Neulasta injection

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feroza
feroza Member Posts: 16

has any one taken the Neulasta injection during chemo therapy.

Has anyone experienced side effects of this medicine.

I will be undergoing chemo in about 3 weeks for the next 18 weeks and radiation thereafter. I want to know if I can continue doing or going to the gym while on chemo to keep my sanity.

anyone please advise. 

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Comments

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited January 2010
    Hello:
    I had neulasta on the second day after every chemo.  It is a "treat".  Sarcasm.  Although I've read some people had very little pain, mine was very bad.  On the first rounds I made it through without painkillers, but it was horrible for about 2-3 days afterwards.  I finally got a prescription for tylenol 3 for the remaining shots.  Just remember to take one before the shot is administered.  It's doable though.  You do what you have to to get through treatment and neulasta makes it possible for you to go in dose dense chemo.  Good luck!
  • karen_in_nj
    karen_in_nj Member Posts: 59
    edited January 2010

    I had neulasta after each chemo and I was very lucky in that I had no side effects from it. I have young children and I teach, so I'm exposed to a lot of germs. I never got sick with a cold or anything like that while on chemo, which I attribute to the neulasta shots. As for the gym, I'd play it by ear and see how you're feeling. If you're up for it, I'm sure it will make you feel better.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited January 2010

    Feroza, just re-read my post and I do not intend to scare you.  The bottom line is it is all DO-ABLE.  I'm done treatment and even though it was all within the past year, it is SO already a distant memory.  Don't worry about side effects, you will be okay.  Stay strong!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    I only had the neupogen shots for my last round. Instead of one big shot, they spread it out over 7 shots. My husband gave them to me in the tuimmy - I seriously think it was worse for him than for me. As it is more spread out, the bone pain wasn't as bad. If you have trouble with the Neulasta, you could maybe switch to Neupogen.....

    It is very effective though. I needed it because I became neutropenic while on Taxatore - I ended up in hospital with a WBC of zero - they gave me a shot of neulatsa, and within 8 hours it was up to 260 or something. Gotta love those drugs.....!

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited January 2010

    Hi feroza~

    I had the nuelasta shots and because of bone pain and sterum pain they switched to neupoge shots which was every day for 5 days after chemo, not every one has to get them, and not every one has any pain what so ever, some swear by clairatin, it didnt help me i was prescribed darvaset, i liked it because i didnt feel High from it but it really took the pain away, it was for me the only thing that did- the shot itself does not hurt, you can have it in the arm or tummy and as bad as the tummy sounds it didnt hurt at all, my onc nurse said if it is warmed up before they put it in and do it slowly is what makes a difference- i hate needles and i promise this did not hurt at all- just make sure you have some pain pills on hand in case you have some discomfort, which usually effected me either late that night after the shot or the next day- good luck

    debbie

  • GramE
    GramE Member Posts: 5,056
    edited January 2010

    I took 2 extra strength tylenol (over the counter, no Rx needed) as they prepared the Neulasta shot.  Achy, but not really a problem.   Some have taken a Claritin just before - perhaps someone who did will post.   But I would check with the doctor before taking anything.  One important part of my treatment was staying hydrated - drink every hour or more often - water, juice, ginger ale.  Coffee and tea are DE hydrating and don't count.   My counts remained good through dose dense A/C and it was "only" 4 shots needed, one after each A/C.   I got a ride to and from chemo, but drove myself for the neulasta.   

  • Karen09
    Karen09 Member Posts: 320
    edited January 2010

    I just finished 8 chemo treatments and I had a Neulasta injection the day after each one.  I never had any side effects or pain at all with them.  Sounds like a lot of people have had pain with them but I was lucky.  Everyone is different and hopefully you will find them easy too.  The oncology nurses here swear by Neulasta.  My counts were always good through chemo but I was careful as well - lots of hand sanitizer and I didn't go out to busy areas on the weekends.  Good luck!

  • concernedsis
    concernedsis Member Posts: 256
    edited January 2010

    Sis did A/C q2 weeks x 4 and used Neulasta. She felt unfortunately hit by mac truck 1-2 days after neulasta - fatique and bone pain. She started daily Claritan (also has allergies) and it helped a bit. Have heard others felt similar but still others had no ill effects.

    So take it easy and see how you respond and take it from there. :)

  • kimber3006
    kimber3006 Member Posts: 586
    edited January 2010

    I've been doing Neulasta shots on the days after my AC.  My bones, especially my hips, ached terribly for a couple days after the first one, but it wasn't unbearable and regular Aleve (what my onc recommended) helped tremendously.  I was achy after the second one, but not nearly so much as the first, and to be honest, I don't remember it happening at all with the third one last week.  I haven't been going to the gym since I started, but that's because I'm a total germaphobe right now and I have an elliptical, dvds, some weights, etc. at home.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    My wife had Neulasta shot once during her chemo. No SE, fortunately.

  • jenn3
    jenn3 Member Posts: 3,316
    edited January 2010

    I had the Neulasta shots after each AC treatment and had bone pain in my hips, legs and feet the day after the shot.  I tried Claritin, didn't help.  The first shot I was able to handle the discomfort w/o prescription meds, but by the second round I needed more than what OTC meds offered.  The bone pain only lasted for 3 days and on the 3rd day it wasn't too bad.

  • AzKim
    AzKim Member Posts: 124
    edited January 2010

    I had the Neulasta shots too and although my bones ached a day or two after,.I'd do it again if I had too. I didn't get sick once and actually went to a full-fledged heavy metal concert,.2hr drive from home,.with 1000's of people crammed into a small venue,.2 days after chemo,.lol. I felt great! just a little tired. :) (My nurses even said I could go,.but,.not to tell my onc! lol) Goodluck to you and warm hugs.

    Kim~

  • feroza
    feroza Member Posts: 16
    edited January 2010

    I see you are from Oakville and I live in Mississauga, can we talk

  • feroza
    feroza Member Posts: 16
    edited January 2010

    thank you all very much - it makes me feel better already.

      I think I am still in denial - and it has not as yet hit me.  My mammogram in March was clear and then just out of the blue in 3 months I had this aggressive growth and after ultra sound and biopsy (took 2 months for the result) On Nov 16th  I was finally told that I had a meta plastic invasive ductal carcinoma within a week I saw a surgeon and the following week was operated.   4 nymph lodes were taken out - the margin around the lump and nymph lodes report showed all clear, plus triple negative for receptors -however the pathology report was not signed off as they were not sure what type of cancer I had - since it was a rare cancer the report was sent over to another department  it took a month to get my report and they have staged me as 3.

    Now I am supposed to have a chemo of 6 session with 4 types of medication and then radiation   

    The reason I am writing this is if anyone knows of this type of cancer that I have or have similar experience and having waited for 2 months after the lumpectomy to undergo treatment- is it norm to wait two months after surgery for chemo_? 

     Is chemo the only way out?

    How long does it take for the chemo treatement - Do I need to take something along - is it advisable to eat something before I go for Chemo.

  • kimber3006
    kimber3006 Member Posts: 586
    edited January 2010

    Feroza - I go the results of my biopsy and was diagnosed with IDC (invasive ductal carcinoma) on 11/9/09, had a mastectomy 11/11/09, and I started chemo 11/30/09, though everyone said I was seriously fast-tracked.  The first one took a LONG time.  I'm sure it's different for different drugs.  I'm on Adriamycin/Cytoxin for the first round by the time we did bloodwork, appointment with onc, and the actual chemo we were there 3 1/2-4  hours.  I ate a light breakfast a couple hours before my appointment, as much as my nerves would allow!  I drink LOTS of water before my treatments and it helps tremendously.  You can call your oncologists office and ask the nurse what he/she recommends you do.  My nurses are always very happy to answer any questions.  They don't want us sitting around worrying over things.  :)  Subsequent appointments have gone faster and I snack right up until treatment if I want.  Everyone's different.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    I hated the way I felt after the Neulasta shot.  The bone and body pain was not fun, but you can take O/C analgesics or have your onc give you pain med.  It's do-able.  I also had to give myself the shot the next day because I didn't want to travel an hour and half back up to North Jersey just for the shot.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited January 2010

    Feroza, I just pm'ed you my contact info. 

    I'm not sure if that is a long time to wait, to heal from surgery and then begin chemo.  I had chemo first.

    Big hug to you tonight!
    Christine

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited January 2010

    I just remembered you're a newbie here, PM is private message and it's under the top right tab.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Feroza - I had a woman in my Chemo Group who has the same type of cancer (metaplastic). She is over a year out and still doing well.

    Chemo would be necessary for you though as it is really your only weapon - you cannot take Hormonals or herceptin.

  • Running_Violet
    Running_Violet Member Posts: 17
    edited January 2010

    Just as many have already posted, keep in mind that each person responds differently to drugs, be it chemo or neulasta.  When I had docetaxol and Xeloda, my side effects were pretty rough, so I didn't make it to the gym or run very much a few days after treatment.  But weeks 2 and 3 in between cycles were fine.  I run a lot, and did notice that after my third cycle I was running slower.  A couple of cycles later, I decreased my weekly mileage by about a third.  BUT, although I modified what I did, I never quit running or strength training.  And when I had AC chemo, running actually helped dissipate my nausea if I did it first thing in the morning.  Finally, I was one of the lucky ones who had no side effects from the neulasta (which my doc gives only if one is neutropenic--not as a routine precaution).  So my unsolicited advice is to go into chemo without too many expectations, positive or negative.  See how you feel, and don't get yourself nervous about how others have responded to it.  You are unique, and you will be ok.  Even if it turns out to be rough, remember that it doesn't last forever, and you really will be ok!

  • jenn3
    jenn3 Member Posts: 3,316
    edited January 2010

     Feroza - The unknown is the hardest part, next to the waiting.  I was diagnosed June 19th - also a TN, surgery on the 25th, but didn't start chemo until Aug 7th.  The delay in starting surgery was because I joined a trial with Avastin and they had to be sure all of my incisions were completely healed - something about the Avastin can cause wounds to reopen.  I just finished chemo 12/18 and will start radiation in the next week or two.  It is very overwhelming at first - hurry up and learn.  There are times you feel you can't do it, but you can and you will.  Although all of the drugs including the Neulasta come with SE's remember everyone is different.  Some of us have no SE's, others not so good and a lot fall in the middle.  Like I said earlier I did have discomfort with the Neulasta, but it's worth it - it really helped keep my WBC up and I never got sick while getting Neulasta.

    Come here when you have questions, need to vent or just ramble - you'll find plenty support.

  • MoinTexas
    MoinTexas Member Posts: 30
    edited January 2010

    I had both neupogen and neulasta after my white count tanked with Taxotere and Cytoxan.  I gave myself all the shots - the nurse made me give myself the first one while she watched. Mine were in my upper thigh, given fairly slowly and did not hurt.  The only pains I had with either were a sort of shooting pain up from my lower back to upper back, sort of like a pleurisy pain when you take a breath and have to just stop everything for a minute.  They only lasted about the first half day or so after the shot, no other side effects.  They are very expensive, however, and my insurance had to clear them first, but if you have any of the taxane drugs I bet you will need it.  Best of luck!!

  • Diana63
    Diana63 Member Posts: 773
    edited January 2010

    I only had one and thank God I didn't have any more, I hurt so bad I thought I was going to die. When I called my oncologist he said to take Tylenol, it didn't help at all. Then when I went in to see him he said you should have taken Benadryl for the SE's.

  • joanneasiata
    joanneasiata Member Posts: 719
    edited January 2010

    Im on Nulasta as well the only side effects i get is  just sore to touch it feels like Ive been hit with a baseball bat, top half only, and my legs go to jelly it only lasts for a few days but the bloods are perfect, just hold on things will settle down and you will know exactly were your at , we have all been down your path and felt the fear of it all, these boards are a real god send, maybe start another post on your type of cancer and see if that gets you more response best of my wishes to you

    JOANNE

  • Kim09
    Kim09 Member Posts: 100
    edited January 2010

    Feroza - My chemo treatments lasted between 3 to 4 hours each time.  I took some reading material and a portable dvd player.  The dvd player was in case I couldn't get a chair that had a tv.  The cancer center I went to had 10 chairs and 6 tvs.  My mom went with me and would go out at lunch time and pick up lunch.

    Unless your doctor has told you otherwise you should be able to eat whenever and whatever you want.  Be sure to drink a lot of liquid though. 

  • Hattie
    Hattie Member Posts: 414
    edited January 2010

    I had neupogen, then neulasta.  took Aleve as recommended by the nurses.  you do what you have to do.

    i had chemo, then surgery, then was waiting about 2 months for more chemo--have to heal first. tried to view it as "cancer vacation."

    a gym instructor said the gym is germy--stay away.  if you go, just use disinfectant spray or wipes on equipment.  keeping up with exercise can help you speed thru so much.

    just be kind to yourself and do what you are able to.  don't hesitate to get your med team to answer all questions--it's their job.

    someday, sooner than you can imagine, this will be  in the rearview mirror of your life.

    take care,

    --Hattie 

  • Karen09
    Karen09 Member Posts: 320
    edited January 2010

    Feroza - I had to wait awhile between my diagnosis and the start of my chemo too.  The waiting truly was the hardest part.  I was diagnosed in June and then had to have another surgery and didn't start chemo until early August.  It was "only" a month and a half but it felt like a year and a half. 

    What chemo are they recommending?  I did 8 treatments - 4 of FEC and 4 of taxotere.  It usually took about 3 hours or so each time so you might want to bring a book or someone to keep you company.  I found that helped.  As far as eating before chemo, I would recommend having breakfast for sure but wait and see how you feel for lunch.  I didn't usually eat lunch the day of my FEC treatments but during the taxotere I did. 

    I hope this helps.  Hang in there!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Funny, we were just at Ikea, which is right next door to the Hospital where I had my Chemo. As we were driving up, I had the most vivid Chemo Flashback of exactly how I felt after finishing my FEC's - the taste in my mouth, the nausea, everything.Guess the brain remembers these things!

    I never ate either after my FEC's, but was always hungry after the Taxatore. You just need to play it by ear and see how you feel, as everyone reacts differently.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited January 2010

    I felt achy; but it kept my blood counts up and kept me well. Yes, go to the gym if you're up to it. I walked a lot and did some light weight workouts, ab. stuff etc. when on the chemo/neulasta run. I think exercise actually helped to conteract some of the achy feelings, and for sure it helped me mentally. Good Luck!!

  • clariceak
    clariceak Member Posts: 752
    edited January 2010

    I had neulasta  shots while on A/C without any side effects.  My wbc tanked but even through my kids exposed me to numerous colds during chemo, I never got sick.

    I have heard that walking can help raise your wbc so keep exercising if you feel up to it. Good luck!

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