er/pr negative, her 2 positive, stage II

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GramE
GramE Member Posts: 5,056
edited June 2014 in Stage I Breast Cancer

I thought I would start this sub topic.  Welcome and Hugs,   Nancy

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  • Warrior517
    Warrior517 Member Posts: 355
    edited November 2009

    I fall somewhat in this category....I am a Stage II Her2 girl BUT I am also Estrogen Positive! I guess I can cover all my bases! lol

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  • AnnaM
    AnnaM Member Posts: 1,387
    edited November 2009

    Stage II, ER-/PR-/Her2+++ on the micromets side, but

    ER+/PR+ on the prophylactic, LCIS side

    I guess we really are like thumbprints, no two alike . . .

    I am being treated as an ER-/PR-/Her2+++ person, namely one full year of Herceptin but no hormone tweaking at all.

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  • GramE
    GramE Member Posts: 5,056
    edited November 2009

    Hi warrior and anna.   I hope the weekend is good to you.   

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  • WordDoctor
    WordDoctor Member Posts: 15
    edited November 2009

    Hi,

    The original pathology report told me that I'm hormone negative but HER2 positive. I just had a SNB and lumpectomy on Wed. The doctor says the first node looks hot, but the other two don't look to be involved. I should find out in a couple of days. So I seem to fit firmly in this group. I won't see an oncologist for a few weeks still, but I'm expecting chemo and Herceptin, followed by rads.

    Linda 

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  • GramE
    GramE Member Posts: 5,056
    edited November 2009

    I am good to go for only an annual mammogram since Thursday's 6 month mammo and surgeon review of it.    Welcome Linda - feel free to ask away as I am 18 month's since diagnosis, 16 rounds of dose dense chemo, lumpectomy, and a year of herceptin, no rads, no node involvement.  Good luck on your consult coming up.   

    I am one of the old pharts - 62 when diagnosed, coming up on 64 in January.  Widowed in 2003 after 33 years married to "my George", one son who is expecting his first child in March.   I sold our house 3 years ago in Pittsburgh and moved into an apartment closer to my son in Virginia.   My treatments have been at Georgetown University Hospital in DC.     

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  • cmharris59
    cmharris59 Member Posts: 496
    edited November 2009

    Hi all,

    I am over 2 yrs since dx and have had neoadjuvant chemo, mast, adjuvant chemo, rads, stopped Herceptin due to heart issues, and waiting still for recon (officially 2 yrs to the day past my mx). 

    I had no risk factors and was dxed at 48. I was considered fit and healthy. I am now on LTD due to SEs from tx.

    C

    (edited for spelling typos)

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  • GramE
    GramE Member Posts: 5,056
    edited November 2009

    I like your signature quote, C.  Welcome,  keep us posted on your progress.   

    I had my 6 month follow up echocardiogram and mammogram on Thursday and got the ALL CLEAR and come back in a year.   Happy Dancing is what I did out to my car in the parking lot !!!

    Hugs and Blessings,   Nancy 

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  • cparandjuk
    cparandjuk Member Posts: 33
    edited November 2009

    Hello all,

    I am 1 year since DX, had 5 months chemo (TCH), still going to the lab for Herceptin (until mid-January), double mast and recon.  I have one additional nip/tuck recon surgery next week to repair a few areas I am unhappy with and then will begin taking tamoxifen in December.  I am having echocardiograms every 6 mos and so far no heart damage, my heart is not functioning at the level it was before DX -- simply because I can't work out everyday as I was before DX...

    I was 43 at DX, considered very fit and healthy with no risk factors. 

    Thanks for this tread.  Nice to find others in the same boat.

    C, I too LOVE the signature quite!

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  • GramE
    GramE Member Posts: 5,056
    edited November 2009

    Hi cp, welcome.  Are you hormone positive and the reason for tamoxifen?   Herceptin can cause a decrease in heart function.  I rarely worked out and my heart function remained the same all thru treatment, including the year of herceptin.   I had muga scans every 3 months while in treatment.   

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited November 2009

    Congratulations on the all clear mammo and echo, Nancy!

    I've "met" some of you on other sites, so hi and welcome. Quick history - two lumpectomies, but DCIS had spread up to to the margins, so I had a unilateral mastectomy in March of 2008. Then Taxol/Carboplatin/Herceptin x 6 and Herceptin for a year. Clear PET scan in June and feeling great!

    Like Nancy, I had stable MUGA scans throughout Herceptin treatment. Today I had an IV tx of Reclast (like Zometa, which is what I wanted, but Reclast is what my insurance company would pay for.) And I found out that my oncologist is going to be an administrator for the Neratinib (sp?) clinical trial which is for US - early stage Her2+ women up to two years after Herceptin. So I'm definitely considering joining.

    Nice to have this thread!

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  • Estepp
    Estepp Member Posts: 6,416
    edited November 2009

    100% Her2 gal here too... HI NANCY!....

    I do not know my stage 100% though. Chemo first.. so they know I was stage 2 or 3....

    who cares really... it is just a number....

    Hugs!

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  • GramE
    GramE Member Posts: 5,056
    edited November 2009

    Hi and thanks.  I had a Zometa infusion about a month ago.  Since I am way past menopause at age 63, and I had taken Actonel and Evista for osteoporosis prevention and osteopenia treatment, I asked for the "once a year" infusion and my onco said it was an excellent idea.  BUT, to keep taking Calcium and Vitamin D.   

    I stopped Actonel and Evista when I began chemo.  Now I avoid forgetting to take the dang pills - did I mention I hate pills???   And the massive co pay since there are no generics for them.  And forgetting to refill the Rx.  

    Estepp, that's what we all are, just another number !!!  Hugs, Nancy 

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  • cmharris59
    cmharris59 Member Posts: 496
    edited November 2009

    Hi all,

    Thanks for the compliments about my signature quote.

    My update: DIEP surgery scheduled for Dec 21 with a prolonged stay in rehab hospital since I live alone and they have finally figured out that they cannot just discharge me and put me out on the street after major surgery. LOL

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  • mmm5
    mmm5 Member Posts: 1,470
    edited December 2009

    warrior and Anna

    what type of hormone treatment are you getting, Anna you say you were somewhat positive what made them decide not to do anything about that? See my post on hormone/early stagers?

    Warrior what hormone treatment are you doing? What were your gals percentages on ER

    I was only weakly positive at 16 percent and just can' t decide what to do going forward, see my other thread.

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  • AnnaM
    AnnaM Member Posts: 1,387
    edited December 2009

    I was ER/PR positive only on the prophylactic LCIS side, no cancer cells there. On the micromets side I was ER/PR negative and Her2+++. I got five opinions (yep, I overdid it a bit) and only one said I might consider the hormone treatment, but even she said she wouldn't do it herself. My choice was pretty easy, esp. given the fact that I was already showing signs of osteopenia.

    I'm not sure what you mean about your other thread.

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  • cat60
    cat60 Member Posts: 61
    edited December 2009

    Hi,

     I am HER2 + , ER-/PR-....Stage 2 (as of right now)  --Grade 3....Mammo showed DCIS R Breast, surgeon found one Lymph node next to breast that tested positve....Currently have completed 3 A/C treatments,  Last one on Dec. 28th....

    Having Masectomy on Jan 12th....I will be on Taxol 12 wk, with Herceptin for 1 yr.....then Rads for 5 weeks after Taxol....so overwhelming...I try to focus on just each block of treatment, of course it all seems like a bad dream but handling it all fine...Ive been working , missing day of Chemo of course...and other Dr appts .......

    Im so glad this thread was started also...sometimes reading I feel like there is not alot of women who are HER2 + , maybe Im wrong..

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  • jrlegal
    jrlegal Member Posts: 27
    edited December 2009

    Hi ladies. Just diag yesterday w/IDC. Not sure of the rest yet. See surgeon on12/28/09. Been nonstop crying since! How do you know a "good doctor"? I was referred to the surgeon by my OBGYN, who is new as well. My last OBGYN of 12 years got sick and quit. Anyway, do I get a second opinion of the biopsy or are they really accurate.

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  • GramE
    GramE Member Posts: 5,056
    edited December 2009

    The biopsy should be accurate but the plan/course of treatment could vary greatly from one surgeon or oncologist to another.   A good doctor should answer any question and not regard you as  a bother.   Write down questions and hand the doctor a copy.   If a mastectomy is suggested, for example, there is the question of reconstruction, which would require a plastic surgeon.    And a "good" oncologist will have an emergency # for off hours.   

    The job of a surgeon is to cut (surgery).  The job of a medical oncologist is to prescribe chemo and /or other drugs (such as herceptin, which is a monoclonal antibody) .   The job of a  radiation oncologist is to prescribe radiation treatments.  Coordinating these things is mind boggling and you will learn many new medical terms. 

    Cathy, that is why I started this thread - not many er/pr -, Her2 + in my experience on this site.   I had chemo - A/C, taxol & herceptin,  tumor shrunk to nothing,  lumpectomy & sentinel node biopsy (0 nodes involved), herceptin for a year and do not have to go back for another mammo until Nov 2010.   It is a long story, but I opted NOT to do radiation.   

    It is overwhelming, in case I did not mention it before...   I thought with a mastectomy, radiation was not required.    Keep in touch.   I am here to discuss, offer suggestions & support, and I am dancing with NED (No Evidence of Disease).    Hugs,    Nancy

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  • jrlegal
    jrlegal Member Posts: 27
    edited December 2009

    Hi Nancy, So an oncologist would not do any surgery?

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  • GramE
    GramE Member Posts: 5,056
    edited December 2009

    jrlegal, that is my understanding.   An oncologist is basically a hematologist (blood doctor) - analyzes blood work and pathology reports.   These days everyone is a specialist.   That could be one reason for our current Health Care crisis, but I don't want to start an argument or discussion of that.  It becomes a team effort and each doctor should get all reports from the others.  

    For example, when my DH (dear husband) had triple bypass heart surgery, he had a Cardiologist and the surgery was done by a Cardio - Thorascic Surgeon.   I think you will find most gals here had a team of doctors, including Primary care doctor.  My primary has to order or refer everything for my insurance.   This way it is one round after another of doctor visits and all the tests involved - MUGA or echocardiogram (to check heart function), DEXA (to check bone density), CT scan, MRI, and blood work.   I never had a PET scan, but others have.   

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  • jcar
    jcar Member Posts: 3
    edited June 2010

    hi my name is jo i was told 22.12.09 i had breast cancer, i have er,pr and her 2 postive cancer i have

    invasive breast cancer my lump was under my arm so didnt loose breast  had 28 lymph glands removed 20 had cancer in them bugger, i have had 5 chemos nearly on my last one next week, then 52wks of hercepton, going to have zormeta every 6 mths, radiation for 7 wks them hormone treatment little bit stressed out not little bid stressed out big bit,  nice to here from someone with lymph gland involvement .

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  • meames
    meames Member Posts: 2
    edited June 2010

    I am new to all this, and don't have the full path report yet but . . .

    Know that I am er-/pr- and HER2 positive.  Had a lumpectomy/sentinal lode biospy on May 27th.  One lymph node positive for cancer.  More suregery on Monday in an attempt to obtain a clear margin and insert a port.   The lump was very close to my chest wall . . . surgeon aleady took tissue down to the pectoral muscle.  Appt. with onc. on June 14th.  Right now overwhelmed and scared . . . will be happier (I think) once I know the plan.

    Am 51, teach school (so at least I'm off in the summer), have a 12 year old and 10 year old daughter.  Very supportive husband, family, and friends. 

    Martha 

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