Path report

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etk02038
etk02038 Member Posts: 150
edited June 2014 in DCIS (Ductal Carcinoma In Situ)
Path report
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  • etk02038
    etk02038 Member Posts: 150
    edited January 2010

    Just got my preliminary report. BS said pathologist told her it was an unusual case. Not sure what that means. Report reads

    Neele localized bx right breast: Ductal carcinoma in situ:

    Atypical lobular hyperplasia/lobular carcinoma in situ. 

    Extensive sclerosing adenosis, fibrosis, and fibrocystic changes.

    Calcifications associated with stroma and ducts

    The pathologist has forwarded this on for consultation.

    When I asked what was so unusual about it, BS said to have all this show up is unusual. At this point I am not sure what to think. Now I have to wait another week for a dx.  Any help would be appreciated. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    I'm not sure how unusual it is to have ALH, LCIS and DCIS all at the same time ( I have certainly heard of many here who have had both or all), but the good news is that  there was no invasive bc found. The DCIS "trumps" everything else as it is the most serious of the 3 and your treatment will be focused primarily on that. Depending on the extent of the DCIS, if it is small and localized they may recommend lumpectomy followed by radiation; if it is larger and spread out they may recommend mastectomy. However, having the LCIS puts both breasts at high risk. (but doesn't preclude a lumpectomy if that is the route you choose to take).

    Anne

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  • Jelson
    Jelson Member Posts: 1,535
    edited January 2010

    Hi there,

    it certainly sounds like you have alot going on in your breast - what I don't see in what you have written is anything indicating INVASIVE cancer - so that is very very good. There are other women who have discussed on these boards different types of conditions showing up at the same time in their pathology reports, so you are special but not some type of freak!!

    You can check in the reference section of BCO for the meanings of the terms used in your report. 

    Waiting is the worst.  So sorry you have to go through this.

    Julie E 

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  • momzr
    momzr Member Posts: 111
    edited January 2010

    I'm not sure why you are considered 'unusual' as I think my pathology report from my excisional biopsy on left breast (in July 2008) beats yours as far as having a 'lot' show up!  I have been told numerous times, however, that my breast tissue is dense and I am difficult to interpret.  My pathology went like this:

    Small focus of ductal carcinoma-in-situ (1.6 mm) - yes that says mm NOT cm

    Margins of excision negative

    Fibrocystic change comprised of stromal fibrosis, adenosis, apocrine metaplasia, florid ductal hyperplasia and cyst formation with focal features of cyst rupture, dilated ducts

    Columnar cell change and columnar cell hyperplasia

    Microcalcifications associated with dilated ducts and columnar cell change

    That was a LOT of info when I got the copy and I looked up all the things listed associated with the fibrocystic changes and found they were all considered to be benign conditions.  Obviously the DCIS was not benign, however it was such a tiny tumor that medical oncologist I met with after biopsy did not think I needed to do radiation therapy nor hormonal therapy and told me he never expected to see me again.  Sooo, at this point, I have only had a biopsy on that breast and no further treatment of any sort but I have mammograms and MRI's on a regular basis to monitor things closely.

    Because you have ALH and LCIS also in your report, those might be a little more troublesome possibly, but I did not want you to think you were alone in having 'a lot' going on in your breasts!  Good luck with things from here on out.

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  • etk02038
    etk02038 Member Posts: 150
    edited January 2010

    Thanks for all your replies. Let me back up a little. I had a core bx after an ultrasound found the lump. The report from that was: Atypical ductal proliferation with numerous calcifications.

    Because of that I had a lumpectomy which resulted in the preliminary path report I am talking about. The measurements are 4.2 x  3.2 x 1.2 cm.

    I guess I am happy that another pathologist is going to look at it. But I expect it will pretty much come back the same. BS did get clear margins but not enough, she was talking about 2mm is needed. Does that sound about right? So I am guessing another surgery followed by radiation . I do have a lot going on in my breasts like my infertility problems 10 years ago. I was quite the specimen I was told.  That had a happy ending with the birth of my son. 

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