Pleomorphic LCIS

Hi Cornellalum, no she doesn't and she said after this one we have to come up with a plan for future monitoring etc. She is not a fan of the MRI and had she been my first NY BS I would have never had one, another BS opened Pandoras box for me. I am living in Levittown not to far from Farmingdale. I am sure you still have your accent(:

 In 2002 I had abdominal surgery and when I was waking up in recovery someone kept saying Lind er, I said without opening my eyes "are you from Long Island?" LOL

Keep Laughing!

I can't imagine going through 5 biopsies since June.   I sure like to respond to stressful situations with laughing rather than anxiety.  You didn't ask to be in this situation.  My best wishes to you all.  Please keep us informed how all these biopsies (breast, uterine) go.

Eve that's great news.

Cathy I am thinking of you and sending you healing prayers.

Minnesota - Hooray!!  I'm with you on the nixing of future biopsies.

Cathy - Been thinking of you, and hoping everything went well.  I know we'll be hearing from you when you can get to a computer.

BTW everyone - I told them to schedule a bilateral mastectomy for me.  I don't have a date yet, but my decision is made.  I'm going to join Macksix6 in moving on with my life.

Cornellalum,

I think I will be right behind you...

cornellalum~ They just don't give recommendations ..it seems like they put out options and let us pick our poision and then support whatever we want to do.  I do think your choice is a good one. I did the same thing.  I just had my exchange from TE to silicone and I love the outcome.  I am also taking zometa and arimidex.  Are you going to do reconstruction?

Warmly,

Balsie~

Cornellalum,

Their recommendation re: both sides rather than one is very helpful. Tho I knew this, hearing that Sloan said it is reassuring. The fact that I consider this is reassuring is telling, isn't it?

Thanks.

Hi All

Thanks for your well wishes.  I am just back yesterday from my 1000 mile trek.

I just wanted to let everyone here know that I am recovering well and it really is so good to be on this side of things.  The anxiety of making the decision as to whether or not to have bilateral was very, very difficult, as you are all fully aware of.  But it is done now, and there is a certain sense of relief that comes with it.  The surgery went well, and I was soooooooooo happy when the doctor came to see me afterwards to tell me the preliminary test done on the 4 nodes taken is good news.  Now I just wait until Feb 1 for the final pathology.  I am actually quite suprised at how well I am able to get around and do things.  Certainly not worse than a C-section and I had 3 of those.

OmahaGirl I am so sorry you have to go through this again. My heart goes out to you to have to do this again so soon after having it done. I will be thinking of you.

Minnesota that is great news.  Hopefully you will not need anymore biopsies for a very long time or better yet not at all.  Praying the aliens stay "out there" somewhere else.

Cathy

Cathy - I'm so glad to hear that your surgery went well, and that the preliminary results from the nodes was negative.  I also had 3 c-sections, so hearing you say that this wasn't worse than that is very reassuring. Please keep us posted on how you're doing!

Balsie - I'm not having reconstruction.  I'm just not really interested at this point - it just sounds like more surgery and potential problems to me. I figure I'll just pop the foobs in if I want to, and go without if I don't feel like messing with them.  Maybe I'll change my mind at some point, but I can't imagine doing so at this point.

All - my surgery date is February 8 - three weeks from now.  So the countdown begins.  I'm sure I'll be more nervous as it gets closer (but I'm really not nervous at all right now - not sure why - I probably should be, right?)

Cathy super happy for you...keeping positive thoughts for a good path result. 

cornellalum~ I wasn't going to do reconstruction either but my surgeon talked me into it...I listened to her reasoning....actually I am glad I did, but you are right it is more surgeries etc. but I am happy that I did it. It is not for everyone and as long as you are happy is all that matters.  Good luck to you and I hope everything goes well. 

Everybody have a great Monday

Balsie~

Omaha Girl,

New Orleans is a good place to "vacation." Really! Been there, done that, on one side. Will go there again for the other! Amazing. Magic. I can give you some inside scoop, if you have any questions.

I might have given the impression here that I am going to New Orleans for surgery, my plan is to go for a vacation and while I am there visit with the PS, the BS and see the hospital.

Cathy, the radiologist called me yesterday to tell me about pathology (my BS had already told me) she said that now they have a great baseline and shouldn't have to do anymore biopsy's (hah! I don't believe it) and that she feels they could stick a needle in anywhere in both of breasts and come out with LCIS...My surgeon only wants clear margins on the PLCIS not LCIS. I am feeling like a Thanksgiving turkey LOL.

OmahaGirl - I am sending good vibes your way for negative results on the biopsy.  You have been through entirely too much in the last 8 months!  One question - since ILC is hard to find on mammograms, if you're not doing MRIs, how will they screen for ILC?  Also, what's a PEM?

I am in the countdown to my BMX (Feb 8). I will be honest, I am so relieved to have made the decision, and I have not had any second thoughts at all.  It is definitely the right thing for me. There is no doubt in my mind that one or both of those puppies is headed for invasive bc, if it's not already there. So heading it off at the pass is my best plan (before I have to have chemo, or radiation, or tamoxifen).  For me, when I realized that the "best" outcome of watchful waiting would be screening every six months for the rest of my life (and tamoxifen for 5 years), and the inevitable invasive procedures that would come with the false positives, the decision got easy.

I'll let you know how I feel when I get to the other side.

Please let us know as soon as you know the results.  I'm thinking of you.

All I know is that a PEM is some kind of imaging machine, I too am trying to find out more about it, supposedly less false positives than the MRI.  I seem to have slept the weekend away, just exhausted. I don't know how I will get up and go to work tomorrow but I guess alot of coffee will be involved!

Hi Pleo pals

I received my pathology results yesterday from bilateral mastectomy and SNB and thought you might be interested. SNB results were negative - yahoo!!!!!!!!!!, the right breast that had the PILC, PLCIS and LCIS had no more PILC, but it did have more PLCIS.  The left breast had only fibrocystic changes.  I was so relieved that they didn't find anymore invasive and that it was negative SNB.  The surgical oncologist that I have been seeing doesn't believe it will be necessary for me to do chemo and/or rads, but she said that will be the medical oncologist call.  I will see him on Thursday.  At least he is in my own city, so I won't have to travel the 1000 miles to see him.  I am not sure what his recommendation is going to be?????? due to the pleomorphic nature of this. I just want this done and to be able to move on with my life, not to mention reconstruction. I have an appt with surgeon for DIEP in March, but first need to find out if there will be any further treatment needed.

Omahagirl hoping you get good results from your biopsy. I know what you mean by having all the poking and proding done since last June.  I hopefully have had my last "cancer" surgery.  The next surgery I have will be for reconstruction.

Take Care

Cathy