Just diagnosed...going for MRI before surgery

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LINDAGARSIDE
LINDAGARSIDE Member Posts: 345

I am new to this...and very afraid as I'm sure we all are.  My tumor is 1c by 2c and not sure how long it has been there.  I will have surgery before January 15th but tomorrow will go for an MRI.  I have a blue feeling about everything but my surgeon (who my husband and I simply adore) said my cancer is a "run of the mill" cancer and one she deals with all the time.  She sounds so positive...and I'm so afraid.  They can't stage (as you all probably know) until the actual surgery.  Anyway...I'm just wondering a few things.... 1)  Is the size of my tumor average?  2)  If my cancer is stage 2 or more and in the lymph glands...is there a general prognosis? 

I can't really talk to my husband about this as he gets a little upset with me as he is quite certain it all going to be ok.  I'm starting to have pain everywhere in my body and I'm imagining it in my bones...my back etc etc.  Today I saw a small lump on my index finger and immediately I thought..."Uh Oh"...cancer of the finger. 

Comments

  • Jill1965
    Jill1965 Member Posts: 11
    edited December 2009

    Linda, maybe the MRI images will help you process this.  It did for me.  My breasts are so fibrocystic that the tumor does not even show on a mammogram.  On the MRI, it is clear as day.  I found it myself and insisted on the MRI before I would even let them biopsy it.  Now that I can see it, I can focus on that bugger as the target.  Keep your focus there, one day at a time is what I've been doing since my diagnosis earlier this month.  Just one day at a time and research, research, research!  Also, find out if you are HER-2 positive and the Ki67 rate.  That makes a difference in prognosis and adjuvant therapy.  This board has such a wealth of information and I've gained such strength and hope from the strong women who post here.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited December 2009

    Thank you, Jill.  Your advice is well received and I needed to hear it.  I don't know how to find out if I'm "HER-2 positive or the Ki67 rate" as I don't know what either of those terms mean.  I'm looking at my report and it says:  "Diagnosis:  right breast needle biopsy:  invasive ductal carcinoma, nuclear ER positive (100%).  and then down the page it says "Microscopic Descripton" and it says "Sections confirm a sclerosing invasive ductal carcinoma with some areas having an infiltrative pattern mimicking lobular carcinoma (but strongly e-cadherine positive). About 15% of the lesion is solid/cribriform DCIS.  The tumor is strongly nuclear ER positive (100%)"

    On another report I have it says the tumor is 1c by 2 c and taller than it is wide. 

    Jill, does any of what I've told you say if I'm HER-2 or Ki67?  Thanks so much!

  • Sunflower64
    Sunflower64 Member Posts: 166
    edited December 2009

    Hi Linda,

    We have a similiar dx. My surgeon told me that about 80% of breast cancer is IDC. I can't comment if your tumor is average because everyone seems to have different sizes. Staging will depend on size and lymph nodes involved. I had one lymph node involved and I am stage IIb. My onco discussed survival rates with me and I have a 87% chance of surviving 10 yrs. They say 10 years because that is how long the study was. But I could live way longer than that. I understand about your husband my husband doesn't want to talk about it anymore either and he hates that I go on this site. He has been really supportive since April but he says he needs to be strong and positive for our daughter (5yrs old) and I need to be too. You will find so much support here and answers to all your fears. It does get easier to deal with. Private message me anytime you need me.

    Try to have a nice holiday.

    Hugs,

    Diane 

  • Sunflower64
    Sunflower64 Member Posts: 166
    edited December 2009

    Linda,

    One more thing being 100% ER positive is a really good thing. That means that your tumor is 100% receptive to hormonal therapy (estrogen blockers). Your tumor is fueled by estrogen. I am 90% receptive and I will be taking Tamoxifen when my radiation is over.

    Hang in there,

    Diane

  • cookiegal
    cookiegal Member Posts: 3,296
    edited December 2009

    the 100 er also means your tumor is a slow grower, and yes that is an average size.

    Node positive isn't the best, but the survival rates for 1-3 nodes are not really that much worse than node neg.

    I did not find out KI67 and HER till after surgery.

    Keep in mind biopsy information is an estimate, it all will change in your final path.

    Good luck :)

  • jrlegal
    jrlegal Member Posts: 27
    edited December 2009

    Hi what does KI67 mean. I was just diagnosed on 12/21/09 and just got my biopsy report. Is ER /PR positive good and I guess the HER-2 is pending the FISH report.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited December 2009

    Merry Christmas.  I wanted to mention that I had an MRI done yesterday.  Is this normal for everyone to have an MRI before surgery?  They said "urgent" but I think that could be because they wanted to make sure they had it done before surgery?  I still don't have a date for surgery, but due to the holidays it isn't surprising I guess.  Does the radiologist and/or technitian pretty much know immediately when they do an MRI if the cancer has spread?  I'm wondering about this because everyone was so super friendly to me before the test but after the test hardly anyone would make eye contact and nobody was joking around anymore.  Nobody was rude but the atmosphere had changed for sure.  I don't know ...  perhaps I'm imagining it but I don't think so.  My husband says I'm becoming a little paranoid but honestly...this is what it seemed like to me.  I am still in a state of shock about it all.  It is like I'm in my own dream and keep waiting to wake up.  I suppose everyone on this site knows exactly what I mean as I'm guessing it is how we all feel.  Oh my.  What a state of affairs...  LOL...what can we do?  If we don't laugh we might start to cry .. sorry for being blue.  Everyone has gone out for a walk and I'm tidying up and thinking about other cancer surviors/victims...and wanted to post.  Take care....

  • jrlegal
    jrlegal Member Posts: 27
    edited December 2009

    Hi Linda, I know how you feel. I want to wake up too and say it was all a bad dream. But trying to go about my business and not dwell too much(hard to do) I keep thinking it is a mistake. Hopefully, they will just take out the tumor and that will be the end. Yeah, the reports are hard to read and not sure what it all means. But I guess once they go in, they'll know more. Hope you had a nice Holiday and stay positive.

  • tkone
    tkone Member Posts: 511
    edited December 2009

    Hi Linda,

    I'm not sure there is ever a "normal" where cancer is concerned.  Everyone's diagnosis and treatment is different but it sounds like your doctors are making sure they have all the information by doing the MRI before surgery.  In my opinion, this is a good thing.  You want to have as much information as possible. 

    "Run of the mill" likely is in response to the Invasive Ductal diagnosis and the Estrogen positive aspect of it.  These are more the "garden variety" of cancer than some others.  It is what I was diagnosed with and I will tell you that I found some comfort in knowing that if I had to have cancer, I was happy to have one that was well researched and that treatment options were well sampled. 

    There isn't really an average size of a tumor.  It really depends on when it is found, but it sounds like yours was found relatively early based on the size (just my opinion, not an expert opinion).

    Go ahead and worry and be concerned, angry, sad, mad, whatever.  You are going to have a lot of feelings about being diagnosed and you might as well just go through the feelings so you are better equipped to deal with the action plan when it comes time.

    Best of luck to you!

    Tracy

  • nancyva
    nancyva Member Posts: 1
    edited December 2009

    Hi Linda,   I was diagnosed after a needle biopsy and received the bad news on 11-13-09l  I went for  an MRI the following Monday which showed some more "suspicious" areas in both breasts.  After a day of worrying and follow-up Digital Mammograms and Ultrasounds, the Radiologist decided that the only  cancer I had was the 2 cm. mass at the top of the left breast.  I decided to go ahead and have a total mastectomy which was done the day before Thanksgiving.   I have done extremely well, the Sentinel Node was Negative and I am Estrogen Receptive (which the surgeon says is "Good")  I had Oncotesting done and my score is 14 for recurrence.   This  will decide if I have to have Chemotherapy .  I will find out next tuesday.    I am scared but am trusting that God will be with me as he has been through this whole ordeal.   Good luck to you.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited December 2009

    Hi Nancy,

    Wow....did you have a double masectomy?  I'm curious as initially that is what I wanted as well but the surgeon recommends a lumpetcomy and then radiation.  She states either way I will an 8% chance of the cancer coming back.  I go for my surger on Jaunary 8th at 12:45 p.m....and yes...I'm quite nervous.  The MRI showed that nothing looks suspcious in the lymph system and the cancer or tumor seems to be in an area that will be easy to get at (right breast, at 12:00)...funny to have your breasts referred to as a clock.  The MRI also showed a "benign" small thing on the tail of an axillary thing on my left breast.  How can they know it is benign is what I'd like to know.  Apparently they know these things.  At any rate I'm going to ask my surgeon to do a biopsy on the sucker.  I sure hope I don't have cancer in my lymph system...but one step at a time, right?  Like you...my cancer is estrogen receptive (100%).  I've never heard of the scoring thing.  Is 14 a good number?  Is 2 a bad number?  Is 50 bad?  How does it work and what are they measuring?  I know very little I'm afraid.  For being diagnosed in November you are doing quite well, don't you think?  You were diagnosed around the time I had a mamogram.  The only reason I booked the mamogram appointment was because the taxi driver took me to the wrong building.  I noticed (after wondering around lost) the mamogram sign and realized it was probably time for one!  It had been almost 3 years!  Sure hope it wasn't too late.  Anyway...I will never complain about taxi drivers who don't know the city that well ever again.  His error may have well saved my life.  I will be thanking him when this is done.  I was under the impression if there wasn't any cancer in the lymph system that you didn't need chemo therapy?  Perhaps I'm wrong on this?  Thanks for any information you can help me with.  Good luck on your chemo...it sounds like the Lord is guiding you and has control of things...truly.  Hugs your way...

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited December 2009

    Hi Jrlegal,

    Have you had your surgery yet?  Thanks for your note....take care and try not to be too afraid...if it helps any...pretend to take my hand and I'll take yours.  Somehow that helps even though it's virtual...don't you think? 

  • jrlegal
    jrlegal Member Posts: 27
    edited December 2009

    Hi. Well went today for another mamogram/ultrasound and to make a very long story short was told not needed and ended up w/another doctor who wants to do a MRI to make sure no other tumors on other side of left breast. Also he says I will have to have chemo which I was trying to avoid by doing a lumpectomy/radiation. I don't want to add bad things into my body anymore than is already there - get my drift??!  So...chemo yes or no? I know they have medication to counter some of the side effects but I am one that doesn't even like to take aspirin. I have always tried to be healthy and active. If I'm feeling so...good now I think why ruin a good thing? I keep changing my mind and saying now just do the lumpectomy/radiation and let's see what happens after that? Is that such a bad idea? 

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited December 2009

    Hi there.  Talk about bad things in your body...how about cancer?  That's about as bad as it can get in my opinion.  I think you need to fight fire with fire.  Do not give the cancer an opportunity to grow.  Kill it dead. If they recommend chemo, then take it and then move on with your life and with living.

    My sister had radiation and chemo (she had cancer of the anus) and she has been cancer free for almost 6 years now.  She, like you, was very concerned about what she put into her body and was concerned about the chemo.  Without the chemo, she wouldn't be around today for me to talk to and so she would be the first one to tell you the same thing. Take the weapons you are provided and fight the fight. 

    Anyway...that is definitely my opinion on this.  Others??

  • flash
    flash Member Posts: 1,685
    edited January 2010

    JR- I never took anything before this journey started. I originally thought like you. Now, you need to make sure you understand the current information on the particular type of chemo you are doing.  I did chemo and found it very doable.  I decided to do it after talking with many stage iv women in chat who said "ask yourself, would you regret the decision if the cancer came back?  Are you prepared to take the risk that it will come back?"  For me, I wasn't prepared to take the % risk so I did the chemo.  you  must do what is right for you. Just make sure you're  making an accurate intellectual decision not an emotional one.

    Linda- good luck on the 8th.  I hope it all goes smoothly for you with 0 nodes.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited January 2010

    Hi Flash

    thank you for your comments.  We are hoping for zero nodes as well....stay tuned.. :-)

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