3+ Year Survivor Stories PLEASE!

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  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009

    Hello

    Jenny....Good to hear from you. I know it is a club that NO ONE chose to be in, but we all are here with lots of love, support and I must say there is lots of great advice.....

    May God Bless Us All

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  • Jennyi1
    Jennyi1 Member Posts: 102
    edited August 2009

    Hello AngelsaboveSmile

    Thank you and yes, I love the support and warmth that comes from here and the advise is no less than terrificSmile.  Gentle hugs to all. 

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  • tibet
    tibet Member Posts: 545
    edited August 2009

    jqueensberry

    You rock. What was your treatment? We need to hear success stories! 

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  • Labgal
    Labgal Member Posts: 62
    edited August 2009

    My tumor was .9mm, big family history, did a SN biopsy and it was neg so no nodes removed

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited August 2009

    Hi sisters, almost 11 years!  Hoping for more.  Hugs and kisses to you all.

    Shirlann

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  • Meggy
    Meggy Member Posts: 530
    edited August 2009

    Brando, thank you for all your kind and very sage words.  I missed your post before and just read it.  Ladies all of you are so wonderful.  Thank you for all of your stories.

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  • Jennyi1
    Jennyi1 Member Posts: 102
    edited August 2009

     Hello again sister TN's

    Any more great and inspiring stories??? Bless each and everyone of usSmile

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  • angelsabove
    angelsabove Member Posts: 363
    edited October 2009

    bump

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  • Titan
    Titan Member Posts: 2,956
    edited October 2009

    Shirlann...I see your posts everywhere..you are my inspiration and give all of us TN's love..please don't quit posting...post until you are 90 years old..and we will be posting WITH YOU

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  • SoapMaker
    SoapMaker Member Posts: 157
    edited November 2009

    I will be 7.5 years out, in February. I was diagnosed in August, 2002 and had a poor prognosis, with positive nodes, large tumor, extensive angiolymphatic invasion, etc. I have been fine, with no recurrence, thank God. My daughter was diagnosed two years ago (TN) and is doing fine, so far. Sending you all many, many blessings.

     Where Is The Cure???Cry

    www.truefacesofbreastcancer.org

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  • cazza
    cazza Member Posts: 43
    edited November 2009

    I am 4 years and 3 months out.

    I had stage 1 1cm no nodes grade 3. Did 6 rounds of ac chemo and a mastectomy.

    I have had some scares over the years and sometimes feel a bit antsy but am dong well 

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  • tibet
    tibet Member Posts: 545
    edited November 2009

    hi Cazza

    Did you have any post chemo side effects or aches?

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  • ookii
    ookii Member Posts: 6
    edited November 2009

    I think they should be using tumor markers properly to catch cancer early, not relying on mammography only. But they don't. It's a shame, because they often report tumor markers are good predictors when they are used in combination (many markers used together) as well as immune activity testing. Does anyone use markers longer term to monitor their remission, other than just mammography?

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  • kmartin
    kmartin Member Posts: 78
    edited December 2009

    Hi Meg,

     More positive stories ~ my friend was 58 at time of dx, and is 5 years post dx. She had lumpectomy and same CT and RT as I did. No positive nodes, though.

    My aunt by marriage is also 5 yrs + from dx. She was 45 at time of dx, and had bilateral mastectomy. She had CT. No positive noded, but had 7cm tumor.

    Both are doing great, and I think of them often when I get worried.

    You and I have similar profiles...how are you doing now that you are 18 mo out??

     Kathy

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  • Gorilla12
    Gorilla12 Member Posts: 63
    edited December 2009

    Hi! Good news here - 4+ years out (looking toward 5!!!). TN 1.5cn. no node, AC, rads and surgery. I'm hoping to plan a trip to Hawaii next year to celebrate 5 years cancerfreeversary!!! Looking forward to finishing my master's degree, celebrating 30 yrs. married and seeing one child graduate college and one graduate high school in 2012!!!!

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  • AnnieMc
    AnnieMc Member Posts: 17
    edited December 2009

    Hi.  I am 5 + years out from stage 1 TN and 4 years out from a local recurrence of DCIS.  Have been NED ever since. I was 42 when I was diagnosed. BTW, I ran my first marathon two weeks ago.   

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  • defeatbc
    defeatbc Member Posts: 53
    edited December 2009

    I have much admiration for all of you!

    Keep the stories rolling in!

    I'm almost 2 years out and just can't wait to post my encouragement story here.   April 2, 2011 will be my 3 year.... I should have a countdown

    Hoa (defeatbc)

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  • tibet
    tibet Member Posts: 545
    edited December 2009

    bump

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  • Meggy
    Meggy Member Posts: 530
    edited December 2009

    Hi Kathy, we do have very similar everything...generally I feel very optimistic but sometimes I fall to a low, dark place.  I'm almost at two years and so are you.  I'll glad to be at 3 1/2 years which really isn't that far away.  Sometimes I daydream about the movie Click...where you could fast forward through life to avoid living through somthing.  I wouldn't really want that though...life really is good, I will be happier someday though when I feel my recurrance risk is firmly in the past.   

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  • yellow
    yellow Member Posts: 15
    edited December 2009

    Janet

    The survival rate doesnt change they give you that knowing the type of tumor you have. So if its stage 1 then you have pretty good chance of 92%. As far as the 5 year survival, I believe its because people relapse and the longer you live without the relapse the better the chances are for the cancer not coming back. Im 32 and just diagnosed with stage 3 triple negative bc. My dr. gave me 60%, and i say its a passing grade so Im happy. My husband says 60% works all the time. I dont think about the statistics all i think about is that dying is not an option. I have lost my son to cancer 3 years ago and will not let this thing to take me from my kids. I feel good just started my chemo. I do see a difference in the tumor size, i guess im responding well. So stay positive and be strong and know that dying is not an option!

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  • jodiel1
    jodiel1 Member Posts: 51
    edited December 2009

    hello just wondred where you find out the % for surival rates? not really sure about my mum`s stage as she never  asked, From what i can work out i think she is stage 2b, she had three lumps 1.8cm, 1.7cm and 0.5 cm which makes the total 4cm. Although on a letter she recieved it said all the lumps were the sizes i just put but it said the over all diameter of the disease was 5cm. So i take it this means including cells they found arond the lumps? her sentinal node was possitve but the rest were negative.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Any Stage IV 3+ years here, maybe?

    Thanks...

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  • kmartin
    kmartin Member Posts: 78
    edited December 2009

    Hi Meggy,

    You and I were dx just days apart...found my lump on 2/8/08....I recently met another woman who talked about being dx on Valentine's Day that year, the same day I had my dx mammo and sonogram. I told her that day I felt so alone, afraid and just plain freaked out! and here we were being dx at the same time...so were you. So the point is, no matter what we are going through...we are NEVER alone! Good days/Bad days, you are never alone! I will think of you and how you are feeling when I am low, and say a little prayer for you (a song Laughing).

    Kathy

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    delete

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited December 2009

    Hi, I'm newly diagnosed so I'll be on in three years with my survivor story!!  That said, I have a friend who was diagnosed with a 3cm triple negative tumor with positive nodes in 2001.  She was 29 at the time and now, eight years later, she's the healthy proud mother of two small children.

    Coincidentally, I saw her the other day when I was at my chemo orientation at the hospital as she was there having her annual MRI.  I wanted to share her story because she's been an inspiration for me and I thought would be for you to hear, too.

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  • Luah
    Luah Member Posts: 1,541
    edited December 2009

    Thanks for posting that Sugar77.  Your friend is my inspiration!!!

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  • tibet
    tibet Member Posts: 545
    edited December 2009

    Surgar 77

    Please tell us more about your friend. She is indeed an inspiration. Is she on this board too?

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited December 2009

    Hi, no my friend is not on this board that I'm aware.  I'll mention it to her through Facebook but since she's busy with her young family and her diagnosis was more than eight years ago, I'm not so sure she'll come on... but you never know!  

    I have another story, too. A lady a my work had an aggressive hormone negative 2cm tumor with node involvement, also eight years ago.  I don't know if her's was triple negative or ER/PR- Her2+ but I do know that she underwent chemotherapy and radiation and is the vision of health.  I was shocked when she came to me after she heard about my diagnosis because I had no idea she had been through this eight years before.  

    Sherri 

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  • Meggy
    Meggy Member Posts: 530
    edited December 2009

    Thank you Kathy!  I'll think of you too!

    Sherri, thanks for those stories.  It helps me to hear of the node possitive people doing so well.

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  • 5andcounting
    5andcounting Member Posts: 232
    edited December 2009

    I was just diagnosed in November and will start chemo on the 30th.

    My mother was diagnosed at 58, triple negative, is six years out now and doing very well.

    My friend was diagnosed at 35, triple negative, is eight years out and had a child after her chemotherapy!

    Many of us will beat this and we have to stay positive and share as much of the good stuff as possible. 

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