First Follow Up for 2010

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DCMom
DCMom Member Posts: 624

Tomorrow I go in for my first oncology appt of 2010.  Frankly I wish I could stop being absolutely terrified of these appointments, but not yet.  I'd love to hear from everyone who has gone in worried and come out relieved.  In other words I think I need a pep talk because I am really panicked.

Comments

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    OK, Pep talk coming up....you will be fine. You are fine! Better than that, you are great, fabulous, wonderful!

    You will walk in after worrying for weeks, spend 5 monutes with your Onc, and leave wondering what all the stress was about!! That is what happens usually with me.

    Really, if you are feeling well, and have no pain, it will all go smoothly.  Just one foot in front of the other, and you will get through it.

    Think how wonderful you will feel tomorrow evening! 

    I don't think they will ever get easier. Mine is next week and I am already stressing. 

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited January 2010

    Okay maybe I'm not the best person to pep talk since I just went through my freak out, but.... here's one thing that brought me peace just before going in today.

    My faint but steadfast desire (since I know I cannot control any outcomes) is to be healthy.  I began to think that maybe the call back and the appts. that freak me out are part of me being brought towards health.  If there is something wrong, it will be addressed.  I don't know the overall "Plan" so it's best to let go.  With that said, I still cried today when I found out things seemed okay.  But, I was calm through the appt.  Staying calm and worry free, if only we could always feel this state 24/7!!  Good thoughts to everyone!
    Christine

  • helena67
    helena67 Member Posts: 357
    edited January 2010

    I had mine about a month ago and I was fine. You will be fine!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    In the mean time, stay busy. Chin up!!

    -Helena.

  • karen1956
    karen1956 Member Posts: 6,503
    edited January 2010

    DCmom....no sage advice here, but I'm not good about following my own advice.....My 4 year anniversary is coming up in a month and it is already paramount on my mind.......so I'll just say I'm sending you (((((((((((((HUGS))))))))))))) and all the news will be good news.  Karen

  • everyminute
    everyminute Member Posts: 1,805
    edited January 2010

    Mine is tomorrow too (945am) - I dont worry about the appointment.  I love my onc and the staff is like old friends.  I am feeling well (except for lymphedema flare up and some cellulitis - :-(  but the tumor markers scare the CRAP out of me!!!!  So I wont have those test results until Wednesday or Thursday - I will spend the next few days trying not to throw up.

    BUT let me tell you about my last 3 month check up....

    I went in for my reg appt.  First they do blood work.  Everyone comments on my hair (like I am the first person to come into onc office with hair!!!) Onc told me how good I look, blah blah blah, examines me, chats a bit and asks if I have any questions. 

    I say "well, I cant handle the stress of tumor markers - I am hoping that now that you have been my doctor for over a year!!! that I can trust you"

    She said "Yes, just live your life.  I will call you if there is a problem - if you dont hear from me - all is well"

    So - I realize that my appt was on Friday and Monday is a holiday so if I am going to hear it wont be til Tuesday.  On Tuesday I am trying not to throw up so I go to Target and get some retail therapy (a very cute purple hobo purse).  Walk in the office and my receptionist says "Your doctor called while you were out - I put them in your voice mail"

    So - now my legs are jello and I am trying not to puke.  Get back to my desk - no voice mail. Ok - does that mean it was so bad she didnt leave a message??  And why didnt she just call cell???  And now it is lunch time and I cant reach anyone and I am a freaking puddle!!!!  My friend comes in my office and tries to pull me together and while we are talking she realizes that the other girl in the office named MARY also had a doc appt last week!  So she goes and talks to her and she calls her doc office and yes, indeed it was her doc office calling with lyme disease results (negative).  They couldnt leave a message on my voice mail because of hipaa violations. Once they had the wrong Mary they just hung up.

    SOOOO - now I am a shaky, pukey, puddly mess and I decide - ok, i cant not know.  So I call the doc office and speak to my favorite nurse and tell her - I want my TM results.  I can't stand the unknown.

    They were never run.  They took my blood and never sent it out (long story as to why but it wasnt oncs fault)!  WTF?  So I wouldnt have gotten a call because the onc would have never seen results.

    SOOOOOO - now I am a pissed off, shakey, pukey, puddly mess and I drag my ass back over to onc office and get them to rerun my blood work and the next am at 9am I get a call from my favorite chemo nurse.

    No "hello", No "hi mary", Just "9.5"  :-)  (I love that girl)

    So moral of the story - it was fine, even when I was freaking out and planning my funeral outfit, even when I was scared and sure the doc was calling to tell me I had to go back on chemo, even when I couldnt trust the oncs office not to F- up, it was still fine.

    Ill be thinking of you tomorrow. Mary

  • diana50
    diana50 Member Posts: 2,134
    edited January 2010

    sending (((((hugs)))) it is so stressful but these follow up appts are so necessary.  they want to see you, they want to talk with you and they want to see how you are doing. i guess trust comes to mind; i remember when i finally said to my oncologist; "you are the doctor and i trust you:" and for some reason....much of my fear...kinda started to subside.  these doctors know what they are doing; they are the smartest docs in medicine.  they choose to treat us cancer patients...they really care about us. i think every oncologist appt ....from now on...there will always be some worry and anxiety; it is part of the trauma of being a cancer patient. hang in there. keep the faith.

    diana50

  • weesa
    weesa Member Posts: 707
    edited January 2010

    Know that stress well. Actually, mine has gotten worse with time because I only go once a year now, so I figure a lot of shit can happen in a year. When I used to go every three months or so I figured if things were fine in Jan. they will be fine in April. Will be waiting to hear from you!

  • DCMom
    DCMom Member Posts: 624
    edited January 2010

    OK home with no bad news...pending blood tests.  Thanks for the encouragement sometimes I really need it.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Great to hear, I was thinking about you and Mary all day.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited January 2010

    You made it!  These dang appointments!

  • karen1956
    karen1956 Member Posts: 6,503
    edited January 2010

    Weesa....I thought it would get easier when the visits were less frequent....I hadn't thought about what you said....geeze....and I've been complaining about still being on a 3 month schedule....oh well, I don't go again till the middle of  March......but my  4 year anniversary is coming up next month and it is so paramount on my mind.....will BC ever stop being a part of my daily thougts!!!!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited January 2010

    Karen - 4 years is fantastic! Well done.

  • Gitane
    Gitane Member Posts: 1,885
    edited January 2010

    Well, DCMom, a totally uneventful visit, way to go!

    Mary, Check in.  Hope all went well. 

  • NancyD
    NancyD Member Posts: 3,562
    edited January 2010

    I'm so glad your appointment went well. I had my last for 2009 in early December, and won't be seeing him again until late February...when I will have my new breasts to show off, lol (actually, he rarely checks them, so unless he's particularly interested in seeing a bilateral DIEP, he probably won't look).

    They are so uneventful now...not even a port flush anymore. It's "How are you doing?" "Fine." "Any complaints?" "Just the usual pains from the Arimidex." "Well, take some Aleve. Let me know if they get siginificantly worse." "OK." "Bloodwork looks good. See you in three months." "Thanks, see you."

  • weesa
    weesa Member Posts: 707
    edited January 2010

    Karen1956--yeah, I probably shouldn't have said anything about anxiety vs. waiting a year for a checkup.I should just feel grateful I'm well enough to go to the onc's once a year.My body is healed, but my mind is neurotic and dysfunctional for about a month before my annual appointment. About an hour before I take a gigantic tranq, I can't even feel it but I think it might keep me from stroking out on the drive over there.

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