I am Stage 1 but the Grade 3 continues to make me nervous

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  • hlya
    hlya Member Posts: 484
    edited January 2010

    Are most of IDC Grade 3? 

    I have 2 good BC friends who got IDC with grade 3 and they think their BC is more agressive than most of people.  But if I told them most of BC are grade 3,  they might feel it's "normal".

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    Weety911- Do not feel you are hijacking this thread, as I am interested in the ki67, too! So much to learn, lets share it together!

    hyla- I am not sure if most BC's are a grade 3 as I have seen so many variations as well as ages.. what I can say is the younger you are diagnosed generally the more aggressive the cancer. Also, with the aggressive cancers, the aggressive treatments seem to be pretty darn effective!

    Okay, I am going to go watch football with my hubby and try not to think about my "pending" bone scan results... seriously, I feel like it is torture, cruel and inhumane to make us wait through a weekend for results!... as if I wasn't mental enough about this stuff before!

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    Hyla, I don' think that you can group all IDC as being Grade 3.  Grading is based on how closely cancer cells look like normal cells.  Cells that are well differentiated or look like normal cells usually are slow growing and less likely to metastisize, and they are graded 1.  Poorly differentiated cells, or those which do not resemble normal cells, are usually faster growing and more likely to metastisize.  I am not an expert, but just because it is IDC doesn't mean it is fast growing, does it?

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    I just went over to the IDC threads and scrolled through to see what the grades of women who have posted there are.  They varied widely.  Grade 1, 1a, 1b, 2, 2b and 3.  I guess that answers the question.  Cancer has no rulebook.

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    Sunflowers,

    What a great post and so true, thank yuo for sharing! It is crazy how our "brains" can runaway and hijack us... and of course, we all think of WHAT we DID to cause the cancer... I try to use your logic and do everything in my power to stay healthy... but I have not given up on my wine... this is the one thing that makes me feel guilty at times!

    Okay, still waiting for my bone scan results! Tick tock, if the drs only knew how we float around until the we get our good news they would call us the moment they got the results :)

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    Meece-

    As always, thank you for sharing your knowledege!

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    I never had a drop of wine until after BC.  See where that got me?  Now I too shall practice denial.

    "Nicole" did you find out who was trying to get ahold of you Saturday?

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    I GOT THE ALL CLEAR ON THE BONE SCAN, CAN I GET A WHOOP WHOOP!!!! My dr tried calling me on Saturday to give me the good news but I was unavailable, today they called so I m one HAPPY WOMAN, clean mammo, clean bone scan.... I would drink a glass of wine but I have to go in tomorrow for my routine Zometa infusion! Urrghhh, but hey, I can go and do this and know I am all CLEAR! Thanks ladies for listening to my anxiety!

    Sunflowers- I like the FEAR diagram!

    AMEN!

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    mmm5- (Mich)- Now you can go into your week with my good news and be confident yours is to follow :)

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  • don23
    don23 Member Posts: 512
    edited January 2010

    Nicole - WHOOP WHOOP!!!! I'll have a glass of wine for you. That is such great news!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited January 2010

    Nicole... Soooo Happy for you my sister.

    Peace of mind is worth everything.

    Hugs

    Sheila

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    Thanks Sheila:)

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    Have a toast tomorrow night, after your treatment.

    wine toast Pictures, Images and Photos

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    Have a toast tomorrow night, after your treatment.

    wine toast Pictures, Images and Photos

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    I don't remember the let down.  But my life was pretty crazy at the time I finished, maybe I didn't have time to think about it.  And the fact that my onc team didn't seem to care about me at all made me feel like there was nothing to worry about.

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  • mmm5
    mmm5 Member Posts: 1,470
    edited January 2010

    Yeah sooo happy for you Nicole!

    Now hopefully I will have the same news!! Scared to death with these scans. I am on my break (between the scan) just had injection and will go back soon for the scan...Horrible to deal with the wait and all that go's with that!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited January 2010

    mmm5..We can all relate to you, waiting for results its more anxiety producing than the test itself.

    Thinking of you.

    Hugs

    Sheila

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  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited January 2010

    Hi there....thanks for your comments.

    My surgery went very well.  I didn't require a drain as they only took out 3 lymph glands.  Apparently they "appeared clean" (but we will wait for the pathology report) and the surgeon said the tumor itself appeaed to have "clean margins".  This is good news but again...we will wait for the report. We see the surgeon on January 18th for the report.  (Isn't the waiting the hardest part?)

    I actually feel very good and have more energy right now than I've had in at least two years.  Crazy, hey?

    Apparently I will be having radiation for sure and we have to wait for the report to know if chemo is going to be required or not. 

    I am a bit concerned about something however:...my biopsy report said that parts of the tumor "mimmicked" lobular carcinoma and that  15% of it was a solid or cribriform DCIS.  The entire tumor was strongly ER positive (100%) but overall it was called invasive ductal carcinoma.  My research has told me that lobular cancer has a tendancy to strike in both breasts.  My MRI showed a small smooth oval benign tumor in my left breast (the cancer is in the right breast).  

     Did any of you receive a similar "multiple" type of diagnosis from your biopsy?  Is this common?  I suppose until they examine the tumor itself (now that it is outside of my body) they can't say too much for sure.  Any ideas?  Thanks everyone.

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010
    Mine did not, but I have read several Dxs here that had multiple dx.  My only suggestion is to wait for the path, and don't stress.    Is that a crock for me to say?
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  • mmm5
    mmm5 Member Posts: 1,470
    edited January 2010

    Ok let me ask you ladies your opinion. I went to have the scan and I was very nervous, the tech was sitting in the chair watching the screen and there was another gal sitting with her and chatting ...they kept laughing and giggling and it was just friendly chatter. Then all of a sudden they got quiet and the room seemed serious.

    So afterwards I said to her OMG you guys were having so much fun then you got quiet was that because of my scan. and she said "oh dear no, we were just talking about weight loss" blah blah blah..I told them that it freaked me out and she said no no no "don't be worried" and she kind of winked at me very lightly. She said it again on the way out "dont be worried"..do you think she would say that if I needed to be worried about anything?

    Of course I am sitting here interpreting everything and making myself sick.

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    No, you probably don't have anything to worry about or they would have said something like, "We can't comment on what we see."  I would probably try to contact their supervisor and let that  person know how they were behaving and how much stress they caused.  They should not have been having a funny personal conversation while dealing with a patient.  IMHO

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  • sheila888
    sheila888 Member Posts: 25,634
    edited January 2010

    I was a having a bone scan, the technicians like you said were talking which I find it soothing.

    Suddenly one of them comes to me and says "We saw a mass on your foot area did you break anything there lately" I said no I have never broken anything so far. But I had this pain in that area for a week or so . He says it must me arthritis then, and I don't suffer from it either.

    I left the place half dead from worry which it turned out to be absolutely nothing.

    mmm...I know what you are saying I always study their movements too.

    They have to understand we are scared.

    Hugs

    Sheila

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  • Harley44
    Harley44 Member Posts: 5,446
    edited January 2010

    Nicole

    WHOHOO!! 

    mmm5

    Thinking of you...  praying for b9!

    Harley

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  • mmm5
    mmm5 Member Posts: 1,470
    edited January 2010

    Thanks everyone, JO I believe that too, atleast that is what I am hanging on to. I am sure you know how I feel, it is mentally and emotionally exhausting to go through a day like this. I just feel spent and like unable to move. What is sad to me is that no one except us really get how horrible this is, even the techs who were nice ladies were sitting there oblivious to how I was really feeling wondering if this would be the last day of my innocence.

    I can not explain the fear I have of these tests, I have even become anxious about blood tests. I would definitely call it PTSD I don't know how else to explain it.

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  • weety
    weety Member Posts: 1,163
    edited January 2010

    mmm5, I understand how you are analzing their every move!  I do the same thing, but from what you said happened, I also don't think it was because of your scan.  Those techs see good scans and bad scans everyday.  I don't think they react to them one way or the other because they've become "desensitized" to them.  My tech didn't even watch while my scan was going on.  He started it, walked away,and came back right before it was done.  I'm sure the scans are quite boring to them.  Also, the female tech told you TWICE not to worry.  Do you think she would have lied to you TWICE?  No way.  I think you are poisoning your own mind with their acts!

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    mmm5- I HEAR you and I agree with the PTSD, everyone else in my family has moved on... but my brain takes me places all the time... it is not normal. WITH this said, after getting my clean mammo and bone scan this week, I am still on my happy high even though I am starting to feel the side effects of my zometa infusion!

    I am sending positive thoughts your way, and yes, in my opinion the wink was an "ALL CLEAR", there is no other reason she would want to share the wink with you :)

    Please post as soon as you know!

    Thanks HArley, Sheila and Meece for keeping me centered!... now I will go take my Tylenol and Ativan to get through the night. I can;t remember if any of you ladies get the 6 month infusion of zometa, it is nothing like hard core chemo but there are some bone aches which go along with this one!

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    Did you have Nuelasta with chemo?  I was one of the few who had the extreme bone pain from it.  I thought my bones were literally going to explode.  It was the worst part of chemo barring the hair loss.

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  • Nicole112
    Nicole112 Member Posts: 327
    edited January 2010

    I did have Neulasta, I did pretty well with it... I am doing really well today after the Zometa infusion! YEAH!

    Another "to do" off of the list of things to do!

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  • Meece
    Meece Member Posts: 19,483
    edited January 2010

    Nocole, I noticed that you have your stage as 1b, BC.org said they made a mistake by placing the 1a and 1b in the drop down (They also said they would remove it) because typically Stage ones aren't classified that way.  I had thought, when I put my dx down that I would use 1b because of the size.  Since the sizes here are 1-2<,I was wonder the dimensions of your tumor.

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  • Harley44
    Harley44 Member Posts: 5,446
    edited January 2010

    I got Neulasta, because after my 1st tx, my onc didn't order it... and 10 days later, my wbc tanked, so I got 5 antibiotic pills and 4 Neupogen shots, and those shots REALLY hurt... I took them home with me, because I only got one per day, for 4 days...   Those shots were HORRIBLE! 

    Apparently, something they didn't tell me until I got the Neulasta shot (I demanded they give me Neulasta after all the rest of my tx) is that if you take Claritin, regular Claritin, not Claritin D, the day of the Neulasta shot, and for three days after, it helps with any bone pain you may have....

    Harley

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