DIEP Surgery in Seattle
Comments
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Ladies: I agree with you that health care is too expensive. My family is in the healthcare field and we see it first hand. Its a very hard and demanding field to be in. You can make a good living but its not so easy any more with having to pay high salaries, high costs of supplies, high malpractice ins. premiums, as well as less and less reimbursement for services. That's why we're seeing more and more good docs get out as they can't afford to keep the doors open as well as way too much paperwork/regulations. I also see how much free care, we the healthcare providers, give away. We get no assistance from the gov. for this. Its out of pocket and our costs still go on. Might want to look at the facility side of healthcare as to where the monies are going. No one has had the common sense yet to put a price freeze on costs/healthcare/insurance premiums, which keep going up faster than you can blink an eye. Until this happens as well as torte reform, no system changes will work. There has to be some common sense. Also, who's going to pay for the free healthcare for everyone; our broke government. People in this country have got to learn to pay for things, not just wait around for handouts on one hand as well as demanding the best care in the world on the other. These services cost money.
I grew up in a large family and we as kids, learned to work out buts off and if we wanted something, we earned it, and because of those basic principles, we were taught at an early age, that you don't buy what you can't afford. With that in mind, we also learned to educate ourselves about what we are after, such as med insurance, then make the best choice as well as live with the decision. We didn't learn to go out and complain everytime things didn't go our way, or, if we made a bad choice and had to buck up, learn from it, then go on. I do agree that insurance companies (own washington dc) need to pay their CEO's less and cut prices. But, we still need free choice to keep coverage and prices competitive. I would like to see some solutions offered instead of complaints about healthcare. Its easy to complain and takes an effort to fix it. We all need to start and if you do have great ideas, write/call your congressmen/senators. Remember that old saying, ask what you can do for your country, not what your country can do for you. Its amazing how fast we forgot. Like in the past, America was known throughout the world as a leader and today, we've become followers.
We're all dealing with the field of Plastic Surgery, which is a very specialized area of healthcare. I do feel that costs do need to come down into a more realistic range. But, you also have to realize how high their malpractice insurance is as well as how many yrs of education it takes to get there. Never hurts to talk to your docs and negotiate a price prior to having procedures done. Worse case scenario, they say no, but then again, you might be surprised.
Now, I will also get off my soapbox.
JSeda
That quote about asking not what you can do for your country, but what your country can do for you was written by Karl Marx. He would have expected us all to work for the greater good, but he would most likely have been pro-socialized medicine. The Canadian system is far superior to our own. In America, you get the healthcare you can afford unfortunately, and it leaves a great many people out in the cold. We are fortunate to have receive the care we all have, and some of us are still receiving, but then we are the privaliged few that can type away on message forums worrying about the astetics of our reconstructions, not if we will receive the care we need to save our lives. Bragging about being lucky enough to be employed with good insurance when you happened to need it seems insensitive. Many people have had hard lives and grew up poor, but never had the opportunity to better themselves, should they receive lesser care than us because of this?
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Actually, I just looked it up, it is originally attributed to Thomas Jefferson, then Marx, and Kennedy or his speech writer stole it a lot from what I can gather, the sources seem conflicted. But if that is all that you got out of what I wrote, wow. Good luck with beating your cancer, and I am really glad you are getting the treatment you need and deserve. I hope you beat it, just like I hope we all beat it, regardless of what plastic insurance card we may or may not be holding. Best of luck to you.
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Hmmmm, anyone having a DIEP surgery in the Seattle area ???????????????? Would love to hear from you !!!!!!!!!!!!
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Thought that I would just add to the mix here. I had bilateral DIEPs done by Dr.Beshlian and Paige one year ago. I was diagnosed and had chemo and radiation in 2005-2006, but waited 3years to do the reconstruction to make sure that I would be free of any chest wall issues. The reconstruction results are fabulous. Both breasts are symmetrical and beautiful. I had no real complications and found Virginia Mason to be a great place. The nipple reconstruction went well and I will have my tattoos done on Friday. Finally done!!!! Both surgeons are friendly, very experienced and the nurse coordinator, Faye is a great resource. It is unfortunate that there are not more surgeons in the Seattle area that are doing these reconstruction techniques as there are so many of us here wanting the procedure.
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Sorry for the side track golfer. I will be having diep surgery in seattle in a few months. I have looked into the surgeons available in the area. Dr. Isik is impossible without the right coverage or a thick wallet.
I am going with UW medical. They have an excellent team there and the doctors often work together so the surgery is shorter. I have heard some complaints about the care there and being given the run around, but that has not been my experience. I never waited more than 15-20 minutes for an appointment. Perhaps wait time to see your doctor and scheduling have improved over the years or maybe I have just been lucky. Good luck Golfer, check out the U, they have surgeons that have performed hundreds of surgeries and perform them weekly.
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Mcalot, thanks so much for sharing your story. I'm scheduled with the same docs for Jan14th, and I've now met Fe twice at the support mtgs.
It means a lot to me to hear from those that are so pleased with the results. I too have waited just over two years to have a recon. Just had a MRI and Mamo and all looks good, so I'm very ready to move forth.
Thank you again for sharing!!!! -
Good going Golfer; so close in getting on with your life. You won't regret it. ARe you having this done at the U or at Virginia Mason? I'm glad to see you aren't having to wait much longer. Keep us posted and know that you're in our prayers and will be okay. You will be in good hands!!
I'm now 3 1/2 month post DIEP and swelling is gone. Hardest thing is to be patient with the slow process of healing. It does happen, just have to give your body time to heal. My DIEP is still firm but slowly softening; they say it can take months and up to a yr, which I believe. I still think it was well worth it. I do have a frozen shoulder from the lack of activity left arm from DIEP surg., but no biggy. Will have a manipulation (under anesthesia) with full range of motion back right then and there. Hang in there and soon your stress level will be much less and get back to your normal life.
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jseda, Thanks for popping in to my Seattle Recon post, I appreciate everyone's input thus far and hope for continued support in the weeks and months to come.
So I'm scheduled for surgery on Jan 14th, (whew .... 2 weeks from tomorrow). It all seemed so far off when I initally chattted with the doc last summer. I will be having surgery at Virginia Mason with Dr. Paige and Dr. Beshlian. My pre-op appt is next Tuesday, and I'm feeling a nervous excitement as my surgery date nears. Having attended a couple of Recon Support Group meeting at VM has definitely helped my anxiety level. I feel confident that I'm doing the right thing .... it's more the process of surgery, hospital stay and recuperation that has added to my anxitety. Unfortunately I also have or will (after taking 6 - 8 weeks) for recovery off of work, used all of my sick leave which is a bit worrisome. Amazing that with this two plus year ordeal I've used nearly 600 hours of sick leave and I pretty much worked through my 6 mo of chemo.
I'm hoping that after the new year starts and the holiday stress rather subsides, I'll be good to go on the anxiety level and ready to head into surgery strong !!!!!
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You will do fine!!! You'll be amazed at how doable post surgery is. Like I said before, just get up and going as soon as you get home. Healing is 99% mental. The sooner you get back to normal, the better. I went right back to work (though from home on my computer) 10 days after surgery and am glad I did as it totally took my mind off of my health and put the focus on work. Good luck an dknow that you will be okay as well as not the first or last woman to go through this. Anxiety is okay, we all had it and wouldn't be normal if we didn't.
PS Borrow a few hospital gowns and use immediate surgery at home. Much easier to get in and out of these for a week or so. Also pick up some antiobiotic/zinc ointment as well as pads (menstrual) to use on inicisions and create buffer between incision and your underwear etc. Much more comfortable. Also have big safety pins to pin your drain tubing to your gown so as not to accidently pull them. I'm sure all ladies having had DIEP will be a wealth of information re: little clues to make things easier if you just put a posting out for helpful hints post surg.
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jseda ...... great idea ..... I'll do that now and thanks again for your support.
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Sorry I haven't checked in for a while! Went back to work full time, parents are going to need a nursing home, adopted a new shelter dog, holidays....
So, since my surgery in mid-Sept with Drs. P & B - the first month is slooowwww, the next month not so bad, I just needed way more sleep than usual. I went back part-time on 11/16, full-time two weeks later. The only real pain I experience is that for some reason the muscles to the sides of the breasts and around the back get a little sore. One of my new boobs is a bit hard, the other has a bit of tissue maybe higher than it should be, but my follow-up is mid-March, I can wait till then.
Dr. P is doing more surgery on my sister on the 22nd - she had her recon a few years back, but with implants, and 1 ruptured, but she's pretty happy with his work.
Mary
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Hi Green Iguana:I had my surgery (Mx/DIEP)mid Sept as well. I only had left side done. I still have a rather firm boob. I did call Dr. Neligan's nurse sometime back and she did say it could take months for the breast tissue to soften. I have noticed that it is slowly getting softer, just very firm. Not worried. I have my second stage in April. I put it off secondary to weather and driving over the pass into Seattle. Besides, decided a few extra months for healing would be most beneficial as there is no rush at this point in time. Glad yours went well. Did you have your surg at Virginia Mason or the U of Wash?
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Virginia Mason. Yeah, my follow-up appt is March, figured I'd see what Dr. Paige thought then. The other one has kind of a flap of tissue up above the "boob line," I think that might need readjusting, but I knew there would be touch-ups. Over all, I'm happy I had it done, and know that it will take a while till I'm finished.
Mary
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Thinking I probably won't be on line for a bit so just wanted to send out a thank you to all of you kind ladies that chose to share your experience, suggestions and thoughts in regards to my original question on the DIEP procedure. I will be heading over to Seattle Weds night, and eagerly awaiting Thursday mornings surgery at Virginia Mason with Dr. Paige and Beshlian.
I look forward to sharing once I'm over the hump (so to speak) !!!!!
Carol
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Good luck. You'll be a-ok as well as in good hands. Prayers your way!! There is life on the other side as well as a new boob!!
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WhoooHooooo .... I'm 12 days post op from my right sided DIEP and a very happy camper.
My experience with Dr. Paige at Virginia Mason has been top notch, along with his staff, Fe (his RN) is particularly a gem. My care while staying both in the CCU for two nights as well as on the floor was extremely good. My every need was met in a timely manner and they all seemed to truly care about me.
I had surgery on a Thursday (14th) (which took just a little over 6 hours with Dr. Beshlian assisting) and was released on Monday. I did spend two nights in CCU, not because I was having complications, but rather they did not a have a bed available on the floor that they like to put patients whom have had this form of surgery. Worked for me ... CCU was much quieter and I had my own room !!!! Oh, FYI .... The Inn at Virginia Mason which is literally hooked onto the hospital was a great place for my husband to stay for a couple of nights at about $100/night (and the restaurant is good too). He could hang in my room, bounce back over to the Inn to shower/sleep and I knew he was just a couple of minutes away.
I will admit that up until Sunday I was questioning what the heck I had gotten myself into. The abdominal pain was much worse than I had anticipated, but come Sunday I was able to just take ibuprofen for pain. I was up walking Saturday and it didn't take much encouragement as they told me I could forego the shots of heparin (blood thinner drug) if I we're to get up and walk. The heparin shots we're killers so walk I did. There has never been any pain to speak of at the breast site.
I came home with 3 drains, all of which we're not producing huge amounts of fluid. FYI, take some higher powered meds prior to heading home, I just took ibuprofen that morning and was hurting big time by the time we got home about 2 hours later. I was able to get two drains removed last Thursday and the final abdomen one removed yesterday .... Talk about a freeing experience. I would also take a little something extra for pain the day you have drains removed, my innards we're rather uncomfortable last evening.
My incisions are healing nicely and I'm not scheduled to go back to see the doc until next Tuesday. I'm laying very low .... No lifting, driving, just spending time between the recliners in the house and taking some very short walks. I was told that there is still a possibility of creating some pockets of fluid with overdoing it. Last thing I want is to be "re-drained" !!!!!
I am amazed at how close the size/contouring of my new breast is here at Stage 1. I think it's just perfect and now 12 days later can join the women who say this is the best thing I could have ever done for myself !!!!!
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Yeah Golfer!!! So glad to know you're A-ok and things went as planned. It really is a doable thing. Its just that the mind goes crazy when dealing with the unknown. You just have to trust God as well as your PS and staff. Don't get too attached to your new breast size as it will decrease in size by at least 1/3. They take care of that the next stage with revision and contouring etc. Take it easy and ask lots of questions as I'm sure any of us would be happy to help.
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Sitting here three weeks tomorrow post op. Had my followup with Dr. Paige yesterday and everything looks like it's healing great. My abdominal scar with the glue finally coming off is looking thinner every day. I had the final couple of stitches removed from my breast and those incisions are also healing faster than I would have thought.
I was lucky and only had 2 drains in for a week, and the other out at 10 days. I don't appear to have much swelling at all at either my tummy or breast. I mentioned to my PS about how much he thought the breast tissue would change over the course of the next few months, and he didn't think I had much swelling left. Unless something drastic happens I don't expect to want a stage 2 procedure and will probably just opt for a nipple.
I plan on going back to work next Monday on a limited duty basis. I'm a semi truck driver so full duty would not be an option for a couple more months. The driving would not be the issue, but the securing of loads with chains/binders/straps etc is out of the question. I have been amazed at how it seems that overnight I turned the corner in the recuperation process, and I have no complaints there.
My care at Virginia Mason was off the charts good. I was pleased from the time I checked in to the time I was wheeled to my car upon departure 5 days later. Dr. Paige and Dr. Beshlian are IMO the best !!!
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Dear golfer, Your cancer is about identical to what I have just been diagnosed with, March 18 of 2016. If you are still reading or posting on this site, I would really love to know how you're doing now. I am at the start of my journey and have an appointment tomorrow to talk with Dr. Paige.
Warm wishes,
LeAnne
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I had DIEP from Dr Said at uw, really happy with results
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I find it strange that the latest posts are on the last page and not at the top like an email chain... Besides the point. I had a double mastectomy immediate Diep Flap reconstruction. I am 5 weeks post op and things are progressing mostly well. I am still moving a bit slower than normal and have only about 50% range of motion in left arm (4 lymph nodes removed) and about 75% in my right arm. PT started week 4. The first 3 days home from the hospital I was wondering what the heck I had done and seriously questioned my judgement. I wanted my own tissue to be used and really did not think strongly on how the recovery would be. Well thank goodness for my husband and sister in law to help along with a hospital bed rental as I could not handle just being propped with pillows on my own bed. But today that seems so long ago, I know only 4 weeks ago I came home and felt that way but it seems much longer. It is a tough road for sure but so far today I can say I am mostly happy this was the route I chose. I think I am healing a little slow on one of my flaps but vascular production is right on. There is a strange sensation that is hard to describe as everything just feels different than before and I suppose to a degree it always will. My main Dr. at UW in Seattle was Dr. Otway Louie. I know I will need some revision as where the drain tubes came out the sides of my stomach it left little poofs or little dog ears my PT called them but my breasts look good. I think I had a lot of fluid production as it took almost 3 weeks for my last drain tube to come out and I did get a cellulitis infection at the drain tube site that quickly cleared with antibiotics. As long as everything keeps healing as it should all should be good. AC-T chemo starts in 3 weeks so all needs to be healed. I had multi-focal invasive and non invasive cancers in left breast and I am triple negative Stage 1a. It was a lucky catch. Stay strong and follow your instincts. With love for all the new sisters I never wanted to have but am grateful to be able to share with.
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I have heard good things about dr. Louie, my friend had right side reconstruction DIEP.
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LoHaNow, I had my DIEP at UW also just 3 weeks ago. I too wondered if ii was doing the right thing it hurt so bad at first. Right now I have rib pain anyone else get this? It hurts when I breathe in
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Really, i dont recall any real pain after mine. I guess i was numb on my whole front.
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Nancy, I am having my DIEP surgery at the UW in October. It has been a long wait for surgery but I really like my doctor. Did you have a good experience at the hospital
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Is anyone or has anyone done the nipple sparing DIEP? Is the pain mainly from the tummy tuck
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No pain, a little sore on tummy area, i had more discomfort with 2nd surgery the fat grafting. Dont do it in the summer like i did. One it is sweaty under the garment and harder to hide bruising in summer clothes.
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