UK 43YRS VERY LONELY

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masser
masser Member Posts: 9
edited June 2014 in LGBTQA+ With Breast Cancer

Hi i am 43 yrs old and have been in remission for 2 yrs. i had all my lymth nodes taken plus part of my right breast, of which, i have no feeling now. i also now have problems with my right arm and hand. I live near manchester uk and find it hard to find a gay group that have been through the same as me. any idea's anybody. thanks

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  • dee1961
    dee1961 Member Posts: 1,672
    edited September 2009

    Hi masser,

    Looks like you came to the right place, we've all been there to some degree, and can understand your troubles. I had bilateral mastectomies and have alot of nerve damage, plus lymphedema. If you need to talk you can talk to me or anyone on this website. If you are trying to find something locally I do not know how to advise. I live in the US. I am glad to hear you are two years in remission :)  Here's to 50 more!

    Take care,

    Dee~ 

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  • DragonGirl
    DragonGirl Member Posts: 269
    edited October 2009

    If it makes you feel any better, I've had exactly the same problem here in the U.S. I wish I could give you some productive suggestions but I have none other than to come here. My local Gilda's club tried to start a LGBT group recently and it flopped for some reason. I don't know, maybe they didn't publicize in the right places? I have tried going to some of the regular old BC support groups but have never felt comfortable enough revealing my sexuality, being surrounded by older women or younger women who are married with children. It really does suck. Glad to hear you're in remission too! Hang in there!

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  • melonira
    melonira Member Posts: 5
    edited October 2009

    dt feel like dat u r nt alone. i had breast cancer too. i had a mastectomy and reconstruction. i have been 9 yrs cancer free.i am a lesbian. i struggle all bye my self as well. i felt lonely but i dealt with it like a trooper. you are not a alone.  i am hear if you want to chat

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  • Lovegolf
    Lovegolf Member Posts: 513
    edited October 2009

    Sorry you feel alone.  There are women here who have been through it all.  I was so glad I found these place while I was going there everything.

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  • lesamariekey
    lesamariekey Member Posts: 26
    edited October 2009

    Just thought I would let you know that you are not alone. I, too, have had the same treatment.....I still have no feeling in my right arm. I am currently having problems with my post chemo. I have a bad rash and one under my arm. My Dr. told me it is thrash......All I know is it  hurts like Hell......I am worried about my arm.( I serve .....that is how I make my living.)   I wonder how my arm is going to be after all this....I am TRIPLE NEGATIVE and hopefully have had my last treatment...It helps me to hear from women like you who are in remission. I am sooooo happy for you...I, too, am here for you as well....My name is Lesa but they call me Alabam......Nice to meet you.....

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  • ebarnes48
    ebarnes48 Member Posts: 37
    edited January 2010

    Hi   I'm an ex pat,(essex girl)  now living in newfoundland,  I had my surgery  last march  lost one breast and 16 lymphnodes (none infected)   have you tried asking your local gay comunity office.  or asking at the cancer center,  I am fortunate and have a suportive partner  but you can message me  if you need to talk

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  • masser
    masser Member Posts: 9
    edited January 2010

    Thank you for that - Good idea, I will try that. Failing that could i move over there with you lol

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  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited January 2010

    Masser, you are also welcome to check in on the lymphedema section here at breastcancer.org.  There are some women who participate daily who are among the tops experts around -- they also started their own website about LE.  They have been invaluable help for me and all of us there in the Sisterhood of the Swell know what its like to deal with these long term problems.

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  • ebarnes48
    ebarnes48 Member Posts: 37
    edited January 2010

    you could masser  but I think my partner would have something to say about that *LOL* its also very cold here  the weather you are having in the UK is what we have every year

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  • sftfemme65
    sftfemme65 Member Posts: 790
    edited January 2010

    Hi everyone just wanted to jump in and intoduce myself!!!  Masser how are you doing?

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  • masser
    masser Member Posts: 9
    edited January 2010

    Hello you  - I am really well. how are you doing ?

    I have some good friends on here but I would love to find a partner - shes got to be out there somewhere.......

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  • sftfemme65
    sftfemme65 Member Posts: 790
    edited January 2010

    Masser,

    Hang in there...she's definitely out there!

    Teresa

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  • masser
    masser Member Posts: 9
    edited January 2010

    where...............................

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  • LostinBronx
    LostinBronx Member Posts: 3
    edited April 2010

    Hi Masser:  There's a very active LGBT cancer survivor support group organization called, Out With Cancer.  Their websites are http://www.lgbtcancer.org and http://www.outwithcancer.org   Good luck!

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