Medullary breast cancer?

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  • Morgan513
    Morgan513 Member Posts: 664
    edited December 2009

    I'm also medullary.  I was originally dx atypical and then on second opinion plain medullary.

    I'm triple negative too!  They say that it is still treated the same as regular IDC but it is very sensitive to chemo.  Let's hope so!

    The doctor at Dana-Farber was a bit excited to tell me I was medullary!  And Shirlann is my inspiration!

    Lorrie 

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  • MsBliss
    MsBliss Member Posts: 536
    edited December 2009

    Morgan, did they recommend chemo, if so, what kind?  Did they go into detail about what medullary features you had and what it all meant?

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  • Morgan513
    Morgan513 Member Posts: 664
    edited December 2009

    I had 4x of TC and then radiation (I had a lumpectomy).  They did not go in to detail about the medullary features.  I think that doctor's are cautious about diagnosing medullary and therefore, treat it like regular IDC.  Honestly, most of the information I've gotten about medullary is from my own research.  

    Lorrie 

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  • MsBliss
    MsBliss Member Posts: 536
    edited December 2009

    I didn't know there was a Medullary cancer in situ...are you sure that is what they said?

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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited December 2009

    Last year this time you were in readying yourself for visiting your daughters and grandchildren in France, Annie. January 17 of this year was your last post, one month from now.

    Oh my I sure do miss you, as do so many others. You blessed us with your presence and kept us laughing. My wish is that your family knows you are very much remembered and still cherished.

    May the camels be laughing at your breath this holiday, AnnieCamelBreath.

    Tender

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    My original pathology report had me as medullary but Sloan-Kettering switched it to IDC NOS. Treatment-wise it wouldn't have mattered which it were except the prognosis for IDC does not have as favorable a rate of cure.

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  • MsBliss
    MsBliss Member Posts: 536
    edited January 2010

    Heather, I was also dx with medullary features.  I had the synctial growth pattern, lymphocytic infiltrate and periphery, high nuclear grade, etc, all the requirements, but they would not call it "true medullary".  They don't want to!  Anyway, you are right, there are very few of us.  But remember, some of the features do confer favorability.  It is somewhat reassuring.

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  • LRM216
    LRM216 Member Posts: 2,115
    edited January 2010

    Ms. Bliss - it is with much sadness that I must tell you that HeatherBLocklear became an angel last January, 2009.  Another beloved sister felled by this horrific beast.

    Linda

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  • MsBliss
    MsBliss Member Posts: 536
    edited January 2010

    Dear Linda,

    Thank you for letting me know about dear Heather.  It is always so shocking and upsetting to hear about a sister passing from this "thing".  

    Suzi

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  • LRM216
    LRM216 Member Posts: 2,115
    edited January 2010

    Suzi - I know exactly what you are saying.  I did not know HeatherBLocklear, as I only came onto this board in late Feb or 2009, but from what I have read - she was truly loved and is missed alot.  It is so sad.  The thing that strikes me most, and scares the heck out of me, is how quickly it seems to happen in some cases.  She appeared to be posting and doing well in December and even early January - then January 31, she dies.  My God, I hate this rabid, disgusting disease.  I just didn't want you to think she wasn't answering you, as I noticed you addressed your post to her by name.  My very best wishes to you always -

    Linda

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  • MsBliss
    MsBliss Member Posts: 536
    edited January 2010

    Dear Linda,

    Thank you so much for your consideration regarding Heather. 

    We lose sisters here, so suddenly often times.

    I was wondering why I never heard from her after I posted an explanation of AMC vs TMC

    Thank you again...

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  • LRM216
    LRM216 Member Posts: 2,115
    edited January 2010

    I wish I didn't have to write that post at all. Please don't let it get you down, you are your own person with your own prognosis.  I have to keep telling myself that too every time I read about another triple neg with recurrence, or that they passed on.  We are all totally individual and MUST remember all the triple negs that are out there living their lives, and the wonderful triple negs that come back on here just to let us know they are surviving just fine, and with many years out.  Chin up, Suzie - we will do it too!

    Hugs,

    Linda

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  • BanR
    BanR Member Posts: 289
    edited February 2014

    just bumped into this thread and was about to thank Heather for starting it, when I read about her passing away in 2009. I know its a long time ago. dear Heather, wherever you are... may you rest in peace!

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