How did you feel the first time you saw your scars
I 'm going to have mastectomy -reconstruction in a few days and what really scares me is when i woke up after the surgery. I think that when i see my breast with a scar and without a nipple i will be shocked. I'm so afraid of this moment. Please tell me how did you feel this first time?
Comments
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Hi Zoegr,
I have not had my surgery yet but I feel your pain. I will be having a bilateral mastecty on December 31 and I know I am going to wake up without nipples and a big scar but I am prepared to think about how nice it is to be without cancer. I did a lot of research and viewd many pictures of procedures. Even though it is very unique andiffente for each one, it gives you an idea of what it'll be so you are not too surprised when you get to see yours! i don't know what you'll do for reconstruction but plastic surgery has come a long way in this area. The final results of recontruction is very good, if not excellent!
I will be having sking sparing procedure using Tissue expanders, and 3-4 months later the final implants of silicones. The nipples and areola will be the final touch and i am trusting my plastic surgeon rtistic ability on that area.
Stay positive adn do not fear. Think about eliminating the disease and give yourself time. In the end you;ll be happy with the results. Good lck and happy holiday! Erika
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Hello, I am sorry that you are feeling a great deal of fear about this. I am sure it won't be nearly as distressing as you think. I agree with Erica, plastic and reconstructive surgery has come a long way!
Just to give you a positive story.
When I decided to have double masectomies with imediate reconstruction ussing tummy flaps, I asked the surgeon to draw the type of initial scars I would have. I asked mainly as I had to prepare for my 2 yound children's reaction. As she drew it, it came to me right away, that the scars would resemble a "happy face", and that is how I saw them as from that time forward.
I would have 2 scars in the rough shape of a circle on each breast (when they took everything out and "replummed in the fat and skin from my tum", then I would have a little round scar, where they "repositioned my belly button", then a large hip to hip, "smile like" scar when they rejoined my skin after taking the "slice out they needed for reconstruction". That is how I drew it for my kids, this is how they saw it and called it and I never felt bad about it for 1 minute. Just glad to have it done and not to have remnent breast tissue to worry about.
I can honestly say, that despite the normal recovery issues and some anoying nerve niggles, I have never regretted it, and feel very comfortable with my new boobs.
The nipple reconstruction and the tattooing was painless and easy (had lost sensation to the centre of the breast anyhow) and I feel I now have a nice pair of breasts that are not like time bombs.
I hope telling you this has help a wee bit. I do wish you all the best. It will be ok. Make sure you are very happy with your PS and don't be afraid to ask any questions.
Take care,
Shiny
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How did you feel this first time? Relieved!
My surgeon didn't put a big bandage on me, as some women get. Coming out of surgery, I had a long steristrip over the incision (which ran from my underarm to just past where the nipple used to be), covered by clear plastic tape. So as soon as I awoke from surgery, I could see everything. I was very pleasantly surprised! The first good news was that I wasn't in pain; the morphine drip no doubt helped but once that was stopped, I still didn't have any significant pain at all. The second good news was that my breast looked pretty good. I'm small breasted to begin with, so with a skin sparing mastectomy and the first fill in my expander done during surgery, I awoke to find that I wasn't a whole lot smaller than I'd started out, particularly lying down (expanders and implants don't squish down like natural breasts so they look bigger than a natural breast when you are lying down).
What I discovered, however, is that the mastectomy surgery is just the first step of a long reconstruction process and there are sure to be ups and downs during this process. That's not to scare you, but just to be realistic. I often I see posts from women who come out of surgery finding that it went much easier than they'd expected, and they rave that implant reconstruction is a breeze. Honestly, at that point they just don't know yet. For some women it does turn out to be a breeze (I had it pretty easy) but for other women it's a difficult and painful process. And how you look and feel right after surgery if not a good indicator of how the process will go for you. Some women like the look with the expander; others hate it. As for the final results, some women are immediately happy with their results after the exchange surgery, others need time to adjust to their new look (remember that your eyes and your mind have seen your body only one way for all your life; it can take time to adjust to your new look, even if you have good reconstruction), and others need to go back into surgery for revisions. In the end, most women are happy with their results but it's a long process so be prepared to take one step at a time and don't get upset or worried if things aren't as smooth as you'd like as you go through the process. Always remember that it's the final result that counts, not how you got there.
Good luck!
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I looked at a lot of pictures before surgery so I was prepared- I was also really glad to have the tumor OUT. I also let my husband see the scar as soon as possible and I think that really helped also.
Kristy
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zoegr
I have to say I was on pretty good drugs so I did not care while I was in the hospital. I had my tissue expanders placed at the time of the mastectomies and they were filled with 300cc so I felt like the process had already begun.
Don't get me wrong, when I got home and had to shower, I did break down and cry just looking at all the sutures and seeing my chest indented was rough. I keep reminding myself that I am a work in progress and I love my plastic surgeon! He is amazing!
The not having nipples was okay because I had big X's where my nipples used to be and had phantom nipple pain & itching. In my head I know where the new nipples are going to be.
I had the nurses give me extra surgi bras to wear at home to hold bandages in place instead of tape. The bras are not pretty but did the job of holding my drains in place and keeping bandages on. They were just velcrofront sport type bras.
The swelling from surgery will do a good job at hiding your missing breasts too.
I decide on the bilateral mastectomy so it is not like I had my other breast to compare anything to. I also think that helped me. Both gone and both being rebuilt - a matching pair so no comparisons to make.
I know this is an awful thing to deal with and so many women will share wonderful knowledge and expierences on this site.
You are stonger than you know!
Kimberly
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Like others have said - looking at photos really helped prepare me. I was not that bothered but I did have expanders inserted and some fluid in them during the bilat mast so I was not completely flat and since bilateral - they looked the same. The drain tubes were more concerning to me as I was fearful I would accidently pull one out! Good luck.
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I just had surgery on Tuesday. I had the right breast removed, with an expander. I'll admit..I look pretty darned ugly! But, thats just for now...I know they will look great eventually. So, how did I feel? I guess I feel like I have an icky lookin boob...but just for right now. I feel like I'm being forced to be patient and go through all of the steps and processes if this horrific disease. You'll be ok! You may not like how your chest looks for awhile, but it is only temporary.
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The mind has an amazing way to deal with what happens to our bodies and the acceptance.
I too worried how I would feel losing my breasts (I opted for no reconstruction). Different, yes; scary, no. The posts I read here really helped.
Best to you.
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Thanks girls for all your replies,
You really made me feel better. I was feeling really bad the last days especially during Christmas time. Everyone was happy and i was miserable. I talk with my Plastic Surgeon this morning and we decided to increase my size a little bit, so he will put a small implant in my good breast also. So i will go from cup b to cup c. I always wanted firmer ane perkier breasts and this is the moment to make it true. It really make me feel better when i try to see the positive side of all this.
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I had BMX without reconstruction. The day after surgery the surgeon came in and removed large bandage from my chest-- at first I was afraid to look down but then something inside told me it would be ok. I went ahead and looked down and to my surprise wasn't freaked out!!! It's definitely different looking at your body without breasts and nipples BUT the thought of Life is even better
It has been almost 2 weeks since surgery and I find looking at myself in the mirror gets easier each time. I don't even realize my breasts are gone until it's time for a shower.
I had Neo Adjudvant Chemo and after Chemo had a PET scan that showed the cancer was completely gone except for 1 lymph node in my chest. After surgery, the pathology report showed (2) tumors less than 1 cm and 12/18 axilla lymph nodes positive!!! Lesson learned that no matter what the PET scan shows, it's always best to have surgery to make sure...
Awaiting surgery is the hardest part-- after surgery it gets better every day!
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I did not have a mastectomy so I can't speak to that exactly, but did have a lumpectomy that took my nipple and areola and ended up looking a bit like an ice cream cone with the tip cut off-kind of squarish. I was devastated when I found out that I couldn't keep the nipple and areola and was so concerned that I would be "deformed". But when I first saw my scars, the only thing I felt was relief. That whole healthy breast was hiding a demon and seeing the scars made me feel like I had won. I got to make the decision to get that nasty cancer out of my body even if it took a "deformity" to do it. Kind of a "take that, sucker!" moment!
I have been completely reconstructed and I couldn't be happier with the results.
Best of luck to you.
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I agree with others. I looked up photos on line to prepare myself. I ws also introduced to someone in person who had been through all this and she pulled up her shirt and showed me her foobs! LOL!! I didnt ask, she just volunteered! I also agree that all the time leading up to the surgery is much much worse than after the surgery, and also that you should let your husband see the scars right away too.
With all that being said--I was actually pleasantly surprised the first time l looked in the mirror. I had bilat mast with tissue expanders Dec 4. I was filled to about 300cc's which equaled a size A for me. I was terrified before the surgery of how I would react the first time I looked down. I was so scared of seeing a flat chest--even with the expanders I knew I would still be pretty much flat (for me) I was a D before surgery. I had steri-stips over the incision, then a thin layer of gauze and that sticky plastic stuff that they use over IVs--I forget what its called. When all that stuff came off a week later and I saw the actual scars, I still didnt react badly--more curiously I think. I stood in front of the mirror several times just looking at them, trying to get used to my new look. I also try to keep in mind that what they look like right now, is not how they will be looking even in a month. They will be changing a lot over the next few months. And Im hoping that the final result will be fabulous!
I know its so hard for you right now. I am just 3 weeks out from surgery,and I can tell you, its much better being on this side of the surgery. I was so worried and worked up about everything I had to get meds to help with my anxiety beforehand. I was also terrified about what my husband would think about what I looked like. He constantly told me he didnt care about my boobs, he just saw them as a problem and he wanted to be rid of them more than I did. He has been seeing them just as often as I have, and he has been great--probably better than me with how everything looks!!
good luck with everything!!
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I had surgery last Tues. I had a mastectomy, and immediately had reconstruction surgery. I had a tissue expander put in. After a few days hubby was helping me change my bandages, and I saw my chest for the first time. It was a shock, and I cried and shook. Hubby calmed me down, told me the plastic surgeon said I would react this way and told me it will look great in a few months. I still hate to look at it, but I am looking forward to seeing the progress we make with the saline injections. I start them on Jan. 6.
It is hard, but try to think of the end product and how good it will look. I keep telling myself this.
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The initial shock is hard to get over. I really couldn't look at myself in a mirror for at least a week. Right after my shower on went the robe. I slowly got used to it by covering my normal breast and examining the other with a mirror. This helped because I wasn't comparing the two.
Gradually it became more normal for me- it probably took about 2 weeks. At this point I am just shy of 2 months out and have come to terms with it. I can look at myself in a mirror with no problems. The scar had flattened out quite nicely I am due for another expansion in about 2 weeks or so. I am actually happy with the scar now- even without the nipple.
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I had two previous surgeries for pre-cancer one on each breast, so they were already scarred. I had also attended the local breast cancer support group with my mother (also a survivor with single mast). The women at the group took me in as one of their own and one stage 4 woman, after hearing my dx of DCIS and my decision for bilat, took me into the restroom at the meeting before my surgery and said here is what you may look like after your surgery and showed me her scars. I will always remember what Mary did to help me come to terms with my new image.
I woke up with two expanders with 200cc of saline in each one, a large bandage across my chest as well as a compression garment to help with the swelling. When I went to his office 3 days later, his nurse removed the bandages and gave me time to look in a mirror and let the image soak in. It still was shocking not to see the areolas there but I was relieved to know that I had done all I could to keep the beast away.
Sheila
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Hi Zoegr,
I had a large chunk of my right breast removed in July. I know, it was not a mastectomy and I did not lose the nipple, but still I burst into tears the first time I saw my breast after the surgery. It has been an adjustment, but over time it has become far less emotionally charged. As of right now, I have no plans to do reconstruction, because long-term I don't know yet if I will be able to keep my breasts.
To the extent that you can, please try not to worry about how you will react after the surgery, because it's just impossible to know. I was honestly completely caught off guard by my own reaction. At the time, not only did I feel devastated, traumatized and self-conscious, but I also felt ashamed, because I thought I was just being vain. It took awhile for me to understand that vanity was really the least of what I was feeling. I think that, in general, when we are afraid and feel out of control, our minds try desperately to take control of whatever aspect of the situation they can. For me, it was "I can't control (or even deal with) what is wrong inside my breast, so I'll focus on those things over which I do have some control -- such as the appearance of my breast (Reconstruction?) and my treatment (Mastectomy? Tamoxifen?)." Those things kept my mind busy, so I didn't have to think as much about the biggest issue, which was, "I am so unbelievably terrified that this might kill me." For me, the whole thing seemed totally surreal...until I saw my breast for the first time after the surgery.
The emotional part of this journey can be really difficult, but you've got to GO through it to GET through it. The women on the forum are such angels and such pillars of strength, and when you need them they are there without fail.
I wish you a very uneventful surgery and speedy recovery. You will be in my prayers.
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I had a modified radical mastectomy on my right breast. I was apprehensive when the nurse changed the dressing. I looked down and my reaction was "That's not bad! I can live with that!"
When I had my left breast removed 7 months later (simple mastectomy), I looked in the mirror and cheered: "Yes! Yes! They are finally gone!!"
Unless you have massive breasts like I had, you probably would not understand the joy and relief of getting rid of those things.
After two years of going flat chested, I decided to have reconstruction and now have b cup sized breasts.
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"Relief" was exactly what I felt.
I had a modified radical mast w/ SNB on the left side almost 2 years ago. I declined recon, and asked my surgeon to leave me with a flat, smooth scar -- no extra tissue left behind "just in case". When I woke up in the Recovery Room, I had a thick, padded bandage covering that side, with 2 drain tubes exiting under my arm.
The next morning, the chief surgical fellow and her training entourage (it's a teaching hospital, after all...) came in to see how I was doing and to check the incision. The entourage included other fellows and residents as well as medical students -- perhaps 10 people in all, of both genders. The fellow was very gentle and careful as she tried to reach through the overlapped sides of my gown and pull off the tape without exposing any body parts to members of the audience. She was having trouble accessing the edges of the bandage, though, so I finally suggested that we just unsnap the shoulder of the gown to get at the whole bandage. I popped the snaps, she pulled off the tape and the bandage, and, voila! There was the incision...
It was a nice, flat, smooth, red line, covered with dozens of tiny SteriStrips. The incision was about the width (thickness) of a pencil lead, and it extended from the middle of my chest (at the sternum) all the way over to somewhere near the back of my left armpit. There was not a suture in sight, because they were all "buried" (subcuticular sutures).
All I could think of was, "Wow -- that's pretty slick, considering how much tissue used to be there." And I was relieved to know that the surgical part of this was over (or very nearly so), and the entire tumor was out of my body and was sitting in a jar in the pathology lab.
That's just me, though. I'm pretty stoic about things sometimes.
otter
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I too was very frightened to look or even think about how it woul look beforehand. And when I was in the hospital, I didn't look. When i was sent home, I had a constant binder on until my first PS appt to take out the drains. Like a child, I squeezed my eyes shut tight and asked my PS and DH to tell me how bad it looked. lol. Once they assured me I looked fine--something in their voices convinced me--I peeked. And was not shocked or upset. I didn't think it looked bad at all. Not what I would have chosen in a perfect world but I felt good anyway. It was all rather anti-climactic. I see you are probably already well into your recovery, I hope all went well!
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I had a left modified radical mastectomy and when I first saw my incision, I was not upset and it didn't shock me. I recall thinking that it was not as bad as I thought it would be and that I could live with it. My husband's been really supportive also.
I've pretty much worked in the health field most of my adult life, so I'm used to seeing cuts,incisions, etc.
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My reaction was relief. I had looked at a lot of pictures on the internet. I felt some looked pretty good and honestly some truely scared me. I had thin red lines and looked better than almost all of the pictures I had looked at when I saw my breasts for the first time. My tissue expanders had been filled so that I was just slightly smaller than before surgery.
The hardest thing to get used to was catching a glimpse of myself in the mirror without nipples. This usually happened when walking by the full length mirror we have in our bedroom on my way to the shower. The brain is just so used to nipples, it kind of freaks it out when they're not there!
DH has been so supportive. He just keeps saying "they're just boobs" and "I didn't marry you for your boobs". I really love him for saying those things.
Julie
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My breast looked really good at first but now for the past month the nipple is squished in. I feel guilty for caring about it when being alive is what matters but I'm just so bummed because I had been so happy about the results before. Also I'm blaming myself because it happened after I wore a super tight sports bra for a week or two to try to get rid of fluid. This is a hard thing to go through but we will all adjust with time. I try now to focus on nice things I can do like walk on the beach.
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