Chemo side effects

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Hi all,

I've gone through 2 chemo treatments and 1st chemo I was sick with throwing up and diaherra for ten days.  Took lomotil everytime I had the diaherra and had to go in for hydration. Finally some relief after ten days.  This is a week after second chemo and symptoms are a little worse.  Biggest complaint besides the obvious is the discomfort in my GI track.  Hard to sleep, can't lay down without bloating pain, etc.  My questions is did anyone else have this much trouble with chemo.  Do you have any suggestions for me.  I'm taking taxotere,carboplatin and herceptin as chemo treatment with steriods and companzine with Admel (?) 3 day nauseu pills..Have taken Zofran with saline which helped for a short time but was sick that evening.  Tried BRAT diet,all bland stuff, popsicles.  I'm at my wit's end. 

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  • Laurie09
    Laurie09 Member Posts: 313
    edited December 2009

    Ativan (lorazepam) helped me with the nausea.  I took that with steroids and Emend (Aprepitant) for nausea and it took care of my side effects.  The Emend is expensive but I believe is supposed to be a bit more effective than zofran for some people.

    I didn't have diarrhea - I did have constipation from the anti-nausea medications...

    I hope you can find some relief. 

  • bf2009
    bf2009 Member Posts: 40
    edited December 2009

    I had BIG time constipation !!! and had to work so hard with my diet to fix the problem, which took weeks to get straightened out. I had never in my life had such constipation and I suffered with it miserably with all kinds of pain and issues realted to constipation.

    More side effects I had were fatigue so bad, my head was clouded and it was hard to think and for some reason my legs and feet hurt so badly I couldn't take a step off a curb without pain. The bottoms of my feet feeel like I ran 500 miles and so sore I can't put all my weight on them at times and had to resort to a cane to help me walk due to the pain in lower legs and feet. It has improved over the last week but still more than just discomfort, its painful and limits my mobility in a big way.

    My husband is not making things any better for me. He thinks I should feel sorry for him that his wofe ( me) has cancer. I guess the chores he now has are too much for him and he has told me he is thinking about leaving me.... I guess that is also a side effect of chemo as the fatigue and pain in my legs and feet has seriously changed my energy level.

    There was one day I was curled up in a ball in pain, could hardly think and just crying because of all the constipation pain, pain in legs and feet. I finally called the doctors office and they told me to take tylenol x stregth and xanax round the clock and I did, every 4 hours. After 24 hours I began to get some relief.

    At least I now know what to expect. They told me it was the shot AFTER chemo to help rebuild bone ( some shot with e.coli in it ) that was causing the bone/ joint pain. I plan to keep stocked up on xstength tylenol knowing that shot after chemo will do that.

    Other than that, I had terrible heart palpatations after the chemo and would easily get dizzy with any activity ( getting up to go to the bathroom) I could feel my heart beating as it was oviosly working hard. I saw stars a few times in getting up and generally the whole chemo trip was a bad experince for me. I just pray this tumor responds to the chemo because if it doesn't and I'm going through all this hell and pain for no reason ( tumor does not respond) , I'll sure be upset !!!

  • Brandi-33
    Brandi-33 Member Posts: 5
    edited December 2009

    Hi Shelly. hope this finds you doing better! I too am on the Taxotere, carboplatin, & Herceptin. My 1st treatment was horrific, however, my 2nd was better! I go in for my 3rd tomorrow (Mon, DEC 21st). after my 1st treatment and suffering for was over a week with the same symptoms you are having, I spoke with my oncologist, and believe it or not, he put me on Nexium (the little purple pill) and that just about cured the stomach problems! the carbolplatin I have learned, is VERY rough on some of our tummies!! On my 2nd treatment (after I started the nexium), I only had 1 bad day with the stomach..however, they told me to take mylanta extra strength at a double dose & it definitely helped! I hope u give this a try as it was a lifesaver for me. I, on the other hand, cannot get my nausea and fatigue under control! Phenergan & Zofran alternately every 3 hrs.. UGH! I pretty ,much sleep for 7 days.

  • casaredonda
    casaredonda Member Posts: 37
    edited December 2009

    Hello Ladies,

    I'm 2 years post chemo, taxotere, cystoxan and adriamycin.  I though the taxotere would be the end of me with severe intestinal inflammation, extreme pain, constipation added to chemo brain.  I had those symptoms one week after each infusion and could do nothing but sit in the bathroom and pray and cry.  I don't forget those days but Ativan helped, colace helped and the support of my partner.

    However, it's all behind me, I feel I can do anything I set my mind to do after enduring that treatment.  My oncologist said "this is the marine regimen" which was not too helpful as I'm not a marine.  Going through this treatment is a lonely, challenging and depressing experience but at the end, it's a testament to our courage and determination.

    To all of you in the middle of it, I send you a big hug.

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited December 2009

    I had severe abdominal spasms for about a week after each tx. I did a whole supplemental regimen - aloe juice (1 oz before ea meal), probiotics, digestive enzymes, magnesium as needed, L-glutamine, and probably other stuff I forgot. And it all really helped. (A nutritional D.O. helped me craft the regimen.) But after the 5th tx, I couldn't get to the otehr side of the spasms and the Onc gave me Bentyl which is anti spasmodic and INSTANTLY helped (well, within 15 min anyway).  Wish I had tried it sooner. It made a huge difference.

    PM me if you want more details re the alternative stuff.

    Good luck. It can be really uncomfortable, but you will get through it. I had my tx from April-August 09, and now it is starting to seem like a bad dream and the specifics are starting to fade. You WILL make it.

    Amy

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