
    edited January 2010

    First real rads today, one down and 20 to go!  I imagined I was a pizza in a toaster oven....

    I'm semi-retired and not working this month, so a 2:15 appointment gets me home before rush hour. The staff assured me that they would accommodate my February schedule.  The techs (both sexes) are very considerate and professional.  This center uses Sharpies instead of tattoos, so I am wearing bras and nightgowns that are mostly old and expendable.  I did buy a couple of the front-closing, stretchy cotton Fruit-of-the-Loom bras at WalMart (about $7).  They come in black!  I went up two sizes because a friend told me I would appreciate a roomy fit by the end of treatment.

    The rad onc nurse checked the ingredients list on my Eucerin Calming Cream and gave me the thumbs up.  The grocery store has Tom's unscented deodorant stick on sale, so I'll give it a try.

    Ladies, read your bills and insurance statements.  I was charged for an EKG in error, which was easily straightened out by the billing office calling the records clerk.  On the other hand, I spent 45 minutes on the phone several days ago explaining to the call center that there was an error in my out-of-pocket maximum calculation.  The service rep finally agreed there was a mistake and sent the claim back for reprocessing.  I hope that does the trick!  It's frustrating when the paper from the insurance company doesn't match the web site information or the provider's bill. 

    Hang in there and keep posting.  It's nice to have company!

  • Kim09
    Kim09 Member Posts: 100
    edited January 2010

    So far each time I go they take me straight back so I never have a chance to sit in the waiting room. 

    I don't have a special parking pass but the cancer center at the hospital has its own parking lot right outside its door.  So at the most I have to park only 10 spaces away.  Mondays are the only day th. at I have to do that.  All the other days I park right outside the door.

    I think I am starting to feel the cummulative effect because I came home and slept about an hour which is not me.

  • c2will
    c2will Member Posts: 91
    edited January 2010

    I had a consultation today with the radiation oncologist.  I liked everyone in the practice, but I decided to get a second opinion on treatment before I visited this doctor.  I will most likely stay with this practice - it's convenient, liked the staff, etc, but I would like to compare the recommended treatment plans.  This doctor would do 28 regular treatments in the prone position, plus 8 boosts.

    The patients in the waiting room were very friendly, kind of felt like 'The Radiation Breakfast Club'.  One woman had nothing but praises for the staff.   I have a good feeling about something that I was very apprehensive about.  Not sure when I'll start, since I still have to see the Med. oncologist.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Dear Carol,

    Welcome to  the January Rads thread and to the doggie style rads :-) (Read back a few posts to see some shared jokes on prone position.).

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Good luck for tomorrow TwinMom. And how was today Grama?

  • Sido
    Sido Member Posts: 234
    edited January 2010

    I usually wait about 5 min (but I always get there a little early).  There is no special parking, but a big structure right across from the hospital so it isn't usually a problem.  My office has a system where you are given a card with a barcode and when you come in you just hold it up to a reader and that lets the techs in back know you're there, then they call you over a PA system when they want you to come back.  The techs are friendly and chatty, actually more than at the cancer center when I had chemo.  That felt too much like the suicide room from the movie Soylent Green.

    My breast has started aching in the evening and I'm definitely feeling the fatigue because I'm sleeping really late.   I hope I can get a grip on this before classes start next week.

  • catwrangler
    catwrangler Member Posts: 23
    edited January 2010

    11 down, 24 to go. 

    I'm starting to get tired.  I ened up shortening my work day today and taking a bit of a nap before making dinner.  I have a feeling this might be the wave of the future.  

  • kmf
    kmf Member Posts: 79
    edited January 2010

    I brought up the red wine study to my rad/onc -- she said by all means have a glass every night during radiation - my husband heard it too!  I love this dr!  I don't have one every night, but it's nice to know I can after all the studies warning about alcohol and risk of recurrence -- I think moderation in everything just works most of the time.

    I am starting to pick up some color on the top 1/2 of the radiated breast. I now refer to going to tx as going to the tanning bed -- ironic since my husband has insisted that I give up my tanning contract w/my diagnosis. ( I never tanned a lot, but just enough to maintain some color year around.)  Now I'm slathering on the bronzer on the other 1/2 of my chest to even out the color. We are headed to Jamaica two days after my last treatment and I'd like to not look too odd in my bathing suit. 

    Have a great week to everyone!  Karenanne

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    omg...they were playing atomic dog where we ate dinner!

    I tried to explain to hubby

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Lol. Hubby didn't get it, did he?



  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    not quite...love the hub.

    Thought rads was like going to the beauty parlor..that I could sit in a chair and read a magazine.

    I said sure you can...when they are running behind!

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Or when they are doing me in doggie? Lol.





  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    lol on the floor! Clean up on aisle 3.

    11 down 29 to go.

  • grama5
    grama5 Member Posts: 81
    edited January 2010

    I went in to my surgeon today to get my stiches out and came home with them in for another week. Rads are still on hold. I talked to rads onco and asked about having rads on my stomach like some of you are doing and if that way it wouldn't hit any lung. He said in my case the very minimal of lung will get sapped and the stomach position is used for women with VERY large breasts, so that when they lay on their back their breasts slid under the arm and actually rest on the table. I am a D but mine stay on the chest wall and doing it the other way does not gaurentee lung involvement either.SOO....... I'm still waiting

    Flo

  • Twinmom77
    Twinmom77 Member Posts: 303
    edited January 2010

    1 down, 34 to go!  It was pretty cut and dry.  Did anyone else feel anything while getting toasted?  I felt a pinch that felt like it was underneath the breast, like in the chest wall, at the very bottom - far from my tumor site.  It pinched once and then I felt it again - it hurt and surprised me so much the second time that I flinched.  When I asked the tech about it he said it was probably just a muscle spasm.  Uh-huh.  Sure.  Basically acted as if I was imagining things.  We'll see what happens tomorrow!

    As for the twins' father "watching" them...well, when I left he was still asleep and when I got home one of the boys was downstairs by himself with a pair of scissors cutting up a reciept I needed into tiny slivers.  This arrangement will probably not last long!

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Dear Flo

    Sorry to hear that your stitches are not ready to be removed yet. About prone/supine, I think there are many variables that go into this: hospital/doctor preference, location, size of tumor, other areas to be covered etc. I think my boosts might be delivered in supine anyways. So it may also depend on equipment availability.



  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    very large breasts!! I had a reduction!!!Wink

    dainty...me dainty... dainty DD's

    Well due to swelling big red probably falls in the very large zone!

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    TwinMom,

    Glad to hear your first session report.

    Gals, who are starting their rads in the next day or two -RedHeadPam, Jenn3, LisaA401, Mommy2two, Mom2aCat, Day LilyFan, Sanaisa and Sophie305 - all the best for your first rads session. Looking forward to the report.

  • sophie305
    sophie305 Member Posts: 37
    edited February 2010

    Good evening, glowing ladies!

    I'm officially zapped.  First session today after 40 minutes yesterday for doggie simulation with arms extended...hold still...don't move.  By the end my arms were numb.  Today's session #1 was pretty uneventful....more stressful just driving into the city at 6:30 a.m., in the office by 7:30, stop, drop and roll at 2:15 to head back to the burbs for treatment.  I may have to reconsider working from home 1 or 2 days/week. 

    I did have one highlight after tx was done.  When I got back to the main waiting room, there were 2 of my friends (neither knew the other was coming!), one with 3 pink carnations in a bud vase, the other came to take me to dinner!  I felt so special, it was a great Day 1.  No SE at all.  But I'm already tired...last night I got home after the simulation and crawled into bed for a one-hour nap.  I'm full of energy all day long but as soon as I slow down...crash. 

    Grama, I guess the secret is out....we of the prone position are large breasted, huh?  Okay, I guess it's true...D here.

    Onty, I was told also that the boost tx would be supine. 

    Cookie, your dinner story was hilarious...no surprise that your DH didn't get it...I got little uh-huhs from my family who decided it was best just to humor me rather than try to understand.

    TwinMom, you are a strong/brave woman to be going through tx while dealing with divorce.  I was divorced over 9 yrs ago and still remember those rough times too vividly (too bad no brain freezes on those memories!) 

    DaylilyFan, it sounds like your cancer center is like mine...I'm also marked with Sharpies (big blue Xs under my arm...nothing on my boob) with only 1 tatoo that I can't even see...but it did hurt when they did it; can't imagine how people can handle REAL tatoos.  Ouch.  I'm going to meet with the dosimotrist (sp?) so she can show me exactly how the rads are beaming into me.

    Update on creams and deodorant - geez that Tom's of Maine did not do it for me.  I tried it yesterday...bummer.  Then the onc nurse gave me ALRA deodorant which they give to all the center's patients...it doesn't seem to be any more effective so I guess I'll just have to get used to it (or everyone else will have to!)  Cream...she gave me a 6oz tube of something called RadiaPlex Rx gel which is a prescription product they want their patients to use.  Moral of the story....don't rush out to buy your own stuff...wait to see what the onc staff says.  I can bring in my RadX so the rad doc can see ingredients and reject/approve.  They also concluded that Lindi Skincare stuff was more for "feeling better" than for rad SEs.

    1 down and 18 to go.  Sweet dreams.

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited January 2010

    Hi..I checked with my Rads nurses yesterday and they said "We've been doing this for years and we suggest no creams etc unless there becomes a problem." They said it causes more problems than preventing...go figure.... I agree with whoever said that every Dr has their own ideas... but you would think the basics would be the same wouldn't ya?? Rad #8 down 24 to go! So far nothing to speak of...will keep you all posted! 

    Have a sunny day!  Getting to the 40's here in PA...think I can play tennis??? Smile

    Melinda 

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Sophie

    Good to hear of yhour first rads.



    Gals, I'm only A cup but my onc had no hesitation in recommending doggie. I'm guessing it depends on the location of the tumor. She did say it is not an exact science with breast! Comforting to know right? Lol.



    Cookie, you keep cracking me up.



  • precioustime
    precioustime Member Posts: 233
    edited January 2010

    JeanneG

    I had 6 rounds of TAC NeoAdj. Chemo and am currently 4 weeks post op BMX with rt. axilla dissection.  Today I went to get my tattoos and will start RADS in 2-3 weeks due to having to use the TOMO machine.  I guess they are "booked" up on the TOMO machine right now!  My RAD oncologist advises me "not" to have reconstruction surgery at this point due to the number of positive lymph nodes and "if" there was a recurrence in the chest area, they would be able to catch it quicker than if I had reconstruction surgery.  This is all good --because after alot of thought during Chemo-- I had came to the conclusion not to have reconstruction surgery after reading posts of women that had complications and I am realizing now that it was a good choice for me.  So RADS here I come in February.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    Is anyone here having partial?

  • Twinmom77
    Twinmom77 Member Posts: 303
    edited January 2010

    Sophie305 - how nice to have a surprise like that after your first day.  What wonderful and thoughtful friends you have!  I'm jealous that you get to meet with the dosimotrist (sp?).  I keep asking if they can show me a "map" or something of exactly what's happening and they just look at me like I'm crazy.  One tech said to me, "Well, it won't make any sense to you anyway."  Um, try me, I might be smarter than I look!

    Day 2 went well and there was no pinching feeling this time.  I'm already swollen and my nipple is a different color.  I'm surprised to have that happen so fast.  I was ready for bed at 8 last night but with little ones I'm usually always exhausted, so it's hard to tell right now which is treatment fatigue and which is rugrat fatigue!

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