two days ago first chemo

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beija
beija Member Posts: 42

I had my first chemo treatment two days ago.  the place was so depresing i just got tears on my eyes and was trying not to cry but it was hard.  Of course i went with my wonderful boyfriend that has been side by side with me on everystep.  It was two little rooms filled with very old weak looking ppl, the rooms looked so sad walls beig and in one of the rooms a little tv.  I just cant really describe the bad impression it gave me. my boyfriend hugged me and told me to be strong but i cuold tell he was holding back his tears.  He went to my doctor to see if i could get the treatment at another hospital.  Then we started talking to the nurse and she was very nice to the point where the room wasn't that important anymore. 

Since last night I havent been feeling well.  My stomach is really bothering me when i eat it just makes me feel ill, i have to lay down and.  My head is hurting a lot.  I'm taking a pill for sympthoms for three days and i still feel bad but I know it will get better.  I will get chemo every 21 days.  I was told I'll loss my hear in about 2 weeks and that is something that will be very hard to deal with.  I just wish i could feel good.

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  • friscosmom
    friscosmom Member Posts: 146
    edited December 2009

    How sad. I start my chemo treatments on the 14th, haven't seen the treatment rooms yet, I sure hope they aren't like that. This is depressing enough as it is. I will say though that every time I've been at the oncologist the people in the waiting room are always so sickly and frail looking which is very sad; I feel so bad for them and at the same time wonder if/when that will be me.

  • beija
    beija Member Posts: 42
    edited December 2009

    Not all treatment rooms are the same they say at the hospital where my surgeon practices is better.  Im being treated at the hospital of my oncologist.  I don't know how I'll  react when its time to go to treatment again, im glad it's not that soon.  I feel bad for ppl there too but I really don't want to end up like that.  I keep telling myself that what doesn't destroys us makes us stronger.  We will be fine

  • meb
    meb Member Posts: 28
    edited December 2009

    My first treatment, I had to look out the window the whole time but, it gets easier. My place of treatment had about fifty chairs, full all the time. Lots of different stages, helps you count your blessings. The first few treatments seem to hit me the hardest. It was easier to shave my head before it started falling out (even though that happens with the GI Jane look as well), at that point I had my daughter get out the razor. At least I felt in control of something. Finished chemo and rads in June, my hair is about 2 " long and instead of being straight came in very very curly....but it's hair. It isn't easy but you can do it. Take it one day at a time.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited December 2009

    Beija, I'm so sorry the infusion room was depressing.  Is there another room you can receive chemo in?  If not, please hold on to the fact that the nurse was so nice to you and be sure and talk to her next time--you can even tell her how you are feeling.  I just finished chemo the end of November--and I remember when I had my first consultation with an oncologist--i ended up going early for my appointment (1 hour) and boy, was i ever glad i did.  The room was so crowded and all the coming and going--it just didn't feel good at all.  The oncologist i went to see was absolutely one of the top but I knew I couldn't heal in an environment like that.  So i was given another onc doc's name and it has worked out so well--and looking back on my appointment, my new oncologist took me to meet the oncology staff who worked in the infustion room and to see the room, which was so kind.  It will get better, Beija.  Keep us posted.

       friscosmom:  I love Paints!!  I rode a red and white tovero for 3 years.  but gettin back to chemo, why don't you ask to see the infustion room before your first chemo?  That might make it easier.  Another suggestion is to take several friends with you.  As you can see from aboved, I finished chemo at the end of November--I was absolutely terrified and i ended up getting throught it so well.

    On a happier note, tell me about frisco, if you feel like it.

    Lizzie 

  • beija
    beija Member Posts: 42
    edited December 2009

    It makes it better when ppl understand.  yesturday was not good today it's worse.  I cant even hold down water so in a while Im going to the hospital so the nurse can give me some medicine. 

    Med your place of treatment sounds bad too.  I think that what made it better was having my boyfriend.  when will I feel better? when will i be able to drink water or eat anything without feeling so bad?

  • beija
    beija Member Posts: 42
    edited December 2009

    Hi Madalyn

    They are giving me Adrimycin and cytoxan.  The nurse did give me a somewhat magic potion jajaja.  I feel a litle bit better and at least i could eat some potato with nothing. I never thought I would love that jajaja.  Im glad you told me Im going to feel better for at least two weeks because this is hard to take but i have to hang in there.  thanx for everything

  • friscosmom
    friscosmom Member Posts: 146
    edited December 2009

    beija - glad they were able to give you something to make you feel better. I'm a few weeks behind you for my first treatment so I'm a bit in the dark about the side effects. Well, I mean, I know what I've read, but the oncologist keeps saying "you're not going to feel yucky". He said with all the anti-nausea meds now that I should experience little to no nausea. I don't believe him but I hope he proves me wrong. Take care and hope you're feeling more normal in a few days.

    cowgirl13 - thanks for the encouraging words, I'm supposed to consult with a chemo nurse and I'm guessing I'll see the treatment room then, but that's just 2 days before my first treatment. My husband will be going with me for my treatments. I love paints too, Frisco is 9 years old, we just trail ride. I'm going to try my best to keep riding some during treatment, maybe that second week when you start feeling more normal I can get in a ride. I don't want to give up everyting I love because of this cruddy disease.

  • casaredonda
    casaredonda Member Posts: 37
    edited December 2009

    I had my chemo in 2007 but I remember it well.  I live in a rural community and we had our tx at the oncologists office,  It was a weird place to be in as they had shared space with the doctor I worked with as a back office nurse (OB/Gyn) and now it was totally devoted to oncology/hematology.  However I knew all the staff and so that helped.  There were only about 8 chairs in the room, and the most depressing part was the conversations the other patients had with each other.  So from the first time on, I arranged to have a friend come and sit with me to distract me from the chatter.  I tried to listen to music on my portable player but from the first few drops of medications I started feeling weird.  Headache, antsy, feeling ill in a non specific way.

    I had made a point of viewing the whole process simply as strong medicine with inevitable side effects and trying to go along.  By the 5th treatment I decided to stop as the side effects of the taxotere were too intense and so when I came in for #6 I told my onc (who I did not like that much) that I was quitting and he was surprised to see me crying, he said he had never seen me cry - I guess he didn't see the boxes of tissues I had gone through since the Dx.  I said I could not tolerate the taxotere and he told me it could be omitted and he would just increase the cytoxan and adriamycin doses.  I was pretty worn out by then so it was a relief to have that part of the treatment end.  2 years later, it's just a memory and as a result of having gone through some really painful and stressful days, I feel stronger, braver and able to handle all kinds of stuff.

    So to all of you struggling with pain, weakness, headaches, lack of appetite and what ever else, I say, this too shall pass and be just a memory.  You are all brave.

  • beija
    beija Member Posts: 42
    edited December 2009

    Hi franciscomom:

    I am going to be honest my oncologist told me that she was going to give me meds for the side effects and she did but it wasn't enough.  Since I felt the lump on my breast I have tried to expect the worse but in a way of looking at preparing me for what will happen not in a negative way, i don;t know if you understand what I'm saying.  With the treatment I didn't expect it to be that bad and it was a mistake. the nurse told me that the doctors send you meds but not too much and they wait to see how you react ans for the next treatment they will prepare me better and give me strong meds.  Today I feel better and I'm so happy.  I'm not feeling myself yet but as long as my stomache is better I'm happy.  I just started walking this road and it is really hard  but  Franciscomom we have to keep on walking and at the end we will defeat this and like casaredonda said we will fill stronger and braver.  I would like to keep in touch with all because you guys have helped sooooo much Here in Puerto Rico my mom knows someone that had breast cancer and she actually got treated with the same dr but the day i spoke to her all she did was give me instructions to give to the doctor and just so many thingsbased on what she heard from my mom that I think she is best to keep in touch with my mom and not me.  I guess here in Puerto Rico we have a culture thing that just doesn't  go with me.  So I'm soooooo thankfull I have this website

  • beija
    beija Member Posts: 42
    edited January 2010

    Thnks for the suggestion madalyn, i'm actually going to sit down to remember and write them down

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