About a radiology dx w/out biopsy

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goldenlotus
goldenlotus Member Posts: 45

HI al!

Happy Monday and thanks for all the advice you have given me thus far.  I am trying beyond trying, to keep an upbeat attitude, most of the time I succeed, but some of the time, I succumb!  this is one of those times.......

OK - I understand the 70/30 likelihood of the "thing" being benign, however, I can't help listening to that nagging voice in the back of my head which tells me that the radiologist must have had a pretty good idea to say what she said w/out waiting for a biopsy;  I geuss I'm looking for consolation, asdsuming she is right, she did not mention anything about invasion into the breast tissue, in fact she said it had not invaded.  Reading your stories, freaks me out, (I'm sorry!), I keep thinking "what if it's more than she saw?"  what's the likelihood of it being more? 

I'm sorry I know you have all been where I am now, and you are all so rational, and I'm a ranting freak!  I know how I sound!!!  I keep thinking about my kids, I want the outcome to be benign, of course I do, but now, if it is what the Radiologist said, surely that would be all?

edited to add:  I've had some nipple soreness and breast tenderness on and off.  Now my nipple is quite sore, not painful, just sore and tender.  Could that be from the mammo. i.e. compression?

Comments

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited January 2010

    Golden, My radiologist told me that he was concerned about the appearance of these tiny areas on my breast. So he did the biopsy a week later and within the week I had the dx, which he had kind of semi warned me about. So it wasn't a complete shock, though I was certainly not pleased. He did tell me it was a Stage 0, non-invasive. Which is good news. I think they get good at spotting these things - and if there was any worry about invasion, I think they'd mention it. I mean, I wouldn't want to tell someone not to to worry in cases where I thought they might have to worry later on. (If that makes any sense.)

    I'm sure people will tell you that nothing is certain till after the lumpectomy report, but why not go with what an experienced radiologist thinks, for now? 

    It is certainly a frightening and worrisome time. I wish I had more words of wisdom and reassurance for you. I am sending good thoughts your way!

    Jill

  • idaho
    idaho Member Posts: 1,187
    edited January 2010

    You can't tell if it is cancer just by looking at it.  Get a biopsy and then you will know.  And yes the nipple soreness could be from the mammo.  Wishing you peace and health.    Tami

  • goldenlotus
    goldenlotus Member Posts: 45
    edited January 2010

    Kitchenwitch (Jill)  That's kinda where I am - I'm believing the Radiologist (with 30 years med. experience) praying that if she's right, that's *all* it is i.e. praying for nothing more, and if she jumped the gun.......I'll be mad, but very, very relieved!!!  Isn't that awful?  a week ago, I'd never heard of DCIS; Now I know more about it than I'd care to know!

    Idaho (Tami)  Yes, I'm having the biopsy on Wednesday.  Will I get a preliminary reading then, or will I have to wait for the final path. rpt?  I hope to get some idea of what's going on......

    p.s. my daughter was born in Idaho, Boise, St. Luke's.  We're very fond of Idaho!!!

    p.p.s.  Until coming to this board, I had no idea that DCIS, which a week ago I had never heard of,  came in many forms.  When the MD told me that I had DCIS and it was contained and  had not invaded the breast tissue, I was unhappy "happy"  Being here has been an eye opener!  then I get to thinking that all the infertility drugs I took, contributed to or caused this.........  First I couldn't get pregnant and spent years on an I/F board (even after my kids were born!) because it was a community of women who Understood each other and had gone through life's highs and lows, joys and tragedies - and - just when I thought I was done with online life, here I am!!!!

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Sadly, you probably won't get any news at the time of biopsy and will have to wait several days for the path report.

  • VinRobMom
    VinRobMom Member Posts: 101
    edited January 2010

    goldenlotus,

    I have DCIS.  I too went through years of fertiltity drugs and treatment and have wondered if all that lead to this.  In my thinking if it did, oh well.  That treatment and only that treatment was the only way I could become a mother, short of adoption.  (Nothing wrong with adoption but it is even more difficult, lengthier, sometimes more expensive, and not as a sure thing as some people would have you believe, unless you are willing to adopt an older child).  If I knew definitively that fertilty drugs have an extremely high correlation with later development of DCIS, I would still have done the treatments in a heartbeat.  Btw, I still visit the infertility board (the one for parenting after infertility) on a regular basis.  I truly believe that unless someone has faced infertility, they have no clue how strong the urge is to have a baby and how tunnel-visioned we women can get with this whole process.  With all that money we are putting into it, it is still such a gamble and the odds, at least in my older woman stage, were against me.

    The fact is that no one knows what causes DCIS.  No one knows which cases of DCIS may not even need to be treated.  It is natural to try to think of what we might have done to cause this just like we do when we have a miscarriage or when the cycle is negative, because at least then we feel that we have a sense of control when in actuality we really don't. 

    Regarding the biopsy, I had to wait two days.  Waiting for the biopsy results, in my opinion, was the absolute most anxiety-provoking time during this entire process.  There was even a study done that showed that waiting for the biopsy results was the worst, because of the big unknown. At least when diagnosed with cancer, there is right away a treatment plan set forth. 

    I hope you don't have DCIS and it is just benign calcifications.  But if it is DCIS, at least they are thinking it is confined to the ducts and there is no evidence of invasive cancer.  And, you can start reading up on DCIS and the treatment for, as you are doing now.  It is all about the matter of control.  Once you know exactly what you are dealing with, you can start making decisions regarding the treatment process and getting on to putting this matter behind you.

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited January 2010

    I was diagnosed five years ago with a stereotactic biopsy.  The magnified mammo showed microcalcifications and while the radiologist suspected cancer, it could not be confirmed without the biopsy. As I went through the diagnostic process, I did what you are doing.  I came to this site and the Komen website and was pretty comfortable discussing my diagnosis when the pathologist called. The wait after the biopsy depends on the lab that your facility uses.  I had my results on the same day.  I had a MRI guided biopsy in November, thankfully benign, and had my results the following day.  I do know several that have waited up to two weeks, and I have a hard time imagining that and understanding how the individuals that run those facilities think it is ok to put us through that kind of stress. I got a preliminary path report after the biopsy and then another report after the lumpectomy.  I do get copies of all of my path reports, mammos, MRI's, test results etc. and keep them in a fireproof safe.  Depending on the outcome of your biopsy, some doctors will order a bilateral MRI to double check for areas that may have been missed on a mammo. Hopefully you just have some benign calcifications, but if it is DCIS, although scary, at least it is a very early stage and our treatment options are better than our advanced stage sisters. You will be in my thoughts and prayers.

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