i'm getting sad, can you understand?

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beija
beija Member Posts: 42
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Hi

 I already posted one topic " 32yrs no familly breast cancer but ovarian" I was diagnosed with breast cancer on November 5th, till today I havn't recieved treatment.  It's been such a long process. I felt the lump on October 3erd and  went from test to test.  After being Diagnosed it's been test after test of course tah meanse that I've missed work and thats okay.  It has taken so long because everytime i've done a testI have to go to my medical Plan or I think you say insurence(i'm from Puerto Rico excuse my english) then of course they don't do thing correctly and i end up going again.  Finally two weeks ago I was able to finish all the studies.  On december 3erd I had surgery to get a medical port. The surgeon wanted me too get chemo the next day but the oncologist was on vacation. 

I got an appointment last week.  She (oncologist) gave me the referral for my health plan and told me that maybe they will give me a paper for her to fill out but i could leave it with her assistant and she would go back and sign it. I went to my medicao plan and they gave me the paper. I took the paper to the doctors affice and the asiistant told me the doctro would be there on Monday (it was Thursday) I thought the doctor gave her another instruction but i told her the doctor wanted this done so i could start my chemo on Wednesday.  Monday comes and i call the women tells me the doctor wont come till Thursday.  I told her that the doctor needed to sign the papers because she wanted to start the treatment on Wednesday and that my medical plan sends the papers to another place and I need to wait three work days to get the approval and that the hospital gives chemo only on Mondays, Tuesdays and Wednesdays, not only that, I have to buy the chemo because the hospital doesn't provide it. This women got mad and told me the the doctor is on vacation and she cant do anything.  

I am just feeling so down I mean the doctor was so nice but this women is just givivng me an attitude when the doctor was the one to tell me that she would go back to the office to start treatment.  How can people be so insensitive and assume a position that is not thiers. Today is Thursday the women called me to say the papers are ready Im going to send my boyfriend because eventhoug i can get out of my job i dont want to go to that office.  Now everytime somebody asks me about my condition i just feel blue.  

Now my bf will pick up the paper I'll leave work to get the papers for my medical plan so they have three work days to give it back to me, to then buy the chemo and give the papers to the hospital. I don't think next week Ill be able to do this on time for chemo. I'M JUST FED UP WITH EVRYTHING!. How can you be positive with all this,when ppl make thing difficult. I need to hear someone who understands.

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  • Laughjoyfully
    Laughjoyfully Member Posts: 174
    edited December 2009

    I am so sorry this is happening to you. I had different things holding up my treatment for nearly a year after all the tests and then a nurse being obstructive. In the end I had to get three opinions and then insist on starting treatment. I didn't want to go to the office or deal with anyone -  then I found the person who was so mean to me on the phone, was really kind and nice she realised I did have cancer.  So maybe that lady will get a better attitude.  I talked to the doctor about my mean one -  twice. He must have said something as her attitufe got better.

    Tell your doctor when you see her and she will make sure things are smoother for you, I am sure.

     Linda

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  • PS73
    PS73 Member Posts: 469
    edited December 2009

    :( sorry to hear it.  It sucks, there is no other way to slice it. 

    Im not exactly sure how PR works with treatment of cancer (besides the fact that you pre-pay for your chemo -crazy)!  Do you have the BRCA test?  This is a test which determines if you have a genetic predisposition to Breast Cancer and Ovarian Cancer.  It helps in choosing your surgery and treatment options. More studies are coming out experimentally on other genetic factors like ovarian without being BRCA positve but these aren't finished yet.  Note that only about 15% of women who are dx w/ BC have a family history of  BC.  Stats that most outside of the BC world do not realize (why would they though).  How about the rest of your tests?  Since you are tenatively starting chemo, you should have the pathology back.  I think this is the IDC forum but I don't remember. 

    Anyway, It's completely ok to feel sad.  Its ok to feel angry and it's not fair that it has happened to you.  Fairness is not a factor with cancer unfortunately but you will get thru it.  It sounds like your boyfriend is a wonderful and supportive man.  Do you want children?  If so, have you looked into fertility options?  I say this not to scare you but to prepare you.  Sometimes depending on what type of treatment you get, a young woman can get pushed into menopause so it's good to have this taken care of prior to treatment.  You will likely you will regain your menses at 32 if all was normal prior to dx but again but the fertility is an insurance policy.

    Good luck, the begining is the scariest part.

    ps - tell the dr about the nasty receptionist!!

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  • Hoolianama0508
    Hoolianama0508 Member Posts: 162
    edited December 2009

    I am sorry to hear that you are being treated this way. I would be sad too. There is no reason for anyone to be insensitive towards you. I think it may help if you have people help you with appointments. I would let the doctor know that you are having trouble.

    I had a similar experience here in Orlando, FL. On my first appointment to meet with the surgeon, his secretary told me, "we don't take your insurance", and then she rolled her eyes and walked away. Luckily another assistant knew better and showed this insensitive woman where to look on her computer. I was almost in tears and I thought how can anyone in her job be so unfeeling?

    I will say a prayer for you.  

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  • beija
    beija Member Posts: 42
    edited December 2009

    thanks for understanding.  I started chemo two days ago and today its been a litle ruff on me but hey i know things will get better. 

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  • valeriekd
    valeriekd Member Posts: 287
    edited December 2009

    Hi beija- It makes me wonder why people get into healthcare when they are so insensitive to others.I'm sorry that happened. Unfortunately, being overwhelmed and sad is also part of this trip. I cried most of the day today (i have had 4 of 6 txs) b/c it seems so long and my sxs get harder w/ each tx. Sometimes it just feels sad and lonely - no matter how people are - its ok to cry. This board has been a Godsend for me. Keep coming!

    Valerie 

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  • beija
    beija Member Posts: 42
    edited December 2009

    It's good to now it's ok to be sad.  Yesturday i went to the hospital and the nurse did give me a magic potion and it made me better jajaja.  But last night I threw up again but just a litle bit.  It's good to know things can get better.  The nurse told me that when I go back to treatment on the 13 of January they will give me more meds to try to control the symptoms. This is tough and no matter what they say even though you look at things in a positive way to go through this is really ruff. I'm so glad for this board because I only teol my boyfriend but not my family about how I'm feeling.  Sometimes I just feel It's hard enough for all of them that I just don't want them to feel worse.  My grandpa died of cancer last year and my grandma was diagnosed with terminal Ovarian cancer in july of this year and now me.  I do feel blessed that my condition is not that bad compared to others.  But this has really hard to take and right now i cant even look at food it makes me sick, today i'll eat potato with nothing mmmm yummy :)

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