Lumpectomy vs unilateral vs bilateral mastectomy

Anonymous
Anonymous Member Posts: 1,376

I wonder if I could ask a dumb question here.  Is there any thought that with an invasive cancer, that if it is going to come back, that it is better to have a breast there to catch it, so to speak before it goes somewhere that is more difficult to deal with.  If that makes any sense?

I am just thinking about something the surgeon I met with here had said about mastectomy, and how if there is reoccurence after a mastectomy it then goes to the chest wall.

As you can see my mind is just racing with different thoughts and scenarios here.  I'm sure like most of you when you were at this stage.

Thanks Cathy

Comments

  • momand2kids
    momand2kids Member Posts: 1,508
    edited December 2009

    formy

    not a dumb question--I actually remember someone here referencing something just like that from dr. susan love's book--I don't know which one....I would think that your surgeon would know best--based on location, size etc..... 

    for me, the lump was just sort of sitting in my breast tissue-- it was very contained--the surgeon made a point of telling me that mastectomy was really not for me, unless I really had a reason for wanting it (ie making sure it never came back), but everyone I knew at that point who had had bc had had lumpectomies and they were all healthy and fine--then I found out that mastectomy does not prevent recurrence, so I was even more comfortable with my decision.  but, with all of that said, in the end, it is really YOU who has to decide--- if there is no medical reason for a mastectomy, but it would make you feel better, then listen to your gut.... I have D breasts, so taking out a 2+cm lump really made almost no difference--you cannot even tell... for someone with smaller breasts, it might have been a different decision.

     everyone has to come to this decision on their own.  My thinking was that my surgeon was not recommending it, nor were her oncologist or radiologist, my breast was large enough for a good cosmetic result and ultimately, for me, I thought that a mastectomy was too much treatment--- as it was I had chemo, radiation and AI's--- I think that is enough....probably more than enough....... 

    Keep us posted--never a dumb question!!!!

    carol 

  • rreynolds1
    rreynolds1 Member Posts: 450
    edited December 2009

    Hi Cathy,

    That's an interesting question.  I read a book called "Iodine and Breast Cancer" and the author said that breast cancer needs compatible connective tissue in order to metastisise.  He said sometimes it will show up in the breast again because it cannot find another area in the body to set up for growth.  I think that if the breast were gone and the other connective tissues were not welcoming then the cancer would just die off.  Yea!

    I still have my breast and am doing all I can to make my tissue unwelcoming to cancer.  Who knows.  We all do the best we can but at times it feels like a crap shoot.  I hate that lack of controll most of all!

    Roseann

  • sweatyspice
    sweatyspice Member Posts: 922
    edited December 2009

    What I think I know:  If there is a recurrence, it usually happens near the original site (so maybe there were cells left behind that rads didn't kill) - assuming we're talking about lumpectomy.  If we're talking about mastectomy, then it's all about removing as much breast tissue as possible so there's less likelihood of recurrence. 

    One of the breast surgeons that I spoke to (we were discussing reconstruction) said that he saw someone with a really unbelieveably beautiful reconstruction, but as it turned out it looked that perfect because the BS left a lot of tissue behind, which was now "filled with calcifications."  So, I basically got the takeway that leaving tissue behind is a almost encouraging a recurrence (BAD IDEA), not leaving a safe place behind to catch it (GOOD IDEA).

    So, probably worth a discussion with your BS.

    In the unlikely event that there IS a recurrence (something like a 2% chance, I think), it's usually in the mastectomy scar or in the chest wall.  So, I guess if your area of nasty is close to the chest wall, it's really a conversation worth having with your surgeon.  If it's not near the chest wall, it's probably not as much of an issue. 

    But I didn't go to med school, so......

  • karen1956
    karen1956 Member Posts: 6,503
    edited December 2009

    Lumpectomy was not an option for me as there was too much cancer in the breast...my only choice was single or bilat mastectomy....both surgeons I interviewed recommended (it was one of my questions for the surgeons, but they beat me to the punch!!) that I do a bilat....for me it was the right decision as the prophy side was pre-cancerous. Bilat was the right choice for me. 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2009

    The only reason I can see for someone to have a mastectomy if there is a small lump is paranoia or the inconvenience of having the radiation. Go with what the surgeon recommends. I was lucky to have large breasts and he seems to have done a good job. I have to have chemo/herceptin owing to the HER2 status even though the nodes were clear (followed by radiation etc). He did get good margins and it was only 1.2cm so why chop the whole lot off. My cousin in NZ had a local recurrence but I think that was due to not enough margins.

    I was/am concerned about the needle track from the core needle biopsy. I didn't want a biopsy done at all as if you stick a needle in cancer it makes sense to me that pulling the needle out will spread cancer cells. There is no proof this happens but we'll see if it comes back in the same area. I don't think a surgeon would have seen me if I had ultimately refused the biopsy. The one question the receptionist asked me when I tried to make the appt is 'What is your pathology'.

    My suggestion is do not panic and listen to what your doctor says.

  • Kleenex
    Kleenex Member Posts: 764
    edited December 2009

    This was my big quandary upon diagnosis - which surgery? With what appeared to be a smallish tumor (less than 1 & up to 2 cm) located above my left breast, the surgeons were open to whatever I wanted to do - they had no specific recommendation, which was very stressful. It was mind-boggling to think that with a small tumor it would be appropriate to lose both breasts, although I briefly considered that. I did interpret Dr. Love's book to imply that there might be some value to having some breast tissue so that you'd end up with a "recurrence" rather than mets. I also had never had any type of surgery, so the idea of starting small and then doing more if I needed to was a better way for me to begin the process. It also seemed a bit odd to me to lose my breasts when the tumor was sort of above one of them - didn't even really seem like breast tissue. And due to its proximity to the chest wall, margins weren't going to be large even with mastectomy, so I was going to have radiation no matter what... Chemo wasn't offered due to the oncotype test, regardless of what surgery I chose. I was slated to take Tamoxifen due to the hormone receptor positive status of my tumor, also regardless of the surgery I chose. 

    You can't put anything back once you take it out, and in the end I was happy to just be recovering from a lumpectomy rather than dealing with reconstruction. Lumps in breasts don't kill you - it's the spread that's dangerous, and I don't think I am more likely to have mets just because I still have breast tissue... I think if I had opted for the bilateral and reconstruction and it came back anyway, I'd be a lot more upset than if I have a recurrence after my lumpectomy...

    It is a personal decision. For some women, the follow-up scans are intolerably stressfull, and so in that case they would be better off having the bilateral. For me, it was better to start small...

  • JannaC
    JannaC Member Posts: 30
    edited December 2009

    Hello formykids,

    I don't think your question is dumb at all.  I have wondered about that, too.  I had a lumpectomy and  breast reduction (both breats) at the same time.  My breasts were a DD.  But, I did not get clear margins even with the reduction.  I thought the less breast tissue the less to worry about.  Dumb, I know.  It was a huge decision to go back in for a reincision instead of a masectomy.  But that's what I chose and my surgeon got a clear margin the second time. I had readiation but no chemo.  My oncotype was 19.  I'm now on Femara.  I had a new baseline mamo and US at 6 months.  Too much scar tissue to see much.  My next mamo on the breast with cancer is in March.  Will see if there has been a change.  Good luck.

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