Hip pain?

Deb, I'm assuming you had taxol?  I have a friend who had excruciating joint pain on taxol.  For me it was sharp sudden pains and some where my hip joints felt like suddenly giving away while standing.  But, it was nowhere near as bad as what my friend experienced.  I found the neulasta shots to be far more horrible. 

Throughout radiation I did have lingering hip pain on one side.  It was always there, I noticed as I drove to every appt. the way it bothered me.  But, it did go away, and now it's a non-issue.  If only I could get rid of the lingering foot pain!!  I hope yours improves too! 

Adriamycin, Cytoxan, and Taxol and Neulasta DD every 2 weeks from May to Sept.  My bones have not felt good since.  Especially in my Clavicle and Hip area.  I know I need to get out walking more often, but with the cold weather, I've not felt like going out much.   I also think sometimes the weather makes it worse.

I am researching Prog cream now. I am going to get many opinions I was 42 when dxed and I feel horrible now. The pain is so bad I think I have mets and end up getting expensive scans and stres and stress and it never is mets. I know now it is Estrogen depletion. Read up on it and Fibromyalgia. It all makes sense to me now. There is a thread on it on the natural girls but I am taking my time and really looking into everything.

let it be, you are not alone I was in Med Field for 17 years and thought I knew it all.

Until I had BC I thought there was one kind of BC had NO IDEA about all of this. But I think the instand menopause is the worst part of this way worse than chemo. I also believed it was all mind over matter but it is what it is and Estrogen or lack of it can really be hard on a body.

I'll pipe in on the hip pain chorus.  I have had hip pain ever since chemo.  Really noticed it after I started tamoxifen, but then again that was when I didn't have so many other pains to take my mind off my hips.  I especially notice it after exercise and all of my muscles seem so much slower to loosen up after working out.  I am just so tight all over...feel like I am always stretching.  I have seen numerous posts about hip pain, but that doesn't always talk me off the ledge when I am "positive" I have mets.

I get a sore thumb too, and sore feet. I think that is the Arimidex. And I sometimes a bit of lower back ache, like I have been standing too long.

Yep, sure beats being dead though. 

Thank you.

Thank you to all for your information on pain.  I am sorry to hear that you are suffering, but so glad to hear that I am not alone.  My low back/tail bone have hurt since early last spring.  We thought maybe it was because of all the sitting I did while going through chemo, etc..I didn't realize that chemopause could cause continued pain.  Actually, I keep getting the feeling like my cycles are going to restart up, but than it goes away...lately I have been feeling like I am suffering PMS (never had it before--but boy, certain days I am sooo edgy.)  Thanks for your help.

Sis had hip pain prior to BC diagnosis - no cause ever elucidated - was on antiinflammatories. Had to stop them during A/C and was very bad. Taxol she was back on her meds and did ok - chalked it up to the steroids given during Taxol.She developed some bad pain and weakness postop which we thought was disuse but her onc recommend a rheumatology consult.

The estrogen deprivation thing I think you mean "menopausal arthritis" which I have heard of. There is also an association with Tamoxifen and the aromatase inhibitors and arthralgias.

 She is also having a bone density test - we had asked onc about the studies which suggest stage 4 bone mets might be prevented by Zometa and she said to get the bone density and maybe she could start the oral biphosphonates and see from there

Deb - you may wish to consider a pain consult - you are taking some heavy duty meds for a while and you may need to wean off them when you are doing better. The body gets kinda used to them.

Good luck to all!

Was going to start a thread asking whether anyone else had hip pain on Tamoxifen, but I see that many of you have!!  I started Tamxoifen in November and have small pain in my lower back and pain in my hip. Have been just watching to see if they got any better before calling the docs.  Totally lost it the other day crying my eyes out thinking I have bone mets - couldn't even make it through a walk without bawling!  Finally called my onc nurse - based on my descriptions, she doesn't think this is cancer related - yay!- but suggested I see my primary care doc for an MRI if I want for peace of mind b/c I am not due to see the onc for a few months (was just there in January).  Anyway, I think I will see my primary to get the MRI - hate to run an expensive, possibly unnecessary test, but if there's nothing there and this is just from the Tamoxifen, I think I will be able to "move on" SO much easier!  Good to know this is not uncommon with you all!