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  • Luah
    Luah Member Posts: 1,541
    edited December 2009

    Konakat: You raise an interesting issue. Neupogen/neulasta would be covered if administered in a clinical setting?  That peeves me.  I need the shots for my treatment, so I can't understand why OHIP doesn't cover my prescription.  Hubby's insurance covers only half, so I am going to be way out of pocket by the time I'm done.

    Edited to add:  Thanks Rinna, I'm going to look into that.

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    I'm just guessing that the neupogen/neulasta would be covered in a hospital.  I heard it's covered if you get a nurse to come to your home to do it.  I thought it might be a good work-around if I got it in the hospital.  I guess I'll find out everything tomorrow.  I'll post the interesting stuff, especially about free stuff!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited December 2009

    Luah, I agree that OHIP should cover and it would be much easier if administered in a clinical setting.  I have to have my Neulasta shot tomorrow after 4:00 p.m. (24 hours after today's chemo ended) and CCAC has still not confirmed which clinic I am to go to.  And, if they can't get a clinic time, then a nurse will come to my house.  So, I have to wait until they call me tomorrow with the details.  If I could simply show up to the hospital, it would be much easier and closer to my home. The two Mississauga CCAC offices are much further.  Oh well, I left today with my $2700 shot, which is in the fridge right now.  

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited December 2009

    Luah, I posted something at the beginning of this thread regarding neupogen (and this would go for neulasta too).  When I had my first tx, I was told that if my supplemental insurance didn't cover it, I would be given a "card" to take to the pharmacist and this "card" would make me eligible for coverage  I didn't need the "card" (my insurance did cover it).  I suggest you investigate this further with your onc or with Social Services at the Hospital or the CCAC.  If your onc says it's necessary, then it's part of your tx and you shouldn't have to pay out of pocket.

    BTW I had 12 neupogen shots between tx.  The visiting nurse taught my DH how to give them to me but if he hadn't been able to, she would have come every day to do it.  No way could I do it myself, major wuss that I amTongue out.

    Hugs, Linda

  • Luah
    Luah Member Posts: 1,541
    edited December 2009

    Sugar77:   Hope you're feeling well following your treatment. I'm on for tomorrow!  Had a "last supper" out with hubby.

    lindasa: Thanks for that. My onc's nurse said it wasn't covered under OHIP and I have since found a form I could have onc fill out as "individual clinical review."  Makes me wonder why that wasn't offered??! Anyway, the process you mentioned sounds a heck of a lot easier, so I will check on that tomorrow. It makes me realize how awful it would be to be worrying about the cost of every single procedure... on top of dealing with cancer.  So, good for our health care system, but obviously there are some gaps one needs to deal with on the pharma front.

  • lewing
    lewing Member Posts: 1,288
    edited December 2009

    Hey, I just found out I got censored on the "What (some) Americans Think" thread . . . at least I know I'm in good company.  In fact, I'm (sniff, sniff) *honoured*!

    Pretty sad, though, that it's acceptable to call a Democratic Senator from California a "b*tch* (without even giving a reason) but not to share unsavory details about the background of a n*tcase Republican Senator from Oklahoma.

    Linda

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited December 2009

    Man, you guys get so wrapped up in politics. I couldn't even tell you the mayor's name of my small city (150,000)!

  • covertanjou
    covertanjou Member Posts: 569
    edited December 2009

    Linda,

    That particular thread has degenerated into a hate-fest.  Some people are actually using WorldNetDaily as a source!  That site is at the forefront of the "birther" movement, and posits the view that the Obama administration is setting up concentration camps!!!   There is also a new strain of anti-semitism that is growing on the thread.  It is really hateful and exclusionary.  Some of the posters have made it pretty clear that they don't want any dissenting views; hence, you being censored.  It is unbelievable that it is allowed.

  • lewing
    lewing Member Posts: 1,288
    edited December 2009

    I know, Mary; that's why I left (although I couldn't resist a parting shot at the Distinguished Gentleman from Oklahoma, simply because the idea of this guy as a defender of women's health was so bizarre).  I like the fact that I got slammed because the story had been picked up by salon.com (though it was also well-reported in the NYT and elsewhere), whereas WorldNetDaily is treated as a credible source.

    Once upon a time, I would have said something about Windsor looking better all the time . . . but the fact is, things *are* changing in a hopeful direction on this side of the border.  I think that's what's making the Right act crazier and crazier.  (You guys are still way ahead of us on gay marriage, though!)

    Linda

    (Edited to add: apologies for injecting U.S. politics into this thread, but I wanted to vent a little.  Now, let's get back to wine, Scotch in the blood, and the ungodly cost of Neupogen/Neulasta!)

  • covertanjou
    covertanjou Member Posts: 569
    edited December 2009

    mmmmmm wine!  If you like cheese, you have to try brie with sundried tomatoes.  You bake the brie, and it is so yummy.  If anyone wants, I can give you the recipe.

  • lassie11
    lassie11 Member Posts: 1,500
    edited December 2009

    I didn't quite get censored there - just essentially told to leave. They only want Americans who are right wing, irrationally hate government and refuse any arguments or facts counter to their world view. Using the lunatic comments on any news site (including the Globe and Mail) as fodder for any argument is pretty weak. It's like "See, that person agrees with me so I must be right!" - but that person is . . .  well. . . .  inaccurate too. Did they never have to write an essay using reliable sources?  That sort of reasoning doesn't work in high school. In many ways it is quite disturbing.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited December 2009

    It was pretty obvious when the thread was started that it would soon turn into a partisan political thread. And that it would be used not just to help its participants to reinforce each other's opinions, but to try and persuade those of un-like mind to their way of thinking.

    I thought the moderators did not want any more political threads on this forum???

    As for cheese!   Well, I made a variation of Blundin's native cranberry sauce and it's actually delicious served with brie or chevre.  Here it is:

    1 cup cranberries (fresh or frozen)

    1 tbsp fresh grated ginger

    2 tsps fresh cracked black pepper

    1/2 cup liquid honey

    1/4 cup dry sherry

    Boil the cranberries in 1 cup water, and add the rest of the ingredients (along with a splash of salt to bring out the flavour). Simmer for about 10 minutes, or until most of the water has boiled down.

    Add the sherry and simmer some more.  Then smash with a potato masher until the concoction has the consistency of jam.Check for seasonings.  You may fiind you need to add more pepper.

    Cool it.  Lasts several weeks in the fridge and it's great served with roast chicken, or as an appetizer with soft cheeses.    Mmmmmm good!  (Oh, and with those cranberries, good for you too!!!)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Apropos Neulasta... A single shot of that costs around CAD 2,000. It was covered by our insurances but when I heard the number I jumped on my chair...

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited December 2009

    Costs about the same as neupogen which is $200/dose.  Neupogen comes in packets of 10, but if you were paying out of pocket, neupogen might be cheaper in that you wouldn't necessarily require 10 shots between each tx.

    Leprechaun -- good to see you again!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Thanks for the welcome, Linda. 

    Olga had only one shot of Neulasta, before the last chemo and they billed 2K... 80% of that were covered by her insurance and the one of mine covered the remainder.

    Take care,

    Yan.

  • Luah
    Luah Member Posts: 1,541
    edited December 2009

    Just returned from my first chemo treatment...  And found out through the "Victory" program (set up by drug manufacturer) that they will pick up my co-pay for Neulasta. Saving me about $1250 a round. Thank you!  

  • covertanjou
    covertanjou Member Posts: 569
    edited December 2009

    Wow! I can't believe how much that medication costs!  

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    This is a cross-post from the America vs other countries's healthcare:

    I just had a marvellous experience with my new onc today.  I get my first chemo this Friday (continuing with same cocktail as I had in Boston) and am getting a full body CT scan, MRI of my spine, and an ultrasound of my heart scheduled. Also on Friday I will see the social worker to get my disability set up and a home care card so all my meds will just cost a couple of dollars each.  I am thrilled!!!!  I am so impressed!!!!  So, from my new experience with cancer in Canada and my previous experience in the US, I can wholeheartedly say that it is a pile of BS that Canadian care is inferior.  I am so happy -- I just had a big chocolate celebration!!!

    I absolutely LOVE my new onc!!!!!

  • covertanjou
    covertanjou Member Posts: 569
    edited December 2009

    Elizabeth,

    Excellent news!  I am so glad you are happy with your new onc and doctors!  I know it must have been tough to change docs/hospitals, but it is great to learn that you will have great care here and be close to your family and friends.  

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited December 2009

    Elizabeth that is WONDERFUL!!! (I told you so...heheheheheh)

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    Yah, you told me so!!!  You still get to give me a kick in the pants when I meet you at the next Ontario get together.  I am just so blown away by the Ottawa Cancer Center -- very fancy schmancy with the renovations.  Did I mention how much I LOVE my onc?!?!  He lives near me too -- he says he's often walking his dogs in the neighbourhood and will no doubt run into him.  I am so happy!!!!!

  • rinna40
    rinna40 Member Posts: 357
    edited December 2009

    Elizabeth - thats great news. So glad that your are happy about your decision. It is wonderful that all the treatments and drugs for SE's are mostly taken care of. 

    Luah - glad that the victory thing worked out for you. Good luck as you start your chemo. 

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited December 2009

    I'm back!  At least until CensorFest kicks in.

    Elizabeth - Great news!!  Liking your oncologist is so important.  And how cool that he lives near you!  What chemo are you starting this week? 

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    I'll be continuing on Gemzar and Herceptin.  I've already had my Zometa for the month.  Since I've been doing so well on this chemo cocktail we'll keep with it to blast away my last (of 7) stubborn liver lesion -- the little b*stard has been hanging on for over 12 months!! 

    Yeah, the censoring has been crazy -- terrible.

    Edit to add:  I'm feeling quite happy and a bit smug how I didn't have to wait for treatment.  And getting the same treatment as in the US. Oh yeah, did I mention no co-pays? Wink

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited December 2009

    Jeez....can't they just scoop out the lesion and get rid of it forever??

    I'm not familiar with the drugs you're taking but hope you aren't having too many horrible side effects.   

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    I wish they could scoop it out!  The SEs are minimal.  No aches, no nausea.  It's actually very gentle.  The only SEs are low platelets and after being on it so long my liver's taking a beating.  But no biggie -- I feel fine!  There's quite a fan club here (some women here online) for Gemzar -a few of us are just lovin' it!

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited December 2009

    Wow...that sounds great, if chemo can ever be great!  Wondering if I can switch my taxotere for gemzar when nobody's looking....hmmm.....

  • pk0199
    pk0199 Member Posts: 586
    edited December 2009

    Great to hear Elizabeth.

    Barbe, I have forgotten, when do you get your results? 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited December 2009

    Ah, thanks for asking. Was supposed to be December 8th and they called to change it to the 19th, but I'm getting a brain CT on the 23rd so I said let's just wait until January! So I see him on the 5th.

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    So far your tests have been great Barbe -- I'm expecting the same for the others.  Your brain is certainly firing on all pistons so it will be fine. 

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