Anyone starting chemo in Aug. 08?

Hi Everyone,

It's a day to celebrate - it's our 30 year anniversary! I can't believe it! Flowers and candy just like year 1. Guess I made a good decision there with my husband selection!  

Jeannine, I know you'll feel better each day and I'm so glad.

Corinne, singing again! Wow - I would love to hear that!! Good for you!

Deanna, I loved it that you enjoyed this year's rodeo and certainly know how it feels compared to last year. Amazing change in my emotions, too -  this survival thing is great!

Misty, I'm still celebrating your good mammo. Will let yo know about mine soon.

Deen, thinking of out sunny river day as I put another log on the fire - yes, even in the desert! And please put your pretty picture up on avatar space - miss seeing you!

Hugs to all,

Gail 

I'm so happy to hear all the good mammograms and everyone recovering well from their surgeries.  Corrine - You should make sure your doctors know your reaction to the anesthesia.  It sounds like thay may have given you too much...you are such a tiny thing they should have scaled back the amount.

I'm also in the bisphosphonate clinical trial and am on the clodronate arm.  I saw my onc on Monday who just got back from the BC Symposium in San Antonio and he had nothing but postitves to say about it --- "It reduces recurrence by 30%".  I've been on it for a year now and am not having any SE's.

 30 YEARS for Gail!   Yeahhhhh!!!!  That's fantastic!  You don't look any older than that in your picture! 

Heard from Lisa.  She had expanders put in on the 8th. She is still in alot of pain and could use your prayers.

Jeannine is hanging in there. She is awaiting her path reports.

I also need prayers. The dr told me that I am doing too much and need to do nothing!!!!!!!!!!!!!!!!! We need to get the drains out. The more I do the more likely of infection. He was not happy that I was on the treadmil last night!!! I was hoping to rebuild my strength!! I am scared for the cancer to come back.

Hi Everyone,

Guess everyone's busy these days but I wanted to share the news - I'm also a member of the CLEAN MAMMO club - how wonderful to get a good report. They did a mammo on both sides and an ultra sound. Also bone density which is not back yet. I'm interested to see if my onc. suggests Zometa which she has for some of her other patients.

Also interested in what anyone on Arimidex is paying - I'm looking for cheaper drug plan and see the cost is all over the map. Appreciate any info on that.

A wonderful holiday week to you all - everyone is in my prayers,

Gail 

Congrats on everyones CLEAN MAMMOS!!!!!!! I love, love, love hearing that from all of my sisters!!!!! Just popped on here to wish all of my sisters a Merry Christmas & A Happy New Year!!!!!! I appreciate all of you and all the support you all have given me when I needed it!!!!!!!! Loves to all............................

Hello everyone,

Unfortunately I have very somber news..I am now Stage IV. I didn't read my report thoroughly until today. My tumor was very large (4 cms) and in the skeletal muscle. Dr. did state he got 98% out but that 2%.. I had 5 postive nodes in the left axilla and 2 in the right. No tumor in the left breast though and bc is localized but very aggressive like a brush fire.  I am in a daze and in shock. Surgeon ticked me off stating "Patient generated results" on Path report. Like this was my fault? They recommended lumpectomy prior to gene results. Not I.

There will definitely be more chemo and I believe the PARP trial would benefit me the most. Radiation too may be simultaneous. My Onc. is awaiting recommendation from UCLA Onc.

I can't bear to tell my family (especially my folks)..especially now.

Please keep me in prayers dear sisters. I'm in need of a miracle!

I so wanted to be part of the clear mammo club..

God Bless,

Jeannine

Jeannine,  You are being lifted up in my prayers as I type!  You know we are all here for you & will surround you in love & prayers!  Miracles do happen!  Yes, the Holidays are a hard time to tell your family, but I'm sure they will suspect something and would want to know.  Feel free to contact me anytime and I am happy to send you my number when ever you need someone to talk!  XOXOXOXOXO 

Jeannine, thinking about you at such a trying time.  You are such a strong woman.  I know how hard this must be to hear that news and then worry about telling your family.  I am going to hope that a MIRACLE will come your way.  You are loved by all of us.  Please let us be your sounding board for now.  You are always in my thoughts.

~Misty

Jeaninne, I hated hearing this news.  You have always had such a strong spirit, and that will get you through this now.  I am praying hard for you now and will continue to.  Please share this burden with your family, so that they can help you through it.  The PARP trials sound encouraging.

  I am wondering why your onc didn't discuss this thoroughly with you so that you would understand you path properly?  It is so important that he/she communicate well with you so that you can choose the best treatment possible.  I know you are tired of all this bull, but I know you are strong in faith.  Please keep us updated and let us help you any way we can.

Sending {{{HUGS}}}

Deen

Hi all, I hope you had a wonderful Christmas. I am not gaining since my surgery too rapidly!! I finally got the last drain out.  I am still quite uncomfortable and am hoping that week 4-5 will be a gain week for me/ I have not driven yet and the dr said that he I may have to wait a week or two.

Jeannine: You are loved and we are praying daily that the Lord who is the GREAT physician will do GREAT miracles in your life.

My computer had malware viruses and we just could not get them off. Guess what else I got for Christmas??? My new computer is now the fastest one in the house!! Thank you, Lord.

So happy to hear how many of you have had clean mammo's., I  am not getting one until I heal. Going to my onc on the 14th. I hope to be able to start the neratinib trial sometime after all my tests.

To all, I love you and hug each one of you from God and me!!

Alibug: I am so sorry about your Grandmother. I had my 2 which I love and miss dearly. I am happy you were able to spend precious time with her this Christmas. I will pray for you both too.

Thank you all for your beautiful prayers and sentiments.  I had a suprisingly great X-mas. I woke up X-mas eve, renewed, rejoiced and uplifted.  I have been feeling great ever since.  Incredible how the Lord works huh? Went back to work yesterday. I had a little debate with my surgeon yesterday to question him on that comment in my Path.  He didn't have that page but believes the RADS hurt my prognosis. I have to be thankful that they were able to remove my huge tumor. It could have been inoperable. I'm healing well. I also received a call from UCLA Dr. Very good chance I may get into the PARP trial. After further thought, both Dr. & I believe this is the best TX for me now. 2 - 1 odds that I'll receive the PARP drug. It's to start in a few weeks. (Probably right before  my b-day party but oh well)  I may also start RADS soon. Seeing Dr. tomorrow. I can't receive Carbo & Gem chemo or I'll be disqualified for trial. So let's hope for the best!

2010 is going to be a promising year for us all. I just know it!

Have a blessed week! God Bless.

Jeannine

Jeannin, I'm so glad you were able to be uplifted by the Holy Spirit and were able to enjoy the Christmas Season.  I am still praying that you receive His miracle.  God Bless!

Happy 2010 and it's also my 43rd birthday today..yes. I am so happy and blessed to celebrate another year (& wrinkle)  DH took me out for breakfast today and my great folks are taking me out to dinner. Too much food today but tomorrow back on track!

I have a busy week coming up. I find out tomorrow when PARP begins and meet with the RADS Dr. on Wed.  I'm feeling well, like my old self.  My hair is growing again but my eyelashes are gone. Last time I wore false eyelashes I was alergic to the glue.  Oh well..

I wish you all a great 2010. I thank each of you for your sisterhood and fellowship.

God Bless,

Hi everyone!  Hope you're all staying warm! 

Just wondering if anyone has any New Year resolutions?

DH and I are going to start trying to cook more at home and eating better.  I know my health depends on it greatly.  I'm looking at shelters for a dog that I can take so I can do more hiking.  I've been enjoying it, but I'd feel better if I had a companion with me for security.

Also this year DH and I are going to take some trips on the motorcycle, since I am feeling better and can do that now.  We'd like to see Big Bend and do some rough camping, see some more of our state,etc.

My grandbaby is due in April, and I'm going to be the best grandma I can be!:)  I'm so excited!

Corinne, Lisa, and Jeaninne, sending healing vibes your way!

Hope everyone has a great week,

Deen