Zometa

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited December 2009

    Thisisme - yah you! Happy you will be getting done today. I was happy to be your drug pusher!

    Anyhow, my nurse did it over 30 min at least, even though the prescription said 15. She even said "what are these doctors thinking. Of course that's too fast!" But I still got sick, so who knows. Hope you feel OK tomorrow.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    You can always ask for slowing down the IV if it helps you. The 15 minutes is a lower limit.







  • weety
    weety Member Posts: 1,163
    edited December 2009

    Dear Aug,

    Someone else either on this thread or the other zometa thread (roll call for bisphosphonates, or something like that) was also getting only 2 mg of the drug. Her doctors told her the same thing--that it was their protocol.  Search back in the previous pages or do an archive search if you want to find it.

  • Springtime
    Springtime Member Posts: 5,355
    edited December 2009

    I get 4mg. This is maddening, that they don't know what the heck they are doing! It's like we have to navigate all this on our own, and fight being our own advocates. Thank God for these boards. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Oh boy.... just got my first dose.  Nurse a bit flaky and we were chatting and most of the dose went in within 10 min before I noticed and slowed it down.  D%$#@!!I took 2 ibuprofens before she started and am hoping for the best.  She did say that she "had" to give it to me over 15 min as that was the prescription but that it was also a money saving venture from the drug companies as she is paid by the hour by them.

     BTW... I just looked at my drug bill....  I have taken, out of the hospital, ie not counting the chemos, $14,000 worth of drugs and supplies.  This is the neulasta, zometa, zoladex, emend, stemetil,foobie, bras, etc.  Wow, thank goodness for insurance.

    Oh well!

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear ThisIsMe,

    If you were in USA, I'd have said well geee the prices are inflated BECAUSE of the insurance!

  • Lauren3
    Lauren3 Member Posts: 289
    edited December 2009

    I have decided to do Zometa.  I'll be done with rads in a few weeks and my first infusion is scheduled for mid-January.  I'm interested in learning as much as I can about it before then.  There's a good chance my insurance is not going to cover this and it will be out of pocket.  I haven't had a chance to go back and read all 9 pages of posts here yet so this might have been discussed already but does anyone know how much each infusion costs?

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear Lauren,

    I have heard you can get it for approx $200 per infusion.

    Maybe you can sign up for SWOG 0307?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    My infusion cost was $5,200.00 and I only received 2mg.  They threw the rest of the 4mg vial away! Unbelievable!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited December 2009

    OMG, $5200!!! Mine was $600, which included the home nurse for the infusion.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Yep, $5,200.00.  The cost of living in America.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Just so I was clear - Zometa 4mg costs $200 when ordered from Canadian online pharmacies. I was told this by a doc who said she would not hesitate in ordering online if paying for herself.



  • Pure
    Pure Member Posts: 1,796
    edited December 2009

    $5200? omg I was told for me it would be $1200.00.

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    I pay $600 upfront for my Zometa infusion. I then fax my receipt to Novartis and they reimburse me $300. I have my 4th infusion in January.......cant believe I only have 2 left! January 2011 I'll be done...Surprised

      Im in Canada too.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear Lexis,

    Can you provide some details of Novartis' reimbursement program please?

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    I have Zometa/Novartis's phone number.

    Basically, they decide by your income. If you make under a certain amount per year, you qualify. I dont know what the cut off is though.

    I had to fax them my income tax T4 slip and my oncs referal for Zometa and they approved it pretty quickly.

    So, I pay upfront, $600.00. And fax them my receipt. They then mail me a check for reimbursing me half of the amount.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Lexis,

    Thanks a lot for sharing. $300 per dose from official channels is not bad. Can anyone who has gotten Zometa from online pharmacies confirm the $200 per dose estimate that I have heard but need to validate.

  • Husband11
    Husband11 Member Posts: 2,264
    edited December 2009

    $200 is a crazy low price.  I shopped around a bit and found it was $600-$800 per 4mg dose here in Canada.  $200 sounds fishy but who knows.  I'm not aware of a generic, which is where Canadian drugs are often a savings.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear Tim,

    Thanks for the info....

  • far_north_friend
    far_north_friend Member Posts: 6
    edited December 2009

    Everyminute - I am in the SWOG bisphosphonate study.  It was recently revised and instead of three options there are only 2 drugs.  So there would be a 50/50 chance that you would get Zometa on this study.  My sources have said that there is some data to support starting Zometa while on Taxol...I suppose there must be individual circumstances but perhaps you could call the study folks and ask the questions.  I know everyone hates to question there providers decisions, but if you don't advocate for you, who will?

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear Friend,

    My onco started me on the trial right after finishing with the AC doses and with the T doses.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    I seem to have spread some misinformation on pricing for bisphosphonate ordered from Canadian online cos.

    As others have mentioned, zometa 4mg would cost $650+ from Canada. 16 doses needed per the SWOG 0307 trial would cost a total of $10,400.

    Clodronate is however available for $200+ per month's supply. 36 month's supply needed per SWOG 0307 trial would cost a total of $7,200.

    This is just the cost of the drugs. Does not include doctor's visits, monitoring, testing etc. 

    Neither is cheap of course but for some this may be a viable option.

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited December 2009

    I took Zometa 4 mg IV for a total of 9 doses over 3 years.  The cost here in the US that was submitted to my insurance initially was $1800 per infusion when my chemo center was an independent medical facility.  This year my chemo center was incorporated into a major hospital and now they are charging my insurance $3600 per infusion.  Fortunately, my insurance covers 90% and I only have to pay 10% so what used to cost me $180 per infusion is now $360.  At least now I will be on annual infusions instead of every 3 - 6 months unless there is news from this year's SABCS that addresses taking Zometa for more than 3 years.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    unklez,   Maybe they are grossly overcharging at my onco's office, but I just looked on an ins claim and they are charging $2,240 for the zometa and that is not including the process of administering it which they break down , charge you for each little tube and IV, etc and that adds on $100s more.  I noted that the insurance is paying $850 so that must be allowed cost. 

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear Mary,

    The doctor's offices overcharge knowing that that is the only way to get whatever they can from the insurance.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    I will be seeing my onc on Dec 20 for followup after finishing  rads and to start Zometa infusions

  • Springtime
    Springtime Member Posts: 5,355
    edited December 2009

    LindaLou, so you got 3 treatments of Z over three years? I heard I was to get 2 treatments a year (4mg each), for 2 years, (so 4 total) for Osteopenia. 

    Was yours for Osteoperosis, or officially for the "can-suh" (as one of my friends, Kari, said in another post today!)

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear SpringTime,

    They are giving 16 doses of Zometa 4mg each over 3 years under SWOG 0307. They give 4 doses for Osteo.

  • Springtime
    Springtime Member Posts: 5,355
    edited December 2009

    SWOG 0307 is a study? or trial or what?

  • hrf
    hrf Member Posts: 3,225
    edited December 2009

    I paid over $700 Cdn for the Zometa. The drug company paid for the nurse to come over to my house to do the infusion and they reimbursed me 50% of the cost of the drug.  She was very nice. I'll get it 2x a year. Right now the government won't pay unless it's administered in a hospital and the hospital won't administer it because they have no budget for it. I was very surprised that my extended health care insurance wouldn't cover it at all but it's not part of the plan that my employer has.

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