Lung Mets - PLEASE HELP!

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Lung Mets - PLEASE HELP!

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  • mmm5
    mmm5 Member Posts: 1,470
    edited January 2010

    Pam

    Did you have a full year of Herceptin with your initial diagnoses? If not Herceptin will most likely help you now, if you did it can help again.

    Did you have scans at time of dx that showed any suspicious spots they can compare to, to see if they have changed or if these are all new spots?

    What kind of chemo did you have?

    THere are a lot of particulars that will dictate your treatment and many options for ER positive and Her 2 positive.

    Try to sit tight until dx from the biopsy and you will know better. I know many on these boards that are doing well with treatments, especially Hercpeptin for stage 4 keeping things in check, after that there is Tykerb, and other new drugs as well.

    the waiting is horrible but you will get it figured out soon.

  • Kodapants
    Kodapants Member Posts: 139
    edited January 2010

    I am so very sorry......I have done a lot of chemo. ACT, then Xeloda, Methratrexate and Navelbine.  When I did neoadjuvant chemo and the strongest-ACT I was shocked to still have cancer throughout my whole right breast and 2 NEW areas in left. Chemo is only 40-60% effective. The only place it helped me was in the lymph node. My thoughts and prayers are with you and your family.  Your are the same age as my youngest sister who lives in Sarasota.

  • ElaineD
    ElaineD Member Posts: 2,265
    edited January 2010

    Pam,I have mets to the pleura (and liver and bones), which were diagnosed Nov 2007. I've been on chemo since then-no break from it yet, although we live in hope that I could be stabilised and have a few months off treatment.

     If...and there's still a chance that there is an innocent exlanation-if, this is mets, please rest assured that there are many treatment options for you. I see you are er+-you may respond to hormone treatmnet for a while, and therefore delay your chemo options. Herceptin to can be a helpful drug-if you turn out to be HER+

    I won't try to sugar coat it for you as I'm sure you're aware of the implications.A stage 1V diagnosis is very serious indeed, and you will be on treatment for the rest of your life But many people can and do respond well for a number of years. I am much older than you (53), so my children are adults. But the thought of leaving them and my darling husband hurts me more than anything. I simply can't imagine how I would cope if they were younger, so I wish you much strength for this. Finally, should it transpire that you do have mets, please post on the stage 1V forum, where we will be able to share our experiences of treatment, worries and fears with you-and of course, listen to your fears and questions, and hopefully help you as much as possible. In the meantime, I'll continue to hope that there is another explanation for these worrisome spots....

  • jan125
    jan125 Member Posts: 411
    edited January 2010

    I understand your fears> I was dx'ed in 2006 and had 2 young children. However, I am going to have my 4th cancerversary in May. I was stage 4 right from the start but did 6 months of chemo and am on herceptin and hormonals now. I have no side effects and you would never guess that I had cancer. While stage 4 is very serious, there is plentyof hope for us girls that a treatment can be found to hold the cancer at bay.

    Best Wishes,

    Jan

  • RobinWendy
    RobinWendy Member Posts: 1,983
    edited January 2010

    Pam,

    My situation was very similar to yours.  Got IDC on one side, did lumpectomy, chemo, radiation but I did not take Tamoxifen due to a blot clot issue.  Just a year after finishing radiation, had a bad mammogram and ultimately, it was confirmed that I had DCIS on the other breast.  Did the BRCA testing, it was negative.  Tried to do another lumpectomy but they could not get clear margins and I ended up doing a bi-lateral mastectomy with reconstruction.  Less than a year after recovering from that surgery, I did a "routine" scan and bam... there it was, nodules in my lungs.

    It was 1 1/2 months between confirming mets with a lung biopsy and starting treatment (Femara).  Of course, I was petrified and remained so until my first scan. Hmmm... stable.  Scan after scan I was stable until my onc said, let's do a PET scan.  He had a feeling that the nodules went inactive and he was right.  I remained NED for two more years before the mets started to grow.  It has been six years... my mets are unaggressive and I feel absolutely fine... and the mets spread to my liver about two months after coming out of remission.

    My point is that I did almost the same things that you did... and the cancer came back pretty quickly.  Yet... here I am plodding along... living my life.  My daughter was a senior in high school and I hoped to just get her through to graduation... she is now out of college for almost 2 years and is living and working in NYC.

    Do not give up so fast.  We Stage IV's know where you are right now because we have all been there.  Simply IGNORE all the crap about thinking positive.  If you want to see a good post about that, come to the Stage IV forum and look for the thread entitled, "Finally, the truth about the BS of positive thinking" or something very like that, originally started by Fitztwins.  You will feel validated and calmer after seeing the video that Fitz posted and reading all the posts.  You may even... gasp... chuckle a time or two.  

    I wish the best to you with your treatment and remember, the future is unknown so do not give yourself an expiration date.  

    Robin 

  • chainsawz
    chainsawz Member Posts: 3,473
    edited January 2010

    Pam - my initial dx in 2008 was stage iv with lung mets.  While it is scary, there are many women living great lives despite mets :>  I do not have any symptoms, and herceptin & tykerb have kept mine stable. 

    I was terrified when I found out about my brain mets, until I read the posts from others with brain mets who are 7 and 10 years out and still going strong....it is possible for all of us with her2+. I used to be in panic mode, but it has now become determination to live. 

    Please update us with your biopsy results - we are all here with you.  My onc said they were 99.9% sure my lung nodules were not cancer (no pet uptake either), but whadda ya know......I really don't think they can tell by looking.  I would definitely have a biopsy so you know for sure.  Best to you!! 

  • terrirites
    terrirites Member Posts: 16
    edited January 2010

    Dear Pam,

     I read your post last night and I can't stop thinking about you. Your words about your young children keep ringing in my mind.  I know you are terrified. All of us with breast cancer have a big celebration after treatment, then the realization that it could come back haunts us all.  I was on the same treatment as you with close to the same dx. I have no kids: was waiting for the "right time" and then this happened and took that option away. But I can't imagine what it would be like to have to consider children in the midst of this.  I just want you to know that I am truly praying for you and that your biopsy results lead to a happy ending.  If not, dear, please think of all the people here and many other women surviving many happy years with mets.  I think of them every time I have a scare and realize mets doesn't mean the end anymore.  Everyday there is good news in treatment. Please post back and keep us updated as you are on my mind constantly.  I can tell already you a one strong broad!  You will be there for kids for a long time to come.  I think of Elizabeth Edwards and how she thought it was over as soon as she was dxed w mets and she is doing so well, despite the idiot husband :-)  I think of my uncle who was dxed with lung cancer ten years ago.... then dxed again... then again.... still going strong. God bless you darling!

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited January 2010

    I have lung mets... went through a series of treatment due to shortness of breath... but you do what you gotta do.  My lung mets are slowly increasing in number (Im up to 4 in the lungs - dont know if its 2 and 2 or 1 in one lung and 3 in the other).  I had problems with the pleura and that was fixable.  I have always had lung mets (along with one in the liver and many spinal bone mets).  I was original prognosed 9 to 12 months.  But like you, Im a scrappy little fighter.  Its been 4 years and Im pretty well normal.... in the breathing dept.  Im more tired than I used to be.  I am getting used to amusing myself.

    Come over to the Stage 4 Forum.... we'll make you laugh and cry and maybe provide the hope you need to carry you through phase 2 of the battle.  You have more armor than you think. 

  • ElaineD
    ElaineD Member Posts: 2,265
    edited January 2010

    She has joined us on 1V-but hasn't posted for  a while, so hope that all is well. Maybe she's on holiday having fun-let's hope so!

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited January 2010

    Or busy fighting that alligator

  • ElaineD
    ElaineD Member Posts: 2,265
    edited January 2010
  • Melanie36
    Melanie36 Member Posts: 110
    edited January 2010

    Pam,

    Although my mets are to my liver (right from the get go). I could relate to being 36 and having kids (I have  girls 3, 6, 14 and 18)

    My comment was about the people saying to be positive...uuuughhhhh I have a funny suggestion, as this is something I have (tongue in cheek) addressed with my friends. (I can't take full credit for the suggestion as I think I read it a while ago and copied it into a file, but edited to suit my needs)

    "Stay positive/you have so much to fight for/you have to beat this for your kids."  Oh really? Because I wasn't already lying awake at night in a cold sweat, just praying I'm going to see my child's next birthday/graduation/wedding.  But thanks for pointing it out, and adding that extra layer of self-blame if my next test results aren't so hot... I know that this sort of statement is intended to get the person to draw on her inner parental love-power and pull through for the sake of her kids, and yep, that ferocious love is a pretty potent force.  Nobody, sick or healthy, wants to imagine not being there as their children grow up. Sadly, you can do everything in your power to beat cancer and still not win - but is that because you didn't love your kids enough? As for the staying positive, every time someone says that to me I have to laugh because it reminds me of the ending of Monty Python's Life of Brian. If your memory is like mine-without the chemo- you can watch it on the link: film clip:  Always Look on the Bright Side of Life  http://www.youtube.com/watch?v=jHPOzQzk9Qo

    You might have to cut and paste the address.

    Smiles,

    Melanie

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