Found a swelling on left side of neck and supraclavicular area

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MRSROCKYTOP55
MRSROCKYTOP55 Member Posts: 403
edited June 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

I have been off the boards for a while now, just busy with daily things.  I am currently having Herceptin treatments and this week I found an area of swelling on the left side of my neck and supraclavicular area.  It is not painful and I can not feel any actual lump.  Any ideas or should I be concerned?  Thanks for any help. 

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  • Faith316
    Faith316 Member Posts: 2,431
    edited December 2009

    Get it checked for peace of mind if nothing else.  Better safe than sorry.

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited December 2009

    Faith316, thanks.  I have Herceptin on Wed and will ask the nurses to take a look.  I pray all goes well for you too.  I see we have very similar original diagnosis.  God Bless, Kathy

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  • TriciaK
    TriciaK Member Posts: 362
    edited December 2009

    Kathy, you may have an infection you're not aware of that can cause this but I agree on having it checked out just in case.

    Tricia x

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited December 2009

    Tricia, thanks.  I am not usually a worrier but a teenager I met while in the hospital has just had a mets with her cancer.  She finished chemo and rads about the same time as I did.  So now you think every little thing means it has come back.  Again, thanks and God Bless, Kathy

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited December 2009

    I had my Herceptin treatment today and I had the nurse take at look at the area of swelling.  She said she could feel something in my neck and asked when I am seeing the oncologist.  I told her next week and she said to be sure to point it out to her.  I am just going to forget about it over Christmas.  God Bless to all and have a great Christmas!  Kathy

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  • TriciaK
    TriciaK Member Posts: 362
    edited December 2009

    Kathy,

     I'm doing the same with my bone mets scare, it's tough having this on our minds but comes with this disease!!

    Hang in there, it's more than likely not serious but it helps to have it checked as soon as we find it.

    Try to push it to the back of your mind and have a relaxing time:)

    Tricia xx

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited December 2009

    I have swelling in the same area that always gets more swollen after my herceptin treatment.  There is a little ball that moves around in there, but it doesn't show up on the ultrasound or any scans I have every 2 months.  It is believed to be a lipoma - a non cancerous fat tumor.  I guess they don't show up in radiology tests because they are just fat.  Herceptin also makes my belly, left arm and hand (my port is on that side) swell after treatment.  They think that herceptin goes after any area with irritation and can increase the swelling.  Keep us updated as to what they find and I am sure it is fine :> 

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited December 2009

    TriciaK, thanks for the encouragement.  I am going to relax and just enjoy the holiday.

    Chainsawz, that sure sounds like it may be a possibility for me too.  Thank you so much for the information.  How are you doing?  Have a wonderful Christmas and I will let you all know what my oncologist has to say next week.  I will be praying for you and your family.  God Bless

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  • kjbell
    kjbell Member Posts: 974
    edited December 2009

    I too have a swollen area on the right collar bone. I noticed it 2 days before Thanksgiving-and still have it. Visiting Dr. Google kind of freaked me out, so I too am just hoping it is one of those funky things that just "happens". I see the onc the 1st week in Jan. Wishing us both luck!!!

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited December 2009

    Do keep us all updated on what your oncologists say - I wonder if it is just a weird SE of herceptin.  It seems to cause some crazy swelling. 

    I hope you all have a wonderful Holiday!  I am off work for 4 days so I plan on eating and lounging!  I am doing great Rocky - thanks for asking :>  My brain scan this week was clear which is an amazing Christmas gift!       

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited December 2009

    I just got back from my oncologist and she said everything is fine.  Yippeeeeee, the all clear!  I can breathe again.  Thank you everyone for your help and concern.  God Bless, Kathy

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited December 2009

    Kathy - yaaaaay!!!  That is great news! 

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  • kjbell
    kjbell Member Posts: 974
    edited January 2010

    MRS-what did the onco say the swelling was from? I am happy you received good news!

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited January 2010

    Well, she really didn't say what it was from, just that she could not feel anything to be worried about.  She checked both breasts also.  I was relieved, but will also keep an eye on it.  Kathy

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  • hollyann
    hollyann Member Posts: 2,992
    edited January 2010

    Kathy I found the same exact thing recently on my left side.....My onc said mine was form reconstruction/scar tissue and nothing to be worried about........Also the swelling in my neck is my thyroid.....SHe said for me to have it checked again with my PCP..................So glad your onc told you it was nothing to worry about too.........

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited January 2010

    Hollyann,  Thanks so much for the info

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  • kjbell
    kjbell Member Posts: 974
    edited January 2010

    I saw the onco today and he thinks my swelling is due to the reconst. surgery. He said as long as it doesn't grow I should not worry. So I will not worry!!

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  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited January 2010

    Great news.  We will always be watching but not spend our time worrying.  God Bless, Kathy

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  • hollyann
    hollyann Member Posts: 2,992
    edited January 2010

    Great news, kbell!.......Like MrsR says, watch but don't worry......I like that approach very much .....

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