Starting chemo January 2009?

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  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010

    Had a nice chat with Holtbolt, and Bev.  For those who had a night out on the town and went to great dinners, movies and parties......Have a Happy New Year!!!   2010 has got to be better!!!!! 

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Sorry I missed it, but wasn't a night on the town.  I was sound asleep.  My Onc and I have been working on my insomnia, guess its working, slept 12 hrs last night.  Sorry, but Happy New Year to everyone.

  • 1marmalade1
    1marmalade1 Member Posts: 308
    edited January 2010

    I had my first of 8 tx on Dec. 16 - 8tx every 3 weeks.  Have to say...other than constipation days 4-5, I have had no side effects.  Hope you do as well as I did.   A few strands of hair came out this a.m., but other than that, nothing else so far. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010

    1marmalade1---I think my hair started falling out about 14 or 15 days after first chemo.  I finally shaved it all off and welcomed a bald head-I didn't like the pain I felt in my scalp.  I wore a hat most of the time and wore a wig on occasion for formal events, presentations and board meetings I had to attend.  Of course 2009 was the year I received grants and awards and got to present to grups; all that with a funky wig, no eyebrows and a raspy voice from the chemo.    Good to know you didn't have major side effects.  Hope it lasts!

  • Renrel
    Renrel Member Posts: 497
    edited January 2010

    Sorry I missied the chat room toast last night.  I was at a party with no web access.  Wishing you all a much much better year than last.  May we all be able to ring in the next decade together as well.

    I was at a party last night and today.  I enjoyed myself but I am getting tired of telling people how I am and of compliments on my hair.  I guess most people feel that since I now have a thick head of hair I have a style nice enough to compliment me on.  But I think I was some how more comfortable when I was mostly hairless.  For most of last year I wore the label of person in chemo and that was fine.  Now I am past chemo and mostly back in my "real life" but I have this weird hair that I don't associate with me. It is not a style or color of my choice, it just is.  But of course only those who know me know that it is not a choice.  It is just weird some how.  I don't know ifsome people really think it looks good or at least fine or if they are being nice.  I think I may color it this month just to see if that make me feel more comfortable.  This is not a huge thing for me, just something I am noticing about myself and trying to figure out.  

    Wednesday is my next 3mth check up.  I am not thinking about it.  

  • jillyG
    jillyG Member Posts: 401
    edited January 2010

    I don't know if you gals can see my profile pic very well but I have loads of curly curly hair now.  It was long and straight before chemo.  This is me and my son today before his birthday party, he turned 7 years old. 

  • kt57
    kt57 Member Posts: 425
    edited January 2010

    jillyG: little boys rock!!!   Mine is 21 now.   You look great!  

    so do you Renrel.   I hear what you're saying about this "new look" we have..  I have a hair appt on Monday -- a little reshaping and am thinking about highlights.  Mine came in finer and as straight as before -- as a matter of fact, I was thinking about a perm at some point -- when it's long enough -- how different we all are. 

    Here's one for the "stupid things people say" list -- my boss asked how I was coping in the cold with my "man hair" ----  I was speechless but managed to say "better than last winter".....   ya have to laugh!

  • momand2kids
    momand2kids Member Posts: 1,508
    edited January 2010

    Happy New Year all-- hard to believe we started this over a year ago!!!

    Carole 

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Had to look up the date of my first chemo (this coming Fri).  I knew it was this week, but couldn't remember the date.  For months last year I could tell you the date and the hour of each infusion.  Have to say the beginning of the forgetting is feeling good.  Had a few long talks with DH this week.  This is the first stretch of time off that I've had since going back to work after chemo.  I can't believe how good I've felt and how well I've been sleeping.  I'm dreading the return to work and feeling like crap again.  I was happy to be back working and thought that it was good for me, now we're wondering how much it is worth it.  It wouldn't be easy, but we could get by.  I'm just too frickin young to not be working.  I guess I'll slog along for awhile longer and hope things get better. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010

    I am so glad you are all looking forward to 2010!  It has got to be better.  I think chemo fog has totally reared its ugly head in my life.   I got the reminder call to visit my onc for the six month last week and becuase it was a scrambled recording and I couldn't quite understand it , I thought it was dh's which happened to be at the same exact time with a doctor whose name sounded similar, so I blew it off. I am thinking "nah, we don't have the same day same time appt.  What are the odds of that??  Guess whaaaat?  It was my appt as wehell!!! Of course it was the same time.  So, I get a scrambled message from dh and the nurse who is looking for me and I am an hour away at work so I mumble out a ditzed out lame excuse and  now I have to wait three more weeks. 

    So tonight I am searching around on the bc board and I come across some section about prognosis ....big mistake!!! What was I thinking?  I felt pretty darn good lately and was very hopeful- not waking up at night worrying, not pressing every new ache and pain and worrying- thinking the tamoxifen is being metabolized by me so the d^$^&$^ cancer will never come back and I read about recurrence and survivability and I shout to myself  Enough already!!!  Time to leave a nite nite message to January Jewels---Oh yeah, oh yeah....2010 has got to be better!!!!

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Oh Jess, sorry you came across scary stats.  Ignore them, keep coming over to the motivation thread with us and picture that tamoxifen scrubbing away any future problems.

  • holtbolt
    holtbolt Member Posts: 625
    edited January 2010

    kt57.. Man Hair?? what a stupid thing to say!

    Jess... I find that if you go directly to your favorite topics/threads and avoid seeing the front page and seeing the title of the recently active threads.. you can avoid some depressing stuff that you are tempted to click on.

    If not for upcoming reconstruction research and you guys...I think I would be taking a break from this site altogether... in the interest of "healing"......and moving forward....

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Wow, out of curiosity just popped in on one of the Healthcare threads.  Feel like someone who just slowed down driving by the scene of an accident. Didn't really want to see what I saw and feel guilty.  I'm going to sit hear and enjoy this thread for a moment.

  • jillyG
    jillyG Member Posts: 401
    edited January 2010

    Holtbolt, I'm with you, I am having reconstruction in June and I'm sure I will be researching it the next little while, but other than that, I think I need a break from the boards, it really stresses me out.  I always tell myself that all the people that survived and never have to worry about cancer again are off enjoying their life and not on these boards so we're left with lots of sad/stressing stories.  I still think about cancer every single day, but I think I am thinking about it more after I come onto this site. 

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    hotbolt and Jilly G, that's why I've been sticking to this thread and the motivation thread, maybe some of the recipe threads except when I have specific questions. 

  • Renrel
    Renrel Member Posts: 497
    edited January 2010

    I have my 3 month check in today.  I have been unusally nervous and moody, for me, the last few days.  Wish me well.

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited January 2010

    kmmd- what is the name of the motivation thread you frequent?  I have not found myself posting alot but do check in with the January Jewels as I get an email whenever one of you post.  That way I do not have to actually go to the thread to keep up on the news, but  the big drawback is I always think I should respond to this or that and I never get around to it.

     Well anyone- HAPPY NEW YEAR TO YOU ALL.  I too was hoping to make the chat room toast but did not work out for me.  I planned on having a few neighbors over and ended up being more that I expected so we party into the wee hours of the morning.  Was fun.

    KATHY - I like your new picture.  I recently updated mine too.  Looks to me like we are all growing our hair back at about the same rate.  That "man hair:" comment has to be the worse one I have heard so far. I think I would have burst into tears if someone asked me that.  I do agree with you Renrel about the I love your hair comments.  I always think "sure you do?"  I hate it this short so I am sure they are just saying it to be nice.  Well, whenever I feel like I hate my hair I go back and look at a bald picture and they I love it again.

    Renrel - Will be looking forward to hearing how your checkup went today.  Hope all is well.  I go in sometime at the end of the month to see the onco dr. but got an all clear on my mammo a few weeks back.

    JillyG I remember the picture your had up when I first started coming here and your hair was long and straight in it.  Wasn't as dark either I don't think.  Isn't funny how different the hair comes back on some.  Mine is coming back with a lot of wave which I never had and gets curls up on the ends when it gets long.  I had mine cut a few times hoping if I gave it some style I would like it better, but I don't.

    Jess  Stick to the January Jewels thread. I avoid all other threads because I always see something that makes me start worrying and I am one who HAS to believe the cancer is behind me forever!!!

    Well been fun catching up.  I do follow alone as I said even when not posting.  Thanks to all of you for being here and I hope we all enjoy 2010.  Are we ever going to do the get together?  I would still like to meet some of you in person.

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    ladyjane: The motivation thread is under Fitness and Getting Back into Shape and the thread name is motivation. 

    http://community.breastcancer.org/forum/58/topic/729840?page=86#idx_2574

     A great group of very up beat people who work on checking in and encouraging each other to keep moving and exercising.  It's wonderful

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010

    Well, I have to say the comments about the hair are quite abundant lately.  I was walking through a middle school to  a meeting and one of the students leaving the detention room yelled out " Who is the dude with the dress?"  That is my favorite.  I also got from an a fellow martial artist- someone with whom I travelled for three weeks to Korea- who said my hair looked like a 12 year old boy.  That probably irked me the most becuase she knew better and she knew about my cancer.  THe 12 year old has a chance, the 50 something lady, well not so much of a chance. 

    I gotta say the comments about my hat were the impetus I needed to go bald.  I did it through the summer- a lady asked if I was gay , I was asked if I was hindu and then I got the usual " Oh I  wish my head was shaped like yours....."   Okay, then shave your head and let's see what it looks like.....!

    Love you all.  Whew, that venting feels so much better.

     When we going to NAPA!!?  Okay, so i can only drink 3-5 glasses of wine.I'll save it up!  LOL. 

    editing to correct grammar and spelling!  sheesh!

  • Renrel
    Renrel Member Posts: 497
    edited January 2010

    I passed with flying colors.  Well, I am not sure if my blood chemistry got back by the time my meeting was over, but my Onc was happy with my health.  No anemia, my complaints are much fewer, he did alot of feeling all over my breast, neck and back and found nothing suspious.  Does not want to see me again until April, when I will do another chest CT, and if everything looks good he will not want to see me for a year.  He told me to call his nurse for suggestions on dealing with the sexual issues - dryness, libido ect.  He said that the preference is to start with non-hormonal stuff but that the present feeling is that for topical estrogen while some is absorvbed it is not enough to be concerned.  For stiffness he suggested that suppliment for joints and said it would take 2 weeks to feel results. 

    My present goal is to loss at least 10 pounds before my next appointment.  That will put me in the range of where I was before chemo.  I am not used to struggling with weight. I was wearing the same size, pretty much, for the last 20 years, absent being pg.  And I lost the baby weight quickly just be breast feeding.  I have become such a bad snacker in the past year though, plus lack of exercise, plus menapause and none of my clothes fit. But more importantly I need to loose the belly fat because it is associated with too many health issues, including breast cancer. 

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Congrats Renrel

    Jess, don't know what to say, those comments are unbelievable. You're right the 12 yo has a chance, I'd like to stand the 50 yo by the curb then drive by fast into a puddle of slush and salt to spray her with.  (seemed a better choice then boinking her on the head for you--trying for a non violent approach)

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010
  • BevR
    BevR Member Posts: 101
    edited January 2010

    Haven't posted in a very long time.....my first chemo was a year ago on Jan. 15th. Last one was April 30.....What a year! I had Stage 1 of DIEP reconstruction on Nov. 5. It was tough but I recovered well and was back at work 4 weeks later. I scheduled Stage 2 today for April 23. 

    I like my new hair. I think I'm just happy to have hair. A friend of mine told me about a product called Pomade by Pantene. It gives you that sort of "spiky" look. I timed how long it takes me to style my hair with it and it is 1 1/2 to 2 minutes!

    It is good to read most January Jewel are doing well......

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Year ago today for me.  I like this year better.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010

    How spacey can I be?  LOL KMMD!  (from your comment about boinking the 50 year old duffus who had to make a snike remakr about my hair)

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Jess, I knew what you meant.

    Crappy weather here yesterday.  Didn't realize how much I was compensating for my neuropathy by watching where I was walking.  That doesn't work on snow and ice.  Could be a long winter.  

    You know the threads on the stupid things people say?  Well my jewels I feel like one of them.  Sent an email to another survivor I know checking in and complaining about people remarking on my new short hair and the difficulties of walking on ice with neuropathy.  She sent back the news about her mets. Felt like a total a--.  That will teach me to feel sorry for myself. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010

    About a week ago I was running on the treadmill and omigosh my heels started to hurt, as if I was running on tiny needles.  From then on if ever I stand for about 10 minutes, it starts up again. ANd I started to lose another toenail, could the nueropathy startup this time 9 months later? 

  • ktym
    ktym Member Posts: 2,637
    edited January 2010

    Jess, from what I understand the effects can continue to worsen for months post treatment.  Especially for those who receive platinum compounds, don't remember what you got for chemo.  Is it possible you've had some neuropathy and didn't realize it until it got to the point now you are noticing it?

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2010

    I lost two toenails during chemo--had taxotere and fec- and black streaks down my fingernails.  The streaks stopped after chemo, but the toe nails seem to be ongoing...they turned white, get gooey and start to fall off.  The pain in my heels, however, if definately new.  Very strange.

  • Renrel
    Renrel Member Posts: 497
    edited January 2010

    Today we finally went to the photo studio to make selections of photos I took last year. One set of my family about 10 days before chemo but after my surgury.  The other one day after my first chemo with my parents.  It was so strange looking at all these photos of me with reddish hair after a year of bald or gray. 

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