Single, no family (except for kids, alone

blondiex46
blondiex46 Member Posts: 5,712

except for friends as my support system..I will cut and paste from my other post.  Have a recurrence after 14 years..Am on Femara.  This is a recent diagnoses.

I got the news 14 years ago when my twins were 2 they are now 16 (I have 5 children total the oldest is 35, and 4 grandchildren with 2 on the way due in Jan and March) and it is back, am adopted and found my bio mother and she died of a recurrence of bc (before the 1st diag. that is what made me get a mamo. was 42).  She died after 15 years, so of course I am nervous.  Just recently found out and the first time had lumpectomy, 6 wonderful months of chemo and r6 weeks of radiation.  This time it was found out quite by accident.  I cough alot from the damage the radiation did to my lungs (they have a name for it like radiologicisis or something like that) and I thought I broke my rib coughing and went for a chest ex-ray  and the "mass" was found in the same breast (r) underneath my pectural muscle and according to my onocolgist it is inoperable cause of where it is.  I did get a PET scan and there are spots  (5)on my lungs but they are not big enough to do a biopsy of he said about the size of the end of a pin and my lymphnodes in my chest are swollen (5) pretty big.  He put me on Femara which is HT, said that it didn't spread to any other parts of my body. He said it was about 3cm, I think.

Not happy at all that there is a tumor growing in my body and nobody can do anything about it.  I decided last week to get a second opinion, which never occurred to me the first time, so I have an appt on the 6th of January.  They have sent my information to Fox Chase Cancer Center in Philadelphia and I am waiting (that stupid word) for them to call for them to tell me to bring the slide and the CD which apparently contains information.  Also, the ono said that they consider it stage 4 cause it is a recurrence (what is that?)

I work a PT job at a local department store and am on MA and can't get a full-time job now cause of the insurance issue. I also watch my grandson (3) while my daughter works). I am a single parent but do have a good support system.  Have someone or 2 go with me to the appts. and pay attention while I am not.  So now the dreaded waiting game, taking the medicine trying to not ruin everybody's Christmas, not being able to shut my head off and wondering what is going to happen now, while trying to remain positive, not letting people see me when I am upset. 

I appreciate this site as you all know, cause some of you are where I am and some have been there, thanks for listening, I will be lurking and hanging out.  After I just wrote that I think I will go get a piece of cake with ice cream on the top...cause I need it, lol....

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Sandy...We're definitely glad that you found us, but I'm so sorry that it had to be because of a recurrence. Once you have your second opinion, it sounds like the waiting won't be necessary because you'll make a plan and just get going on it! I think that it was wise and most proactive of you to go for the second opinion! I'm grateful to this day that I did so when I was diagnosed because although the treatments recommended were decidedly harsher, I feel more confident that the beast has been put to rest (whether or not it truly has, of course, reamins to be seen, right?).

    It's also great that you have a solid support system. I didn't have anyone, but for me that made it all pretty simple and I put on my blinders and put one foot in front of the other until treatment was completed. Now, nearly 5 years later, I have an amazing boyfriend who would be very supportive, I'm sure, but at the time, I was alone and I did just fine.

    Keep us posted, Sandy. We're here for just that reason, ya know? Laughing

    ~Marin

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    Hi Sandy -- so sorry about the recurrance -- such a shock after being well for so long.  It's very hard when we want to be strong for those around us, not to worry them, when we're the ones that need to be comforted.  The waiting game sucks big ones but once you get all the info and a treatment plan set up I can guarantee that you'll feel better.  As you will see from my signature line, I'm all for cake and ice cream.  Let us know how it goes,

    Elizabeth

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