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  • Welga
    Welga Member Posts: 308
    edited January 2010

    Barbe,

    Felling tired I know all about it, haven't ben able to go out for supper since around 3 years. One thing I remember my doctor telling me is that first the iron in multi vitamins is never strong enough to raise our level and second if we start on a iron pill it takes a long time to show a difference. So maybe you haven't been on them long enough. Now the big question for us is are we losing blod or are we not absorbing the iron well. Neither are encouraging, the only thing that I try to tell myself is that it has something to do with my system and I'm just made like this or age has an influence on anemia. Have a nice day,

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    Leprechaun --  When I was first diagnosed I was obsessed about stats.  I'd look for the worst ones I could find so I'd know the worst case scenario.  They have you dead and buried before you even finish your google search.  I see 20% chance of living 5 years, hmmmm, it will be 3 years this spring.  Huh.  I've already beaten the odds in my mind.  But there are so many different types of people, different types of mets, extent of the mets...  The only one that can even have a hope of giving you a decent prognosis is your onc -- and even that's iffy -- depends on how well you respond to treatment, so many factors involved.  It's good to know the stats to have a grip on reality, but then forget about them and just live.  That's all you can do.  Hugs to you and your wife.

    Elizabeth

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Thanks for reminding me that, Elizabeth. I just felt so anxious sitting at work while Olga was at home alone.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010

    Yan -- think of this famous quote "There are 3 kinds of lies:  there are lies, damned lies, and statistics".

    I agree -- statistics (about any subject) can drive you crazy, and interpretation means everything.  Better to just ignore them, I think.

    Hugs to you and Olga (and I loved the family pic you posted on another thread!).

    Linda

  • mke
    mke Member Posts: 584
    edited January 2010

    Yan I empathize.  My husband now has cancer and I am alternately driving myself nuts with stats and telling myself that the stats don't matter they are all old info anyway.  Honestly for me, the sidelines are as bad as being in it - maybe worse.  I had the first panic attack of my life after hearing the details of my husband's diagnosis - it wasn't pretty.

    Being at work must be hard, I've sort of gone on leave from work.  Well, hang in there and scream here if you need to, I sure feel like it sometimes.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Linda, thank you. I feel sometimes "stat-junkie".

    Mary, oh, I know what you're talking about... Hang in there both of you! Hugs.

    Yan.

  • mumito
    mumito Member Posts: 4,562
    edited January 2010

    I agree this is where stats belong.

  • Rico
    Rico Member Posts: 128
    edited January 2010

    The dumpster picture is hilarious! I LOVE the Repent sign.

    Perfect!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    A nice one, indeed. :)

  • covertanjou
    covertanjou Member Posts: 569
    edited January 2010

    Hi everyone!

    I have a question that I hope someone can answer: what are the chances of developing bc while on tamox?  I know I am asking about stats (sorry, sorry, sorry), but  I am concerned about a small pea sized lump under my arm.  I had a little pain under my arm today, and I felt a small lump.  Is is possible to get a lump or (another) bc while on tamox?  Any advice would be welcome because I am freaking out a little.

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    Tamox is very good or it wouldn't be so widely prescribed.  It helped make my Mom a 12 (or 15?) year survivor.  However, it didn't work for me and the BC came back in less than a year in my liver and spine.  However (again) that is not the expected outcome of being on Tamox. 

    I wouldn't freak out Mary (easy to say, I know).  It is highly unlikely that it has come back since you're Stage 0.  It could be a blocked pore or something.  I would bet a very large sum of money on it not being BC.  I'm not just saying that, I believe that it is OK.  Make an appt and have it looked at to put your mind at rest.  Hugs,

    Elizabeth

  • rinna40
    rinna40 Member Posts: 357
    edited January 2010

    Oh Mary. So sorry you are stressed out. Being TN, now that I'm done treatment, I'm not put on anything, and it is so hard not to fear every change in my body. Definitely get it checked, but trust that the tamox is working. Please keep us up to date. Hugs

  • covertanjou
    covertanjou Member Posts: 569
    edited January 2010

    Thanks Elizabeth and Rinna. What would I do without the wonderful people on this board?

    I know I should trust that tamox is working.  I will wait to see if it goes away.  I should be getting my period next week.  If it doesn't go away, I will go see my doctor.  Again, thanks ladies.   

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2010

    Mary, I have pea-sized lump too, near my incision ending under my arm. We are "assuming" it's a stitch but I finally got an ultrasound and the radiologist brushed it off saying it was nothing to worry about. It could also be fat necrosis. Peace of mind is worth getting it checked though. {{{{ hugs }}}}

  • pip57
    pip57 Member Posts: 12,401
    edited January 2010

    I had the same thing.  A small hard pea sized lump under my "good" side mast.  My surgeon removed, it mostly to relieve my anxiety level.  It was a a benign lump that usually appears on the hands or feet.  A little surprising but obviously better than bc!!

    I would ask if they could do the same for you.  Just get rid of it so you can move on. 

  • covertanjou
    covertanjou Member Posts: 569
    edited January 2010

    Thanks everyone!

    I am pretty sure it is just a hair follicle or period-related.  If it doesn't go away in 1-2 weeks, I will go see my doctor.  I find it hard to believe that it could be something else.  I had an excisional last July, I went for a mammo in Nov, and I am on tamox.  I think I have the bases covered.  

    I was in a panic yesterday.  I sometimes feel that I am on a train that is about to crash, and no matter what I do, that train is going to crash.  I know this is "negative" thinking, but I have been going for bi-annual mammos since I was 27 (I am now 47) because of fibrocystic disease.  For the past 5 years or so, there is always a new lump/calcifications when I go for a mammo.  All of the activity is in my right breast, and that is where the lump is now.  So......I know it is probably nothing, but I wish I could get rid of the feeling of inevitabilty that I have.  I know that when a few years go by, and nothing happens, I will start to relax.  I also know that it is "wrong" to feel this way, or to complain about my situation, when there are sooooo many women with bc.

    Thanks again ladies.  I don't know what I would do without you. 

    Mary

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    {{{{{Mary}}}}} 

    It is not "wrong" to feel like this.  You are not complaining, you are expressing a genuine fear.  It is very normal.  Everyone worries about this stuff.  We absolutely understand and want to be here for you when these worries creep up on you (or anyone). It's OK.  Hugs,

    Elizabeth

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010

    Mary, lumps and bumps ARE scary things!  Several years ago, my DH found a lump in his breast just above the nipple.  He was set for a mammo but that was useless!!! (and he said it hurt like h*ll -- hey, no kidding?!!)  So then he had a US, and it showed a lipoma (a fatty deposit).  Since then, he's had a few others appear, mostly in the chest and upper back.  He also had a lump on his neck below his ear, which was more worrisome.  An operation confirmed it to be a benign cyst on his salivary gland, which was removed.  But oh goodness, did we worry about that!

    All this is to say that your little lump could be any number of (harmless) things, but we can certainly all appreciate your initial panic and your ongoing concern.  Keep us updated, because you know we care!

    Hugs, Linda

  • lewing
    lewing Member Posts: 1,288
    edited January 2010

    Mary, I just wanted to chime in and encourage you to get the lump checked out, just for your peace of mind.  Here's my confession: a couple of months ago, I had a persistent, pimple-like growth by my armpit, right on my mastectomy scar line.  After a month, and feeling very sheepish and apologetic, I called my Dr.'s office to get it looked at.  They did, and pronounced it an "incisional cyst," which is a fancy way of saying . . . a pimple on my scar line.  But you know what?  They were really nice about it, didn't make me feel stupid or nuts, and definitely eased my mind.  I didn't even realize just how worried I'd been until afterwards.

     Linda

  • covertanjou
    covertanjou Member Posts: 569
    edited January 2010

    Hello everyone,

    I called my doctor's secretary this morning to tell her about the lump, and she squeezed me in to see him (yay Canadian healthcare).  He saw the lump and told me it is nothing to worry about.  YAY!!  

    Sorry about the meltdown Embarassed, but a BIG thanks for all your support and kind words. 

    Mary 

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    Great news Mary!!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2010

    WOW, now wasn't that worth getting checked? Deep breaths all the way down now, I bet...

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010

    Mary -- now that's news we LOVE to hear! Celebrate!!

  • covertanjou
    covertanjou Member Posts: 569
    edited January 2010

    Thanks everyone!  Yes, Barbe, it is certainly worth checking out!

  • rinna40
    rinna40 Member Posts: 357
    edited January 2010

    Yeah Mary!!!!!  We need lots of news like that. Enjoy a celebration!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Wonderful news!

  • pip57
    pip57 Member Posts: 12,401
    edited January 2010

    My heart is aching and my head is spinning with some of the latest posts over the last couple of days.  People who need tx and have no or not enough health insurance.  I just wish they could understand that there are much better ways to do this.  They are spending so much precious time arguing across party lines. It is a long process to get to a better system in place and they need to start somewhere.  I fear that they will look back in ten years and find that nothing has really changed for them.  The insurance companies will still  be in control of their lives and their pocketbooks. 

    It seems that now the insurance companies are even having the hospitals collect the deductible payments as well. Patients are expected to show up with their check books.  Some are saying that they will still get tx if they are unable to pay.  Others claim that their procedure will be delayed if they show up empty handed.

    It is so hard to watch from the sidelines, unable to have any impact.  We can't even convince most of them how easy it is for us to get good, timely care here in Canada.

    Hope you Canadian girls don't mind my venting.  It is just so frustrating. 

  • Kyta
    Kyta Member Posts: 713
    edited January 2010

    I totally agree with you PIP....it's a shame.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited January 2010

    Hey PIP -

    I had to show up at the hospital with a checkbook to get my oopherectomy.  I'm fortunate in that I have one of the better insurance policies and enough in my checking account to pay the deductible.  That won't always be the case since I'll likely go on disability within the next few years.  What then?

    I would love for us to have a system similar to Canada's, but I fear that won't happen in my lifetime.  Until then, we're at the mercy of the health insurance companies and our costs will continue to spiral out of control. 

    Frustrating for sure.

    E

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    I agree PIP.  My taste of healthcare in the US seems not so bad compared to what some others are dealing with.  It can be so exhausting!!!!  I was watching CNN this evening about MA losing the democratic seat and what it means.  I was astounded by one of the commentators -- she said we'll have to wait to see how the Republicans work it to their advantage.  What?  When will the Republicans and Democrats just ignore party affiliation and do what is best (whatever it may be) for the people!  Shove them in a room and don't let them out until they find a frickin' solution!! 

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